Re: Digest Number 253

[Guest guest]

Dear :

Make sure you have something for nausea, both as a pill and as a

suppsoitory, take 2 ibuprofens every 4 hours during the day and 2 before

going to bed, you should have something for sleeping, and just in case,

claim dibbs on he bathroom. Drink a lot of fluids, if possible something

like gatorade, or at least water, and eat some crackers if you don't

feel like anything else to have something in your stomach. The only

other two things I can think of is to have some benadryl, (over the

counter is 25mg and you can take two to four for itching or a rash,

every 4-6 hours), and possibly something for pain. You are always better

off taking the premeds for the first couple of times, then not having

them at all.

Also you got away cheap. Usually the combo kit costs $ 1,500.00 per

month. You probably do not have any extra needles with the pen, so, if

needed, ask the pharmacist to get some of the needles they use in the

insulin pens.

Hopefully you won't need any of these, but if you do, you have them

[Guest guest]

Dear :

Make sure you have something for nausea, both as a pill and as a

suppsoitory, take 2 ibuprofens every 4 hours during the day and 2 before

going to bed, you should have something for sleeping, and just in case,

claim dibbs on he bathroom. Drink a lot of fluids, if possible something

like gatorade, or at least water, and eat some crackers if you don't

feel like anything else to have something in your stomach. The only

other two things I can think of is to have some benadryl, (over the

counter is 25mg and you can take two to four for itching or a rash,

every 4-6 hours), and possibly something for pain. You are always better

off taking the premeds for the first couple of times, then not having

them at all.

Also you got away cheap. Usually the combo kit costs $ 1,500.00 per

month. You probably do not have any extra needles with the pen, so, if

needed, ask the pharmacist to get some of the needles they use in the

insulin pens.

Hopefully you won't need any of these, but if you do, you have them

[Guest guest]

Be thankful for anyone who is allowed more than one kit at a time. Our

insurance company would only allow 1 kit per 2 weeks, and it was a pain

having to drive to the pharmacy every 2 weeks. There are different combo

kits, which usually vary in the amount of ribaviran in the kit. At first

they only gave 1 pen with enough to inject 3 million units for 6 doses,

and 6 needles. Also, it included alcohol wipes and enough ribaviran

pills for someone to take 6, 200 mg pills a day. Only lately, have they

began to cut back on the ribaviran to meet the doses a person can

tolerate as a prepackaged kit. Many pharmacists who are not aware of

HCV, or are not treating many patients, do not realize they can get

different kits unless they look it up. Marty

[Guest guest]

Be thankful for anyone who is allowed more than one kit at a time. Our

insurance company would only allow 1 kit per 2 weeks, and it was a pain

having to drive to the pharmacy every 2 weeks. There are different combo

kits, which usually vary in the amount of ribaviran in the kit. At first

they only gave 1 pen with enough to inject 3 million units for 6 doses,

and 6 needles. Also, it included alcohol wipes and enough ribaviran

pills for someone to take 6, 200 mg pills a day. Only lately, have they

began to cut back on the ribaviran to meet the doses a person can

tolerate as a prepackaged kit. Many pharmacists who are not aware of

HCV, or are not treating many patients, do not realize they can get

different kits unless they look it up. Marty

[Guest guest]

Dear :

In patients with liver problems, in the past mostly from alcohol

abuse, the itching was described by people as little bugs crawling just

under the skin, and was nick named " creapy crawly syndrome " . Many times

using atarax helps these symptoms, and if needed, lactolose which will

lower the amonia build up as well as help in any constipation. Marty

[Guest guest]

boy that sucks! I get 3 kits at a time, for $15

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

Hi Dawn, Welcome back to Sydney !

Yes we must be near neighbours, I am in Strathfield. I will write to you

privately as well, and all you need

do is hit the ole reply button when you see my private email. At any rate, if i

dont manage to catch you first

click on new message and copy and paste this addy in there: ccdream@...

and away you go.

Be great to catch up over a cuppa later on down the track.

Say, about your CT scan, they thought pretty much the same with me, (thinking

there was

a growth on the optic nerve or whatever to make my eyes as proposis as they

are).

They did inject the dye, and i went thru it, but had some comps later but came

thru that ok too.

Guess I am not as vocal as I should be, but hey that was 5 years ago and then i

wasnt in the know

as i am now in terms of where we are with fab supportive lists like this.

Catch ya later, Dawn.

>

>

> Message: 2

> Date: Tue, 16 Jan 2001 11:09:58 -0000

> From: " dawn rose " <getdawnrose@...>

> Subject: (unknown)

>

> Hey Ersilla,

> I'm not sure I got your email regarding your endo. I am afraid I am a bit

> befuddled though so it's possible it did come through but I didn't see it or

> am not remembering - BUT I AM BACK IN SYDNEY. Nice to hear from you. I'm

> living in Newtown.. I think we are neighbours - aha, no it is the fact that

> you go to an endo in Camperdown that makes me think that... so I did get

> your email. Would you mind writing and letting me know the details again...

