updates

[Guest guest]

In a message dated 6/12/2008 3:24:48 P.M. Eastern Daylight Time,

stills_stinks@... writes:

a frog is in the mouth of a bird yet the frog has the bird by the throat and

is trying to strangle the bird that caption is never give up . for us with

stills how true is that because if we give up no one will fight for us so

never ever give up and keep at it .

just substitute " dragon " for " frog " and that's me!!!!

Thanks Marty.

Carole in Hollywood FL

**************Vote for your city's best dining and nightlife. City's Best

2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)

[Guest guest]

 I have had trouble getting into see docs a lot I have also had to change

doctors to many times . all I can tell you is never give up keep trying keep at

it but get in and be seen . It is about the only way I can see to really find

out whats going on and get any thing for real relief so keep fighting keep at it

never let up. reminds me of a cartoon I saw . a frog is in the mouth of a bird

yet the frog has the bird by the throat and is trying to strangle the bird that

caption is never give up . for us with stills how true is that because if we

give up no one will fight for us so never ever give up and keep at it .

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

[Guest guest]

 I have had trouble getting into see docs a lot I have also had to change

doctors to many times . all I can tell you is never give up keep trying keep at

it but get in and be seen . It is about the only way I can see to really find

out whats going on and get any thing for real relief so keep fighting keep at it

never let up. reminds me of a cartoon I saw . a frog is in the mouth of a bird

yet the frog has the bird by the throat and is trying to strangle the bird that

caption is never give up . for us with stills how true is that because if we

give up no one will fight for us so never ever give up and keep at it .

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

[Guest guest]

THANKS FOR THE INFO I WILL TRY AND SEE HOW IT GOES

>

>

>

> Send a letter to the doctor asking him or her is you can start

some kind of

> massage therapy..Not sure of Insurance but some companys do pay

for part of

> it. You can also massage your arms and legs if the doctor says

yes. You can

> use lotion and see if this helps..stroke toward the heart ...ask

first ask

> ask and give MD either your address or phone number, they will

get back to

> you...I am annoyed how difficult it is in contacting doctors.

They act like they

> did not get call...so write..receipt requested..ha hha ha or

that kind of

> mail they have to sign for..they;ll get back to you

>

> that's my plan

>

> hugs

> Liz

>

>

>

>

>

> **************Vote for your city's best dining and nightlife.

City's Best

> 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)

>

>

>

[Guest guest]

Heidi - I hear your doctor frustration! I made a page for just those

special " moments " at

http://www.fms-help.com/doctors.htm

About anxiety, I take lorazepam (ativan). It's helped me for years.

I don't take much and don't abuse it, but it helps a whole lot.

Dom

>

> Well my husbands SMA leading off his abdominal Aorta is a dissection

> tear that is incidental. which is good.

>

[Guest guest]

Thanks for the update Holly Good to hear from you again

From: hollyjane11 <hollyjane11@...>bird mites Sent: Thu, October 8, 2009 4:39:09 PMSubject: Updates

I havent been on in a while due to limited access to internet,but wanted to update all on my progress. Im about 99%free! I accomplished this by using ivermectin orally (12mg) every three days.(No bad side effects at all!) It kills everything on me! I have had such good results with it. I also spray my environment with orange guard with an atomizer. It has made life much more liveable. I am also still using the New Hope 2 soap as well, which is a life saver. I still struggle with laundry as i can only wash in cold water. I want to try Bioclean. Any good reports from that? Also my dad beat them by shaving his head,and using blue star ointment (camphor) for spot treating, and i was simultaneously spraying with Orange guard. He never used ivermectin, but did use NH2 soap a few times, but he only had it for a few weeks.Good Luck to everybody! I will be back to provide more detail soon when i get regular internet. One more tip is to use clear

(satin) polyurethane spray on porous materials.. for example car seats, mattresses, wood, possibilities are endless. It makes less porous so less able to infest. It has been a long hard fight, but it is worth every penny and effort!Will be in touch soon.Holly

__________________________________________________

[Guest guest]

Hi Holly

Clear polyurathane spray, what a good idea. I keep looking at the seams in my

leather seats in my car thinking ... what do I do . I have been using epsom 1

cup & 48 oz of water daily & a 20lb C02 tank at least 2 times per month , it

works . But, the seams make me wonder , I will spray them , thanks , I love

smooth glossy , or semi glossy ( satin ) surfaces , they are so easy to manage

........

