Do most doctors approve of NAC? my reply when in Thalidomide study.

[Guest guest]

When I enrolled in the s-Hopkins Thalidomide study, last April,

I was instucted to take NAC. I take six 600 mg., daily.

spec

> >> > >

> >> > >

> >> > >>From: Soulliere <johnsbatik@ ...>

> >> > >>Subject: Another question

> >> > >>To: Breathe-Support@ yahoogroups. com

> >> > >>Date: Friday, October 2, 2009, 11:55 AM

> >> > >>

> >> > >>

> >> > >>My pulmoDR has put me on 40mg of predisone a day...that's two 20's

> >> > >>Do you think that's too  much??

> >> > >> 

> >> > >>

> >> > >>

> >> > >>

> >> > >>

> >> > >><FONT face= " comic sans ms " color=#40007f size=3> Soulliere & nbsp;

<IMG src= " http:// us.i1. .yimg.com/ us.yimg.com/ i/mesg/tsmileys2

/50.gif " ></FONT>

> >> > >>

> >> > >>

> >> > >>

> >> > >>

> >> > >>

> >> > ____________ _________ _________ __

> >> > From: JOE & JOANIE LAMENSKIE jjskie@

> >> > >>To: " Breathe-Support@ yahoogrou " <Breathe-Support@ yahoogroups. com>;

Breathe-SupportCare givers@yahoogrou ps.com

> >> > >>Sent: Thursday, October 1, 2009 9:51:39 PM

> >> > >>Subject: Fw: Keep Momentum Growing for PF Bill - Call

Congress Now

> >> > ! >>

> >> > >> 

> >> > >>

> >> > >>

> >> > >>

> >> > >>-- Keep Momentum Growing for PF Bill - Call Congress Now

> >> > >>

> >> > >>

> >> > >> 

> >> > >>

> >> > >>Dear Joe:

> >> > >> 

> >> > >>We are pleased to inform you the CPF's National Pulmonary Fibrosis

Awareness Week was ahuge success!  More than 12 Members of Congress signed on

to the Pulmonary Fibrosis Research Enhancement Act (H.R. 1079) during and after

PF Week bringing the total number of co-sponsors to 52, as of today.   And the

momentum is growing!  We need your help now to add even more members to the

bill! We need 100 Members on the bill to help it reach the floor of Congress.

 Please call or email your Member of Congress now!  Click here to send a note

quickly and easily through our automated system:http: //cpf.convio. net/site/

Advocacy? pagename= homepage & id= 129

> >> > >>Your hard work has brought us great success - we urgently need for you

to take action once again to get us closer to our goal!  Passing a bill in

Congress requires persistence and patience and we hope you will be with us for

the long run.  For today, we need for you to check to see if your Representative

is a co-sponsor and either thank them, if so, or directly request that they

co-sponsor H.R. 1079. If you've called them before and they are still not on the

bill, please call again. Find out if your member is a co-sponsor by clicking

this link:  Co-sponsors of HR 1079, Sept. 29, 2009 update

> >> > >>Success on Capitol Hill! 

> >> > >>CPF CEO Mishka Michon (cen! ter) sta nds between PF Champions, Rep.

Mike Castle and Rep. Baird, surrounded by National PF Awareness Week

Advocates

> >> > >>During PF Week, determined advocates for action on PF, including

patients and family members like you, held 60 meetings on Capitol Hill..  For

the second year, advocates focused on securing support for passage of H.R. 1079

and continuing to raise awareness of PF issues to Members of Congress and in

communities nationwide.  The majority of the Capitol Hill meetings took place

with Members who serve on the Energy & Commerce committee and on the Energy &

Commerce subcommittee on health.  The Energy & Commerce committee is the

committee of jurisdiction for the PFREA. 

> >> > >>The CPF and advocates also met with our champions, Congressman

Baird (D-WA) and Congressman Mike Castle (R-DE) who introduced H.R. 1079.  They

stressed the bipartisan nature of the historic legislation that would authorize

$16 million in new federal funding to create the first national patient registry

for PF, and provide much needed support for research into the deadly lung

disease.. And they thanked you, our CPF membership, for driving the success of

the bill!   Both Congressmen have lost members of their families to PF..

> >> > >>Please help us build on the momentum created by PF Week -- Call or

email your Member of Congress now! http://cpf.convio. net/site/ Advocacy?

pagename= homepage & id= 129 

> >> > >>Thank you for your important support of H.R. 1079!

> >> > >>Sincerely,

> >> > >>Mishka Michon, CPF CEO

> >> > >> 

> >> > >>  

> >> > >>  Coalition for Pulmonary Fibrosis

> >> > >>Suite F, #227

> >> > >>1659 Branham Lane

> >> > >>San , CA 95118-5226

> >> > >>

> >> > >>info@coalitionfor pf .org  

> >> > >>

> > & g! t; > >>

> >> > >>forward to a friend | unsubscribe | http://cpf.convio. net/site/

R?i=dt-iO3KxWm78 Q-m4VLJPuw. .

