discouraged

[Guest guest]

In a message dated 21/04/01 04:34:46 GMT Daylight Time, bunny55@... writes:

I was happy the day I found this site, but have to say I am discouraged. After a couple of posts I have been unable to find one person with similar symptoms and how they cope with them. I guess I am unique =-(.

Hi Bunny,

That is why we are all different :-) very few people will have the same symptoms.

Take for example - Evening Primrose Oil - I have read many times how people take this, and seem to benefit from it....NOT ME! I have tried it, and it makes me feel worse!! why?? I have no idea !!

I state the above, just to show how we are all different, (even if you are healthy!!).....what is good for one person, is not necessarily good for another. Which goes the same for our 'treatments' that we all receive.

BUT, I hope you were not being 'serious' when you made your subject line 'Discouraged' ! ? Don't be, that is why we are here so we can all get together and have a 'chin wag!!!'.....

Hope you and everyone else have a pain free day..

Mike (from the UK)

[Guest guest]

In a message dated 4/20/01 10:34:50 PM US Eastern Standard Time,

bunny55@... writes:

<< I was happy the day I found this site, but have to say I am discouraged.

After a couple of posts I have been unable to find one person with similar

symptoms and how they cope with them. I guess I am unique =-(.

>>

I think that all of us are unique - in more ways than one! But we all share

one symptom. We live with a disease that in one way or another has effected

our former lifestyle. Now while I don't remember your exact other symptoms,

I'm sure you have that one. And for me, this group has been a Godsend in

learning to cope. For one thing, someone always has something inspiring to

say about how they deal on a day to day basis. It might be that they have A

in their spine, which I don't suffer from, or how they deal with the

depression, which I do suffer from. Either way, just to know that someone is

out there who understands the pain and is with me every step of the way in my

own personal struggle with PA has made all the difference to me. Thanks to

all of you who post here and continue to inspire and help me. I hope that

even if no one posts who suffers with your symptoms, you can still relate and

gain some comfort from hearing their stories.

Hope everyone is managing well today,

[Guest guest]

In a message dated 23/04/01 09:49:55 GMT Daylight Time, TADEL630@... writes:

.. For one thing, someone always has something inspiring to say about how they deal on a day to day basis. It might be that they have A in their spine, which I don't suffer from, or how they deal with the depression, which I do suffer from. Either way, just to know that someone is out there who understands the pain and is with me every step of the way in my own personal struggle with PA has made all the difference to me. Thanks to all of you who post here and continue to inspire and help me.

Hi ,

I think you have said it all in a 'nutshell !!'.

I think we do take heart from group postings, and I believe they help some, if not all of us.

Mike (from the UK)

[Guest guest]

I've been on 15 mg. weekly for about 4 years with no problems. Just be sure

to have your blood work done every month and a liver biopsy every 2 years

(this is the worst part) and you should be fine. Oh, yes, take folic acid

every day to counteract mouth sores from the meth.

[ ] Discouraged

> I had a rest from my PA and psoriasis for about 2 months. But now my

> psoriasis is back at 80%. My PA is back...my ankles, feet, knees and

> hands are back at 75% pain. I'm on 12 mg methotrexate weekly and

> 2400 mg ibuprofen daily. I have an operation coming up and have to

> stop the ibuprofen for about 10 days. What could I use instead to

> handle the pain. I see my rheumatologist Friday. How high can the

> methotrexate be. I have been on this for 9 months with some nausea

> (using folic acid). Thanks.

>

>

[Guest guest]

In a message dated 10/25/01 4:19:06 PM Central Daylight Time,

keboice@... writes:

> You can use Vioxx up until the day of surgery. I recently had foot

> surgery, and my rheumy approved the use of vioxx for pain relief because

> unlike other NSAIDS, it is not a blood thinner.

I think taking Vioxx all the way till the day of surgery should be discussed

with your doc. I am on coumadin which is a blood thinner and I can't take

much of anything out on the market as far as pain killers go. My primary doc

(who went back to Maine) put me on vioxx in 1999 because according to text

doesn't thin the blood. However the anticoagulation center (which reads my

blood levels and regulates the coumadin) said " NOT TRUE " . Every time I miss

a day or two or vary the amount taken (which is 25mgs morning and night) I

have to go in for a blood test to see how it has affected my blood.