I want a tile house with a drain.

God bless you, Bill

Ps the arm & hammer powdered laundry soap no dye & no bleach is amazing at

killing this bug. It clears up the most stubborn spots on the skin .

I use it 1 cup per gallon in a sprayer over epsom spray that has dried so the

arm & hammer powder residue washes off easy.

In the tub 1 cup per bath for 30 mins. It is way stronger than it seems. It

contains proatease enzymes, & sodium carbonate .

Sodium carbonate is used to remove labels on wine bottles when re-bottleing. I

wonder if as it eats the glue on labels , it eats the shell of eggs. It might. I

soak my airmatress un-inflated in a cooler in the tub & it kills al of them.

Then I re- inflate with a hair dryer in 90 seconds, place on a wet mopped borax

floor & sleep in 100% buglesness. I never get bit while I sleep, I used to get

bit very badly

..

Keep the faith , He is Love,

Bill

hollyjane11 wrote:

>  

> I havent been on in a while due to limited access to

internet,but wanted to update all on my progress. Im about 99%free! I

accomplished this by using ivermectin orally (12mg) every three days.(No bad

side effects at all!) It kills everything on me! I have had such good results

with it. I also spray my environment with orange guard with an atomizer. It has

made life much more liveable. I am also still using the New Hope 2 soap as well,

which is a life saver. I still struggle with laundry as i can only wash in cold

water. I want to try Bioclean. Any good reports from that?

> Also my dad beat them by shaving his head,and using blue star ointment

(camphor) for spot treating, and i was simultaneously spraying with Orange

guard. He never used ivermectin, but did use NH2 soap a few times, but he only

had it for a few weeks.

> Good Luck to everybody! I will be back to provide more detail soon when i get

regular internet.

> One more tip is to use clear (satin) polyurethane spray on porous materials..

for example car seats, mattresses, wood, possibilities are endless. It makes

less porous so less able to infest. It has been a long hard fight, but it is

worth every penny and effort!

> Will be in touch soon.

> Holly

>

[Guest guest]

Yes Bill! The polyurethane spray works well. It has endless uses and is

virtually undetectable, even on cloth seats! Just dont breathe it in. You can

also use hairspray, but i like the polyurethane better, and the satin one isnt

glossy. ITs more matte, so blends in well. Thanks for all of the info.

Holly

> >  

> > I havent been on in a while due to limited access to

internet,but wanted to update all on my progress. Im about 99%free! I

accomplished this by using ivermectin orally (12mg) every three days.(No bad

side effects at all!) It kills everything on me! I have had such good results

with it. I also spray my environment with orange guard with an atomizer. It has

made life much more liveable. I am also still using the New Hope 2 soap as well,

which is a life saver. I still struggle with laundry as i can only wash in cold

water. I want to try Bioclean. Any good reports from that?

> > Also my dad beat them by shaving his head,and using blue star ointment

(camphor) for spot treating, and i was simultaneously spraying with Orange

guard. He never used ivermectin, but did use NH2 soap a few times, but he only

had it for a few weeks.

> > Good Luck to everybody! I will be back to provide more detail soon when i

get regular internet.

> > One more tip is to use clear (satin) polyurethane spray on porous

materials.. for example car seats, mattresses, wood, possibilities are endless.

It makes less porous so less able to infest. It has been a long hard fight, but

it is worth every penny and effort!

> > Will be in touch soon.

