updates

[Guest guest]

Hi,

perhaps I missed some correspondence. What is Cantron? I know - the system

we see flourishing around us is extremely frustrating and depressing! How

do we get enough organized in one spot to have an impact?

Sandy

----Original Message Follows----

From: Carol Bilz <CBilz@...>

Reply- onelist

" ' onelist' " < onelist>

Subject: RE: [ ] Updates

Date: Mon, 9 Aug 1999 12:14:18 -0500

From: Carol Bilz <CBilz@...>

Thanks, Ken, for the info on Dr. Hulda . I've read a lot about her

work. Probably cures some people. All the CURES seem to have miraculous

results and don't mention the unsuccessful cases. I really believe the

alternate cures are out there, but which one will work for a particular

individual???? Very difficult decision!!!!.

Another very hard thing. Carl and I get zero support from family and

friends re: alternatives. We don't mention nutritional therapy or

alternatives, or we'll receive either a condescending smile or warning

against getting " taken " . Well educated and well-informed caring people but

hard to take nevertheless. Even tho literally everyone we know who has

gone the chemo/radiation route is now deceased. except for 2 people. These

must be among the few that are helped or maybe they would have survived

anyway. The net is our only support. It is a relief to hear of people who

were cured w/alternates, but it's hard to say how many.

We've since increased Carl's intake of Green Powder and started Cantron. I

spoke with another gentlemen (a retired engineer) who became involved with

Cantron and studied a great deal about it. (His sister had pancreatic

cancer and was cured. He was NOT involved with selling it). Was on the

phone for 1 hour and he got very technical. Explained exactly how it worked

in the body. Vitamins and flaxseed oil can be taken but not in high

doses ( no selenium, no Essiac tea or high doses of Vitamin E). I also

spoke with another man who took Cantron for pancreatic cancer from 1988 -

1991. Says he's fine today, altho he now has diabetes. (He volunteered he

was married 46 yrs so I judged him to be about 70). Must have developed

pancreatic cancer in his late fifties or early sixties.

We have narrowed the choices down to Dr. 's treatment, Dr. Budwig's

and Cantron. Also I wouldn't rule out Essiac Tea. BUT, Can't do it all.

For the present, we're concentrating on NUTRITION, Green Powder, Cantron and

Shitake Mushrooms drops, juicing and enzymes. .

Also coffee enemas. This sounds very bizarre, but it's part of Dr.

' treatment plan (a dr from NY who treats pancreatic cancer patients

with nutrItion). Till the 70's coffee enemas were mentioned as part of

treatment in the manual from the well-known US pharmaceutical company Merck.

" Was dropped due to lack of space " My guess: it had ZERO potential for

generating HUGE PROFITS.

In the Northeast US, mainstream medicine is very respected should I say

revered and many of the large pharmaceutical companies are located in NJ

and promote heavily here. + The execs of Bristol Myers Squibb who've held

the patent on chemo for 30 years sit on the board of Sloan Kettering (a

world-renowned cancer center) across the river in NYC. They volunteer

their time, so it's not a " conflict of interest " . Don't have a respectable

or even a reasonable cure rate. No measurable progress in the last 30

years. But generate huge $$$.

Interestingly the Food and Drug Administration (government agency composed

in part of retired physicians) is lobbying and advertising on TV to ban

or severely limit the availability of herbs.......as they cannot monitor

quality. Also FDA wants to reduce the strength of vitamins or place a

PATENT on them. Yet they approved Phen Phen a weight reducing product,

which resulted in severe cardiac complications, etc. We're really

protected here. How many victims of vitamin overdose are admitted to

emergency rooms each year????

NOTE: The two drs who originally invented Cantron were severely harrassed

by the FDA as was the dr who discovered Laetrile.

Dr. Ralph Moss - formerly employed by Sloan Kettering. has an interesting

website http://www.acelink.com/mib/fp-guidelegislation.html

<http://www.acelink.com/mib/fp-guidelegislation.html>

Can Carl and I be " taken, hoodwinked " or whatever????? Absolutely, But,

even if we spend several hundred $$$ on a cure that does not work, it

wouldn't ruin us. I've been told Chemo does REDUCE Cantron's effectiveness.

but Cantron ENHANCES the benefits of radiation. The retired engineer told

me radiation has been improved so that it more accurately pinpoints the area

to be treated. I only hope he is right. Carl still chose this route,

but with nutrition therapy and complementary treatment. He's finished with

rad now. Chemo is just one injection per week..750 mg ..no drip bag.

Thanks for listening.