Naturally I talked to my primary and he apologized but luckily I have the

center who takes every precaution to avoid problems. Maybe to somebody who

doesn't have to take either aspirin or coumadin the Vioxx would be perfectly

safe. All I know is that without the Vioxx my life would have been hell

because the only other pain killer was tylenol with codeine and I was really

scared to take it too much because I didn't want to become immune to it.

Good luck and I hope your doc says okay to the vioxx.

Chicagoland Sharon

[Guest guest]

In a message dated 10/25/2001 5:19:05 PM Eastern Daylight Time,

keboice@... writes:

<< You can use Vioxx up until the day of surgery >>

For my kidney stone surgery, I had to give up vioxx for 2 weeks before the

surgery - please check with your doctor.

[Guest guest]

Thanks, ...I see my rheumatologist today. I will use your

suggestion.

Bunky

>From: Boice <keboice@...>

>Reply-

>bunky903@...,

>Subject: [ ] Discouraged

>Date: Thu, 25 Oct 2001 08:56:07 -0700

>

>

> >I have an operation coming up and have to stop the ibuprofen for about 10

> >days.What could I use >instead to handle the pain.

>

>You can use Vioxx up until the day of surgery. I recently had foot

>surgery, and my rheumy approved the use of vioxx for pain relief because

>unlike other NSAIDS, it is not a blood thinner. Surgeon's may not be aware

>of this.

>

>

> Boice

>

>

>

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

,

Are you saying ALL NSAIDS thin the blood? I'm wondering about that

since I expect to need some dental work in the near future.

Patty B in the Pineywoods of East Texas

> You can use Vioxx up until the day of surgery. I recently had foot

> surgery, and my rheumy approved the use of vioxx for pain relief

> because unlike other NSAIDS, it is not a blood thinner. Surgeon's

>may not be aware of this.

[Guest guest]

Patty - I'm not sure if blood thinning is the reason, but I would assume so -

yes, usually surgeons have you stop all NSAIDS at least a week before surgery.

My kidney surgeon had me stop Vioxx 2 weeks prior - so even though someone

posted and said you can take it up to the day of surgery, you should definitely

check with your doctors.

[Guest guest]

In a message dated 10/31/01 12:14:50 PM Central Standard Time,

pattybacon@... writes:

> Are you saying ALL NSAIDS thin the blood?

since i am on blood thinners, coumadin, i checked with the anti-coagulation

clinic where my levels are tested and the dosages are prescribed. and it has

been a unanimous yes-all nsaids are blood thinners including vioxx but with

vioxx it is minimal and since i take it daily my blood is tested more often

to make sure i don't have problems with too thin blood. i am not sure and

you would have to check with your doctor to see if the amount of any nsaid

you are presently on could be a cause of additional bleeding during surgery.

i am not sure at what level you would be safe but he can do a blood test to

determine your inr and pt levels. these are the levels that reflect how thin

or thick your blood is.

good luck,

chicagoland sharon

[Guest guest]

Hi Bunky I was on methotrexate for one year until it really started working

for me. Take your folic acid everyday. Don't take anything until you have

eaten something. I have taken 21mg of methotrexate for about 10 years now.

I take it on the same day every week. I find that that Aleve works good for

pain or Tylenol. Be careful to much Tylenol will elevate your liver

function test. I know how you feel it will get better. take care Bruce

[ ] Discouraged

> I had a rest from my PA and psoriasis for about 2 months. But now my

> psoriasis is back at 80%. My PA is back...my ankles, feet, knees and

> hands are back at 75% pain. I'm on 12 mg methotrexate weekly and

> 2400 mg ibuprofen daily. I have an operation coming up and have to

> stop the ibuprofen for about 10 days. What could I use instead to

> handle the pain. I see my rheumatologist Friday. How high can the

> methotrexate be. I have been on this for 9 months with some nausea

> (using folic acid). Thanks.

>

>

>

>

>

[Guest guest]

>

> after finding out i had a low test reading (3.3). i was hoping trt

> would help solve my problems, but from what i read on this site's

> responses all i hear is tales about bad endo's, test levels

actually

> going down with trt, it makes me wonder is it even worth it?

-------------------------------------

yes johnny it is worth it. Why? because consider the

alternative as in learning and doing nothing, that's no good.