> > Holly

> >

>

[Guest guest]

You have 2 fun, active kids, Gail! All of us ladies are forever trying to cover our boobs and our bladders : )Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Gail <patsmum2000@...>nov98moms ; infantile scoliosis treatment ; Congenital

<CongenitalScoliosisSupport >Sent: Sun, April 25, 2010 1:11:46 PMSubject: updates

has his GREEN BELT now!! Whoo Hoo!

And in other news, is disgusted that her dad doesn't want her to wear her jazz/hip hop dance costume for her recital (it resembles a "Jasmine" type outfit) After all, as she put it

"DAD! My boobs and my bladder are covered!"

Gail

"The Earth is the insane asylum for the rest of universe"

“Normal is just a setting on the washing machine.†-BumperSnickerz. ************ ********* ********* ********* ********* ********* ********* **Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05; Spitz Nevus removal: 11/26/07 & 2/11/08; VEPTR Expansions: 11/05, 04/20/06, 6/12/08 and 8/14/09 and EARLY SUMMER 2010;

[Guest guest]

Gail

I saw the picture on FB. It looked perfectly fine to me. It isn't any different than any other recital outfit I have seen in the past. Your is so witty.. just like her mom.

Great job too.

Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX

From: Gail <patsmum2000@...>nov98moms ; infantile scoliosis treatment ; Congenital <CongenitalScoliosisSupport >Sent: Sun, April 25, 2010 3:11:46 PMSubject: updates

has his GREEN BELT now!! Whoo Hoo!

And in other news, is disgusted that her dad doesn't want her to wear her jazz/hip hop dance costume for her recital (it resembles a "Jasmine" type outfit) After all, as she put it

"DAD! My boobs and my bladder are covered!"

Gail

"The Earth is the insane asylum for the rest of universe"

“Normal is just a setting on the washing machine.†-BumperSnickerz. ************ ********* ********* ********* ********* ********* ********* **Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05; Spitz Nevus removal: 11/26/07 & 2/11/08; VEPTR Expansions: 11/05, 04/20/06, 6/12/08 and 8/14/09 and EARLY SUMMER 2010;

[Guest guest]

I know - I think the whole thing is hilarious!!

Her dance center works very hard to be age appropriate when it comes to costumes and dances. They were even recently recognized for that at a dance competition that the dance team participated in! Kudos to 's Dance Center!! So many centers are not!!

Gail

"The Earth is the insane asylum for the rest of universe"

“Normal is just a setting on the washing machine.†-BumperSnickerz. ********************************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05; Spitz Nevus removal: 11/26/07 & 2/11/08; VEPTR Expansions: 11/05, 04/20/06, 6/12/08 and 8/14/09 and EARLY SUMMER 2010;

From: Joan Vallee <hayro1611@...>Subject: Re: updatesinfantile scoliosis treatment Date: Sunday, April 25, 2010, 8:13 PM

Gail

I saw the picture on FB. It looked perfectly fine to me. It isn't any different than any other recital outfit I have seen in the past. Your is so witty.. just like her mom.

Great job too.

Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX

From: Gail <patsmum2000>nov98moms@grou ps.com; infantile scoliosis treatment @groups. com; Congenital <CongenitalScoliosis Support@gro ups.com>Sent: Sun, April 25, 2010 3:11:46 PMSubject: [infantile_scoliosi s] updates

has his GREEN BELT now!! Whoo Hoo!

And in other news, is disgusted that her dad doesn't want her to wear her jazz/hip hop dance costume for her recital (it resembles a "Jasmine" type outfit) After all, as she put it

"DAD! My boobs and my bladder are covered!"

Gail

"The Earth is the insane asylum for the rest of universe"

“Normal is just a setting on the washing machine.†-BumperSnickerz. ************ ********* ********* ********* ********* ********* ********* **Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05; Spitz Nevus removal: 11/26/07 & 2/11/08; VEPTR Expansions: 11/05, 04/20/06, 6/12/08 and 8/14/09 and EARLY SUMMER 2010;

[Guest guest]

1mm growth but no change at this appointment. Bummed. Pray we have improvement next month. Only shaved a tiny part off her sideburn.