[ ] Updates

The latest information on Dr. Hulda herbs and zapper is available at

http://www..ch <http://www..ch>

---------------------------

[Guest guest]

In a message dated 8/9/99 1:22:58 PM Central Daylight Time,

CBilz@... writes:

<< From: Carol Bilz <CBilz@...>

Thanks, Ken, for the info on Dr. Hulda . I've read a lot about her

work. Probably cures some people. All the CURES seem to have miraculous

results and don't mention the unsuccessful cases. I really believe the

alternate cures are out there, but which one will work for a particular

individual???? Very difficult decision!!!!. >>

Carol,

Have you looked at Dr. Lorraine Day's web site? She is a medical doctor that

used and teaches the nutritional protocol. There is a woman here that used

this plus the eissac

tea and a few supplements that became cancer (breast) free in six weeks.

Wishing you much success,

Edith

[Guest guest]

Oops... forgot the url

www.drday.com

[Guest guest]

Thanks, Ken, for the info on Dr. Hulda . I've read a lot about her

work. Probably cures some people. All the CURES seem to have miraculous

results and don't mention the unsuccessful cases. I really believe the

alternate cures are out there, but which one will work for a particular

individual???? Very difficult decision!!!!.

Another very hard thing. Carl and I get zero support from family and

friends re: alternatives. We don't mention nutritional therapy or

alternatives, or we'll receive either a condescending smile or warning

against getting " taken " . Well educated and well-informed caring people but

hard to take nevertheless. Even tho literally everyone we know who has

gone the chemo/radiation route is now deceased. except for 2 people. These

must be among the few that are helped or maybe they would have survived

anyway. The net is our only support. It is a relief to hear of people who

were cured w/alternates, but it's hard to say how many.

We've since increased Carl's intake of Green Powder and started Cantron. I

spoke with another gentlemen (a retired engineer) who became involved with

Cantron and studied a great deal about it. (His sister had pancreatic

cancer and was cured. He was NOT involved with selling it). Was on the

phone for 1 hour and he got very technical. Explained exactly how it worked

in the body. Vitamins and flaxseed oil can be taken but not in high

doses ( no selenium, no Essiac tea or high doses of Vitamin E). I also

spoke with another man who took Cantron for pancreatic cancer from 1988 -

1991. Says he's fine today, altho he now has diabetes. (He volunteered he

was married 46 yrs so I judged him to be about 70). Must have developed

pancreatic cancer in his late fifties or early sixties.

We have narrowed the choices down to Dr. 's treatment, Dr. Budwig's

and Cantron. Also I wouldn't rule out Essiac Tea. BUT, Can't do it all.

For the present, we're concentrating on NUTRITION, Green Powder, Cantron and

Shitake Mushrooms drops, juicing and enzymes. .

Also coffee enemas. This sounds very bizarre, but it's part of Dr.

' treatment plan (a dr from NY who treats pancreatic cancer patients

with nutrItion). Till the 70's coffee enemas were mentioned as part of

treatment in the manual from the well-known US pharmaceutical company Merck.

" Was dropped due to lack of space " My guess: it had ZERO potential for

generating HUGE PROFITS.

In the Northeast US, mainstream medicine is very respected should I say

revered and many of the large pharmaceutical companies are located in NJ

and promote heavily here. + The execs of Bristol Myers Squibb who've held

the patent on chemo for 30 years sit on the board of Sloan Kettering (a

world-renowned cancer center) across the river in NYC. They volunteer

their time, so it's not a " conflict of interest " . Don't have a respectable

or even a reasonable cure rate. No measurable progress in the last 30

years. But generate huge $$$.

Interestingly the Food and Drug Administration (government agency composed

in part of retired physicians) is lobbying and advertising on TV to ban

or severely limit the availability of herbs.......as they cannot monitor

quality. Also FDA wants to reduce the strength of vitamins or place a

PATENT on them. Yet they approved Phen Phen a weight reducing product,

which resulted in severe cardiac complications, etc. We're really

protected here. How many victims of vitamin overdose are admitted to

emergency rooms each year????

NOTE: The two drs who originally invented Cantron were severely harrassed

by the FDA as was the dr who discovered Laetrile.

Dr. Ralph Moss - formerly employed by Sloan Kettering. has an interesting

website http://www.acelink.com/mib/fp-guidelegislation.html

<http://www.acelink.com/mib/fp-guidelegislation.html>

Can Carl and I be " taken, hoodwinked " or whatever????? Absolutely, But,

even if we spend several hundred $$$ on a cure that does not work, it

wouldn't ruin us. I've been told Chemo does REDUCE Cantron's effectiveness.

but Cantron ENHANCES the benefits of radiation. The retired engineer told

me radiation has been improved so that it more accurately pinpoints the area

to be treated. I only hope he is right. Carl still chose this route,

but with nutrition therapy and complementary treatment. He's finished with

rad now. Chemo is just one injection per week..750 mg ..no drip bag.

