post-treatment regression

[Guest guest]

For those who have graduated from the band...has anyone seen regression

following treatment?

Our son graduated on 8/5/09 after 7 weeks of treatment. We were pleased with the

results and opted not to do a second band. (He started at 17 mm CV asymmetry and

graduated at 9mm.) Over the course of time since he graduated, I've been

thinking his head looks different...not quite as good as on 8/5/09. But I

decided maybe I was overanalyzing things since we didn't opt for a second band

and his CV number was still quite high at the end of treatment. Anyway, after

several weeks of second-guessing myself, we went back to CT to measure again and

his numbers were the same (hand measurements...actually CV was measured at 10mm

this day.) We decided to move ahead with a second band. When I consider where

we started, his head does look great -- but I realized that if I take where we

started out of the equation and look at his head now, there is still much room

for improvement. This morning, I just glanced at his post-treatment pictures

that I took the day he graduated and his head IS different now after 7 weeks out

of the helmet. Not nearly as round in the back as it was 7 weeks ago. He still

sleeps exclusively on his back (at 8 1/2 months). We've tried everything to

encourage him to find another position, but he won't do it. That's about the

only time he's on the back of his head, other than brief car trips in the car

seat.

Has anyone experienced this? I know the chance of regression is almost

zero...but we seem to have defied the odds. The hand measurements don't reflect

the change we've seen, which I don't fully understand. (I had my husband look at

the pictures, too, just to make sure I wasn't seeing things and we both agreed

it doesn't look like it did.) I almost couldn't believe how round it was 7 weeks

ago, given what it looks like now.

We are getting band #2 next week, so I guess I shouldn't worry about this. But

I am curious if anyone else has seen this happen? And if so, how old was your

child and were they a back-sleeper? Seems like most have the opposite

experience and the new growth post-treatment actually continues to improve

things.

I'll try to post pictures shortly.

Jill

Cade's mom, 8 1/2 months (DOC Band 6/18 - 8/5/09)

Texas