> How do I write privately to you - we should swap sydney hyper stories!!

>

> TO EVERYONE: I just wanted to warn/rewarn everyone about the contrast dye

> that they give you if you are having CT scans. I have been sent for a CT

> scan because of my odd vision problems where I lose vision on one side but

> in both eyes - I guess they want to see if anything is pressing on the optic

> nerve, it is to " rule out anything nasty " . But they couldn't scan for the

> kind of detail they wanted to do without the iodine based contrast dye.

> Fortunately the doctor understood that there was a problem and rang my endo.

> who confirmed I am still too toxic to have iodine injected into my veins!!!

>

> I think I will always refuse to have this injection even if my blood levels

> become normal... I strongly believe the CT scan with contrast dye that I had

> in March last year was a contributing factor to my diagnosis as hyper T with

> Graves, in June. They warned me that I might get a nasty taste in my mouth

> when they gave me the injection, but I got a rush of hotness in my throat

> which felt like my gullet was swelling and closing up. They said that was

> normal, anyone know if it is???

>

> Elaine and , is it the case that this type of injection is enough to

> trigger hyperT???

>

> Welcome to the new (er!) people. I havent' had time to write as much as I

> am on a plonky old computer with a dodgy video card or in cafes for my net

> time. Please read the archives if you get a chance... they really helped me

> and I believe, gave me a shot at healing wholistically rather than having my

> thyroid removed by surgery, or DESTROYED by Radioactive Iodine Treatment.

> They are options for years downt the track, I want to try everything else

> first and for me, the pill are working just fine.

>

> DAWN

>

[Guest guest]

Re: Quitting Smoking

Way to go! I quit years ago and took up eating carrots & celery. I also

keep a pen in my mouth when I need that fix. Good luck to you!

re: cookbooks

>What are *your* favorite cookbooks that you're using now on your weight loss

plan? What are your favorite recipe web sites?

I like the Broadway book that came with my kit. My favorites are The

Enchanted Broccoli Forest by Mollie Katzen and Cooking the whole Foods Way by

Pirillo. Katzen's is vegetarian & Pirillo's is Macrobiotic.

Cooking Light puts out fabulous cookbooks and special editions filled with

their most popular recipes. http://www.cookinglight.com

re: Sue

Thanks for getting back to me about Sansone. Blockbuster doesn't have

the greatest selection of exercise videos, but they try. :-) My next vid

search is for a yoga vid for larger students. I saw an ad for one in Yoga

Journal years ago but can't remember the title.

Vegetarian cheese is so good! I really like Veggie Slices, especially the

pepper jack version. For mac & cheese I have a recipe for a silken tofu

based cheese sauce that the kids like well enough. They love it when I

sprinkle the grated cheese on top and let it get bubbly. I started buying in

for because her cholesterol was 220 at 4 years old!

Thanks for the pep talk. :-)

re:

Glad you made it through ok. I'm not big on spanking either, especially not

in public. I personally have a hard time with anyone else spanking my kids.

re: 5-HTP

I read about it in Natural Health magazine (really yummy recipes this month)

a few months ago. The info Sue posted is essentially what the article said.

There are books on Amazon about it. This link takes you to a review.

http://www.amazon.com/exec/obidos/ASIN/0553379461/ref=ase_inktomi-df1-2-20/104

-1712060-3131921

re:

I use the " low voice arm grab " too. It works really well, especially if I

give " the look " at the same time. Hubby even hates " the look. "

Be well, all.

You all rule, ladies!

BB!

Sherrie

*****************************

I earn a great living AND stay home with my kids

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[Guest guest]

Well, I applied for the birth certificate and should be able to pick it up

tomorrow. I was worried about the airplane at 260 a few months ago, but now

I am sick over it. Why do they insist on 17 3/4 and 18 " seats when the

asses on 60% of our adult population are more in the 25 " plus department.

Heaven knows I am paying for the space!! Thanks for keeping me posted on

your progress. You are my hope right now (and my entertainment, too, I must

add!) Thanks so much

:-) jen

Digest Number 253

>

[Guest guest]

Hi,

I'm wondering how to get a copy of the video by Dr. Mehta. I know someone

responded to me about this before, but I have to admit, I just wasn't at the

right mental readiness to pursue it. My daughter's curve appears to be

responding well to her TLSO boston brace (she was 37degrees at the start in

October and it was obvious to me when she bent over that it looked like a C-

now when she bends over after I take off the cast for her 1 hour it looks

perfectly straight). Plus, she's a big swimmer - we're spending the summer

in southern California at Grandma's house just so she can swim tons (since

she doesn't have to wear her brace then) and the thought of a cast was just

not appealing when I first encountered this group several months ago. All

this to say I am thinking the brace is working (at least the curve is not

progressing) and she has her 'freedom'.