Thanks for listening.

[ ] Updates

The latest information on Dr. Hulda herbs and zapper is available at

http://www..ch <http://www..ch>

[Guest guest]

Impact against the AMA? What about some lawsuits on the level of the lawsuits

against the tobacco companies? Get some attorney's interested for mal-practice,

etc - we might make an impact.

Jerry

Keyes wrote:

> From: " Keyes " <sandra_keyes@...>

>

> Hi,

> perhaps I missed some correspondence. What is Cantron? I know - the system

> we see flourishing around us is extremely frustrating and depressing! How

> do we get enough organized in one spot to have an impact?

>

> Sandy

>

> ----Original Message Follows----

> From: Carol Bilz <CBilz@...>

> Reply- onelist

> " ' onelist' " < onelist>

> Subject: RE: [ ] Updates

> Date: Mon, 9 Aug 1999 12:14:18 -0500

>

> From: Carol Bilz <CBilz@...>

>

> Thanks, Ken, for the info on Dr. Hulda . I've read a lot about her

> work. Probably cures some people. All the CURES seem to have miraculous

> results and don't mention the unsuccessful cases. I really believe the

> alternate cures are out there, but which one will work for a particular

> individual???? Very difficult decision!!!!.

>

> Another very hard thing. Carl and I get zero support from family and

> friends re: alternatives. We don't mention nutritional therapy or

> alternatives, or we'll receive either a condescending smile or warning

> against getting " taken " . Well educated and well-informed caring people but

> hard to take nevertheless. Even tho literally everyone we know who has

> gone the chemo/radiation route is now deceased. except for 2 people. These

> must be among the few that are helped or maybe they would have survived

> anyway. The net is our only support. It is a relief to hear of people who

> were cured w/alternates, but it's hard to say how many.

>

> We've since increased Carl's intake of Green Powder and started Cantron. I

> spoke with another gentlemen (a retired engineer) who became involved with

> Cantron and studied a great deal about it. (His sister had pancreatic

> cancer and was cured. He was NOT involved with selling it). Was on the

> phone for 1 hour and he got very technical. Explained exactly how it worked

> in the body. Vitamins and flaxseed oil can be taken but not in high

> doses ( no selenium, no Essiac tea or high doses of Vitamin E). I also

> spoke with another man who took Cantron for pancreatic cancer from 1988 -

> 1991. Says he's fine today, altho he now has diabetes. (He volunteered he

> was married 46 yrs so I judged him to be about 70). Must have developed

> pancreatic cancer in his late fifties or early sixties.

>

> We have narrowed the choices down to Dr. 's treatment, Dr. Budwig's

> and Cantron. Also I wouldn't rule out Essiac Tea. BUT, Can't do it all.

> For the present, we're concentrating on NUTRITION, Green Powder, Cantron and

> Shitake Mushrooms drops, juicing and enzymes. .

>

> Also coffee enemas. This sounds very bizarre, but it's part of Dr.

> ' treatment plan (a dr from NY who treats pancreatic cancer patients

> with nutrItion). Till the 70's coffee enemas were mentioned as part of

> treatment in the manual from the well-known US pharmaceutical company Merck.

> " Was dropped due to lack of space " My guess: it had ZERO potential for

> generating HUGE PROFITS.

>

> In the Northeast US, mainstream medicine is very respected should I say

> revered and many of the large pharmaceutical companies are located in NJ

> and promote heavily here. + The execs of Bristol Myers Squibb who've held

> the patent on chemo for 30 years sit on the board of Sloan Kettering (a

> world-renowned cancer center) across the river in NYC. They volunteer

> their time, so it's not a " conflict of interest " . Don't have a respectable

> or even a reasonable cure rate. No measurable progress in the last 30

> years. But generate huge $$$.

>

> Interestingly the Food and Drug Administration (government agency composed

> in part of retired physicians) is lobbying and advertising on TV to ban

> or severely limit the availability of herbs.......as they cannot monitor

> quality. Also FDA wants to reduce the strength of vitamins or place a

> PATENT on them. Yet they approved Phen Phen a weight reducing product,

> which resulted in severe cardiac complications, etc. We're really

> protected here. How many victims of vitamin overdose are admitted to

> emergency rooms each year????

>

> NOTE: The two drs who originally invented Cantron were severely harrassed

> by the FDA as was the dr who discovered Laetrile.