And remember this is a public internet board, nothing is scientific,

one never really knows how verified the fact are that anyone poster

says, on and on. If your T level is in fact low, and if low to you

means not having good nightly erections, no libido, feeling somewhat

weak or fatigued, then yes you probably need to get your T level

higher and that involves some method of supplemental T. I was on

shots for 32 years, then on a spread on gel for a year, and now am

back on 1/2 cc of 200 mg depo every week and I am feeling good again

best wishes and let us know how it's going

norton

[Guest guest]

johnny g,

If you find a doctor who know about TRT, hCG etc. then you will get good,

effective treatment. You won't experience T levels actually going down.

If you don't find a good doc, you're right. It's not worth the effort. So find a

good

doc.

With T " in range " at 3.3ng/L (2.41-8.27), many endos wouldn't even diagnose

hypogonadism, let alone treat it. Regardless of the symptoms of the patient

standing right in front of him.

IMO TRT is not a magic bullet for solving your problems. It can help. It won't

fix

penis size anxiety by itself. Treating the anxiety itself is faster, easier and

has

a lot more proven success.

Link:

http://en.wikipedia.org/wiki/Penis_size

" A survey by sexologists showed that almost all men who believed that their

penis was of inadequate size actually had a normal-sized penis. Most

sexologists believe that worries about penis size come from some other

source of anxiety or perceived inadequacy. " , and only " about 20-30% of

women consider the size of a penis to be important. "

Best,

Bruce

>

> after finding out i had a low test reading (3.3). i was hoping trt

> would help solve my problems, but from what i read on this site's

> responses all i hear is tales about bad endo's, test levels actually

> going down with trt, it makes me wonder is it even worth it?

[Guest guest]

>after finding out i had a low test reading (3.3). i was hoping trt

>would help solve my problems, but from what i read on this site's

>responses all i hear is tales about bad endo's, test levels actually

>going down with trt, it makes me wonder is it even worth it?

>

>

It's a catch 22. When we dont have enough T in us we get into these whiney,

self-defeating moods and lose the motivation to get treatment. Its one of

the effects of having low T. When our T is higher we have more grit to deal

with the endos. But yeh, there can be a lot of hoops to jump through and you

often have to deal with a lot of uninformed, uncaring doctors before finding

relief. Cannot pretty that up for you. You either have to go crawl in a

hole and feel defeated or keep patching pieces of information and support

together until you find the right solution. Everyone is entitled to down

days along the way- just dont get stuck there.

Winter

[Guest guest]

Hi,

TRT is great when you finally find the proper doctor and you want to

help others in this great struggle to get help.

It has taken months and years to finally get a good doctor and the

proper care with high enough dosages of T, you see how easy it is for

others to fail and have a bad experience.

Low T dosages actually cause you misery and doctors taking their

advice from pharmaceutical reps do a poor job. Too few doctors

actually have formal training in hormone therapy.

Check this web site:

http://www.members.aol.com/gambr999/

ernestnolan

>

> after finding out i had a low test reading (3.3). i was hoping trt

> would help solve my problems, but from what i read on this site's

> responses all i hear is tales about bad endo's, test levels actually

> going down with trt, it makes me wonder is it even worth it?

[Guest guest]

In a message dated 6/7/2005 10:01:27 A.M. Eastern Standard Time,

Faithiegirl538@... writes:

I go on this diet and I am feeling pretty lousy;

headaches off and on, lots of symptoms after eating, bloating, tiny

intestinal pains, head symptoms, sleepy

OMG--that was me yesterday, all day. I wanted to cry so bad.

Di

[Guest guest]

Hi Faith

Why don't you check out the success stories in the " files " section?

Rick

> Hi, I have been reading the posts on this site for about two weeks

> now. There sure is a lot of information going back and forth which

> seems to be about the same thing all the time. It is always about

> Mannose and Ambrotose. Is this a support group? I have posted a few

> times and never seem to get an answer.

>

> I found out I had candida a week before we went on vacation. While on

> vacation I ate anything and everything including dessert every

> night.I felt fine. I go on this diet and I am feeling pretty lousy;

> headaches off and on, lots of symptoms after eating, bloating, tiny

> intestinal pains, head symptoms, sleepy. The diet looks impossible.