> >> > >> 

> >> > >>

> >> > >>

> >> > >

> >> > >

> >> >

> >>

> >

>

[Guest guest]

My doctors both when I lived in NY and here at Duke in NC approve of and suggest taking NAC. 600mg three times a day is the dose I hear of most often.

In addition to helping break up thick mucous making it easier to cough up and out it is a powerful anti-oxidant. According to my doctor it is thought that it might possibly help minimize some of the side effects of prednisone and the immune suppressing drugs we sometimes have to take.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tue, February 2, 2010 5:53:47 PMSubject: Do most doctors approve of NAC? my reply when in Thalidomide study.

When I enrolled in the s-Hopkins Thalidomide study, last April,I was instucted to take NAC. I take six 600 mg., daily.spec> >> > >> >> > >> >> > >>From: Soulliere <johnsbatik@ ...>> >> > >>Subject: Another question> >> > >>To: Breathe-Support@ yahoogroups. com> >> > >>Date: Friday, October 2, 2009, 11:55 AM> >> > >>> >> > >>> >> > >>My pulmoDR has put me on 40mg of predisone a day...that's two 20's> >> > >>Do you think that's too much??> >> > >> > >> > >>> >> > >>> >> > >>> >> > >>> >> > >><FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1. .yimg.com/ us.yimg.com/

i/mesg/tsmileys2 /50.gif"></FONT>> >> > >>> >> > >>> >> > >>> >> > >>> >> > >>> >> > ____________ _________ _________ __> >> > From: JOE & JOANIE LAMENSKIE jjskie@> >> > >>To: "Breathe-Support@ yahoogrou" <Breathe-Support@ yahoogroups. com>; Breathe-SupportCare givers@yahoogrou ps.com> >> > >>Sent: Thursday, October 1, 2009 9:51:39 PM> >> > >>Subject: Fw: Keep Momentum Growing for PF Bill - Call Congress Now> >> > ! >> > >> > >> > >> > >>> >> > >>> >> > >>> >> > >>-- Keep Momentum Growing for PF Bill - Call Congress Now> >> > >>> >> > >> > >> > >> > >> > >>> >> > >>Dear Joe: > >> > >> > >> > >>We are pleased to inform you the CPF's National Pulmonary Fibrosis Awareness Week was ahuge success! More than 12 Members of Congress signed on to the Pulmonary Fibrosis Research Enhancement Act (H.R. 1079) during and after PF Week bringing the total number of co-sponsors to 52, as of today. And the momentum is growing! We need your help now to add even more members to the bill! We need 100 Members on the bill to help it reach the floor of

Congress. Please call or email your Member of Congress now! Click here to send a note quickly and easily through our automated system:http: //cpf.convio. net/site/ Advocacy? pagename= homepage & id= 129 > >> > >>Your hard work has brought us great success - we urgently need for you to take action once again to get us closer to our goal! Passing a bill in Congress requires persistence and patience and we hope you will be with us for the long run. For today, we need for you to check to see if your Representative is a co-sponsor and either thank them, if so, or directly request that they co-sponsor H.R. 1079. If you've called them before and they are still not on the bill, please call again. Find out if your member is a co-sponsor by clicking this link: Co-sponsors of HR 1079, Sept. 29, 2009 update> >> > >>Success on Capitol Hill! > >> > >>CPF CEO Mishka

Michon (cen! ter) sta nds between PF Champions, Rep. Mike Castle and Rep. Baird, surrounded by National PF Awareness Week Advocates > >> > >>During PF Week, determined advocates for action on PF, including patients and family members like you, held 60 meetings on Capitol Hill.. For the second year, advocates focused on securing support for passage of H.R. 1079 and continuing to raise awareness of PF issues to Members of Congress and in communities nationwide. The majority of the Capitol Hill meetings took place with Members who serve on the Energy & Commerce committee and on the Energy & Commerce subcommittee on health. The Energy & Commerce committee is the committee of jurisdiction for the PFREA. > >> > >>The CPF and advocates also met with our champions, Congressman Baird (D-WA) and Congressman Mike Castle (R-DE) who introduced H.R. 1079. They stressed

the bipartisan nature of the historic legislation that would authorize $16 million in new federal funding to create the first national patient registry for PF, and provide much needed support for research into the deadly lung disease.. And they thanked you, our CPF membership, for driving the success of the bill! Both Congressmen have lost members of their families to PF..> >> > >>Please help us build on the momentum created by PF Week -- Call or email your Member of Congress now! http://cpf.convio. net/site/ Advocacy? pagename= homepage & id= 129 > >> > >>Thank you for your important support of H.R. 1079!> >> > >>Sincerely, > >> > >>Mishka Michon, CPF CEO> >> > >> > >> > >> > >> > >>

Coalition for Pulmonary Fibrosis> >> > >>Suite F, #227> >> > >>1659 Branham Lane> >> > >>San , CA 95118-5226> >> > >>> >> > >>info@coalitionfor pf .org > >> > >>> > & g! t; > >>> >> > >>forward to a friend | unsubscribe | http://cpf.convio. net/site/ R?i=dt-iO3KxWm78 Q-m4VLJPuw. . > >> > >> > >> > >> > >> > >> > >> > >> >> > >> >> >> >>> >>