> Dr. Ralph Moss - formerly employed by Sloan Kettering. has an interesting

> website http://www.acelink.com/mib/fp-guidelegislation.html

> <http://www.acelink.com/mib/fp-guidelegislation.html>

>

> Can Carl and I be " taken, hoodwinked " or whatever????? Absolutely, But,

> even if we spend several hundred $$$ on a cure that does not work, it

> wouldn't ruin us. I've been told Chemo does REDUCE Cantron's effectiveness.

> but Cantron ENHANCES the benefits of radiation. The retired engineer told

> me radiation has been improved so that it more accurately pinpoints the area

> to be treated. I only hope he is right. Carl still chose this route,

> but with nutrition therapy and complementary treatment. He's finished with

> rad now. Chemo is just one injection per week..750 mg ..no drip bag.

>

> Thanks for listening.

>

> [ ] Updates

>

> The latest information on Dr. Hulda herbs and zapper is available at

> http://www..ch <http://www..ch>

>

> ---------------------------

[Guest guest]

Cantron was invented in the 30's or 40's. Drs who invented it were

harrassed by officials. But it survived.

See website www.best.com/~handpen/Cancell/cancell.htm for a complete

history and research results.

Good to hear from you Jerry and . List has been quiet lately.

[ ] Updates

The latest information on Dr. Hulda herbs and zapper is available at

http://www..ch <http://www..ch>

---------------------------

[Guest guest]

Jerry: I'd like to join any kind of movement. After dealing firsthand

w/Oncologists and tightlipped drs, I'm convinced the American Public is

being dangerously misled. There are many lists on the net.

Just haven't had the time to join any others. Spent a lot of hours

researching. Keep in mind the average person is " sold " on

mainstream/traditional medicine and is afraid to venture into alternatives

and is TOLD it is dangerous when the opposite is true. It's so confusing.

I agree, but I can't just sit there and be told what to do when it's so

obvious that it's not working.

[ ] Updates

>

> The latest information on Dr. Hulda herbs and zapper is available at

> http://www..ch <http://www..ch>

>

> ---------------------------

[Guest guest]

Well said, Carol. As Dr. Wallach and Dr. Ma Lan wrote in " Lets Play

Doctor " in 1989, " You will want to educate yourself to benefits and limits

of alternative therapies.Using one system or medication for cancer therapy

is like limiting the United States defense system to ground forces. "

If you use a number of treatments at once, you won't know which individual

treatment would have worked but at least you had a great result and that is

all that matters.

I have some written testimonials but they can't be published in Australia

in newsletters, advertising or magazines because of the Therapeutic Goods

Act.

I am not selling anything or mentioning the name of any supplier. One

testimonial was from a man who had cancer of the colon which had spread to

the lymph nodes.After surgery and chemo , he had lost 66 pounds.After having

green barley powder mixed with ground brown rice and kelp,colloidal minerals

,Oxygen 8 liquid, papaw concentrate and shark cartilage, he regained the

lost weight and his blood counts were excellent. There was no sign of

cancer.His immune system was so good, he didn't catch a cold in winter.

Then , there are a 7 testimonials on a site which is selling something.

http://home.unicomp.net/~lschiele/bgproof.htm

Ken

[ ] Updates

>

>

>The latest information on Dr. Hulda herbs and zapper is available at

>http://www..ch <http://www..ch>

>

>

>

>---------------------------

[Guest guest]

Hi jim,

I hadnt thought about ziv joining the H & C list, but I will ask her what

she thinks. That's a very good idea!

Tom;s court dates are: Sept 21, 22, 30th and the biggie on Oct. 4. I am

very nervous and definatly validate tom's anxiety when we discuss the

process. I hope his lawyer knows what she's doing!

I missed , this time change is going to be difficult for me to

catch her - but I'll keep trying! How did she do?????

regards to ,

wendy, in canada

[Guest guest]

Thanks for the update . Did you know that Mueller has joined our

H & C mini-list. Perhaps it might be a good time for Ziv [if not, perhaps

to start some email with ].

How soon is Tom's court appearance. Though I remebered it was due soon.

Good Luck!

jim in san diego

[Guest guest]

Good Luck with the rest of what is going on.

Thanks for asking, did very well. Hope that you will be able to

catch her sometime soon. is settling in earlier this year, and is

keeping a good attitude.

jim in san diego

[Guest guest]

Hi :

Thanks for the update. Never Give Up was adopted by Steve and the rest of

us as our family motto and we are delighted to share it with you and all

the other families on the list. Sometimes that was all I could think of

when things were truly desperate. I would just tell Steve, " I will never

give up on you no matter what " . It must have sunk in with him as he wrote

a report about our family and it had lots of details and pictures, etc.

etc. and included the information that " Never Give Up " is our family motto!