> What in the world is a person to eat? I am hungry all the time. How

> can I go on a rotation diet when there are only about five things I

> can eat. Now I find out I can't eat oatmeal for breakfast, I can't

> eat grits, I can't eat eggs. What do I eat. For lunch it is turkey or

> tuna on a rice cake.Or a salad of lettuce and tuna with olive oil.

> For dinner it is meat and a few vegies. I have lost five pounds in

> two weeks.

>

> Every diet I print out is different. I am getting so frustrated. Is

> anybody getting better? How do you support each other? Do you just

> argue back and forth about supplements?

>

> For the last six years I have been sick from doctors giving me anti

> anxiety medication that I did not need. It has taken me two years to

> recover, and now I find out I have candida and leaky gut. The support

> group I was in was a real support group. They talked about their day,

> how they were feeling. etc. We were all recovering together. That is

> what I am looking for in a support group. I don't know what to do or

> where to go for help.

>

> Faith

[Guest guest]

Faith: don't be discouraged. I was completely

overwhelmed by the information I found online re:

candida. But I plowed through it for weeks until I

came up with what seemed to me to be an intelligent

plan. I've been dieting for over 2 months now, and I

have to tell you, I feel GREAT.

Try to think of food as fuel. Nothing more. Derive

pleasure from walks in the springtime sunshine, your

family, your friends, a good book.

You will probably be discouraged more than once. I

have been. But keep going. And thank God this is

something that you can battle successfully, even if it

does take a whole six months to a year. Don't give up!

Feel free to email me directly if you want to know the

specific plan of attack that I devised and how I

implemented it. After a couple of weeks it becomes

habit and much less difficult than it is initially!

--- Faith <Faithiegirl538@...> wrote:

> Hi, I have been reading the posts on this site for

> about two weeks

> now. There sure is a lot of information going back

> and forth which

> seems to be about the same thing all the time. It is

> always about

> Mannose and Ambrotose. Is this a support group? I

> have posted a few

> times and never seem to get an answer.

>

> I found out I had candida a week before we went on

> vacation. While on

> vacation I ate anything and everything including

> dessert every

> night.I felt fine. I go on this diet and I am

> feeling pretty lousy;

> headaches off and on, lots of symptoms after eating,

> bloating, tiny

> intestinal pains, head symptoms, sleepy. The diet

> looks impossible.

> What in the world is a person to eat? I am hungry

> all the time. How

> can I go on a rotation diet when there are only

> about five things I

> can eat. Now I find out I can't eat oatmeal for

> breakfast, I can't

> eat grits, I can't eat eggs. What do I eat. For

> lunch it is turkey or

> tuna on a rice cake.Or a salad of lettuce and tuna

> with olive oil.

> For dinner it is meat and a few vegies. I have lost

> five pounds in

> two weeks.

>

> Every diet I print out is different. I am getting so

> frustrated. Is

> anybody getting better? How do you support each

> other? Do you just

> argue back and forth about supplements?

>

> For the last six years I have been sick from doctors

> giving me anti

> anxiety medication that I did not need. It has taken

> me two years to

> recover, and now I find out I have candida and leaky

> gut. The support

> group I was in was a real support group. They talked

> about their day,

> how they were feeling. etc. We were all recovering

> together. That is

> what I am looking for in a support group. I don't

> know what to do or

> where to go for help.

>

> Faith

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Faith,

I hear you. I feel exactly the same way you do. I

hardly read anymore because everyday it's something

different, and what I was doing before is now shown to

be bad for me also! I'm completely confused and don't

know what the real problem is anymore.

I was really sick last summer, I mean ER 4 times in a

month, panic attacks, anxiety, crawling skin, hair

loss, skin probs, dizziness etc... told depression by

doctors, then candida by ND, went on diet, felt 100%

worse, stayed on for 6 weeks, lost another 5-10 lbs (I

am a very thin person), could barely walk I was so

weak.

Got off the diet, went to acupuncture, felt 65% better

just from that, I have slowly been getting better,

still have a lot of emotional problems as a result of

my little (big) break down last year, but physically I

am about 75-80% better and have not been on any diet

(just eating a little healthier)in 6 months.

I don't have the answers for you or anybody else, but

I agree with you that this is all very confusing. We

are all so genetically different that not all things

work for all of us.

