Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 My son, age 8,diagnosed with Crohn's in July having had symptoms for 9 months started SCD about 5 weeks ago. After 4 days, I saw big improvements. The dizziness/headachy feeling was gone. The low grade fever was gone, the joint pain was improving, the cramping was fewer and less intense. Rarely had diarrhea, thankfully. So, 3 1/2 weeks into the diet, he goes into a severe joint pain flare up, with fever and fatigue. It started after beginning physical therapy so I thought it was a result of the PT. But now the cramping seems a little worse and he is getting the dizziness, fatigue, moodiness & irritable, still having pretty bad joint pain, although a little better than a week ago. He had some loose stools, I think a result of some grapes which we " tried " obviously too early. I haven't introduced many new foods. He was doing well early on, and I was so hopeful. Does anyone know if this is a " flare " or if it is possibly die-off. How long could the die-off last. Yesterday, we saw an integrative pediatric GI who thankfully was very supportive of the diet and thinks it may be die-off, but he is not completely knowledgeable about SCD and didn't see what was wrong with probiotic with bifidus. He recommended some homeopathic remedies from Boiron, fish oil (which I am not sure if it is legal brand), and probiotics (which has the bifidus), to get started. Just wondering what the die-off entails. I thought die-off occurred only the first few days. Could it be occurring after 4-5 weeks? -Yvette, Luke's mom. Quote Link to comment Share on other sites More sharing options...
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