I had to chuckle about the assessment of Tom. Please tell him he has

joined the honorable ranks of people like me who have been deemed

" Munchausen's-by-proxy syndrome parents " and other such horrors. He has

done the same as any bright kid being assessed in such circumstances, he

has set things up so they have to help him. Steve did something similar

here and got a score of being the most severely in need of the highest

level of mental health services in our state (by the same guy that wrote me

up as the Munchausen's by proxy mom!). Steve was off the wall and the

evaluator looked at him as if he was a spotted zebra! How this has helped

is that the State cannot refuse to provide his services or their evaluation

system looks very suspect.

Tell Tom from me,he has to try harder, somehow both times I met him he

failed to impress me as being a deeply disturbed individual. Unless of

course the experience of this evaluation was what deeply disturbed him! :-))

Just use this experience as grist for the mill when you keep focusing on

finding a doc that really knows their OCD and depression! I won't hold my

breath for Tom's behavior to improve substantially when instructed to stop

tormenting his father and sisters. That part is not OCD, nor depression

and needs to be treated in a way that does not include such preaching (my

2c and worth what you paid for it!).

We can't wait to hear your feedback on the BTI in New Orleans. Other than

Dr. Pollard, who will be your instructors? Surely then you will be equipped

to start your own OCD clinic in Ontario and service your kids and others

suffering with OCD.

BTW, listers in New Orleans I can give a tip top testimonial as a

congenial and civilized room mate. She knows how to live it up in posh

hotels!

Take care, aloha, Kathy (Ha)

kathyh@...

At 11:44 PM 09/14/1999 EDT, you wrote:

>From: " W. Birk " <wb4@...>

>

>Hello List!!

>

> Time for another update!! A comment the kids pdoc said today has stuck in

>my head. He told Tom: " Whenever I think that we've reached a dead end, your

>mother comes up with something new to try! Never Give Up is a good policy,

>try it!! "

>

> Following on that line, this is what I'm working on now! Tom and the

>family participated in an assessment for the local psych hospital. It was

>the only way for us to get the province to pay for his cbt. The 5 docs

>present reported to our regular pdoc and today we heard the results. They

>described Tom as a deeply disturbed individual (tom loves the words!). Our

>doctor assured them that tom is not psychotic, but was jerking their chains!

>Tom has ocd and depression and any other label is not productive at this

>time! OK, now what? He told tom to stop tormenting his father and

>sisters, and trying to be the person with the most ocd in the family!! His

>latest is convincing people that adi is bulimic - she's not.

>

> Adi is in a portable classroom which gives her the creaps! I have been

>trying to get her out of that homeroom for two weeks. Finally, I took her

>out of school yesturday. Today I faxed a letter from the doc, and from Dr.

>Jim Hatton in San Diego (who had responded to what adi had written on the

>teen list), had an email sent from the school social worker - and I will not

>bring adi back to that school until she has a new class! Hopefully tomorrow

>I will write of another success...? Adi doesn't need braces, which is good,

>but Ziv does - not so good!

>

> Ziv is doing fairly well. I am not looking at her room. She is trying

>hard in the rest of the house. She puts her dishes in the dishwasher, tries

>not to leave her things around and puts her lunch kit in the kitchen or she

>doesnt get a lunch the next day!

>

> Yigal is back to being overwhelmed, <sigh>!

>

> and now for me!! I have been asked by another agency to co-facilitate a

>male anger management group. I had applied for a position there but wasnt

>qualified, but obviously left an impression!! Its a foot in the door....

> AND - Oct 7 - 11/99 I will be in NEW ORLEANS. I will attend the cbt

>training for ocd (ERP) with the OCF, and have a bit of R & R too!hehehe

> Anyone who can make it - I would love to meet you!! We could have a

>mini-support group and some social time. PLEASE dont hesitate. I have my own

>room in a very posh hotel and invite any of you moms to stay over. Make a

>weekend of it! let me know, ok?

>

> So that's my latest.... keep you all posted.

>take care, wendy, in canada

>

>---------------------------

[Guest guest]

Hello again,

Adi was transfered to a new class this afternoon. She loves the teacher

(he's a genious and lets you ask lots of questions, she says) and there is

at least one 'hotty' (cute guy) in her class!! She will still need to be in

a portable classroom 4 classes a week, but she says that she will definatly

deal with it! She was so happy and prepared to do her work and get along...

she plans to be very nice around the previous teacher since she did not

really do anything wrong. Good policy!

A school called me today to help train a teacher in classroom management

and creative teaching. Its only for a few weeks, but I dont know if I have

the time. Problem is that I need the money! sure could use a lottery win

around now!