Marina

--- Faith <Faithiegirl538@...> wrote:

> Hi, I have been reading the posts on this site for

> about two weeks

> now. There sure is a lot of information going back

> and forth which

> seems to be about the same thing all the time. It is

> always about

> Mannose and Ambrotose. Is this a support group? I

> have posted a few

> times and never seem to get an answer.

>

> I found out I had candida a week before we went on

> vacation. While on

> vacation I ate anything and everything including

> dessert every

> night.I felt fine. I go on this diet and I am

> feeling pretty lousy;

> headaches off and on, lots of symptoms after eating,

> bloating, tiny

> intestinal pains, head symptoms, sleepy. The diet

> looks impossible.

> What in the world is a person to eat? I am hungry

> all the time. How

> can I go on a rotation diet when there are only

> about five things I

> can eat. Now I find out I can't eat oatmeal for

> breakfast, I can't

> eat grits, I can't eat eggs. What do I eat. For

> lunch it is turkey or

> tuna on a rice cake.Or a salad of lettuce and tuna

> with olive oil.

> For dinner it is meat and a few vegies. I have lost

> five pounds in

> two weeks.

>

> Every diet I print out is different. I am getting so

> frustrated. Is

> anybody getting better? How do you support each

> other? Do you just

> argue back and forth about supplements?

>

> For the last six years I have been sick from doctors

> giving me anti

> anxiety medication that I did not need. It has taken

> me two years to

> recover, and now I find out I have candida and leaky

> gut. The support

> group I was in was a real support group. They talked

> about their day,

> how they were feeling. etc. We were all recovering

> together. That is

> what I am looking for in a support group. I don't

> know what to do or

> where to go for help.

>

> Faith

>

>

>

>

>

>

__________________________________

Discover

Use to plan a weekend, have fun online and more. Check it out!

http://discover./

[Guest guest]

The diet is tricky to follow. Usually you feel worse at first due to a die off

reaction in your body.

Oatmeal....some people seem to be able to eat that without any sort of flair up

of symptoms and others can't. I found I got worse when I ate that. Eggs are

usually ok unless you have an allergy. Yes the diets are all a little different

that are out there so I suggest you pick one and follow it. You may find that

some foods aren't for you on that particular one but that's what I did. I just

got fed up with all the different versions and picked one and printed it off and

followed that.

Basically I ate meat, veggies excluding potato and corn. I avoided all fruit for

about 3 months and then I started to eat apples. As for dairy I ate yogurt and

kefir and the occaisional cheese. I stayed away from all breads, rice and pasta

for the first 3 months as well. I first ate organic wild rice after that. I

avoided processed foods and sweetners of any kind. I did cheat at times as it's

difficult to go cold turkey.

I tried loads of supplements etc with limited success. I found that I gave in

and started doing the cleanses recommended by s Moritz books and the

curezone site and found them to be the most helpful in feeling better. I'd say

at this point I'm about 90-95% better than I was at this time last year.

Try not to get too wound up by what you can't eat and change your way of

thinking of all the things you can. It will help to see it from that different

less negative sort of angle.

Sorry for my part in the debate over the last week or so but I'd have to say I'd

debate it all again.

Regards

Sue

Faith <Faithiegirl538@...> wrote:

I found out I had candida a week before we went on vacation. While on

vacation I ate anything and everything including dessert every

night.I felt fine. I go on this diet and I am feeling pretty lousy;

headaches off and on, lots of symptoms after eating, bloating, tiny

intestinal pains, head symptoms, sleepy. The diet looks impossible.

What in the world is a person to eat? I am hungry all the time. How

can I go on a rotation diet when there are only about five things I

can eat. Now I find out I can't eat oatmeal for breakfast, I can't

eat grits, I can't eat eggs. What do I eat. For lunch it is turkey or

tuna on a rice cake.Or a salad of lettuce and tuna with olive oil.

For dinner it is meat and a few vegies. I have lost five pounds in

two weeks.

Every diet I print out is different. I am getting

__________________________________________________

[Guest guest]

Marina,

Did you have these trips to the ER after taking any antibiotics? SOme

of your symptooms sound like a herx from lyme disease. Have this ever

been considered as a possibility of what is causing your many symptoms.

