I'm Back

[Guest guest]

Hope everyone had a joyous and blessed Christmas. My hope and prayer for 2010

is that the ongoing research into the causes of ILD will lead to a cure. For

each of you I wish relief and success in the battle in which we fight to breathe

every day.

I took a month's hiatus from reading the posts, because it was taking a lot of

time to read them (many duplicates) and I found myself becoming obsessed on how

I was feeling. My wife who has Alzheimer's Disease needs a lot of my attention

so I need to make good use of my time. With Christmas and all that entails on

top of the normal stuff I felt it best to just delete the posts.

Since my last post I've had a HRCT scan and PFT's. News is good. Everything is

stable..much like 6 months prior. I've successfully mastered a full face CPAP

mask, so sleeping is better. With all that good news wouldn't you think I'd feel

better? Weakness and fatigue are my two major complaints. My primary MD, a

smart and caring man, says my body is using a lot of energy trying to keep me

breathing, so I guess I need to learn to pace myself.

Thanks to all of you, especially Beth and Bruce, for the good info you've

shared.

It's been very helpful.

Peace,

Ted, 79, IL – IPF March 09

[Guest guest]

Hi Ted,

Merry Christmas and Happy New Year. I had to laugh as I have made my

self not look at the board on weekends because I too seem to get a tad

bite obsessive LOL. And I keep thinking if I get more rest or sleep or

something I won't be so tired. And to have a sick spouse makes it

doubly hard. Here's to feeling better and hopes for a cure!

Dyane Phoenix, IIP 02 NSIP 09 yadda yadda yadda

>

> Hope everyone had a joyous and blessed Christmas. My hope and prayer

for 2010 is that the ongoing research into the causes of ILD will lead

to a cure. For each of you I wish relief and success in the battle in

which we fight to breathe every day.

> I took a month's hiatus from reading the posts, because it was taking

a lot of time to read them (many duplicates) and I found myself becoming

obsessed on how I was feeling. My wife who has Alzheimer's Disease needs

a lot of my attention so I need to make good use of my time. With

Christmas and all that entails on top of the normal stuff I felt it best

to just delete the posts.

> Since my last post I've had a HRCT scan and PFT's. News is good.

Everything is stable..much like 6 months prior. I've successfully

mastered a full face CPAP mask, so sleeping is better. With all that

good news wouldn't you think I'd feel better? Weakness and fatigue are

my two major complaints. My primary MD, a smart and caring man, says

my body is using a lot of energy trying to keep me breathing, so I guess

I need to learn to pace myself.

> Thanks to all of you, especially Beth and Bruce, for the good

info you've shared.

> It's been very helpful.

> Peace,

> Ted, 79, IL – IPF March 09

>