Take care everyone - wendy, in canada

[Guest guest]

Sandy I was just thinking about you! Good new about

the boys. They are growing like weeds already! It

seems like once they hit that 4lbs mark, they take off

like a shot!

Let me know who your ECI people are. Were they with

" Parent Infant Training Center " Thru Dallas Metrocare

Services?

I think they cover Lancaser as well! You'll have to

let me know who your therapists are and we can compare

notes!

Sleep, hmmm. That may take a while, but I'm sure it

will come back to you!

Hope you can qualify for WIC. We didn't use Neosure.

The hosp. gave me the formula to mix reg. formula to

24 calorie. Just as expensive tho, cuz you use more!

Talk to you soon!

Judi

--- A Weber <sandraw@...>

wrote:

> Hi to all,

>

> 1) Dear Bonnie, keep up the good thoughts. It is

> so hard to have to deal

> with hospitals, doctors and things that just aren't

> the norm. We are still

> dealing with a Brain Tumor after 7 months and my car

> is on auto-pilot for

> Children's hospital. We are praying for you and

> Nick.

>

> 2) Just went for our first " Regular " check-up with

> the pedi. is

> now 6lb4oz, is 5lb, and 4lb8oz.. All look

> really good. 's

> hernia is small and should only be day surgery. We

> will know for sure on

> Friday with the surgeon. Tomorrow we go to WIC.

> Hopefully we will be able

> to qualify so the formula bill will go down. All

> are on Neosure which must

> be the most expensive formula on earth. Early

> Childhood Intervention was

> here on Friday for basic paperwork so hopefully they

> will be back in contact

> with us this week for the observation phase of the

> boys.

>

> As a side note the Doctor was happy with the boys

> muscle tone. I just hope

> we can all keep up with them in a few years. Does

> anyone remember what

> sleep is?

>

> 3) Welcome Kelli! I have Triplets and 2 have

> Down's. so you are definitely

> in the right place.

>

> Sandy

> Mom to

> ,,Barry,Aimee,Robbie,,,

> (ds) &

> (ds)

>

>

>

__________________________________________________

[Guest guest]

Sandy, You are amazing! I hope the boys continue to do well. How are

all the other doing. I bet they love having these 3 lovely little

babies, so neat! Please don't forget to get some rest yourself,You are

one busy mom! Take care

Kelli....The old woman who lives in a shoe, she has so many kids,

they're doing her in! mom to , Greg, Twins...set A- April & Ash,

and set B- (ds) & Tyler (age 4).

[Guest guest]

Hi Sandy,

Glad to know everyone is now home! Enjoy those

babies! mom to Landon (Ds) and Ashton 22 months

-

junglemom9@... wrote:

> Hi to all,

> Sorry I have been out of the swing of things for so

> long. We are now 2 weeks

> out of the Hospital. was only on his vent for

> 4 1/2 days and for

> 7, but who is counting. I am still getting up in

> the middle of the night to

> listen to them breath. My best friend is the

> suction machine we rented with

> the insurance companies blessing.

>

> 2 days after getting out of the hospital, we were

> evaluated by ECI.

> has been turned down for being too normal. He is

> now close to 10 pounds.

> and are only being excepted because they

> have Downs. Both are

> ahead of the game. Their adjusted age at the time

> was 5 days old. According

> to the therapist " normal " down's kids walk at about

> 2 years and are early at

> 18months. Any comments?? most of my other kids

> walked at 9-11 months...

> just curious.

>

> To the new ladies in town, my name is Sandy, I live

> south of Dallas Texas. I

> have 9 children that range in age from 13 - 10

> weeks. I gave birth to

> triplets on Valentine's Day to boys. Boy A

> is fine. Boy B & Boy

> C are identical mono-amniotic twins with Down's

> it is a brave new world.

> We cry and laugh and love a lot on our boys.

> Welcome and you are in a

> wonderful place.

>

> Does anyone know anything about Talent/Modeling

> agencies that represent

> special kids? My MOST magazine mentions one in NY

> area, but curious about

> the South.

>

>

>

> Sandy mom to

>

(13),(12),Barry(10),Aimee(7),Robbie(5),(1),

>

> & ,(Ds), (Ds) 10 weeks

>

__________________________________________________

[Guest guest]

Hi Sandy!

There is an agency, but they aren't located down south

(I forget where they are located), Called " Beautiful

Faces " and they are a modeling agency for " differently

abled " children. They have a website (I can't think

of the name of it (probably something incredibly easy

like www.beautifulfaces.com, but I'm not sure.). I

have it at work and will send it to you if you'd like!