It is what I finally beleive was causing all my problems. I had gone

thru many tests, they tried to put me one depression drugs at one point

because they don't beleive that all these things are wrong because their

tests show nothing. 2 years ago when I started on a very complete

nutrtional program I was under the belief I had MS. This was where the

doctors had left me, and I was not doingn to take the MS drugs. I met

many people on the MS forums and started hearing about lyme being

misdiagnosed alot as MS. I then started to read and research lyme

disease as we beleived this is also what my husband had. He had the more

typical symptoms and had the typical rash after being bitten by a tick.

His first tests showed he did not have it though. ANyway thru much

research I now believe this is what I had been struggling with, and

candida, is one of the main problems that people with lyme deal with

because they are on massive amount of antibtiotics. Do I do know about

having candida. It would be worth considering since you have no

answers.

Marina Isaac wrote:

> Faith,

>

> I hear you. I feel exactly the same way you do. I

> hardly read anymore because everyday it's something

> different, and what I was doing before is now shown to

> be bad for me also! I'm completely confused and don't

> know what the real problem is anymore.

>

> I was really sick last summer, I mean ER 4 times in a

> month, panic attacks, anxiety, crawling skin, hair

> loss, skin probs, dizziness etc... told depression by

> doctors, then candida by ND, went on diet, felt 100%

> worse, stayed on for 6 weeks, lost another 5-10 lbs (I

> am a very thin person), could barely walk I was so

> weak.

>

> Got off the diet, went to acupuncture, felt 65% better

> just from that, I have slowly been getting better,

> still have a lot of emotional problems as a result of

> my little (big) break down last year, but physically I

> am about 75-80% better and have not been on any diet

> (just eating a little healthier)in 6 months.

>

> I don't have the answers for you or anybody else, but

> I agree with you that this is all very confusing. We

> are all so genetically different that not all things

> work for all of us.

>

> Marina

>

> --- Faith <Faithiegirl538@...> wrote:

>

> > Hi, I have been reading the posts on this site for

> > about two weeks

> > now. There sure is a lot of information going back

> > and forth which

> > seems to be about the same thing all the time. It is

> > always about

> > Mannose and Ambrotose. Is this a support group? I

> > have posted a few

> > times and never seem to get an answer.

> >

> > I found out I had candida a week before we went on

> > vacation. While on

> > vacation I ate anything and everything including

> > dessert every

> > night.I felt fine. I go on this diet and I am

> > feeling pretty lousy;

> > headaches off and on, lots of symptoms after eating,

> > bloating, tiny

> > intestinal pains, head symptoms, sleepy. The diet

> > looks impossible.

> > What in the world is a person to eat? I am hungry

> > all the time. How

> > can I go on a rotation diet when there are only

> > about five things I

> > can eat. Now I find out I can't eat oatmeal for

> > breakfast, I can't

> > eat grits, I can't eat eggs. What do I eat. For

> > lunch it is turkey or

> > tuna on a rice cake.Or a salad of lettuce and tuna

> > with olive oil.

> > For dinner it is meat and a few vegies. I have lost

> > five pounds in

> > two weeks.

> >

> > Every diet I print out is different. I am getting so

> > frustrated. Is

> > anybody getting better? How do you support each

> > other? Do you just

> > argue back and forth about supplements?

> >

> > For the last six years I have been sick from doctors

> > giving me anti

> > anxiety medication that I did not need. It has taken

> > me two years to

> > recover, and now I find out I have candida and leaky

> > gut. The support

> > group I was in was a real support group. They talked

> > about their day,

> > how they were feeling. etc. We were all recovering

> > together. That is

> > what I am looking for in a support group. I don't

> > know what to do or

> > where to go for help.

> >

> > Faith

> >

> >

> >

> >

> >

> >

>

>

>

>

> __________________________________

> Discover

> Use to plan a weekend, have fun online and more. Check it out!

> http://discover./

>

>

>

[Guest guest]

,

Thanks. Nobody tested me for it or thought it a

possibility. I even looked into int a bit and I didn't

have classic symptoms. I did take antibiotics last

year and jsut before my breakdown (about a week) I had

optical antibiotics after laser eye surgery. The

doctors told my I had symptoms of MS and Thyroid

problems even though MRI and blood work came up with

nothign, so of course it was all in my head. I

recently found out I have a sinus deformity that needs

surgery that is the cause of chronic sinusitis that

can be contributing to a lot of the head stuff, but

ofcourse there has to be more. I have always had IBS

also and bloating so I do have leaky gut and most

likely candida caused by oversue of antibiotics and

stress. But for right now healthy eating is fine for

me, I just can't do tha diet. I am too weak on the

diet.