However, we will be going back to our orthopedist in a couple of months and

I want to have the video to see before then - I know the brace isn't

supposed to correct the curve (though I cling to the hope that she'll be one

of those rare ones that will be correctable in the brace) - so I think I

need to be more informed about casting. My orthopedist thinks highly of Dr.

Mehta and I want to be able to bring him the video as well so that he can

see what I am talking about since his knowledge of the details of this are

in the beginning stages (though he seems willing to learn more).

We also have possible issues with a tethered spinal cord although no one

knows for sure so we will have a new MRI done in September as well. Wish us

luck!

Thanks!! This group is great - just reading about how there are a lot of

other moms out there dealing with these issues has helped a lot - just the

minor validation that the orthopedists are often so rushy-rushy and

unwilling to give the nitty-gritty details has been very nice to hear.

Robin

[Guest guest]

Hi Robin,

H. sends out the videos through ISOP. She left a post

earlier today saying she wouldn't be available for a few days, but

that you can reach her through ISOP. She has anyone who wants a copy,

e-mail her thier address privately. My boys ortho. has my copy, isn't

it nice to find doctors willing to learn! Take care!

S.

-- In infantile scoliosis treatment , " Robin Wasserman and

Goldberg " <RAWnHDG@e...> wrote:

> Hi,

> I'm wondering how to get a copy of the video by Dr. Mehta. I know

someone

> responded to me about this before, but I have to admit, I just

wasn't at the

> right mental readiness to pursue it. My daughter's curve appears

to be

> responding well to her TLSO boston brace (she was 37degrees at the

start in

> October and it was obvious to me when she bent over that it looked

like a C-

> now when she bends over after I take off the cast for her 1 hour it

looks

> perfectly straight). Plus, she's a big swimmer - we're spending

the summer

> in southern California at Grandma's house just so she can swim tons

(since

> she doesn't have to wear her brace then) and the thought of a cast

was just

> not appealing when I first encountered this group several months

ago. All

> this to say I am thinking the brace is working (at least the curve

is not

> progressing) and she has her 'freedom'.

>

> However, we will be going back to our orthopedist in a couple of

months and

> I want to have the video to see before then - I know the brace isn't

> supposed to correct the curve (though I cling to the hope that

she'll be one

> of those rare ones that will be correctable in the brace) - so I

think I

> need to be more informed about casting. My orthopedist thinks

highly of Dr.

> Mehta and I want to be able to bring him the video as well so that

he can

> see what I am talking about since his knowledge of the details of

this are

> in the beginning stages (though he seems willing to learn more).

>

> We also have possible issues with a tethered spinal cord although

no one

> knows for sure so we will have a new MRI done in September as

well. Wish us

> luck!

>

> Thanks!! This group is great - just reading about how there are a

lot of

> other moms out there dealing with these issues has helped a lot -

just the

> minor validation that the orthopedists are often so rushy-rushy and

> unwilling to give the nitty-gritty details has been very nice to

hear.

>

> Robin

[Guest guest]

Robin,

Please e-mail me privately w/ the address that you would like ISOP to send the video/info to.

thanks!

HRH

[Guest guest]

Hi All:

Does anyone have a flier or website address for the

Stanford Celiac event that's coming up? Is it this

weekend or next weekend?

My boss just concluded that she needs to follow a

gluten-free diet, and I thought she might like to

attend this event.

Thanks,

Louise

--- wrote:

>

[Guest guest]

Here 'tis.

http://celiacsupport.stanford.edu/conference/index.html

She should sign up SOON, as the venue is smaller this year and it usually sells out two weeks in advance anyway. The conference is two weeks from tomorrow, on Saturday, Oct. 8.

Debbie

9/29/05 9:52 AM, Louise Audell at louise_gd@... wrote:

Hi All:

Does anyone have a flier or website address for the

Stanford Celiac event that's coming up? Is it this

weekend or next weekend?

My boss just concluded that she needs to follow a

gluten-free diet, and I thought she might like to

attend this event.

Thanks,

Louise

--- wrote:

>

[Guest guest]

Hey Tracey:

Glad you answered for us, as for me; I am only consuming medications

prescribed by my AMA Specialists. I have too many health issues to add anything

that may be contraband to my system.

btw, it was an American Indian from Southwest.

" K "

" I AIN'T FINISHED YET " !!!