Judi

--- junglemom9@... wrote:

> Hi to all,

> Sorry I have been out of the swing of things for so

> long. We are now 2 weeks

> out of the Hospital. was only on his vent for

> 4 1/2 days and for

> 7, but who is counting. I am still getting up in

> the middle of the night to

> listen to them breath. My best friend is the

> suction machine we rented with

> the insurance companies blessing.

>

> 2 days after getting out of the hospital, we were

> evaluated by ECI.

> has been turned down for being too normal. He is

> now close to 10 pounds.

> and are only being excepted because they

> have Downs. Both are

> ahead of the game. Their adjusted age at the time

> was 5 days old. According

> to the therapist " normal " down's kids walk at about

> 2 years and are early at

> 18months. Any comments?? most of my other kids

> walked at 9-11 months...

> just curious.

>

> To the new ladies in town, my name is Sandy, I live

> south of Dallas Texas. I

> have 9 children that range in age from 13 - 10

> weeks. I gave birth to

> triplets on Valentine's Day to boys. Boy A

> is fine. Boy B & Boy

> C are identical mono-amniotic twins with Down's

> it is a brave new world.

> We cry and laugh and love a lot on our boys.

> Welcome and you are in a

> wonderful place.

>

> Does anyone know anything about Talent/Modeling

> agencies that represent

> special kids? My MOST magazine mentions one in NY

> area, but curious about

> the South.

>

>

>

> Sandy mom to

>

(13),(12),Barry(10),Aimee(7),Robbie(5),(1),

>

> & ,(Ds), (Ds) 10 weeks

>

__________________________________________________

[Guest guest]

I'd like it too Judi.

1 mom to Rudy (ds) & 13

[Guest guest]

Sandy wrote:

According

> > to the therapist " normal " down's kids walk at about

> > 2 years and are early at

> > 18months. Any comments?? most of my other kids

> > walked at 9-11 months...

> > just curious.

> >

Hi Sandy!! Glad to hear that the boys are doing well and are home (even

though I can imagine you would be checking them all night!)

Emma and Nicki (both with Ds) walked at 2. Emma 2 days before her 2nd

birthday and Nicki was 2 years and 5 months. I'm surprised that Nicki walked

before she was 3 considering her low muscle tone but with regular and

concentrated physio, she got there!! The physio was easy and wasn't at all

time consuming but just incorporated into the daily things we did with her

anyway, we handled her more efficiently.

Emma is now running like the wind and usually in a direction AWAY from me!

Gee that kid can run! Nicki walks like a drunken sailor and easy falls.

She tripped on a blade of grass yesterday! I'm going to get her into

swimming lessons to build up those muscles.

Carolyn

Mum to on, , Emma (Ds) 4 and Nicki (Ds) 3

[Guest guest]

Sandy: Sam and do nothing " usual " . I learned

very early on that they have their own time tables,

own agenda, and they don't always want to share it

with us!

They have done most everything " later " than what is

the norm for kids w/DS. I've always chalked this up to

their extreme prematurity.

The didn't sit up on their own until they were 18mos

old. went right into a " pull to stand " within

1 week of sitting independantly. Sam, my observant

child, was about 2 weeks behind him. Then they went

right in to cruise mode. By 22 mos. they were

standing independantly, w/o pulling up on anything,

and they were using push-toys to walk all over the

place with. They were also expert climbers by this

point. You could tell by watching them that their

bodies knew what to do to walk, but their brain hadn't

fully engaged to allow them to put it all together.

By 24-26 mos they were taking 1 step, followed by 2-3

steps then dropping down into a bear crawl and

" running " to where ever they wanted to get to. They

were a good 2 1/2 years old before they put it all

together and walked with out holding on to anything,

all the time, no bear crawl.

Now, your situation is very different. Your boys

weren't as preemie and didn't have all the

complications ours did. Plus, you have all that

wonderful stimulation at your house that my guys

didn't have, that's going to make a big difference on

their development. They are going to have lots of

great role models!

Judi

--- Carolyn Sykes <tcsykes@...> wrote:

> Sandy wrote:

>

> According

> > > to the therapist " normal " down's kids walk at

> about

> > > 2 years and are early at

> > > 18months. Any comments?? most of my other kids

> > > walked at 9-11 months...

> > > just curious.

> > >

>

> Hi Sandy!! Glad to hear that the boys are doing

> well and are home (even

> though I can imagine you would be checking them all

> night!)

>

> Emma and Nicki (both with Ds) walked at 2. Emma 2

> days before her 2nd

> birthday and Nicki was 2 years and 5 months. I'm

> surprised that Nicki walked

> before she was 3 considering her low muscle tone but

> with regular and

> concentrated physio, she got there!! The physio was

> easy and wasn't at all

> time consuming but just incorporated into the daily

> things we did with her

> anyway, we handled her more efficiently.

