Pulmo appt / New Diagnosis

[Guest guest]

Had first pulmo appt since preliminary diagnosis from hospital stay in Nov 09.

I am a patient at University of South Carolina, a teaching hospital and have

been satisfied so far with care and interest in my health. I originally was

diagnosed with ILD with fibrosis. Today doctor re diagnosed me with NSIP still

with some uncertainty because CT not showing much fibrosis but more

inflammation. Contrary to biopsy which is showing fibrosis and inflammation.

The samples from the biopsy are being sent out for a 2nd opinion to AZ. Dr also

upped my Imuran to 100 mg and lowered prednisone to 40 mg, also added NAC 1800

mg per day.

Disability determination has also been put on hold. Medical Examiner says that

SS guidelines has to wait 3 months of rx regimen to see if i get better?? I

tried to explain that fibrosis is irreversable. Dr said he would comment on

todays report on probability and explanation of my current condition.. SS is

frustrating me.

Any and all feedback is appreciated.

Tejeda

ILD 11/09

NSIP 01/10 ???

36 / SC