Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Judy, I may have missed some of your emails, as I am having problems receiving the daily digests. is still on GH. He is on the maximum dose he can be on at this point. Unfortunately, he hasn't been growing too well, but Dr. H just started him on another medication in hopes to boost his growth. Forgive me if you have already told me this, but what is an orthopedic doctor who asked you to stop? If so, how familiar is he/she with RSS? 's orthopedic doctor knows about RSS, but per Dr. H's recommendation, I am taking him back to see another doctor who specializes only in spinal disorders to get some more opinions about the progression of his kyphosis/scoliosis. In your case, I don't think a few weeks on or off GH will hurt Jack, so whatever you decide to do will probably be ok in the meantime. Feel free to ask any other questions you have. Kim C. On Feb 2, 2006, at 10:51 AM, RSS-Support wrote: > Message: 12 > Date: Thu, 02 Feb 2006 12:40:39 -0000 > > Subject: Message for Kimc: Re Scoliosis/ghr > > Sorry Kim,1 more question-Has your son been taken off the growth > hormone at all because of the scoliosis and /or kyphosis? As Jack has > been on it continuously since he was 2,I feel abit apprehensive now > I've been told to stop it until we've seen the specialist. I realize a > few weeks shouldn't hurt but if its a long time I find that quite > worrying. > Dr Stanhope said some kids keep on growing quite well even when they > come off of it. > Thanks > Judy. Quote Link to comment Share on other sites More sharing options...
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