Reality

[Guest guest]

Okay. I woke up at 5:30 a.m. with one thought in my head.

My son has Silver Syndrome. I haven't been able to say it

and truly believe it until now. I have no idea why my mind decided

to accept it at 5:30 in the morning. I raced into my sleeping son's

room after getting a bottle from the fridge and held him in my

arms. Looking at his beautiful face I reminded myself how lucky we

are that he's here at all. I know that there are far worse things

than Silver. I know that Brockton can still live a full and

happy life. I know that we have been blessed with this child. I

just wish I knew what to expect from this!

I took Brockton to be wieghed 2 days ago. He still hasn't reached

16 lbs. Yesterday I logged his wieght into his baby book. He's been

15 pounds and however many ounces for over 2 months now. Until this

morning it hadn't really hit me. My son has Silver Syndrome.

I don't think it would be affecting me so much if we had a Dr. that

took it seriously. They diagnosed him and sent us on our way

without even explaining what it is! It was almost like they were

telling us that he has a hangnail. DAMN IT! I want them to take it

seriously! This is my son! This is the child that, despite all

odds, MADE IT! He deserves to be paid attention to!

How do I become proactive on my sons behalf when there are no

professionals around here for me to DEMAND that my son not be swept

under the rug? We haven't got money. We don't even have a decent

vehicle to drive out to NYC to see Dr. Harbison even if we could get

an appt. to see her.

I want to SCREAM AT THE TOP OF MY LUNGS until I can't scream

anymore. Even though it's not the worst thing in the world.......I

am overwhelmed with sadness this morning. My son has Silver

Syndrome.