Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 I faxed over a three-page memo to my PCP before going to my appointment this morning. In it I: 1. told her all the strange little things that are happening (hair falling out, muscle cramps, etc.) 2. outlined what I learned from the celiac class I went to with Dr. Aron (celiac specialist of 32 years) 3. listed all the "iceberg" conditions that are signs of celiac and whether my family has those conditions 4. asked for more testing and a referral to Dr. Aron I am thrilled to say that she ended up ordering many blood tests and will try to refer me to Dr. Aron. If the insurance won't allow it (he's in another physician's group) we will work from there. As an interesting note - I had low platelets while pregnant, which led to an emergency transfusion after labor because I hemorhaged, and my doctor said this was an auto-immune problem. So she is thinking I'm celiac as well. Glad to have her on board! I had second thoughts about all the testing because, of course, it means I will have to go back on gluten for a month. But I have decided it's worth it to know for sure. But I would love to hear any input you have. Here are the tests she ordered: Comp. Metabolic (anyone know what this is?) B12/Folic Acid Iron/TIBC TSH (M/care req ABN) CBC (w/ auto diff) Serum innune electrophoresis HLA-DQ8 test HLA-DQ2 test IgA antigliadin af (what is "af"?) TgG antigliadin af IgA - anti-T2 (Transglutanidase) gliadin antibody Anti-endomysial af Serum vitamin A level Serum vitamin B level Take care everyone! Trudy in CA Quote Link to comment Share on other sites More sharing options...
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