>

> Emma is now running like the wind and usually in a

> direction AWAY from me!

> Gee that kid can run! Nicki walks like a drunken

> sailor and easy falls.

> She tripped on a blade of grass yesterday! I'm

> going to get her into

> swimming lessons to build up those muscles.

>

> Carolyn

> Mum to on, , Emma (Ds) 4 and Nicki (Ds)

> 3

>

>

__________________________________________________

[Guest guest]

Sandy, Is good to hear the kids are doing good.

Mabel, mom to Carolina, Cristian, a-ds 13 months

>From: junglemom9@...

>Reply-Multiples-DSegroups

>Multiples-DSegroups

>Subject: Updates

>Date: Sun, 30 Apr 2000 23:09:54 EDT

>

>Hi to all,

>Sorry I have been out of the swing of things for so long. We are now 2

>weeks

>out of the Hospital. was only on his vent for 4 1/2 days and for

>7, but who is counting. I am still getting up in the middle of the night

>to

>listen to them breath. My best friend is the suction machine we rented

>with

>the insurance companies blessing.

>

>2 days after getting out of the hospital, we were evaluated by ECI.

>

>has been turned down for being too normal. He is now close to 10 pounds.

> and are only being excepted because they have Downs. Both are

>ahead of the game. Their adjusted age at the time was 5 days old.

>According

>to the therapist " normal " down's kids walk at about 2 years and are early

>at

>18months. Any comments?? most of my other kids walked at 9-11 months...

>just curious.

>

>To the new ladies in town, my name is Sandy, I live south of Dallas Texas.

>I

>have 9 children that range in age from 13 - 10 weeks. I gave birth to

>triplets on Valentine's Day to boys. Boy A is fine. Boy B &

>Boy

>C are identical mono-amniotic twins with Down's it is a brave new

>world.

> We cry and laugh and love a lot on our boys. Welcome and you are in a

>wonderful place.

>

>Does anyone know anything about Talent/Modeling agencies that represent

>special kids? My MOST magazine mentions one in NY area, but curious about

>the South.

>

>

>

>Sandy mom to

>(13),(12),Barry(10),Aimee(7),Robbie(5),(1),

> & ,(Ds), (Ds) 10 weeks

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Casey, good to hear about your kids too. I wish I could get to eat Fig

Newtons because they are so high in fat. She could use the calories. I've

tried the flavored ones with no luck as well. I would love to get rid of

's bottle, but we're not their yet. I would love for her to take off

walking on her own. She will grab your hands and literally pull you to get

to where she wants to go. She just isn't trying real hard to do it on her

own. We've been in this same mode since June and I just didn't think it

would take this long. I'm hoping by Thanksgiving. She's progressing, but

just sooooooo slooooowww.

Kay Tiernan- Mom to , , -ds-30 mos. old

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

I was just wondering... Has her PT suggested allowing to use a walker

? It might give her the support she needs while giving her the freedom she

craves. It might help strengthen all the right muscles until she finds she

doesn't need it anymore.

Just a random thought, mom to Annemieke (ds) and Arielle 25 months

[Guest guest]

Kay,

Hang in there with the walking thing. I know you'll love it when it happens, but the timing is never ours to choose. (What a drag!) How is 's weight doing? Is she gaining more like they would like? Hope all is well and people are enjoying a germ-free fall so far.

Casey, mom to (DS) and , 23mo.

[Guest guest]

We hope that every one of the pumpkins who are not doing well, start to

feeling better real soon. It is too bad that we have so many that are sick

right now during the holidays.

I knew we were about to go bad again because Cassie's peak flows had started

dropping again. Sure enough, she has gotten into a " spell " again. We are

back on oral steroids and bumped the Advair dose up and doing treatments

every 3 hours. I think she has caught a nasty old bug again.

Prayers to all the families for a joyous holiday season. May God bless you

all.

Belinda Rose,

Mom to Allyssa (9) and Cassie (7), igg immunodeficient, asthma, chronic

sinusitis, IVIG for 5 years now.

[Guest guest]

We hope that every one of the pumpkins who are not doing well, start to

feeling better real soon. It is too bad that we have so many that are sick

right now during the holidays.

I knew we were about to go bad again because Cassie's peak flows had started

dropping again. Sure enough, she has gotten into a " spell " again. We are

back on oral steroids and bumped the Advair dose up and doing treatments

every 3 hours. I think she has caught a nasty old bug again.

Prayers to all the families for a joyous holiday season. May God bless you

all.

Belinda Rose,

Mom to Allyssa (9) and Cassie (7), igg immunodeficient, asthma, chronic

sinusitis, IVIG for 5 years now.