Thanks so much for responding to me. I will look into

it.

Marina

--- " Kindscher (Charter) "

<morningsunranch@...> wrote:

> Marina,

>

> Did you have these trips to the ER after taking any

> antibiotics? SOme

> of your symptooms sound like a herx from lyme

> disease. Have this ever

> been considered as a possibility of what is causing

> your many symptoms.

> It is what I finally beleive was causing all my

> problems. I had gone

> thru many tests, they tried to put me one depression

> drugs at one point

> because they don't beleive that all these things are

> wrong because their

> tests show nothing. 2 years ago when I started on a

> very complete

> nutrtional program I was under the belief I had MS.

> This was where the

> doctors had left me, and I was not doingn to take

> the MS drugs. I met

> many people on the MS forums and started hearing

> about lyme being

> misdiagnosed alot as MS. I then started to read and

> research lyme

> disease as we beleived this is also what my husband

> had. He had the more

> typical symptoms and had the typical rash after

> being bitten by a tick.

> His first tests showed he did not have it though.

> ANyway thru much

> research I now believe this is what I had been

> struggling with, and

> candida, is one of the main problems that people

> with lyme deal with

> because they are on massive amount of antibtiotics.

> Do I do know about

> having candida. It would be worth considering since

> you have no

> answers.

>

> Marina Isaac wrote:

> > Faith,

> >

> > I hear you. I feel exactly the same way you do. I

> > hardly read anymore because everyday it's

> something

> > different, and what I was doing before is now

> shown to

> > be bad for me also! I'm completely confused and

> don't

> > know what the real problem is anymore.

> >

> > I was really sick last summer, I mean ER 4 times

> in a

> > month, panic attacks, anxiety, crawling skin, hair

> > loss, skin probs, dizziness etc... told depression

> by

> > doctors, then candida by ND, went on diet, felt

> 100%

> > worse, stayed on for 6 weeks, lost another 5-10

> lbs (I

> > am a very thin person), could barely walk I was so

> > weak.

> >

> > Got off the diet, went to acupuncture, felt 65%

> better

> > just from that, I have slowly been getting better,

> > still have a lot of emotional problems as a result

> of

> > my little (big) break down last year, but

> physically I

> > am about 75-80% better and have not been on any

> diet

> > (just eating a little healthier)in 6 months.

> >

> > I don't have the answers for you or anybody else,

> but

> > I agree with you that this is all very confusing.

> We

> > are all so genetically different that not all

> things

> > work for all of us.

> >

> > Marina

> >

> > --- Faith <Faithiegirl538@...> wrote:

> >

> > > Hi, I have been reading the posts on this site

> for

> > > about two weeks

> > > now. There sure is a lot of information going

> back

> > > and forth which

> > > seems to be about the same thing all the time.

> It is

> > > always about

> > > Mannose and Ambrotose. Is this a support group?

> I

> > > have posted a few

> > > times and never seem to get an answer.

> > >

> > > I found out I had candida a week before we went

> on

> > > vacation. While on

> > > vacation I ate anything and everything

> including

> > > dessert every

> > > night.I felt fine. I go on this diet and I am

> > > feeling pretty lousy;

> > > headaches off and on, lots of symptoms after

> eating,

> > > bloating, tiny

> > > intestinal pains, head symptoms, sleepy. The

> diet

> > > looks impossible.

> > > What in the world is a person to eat? I am

> hungry

> > > all the time. How

> > > can I go on a rotation diet when there are only

> > > about five things I

> > > can eat. Now I find out I can't eat oatmeal for

> > > breakfast, I can't

> > > eat grits, I can't eat eggs. What do I eat. For

> > > lunch it is turkey or

> > > tuna on a rice cake.Or a salad of lettuce and

> tuna

> > > with olive oil.

> > > For dinner it is meat and a few vegies. I have

> lost

> > > five pounds in

> > > two weeks.

> > >

> > > Every diet I print out is different. I am

> getting so

> > > frustrated. Is

> > > anybody getting better? How do you support each

> > > other? Do you just

> > > argue back and forth about supplements?

> > >

> > > For the last six years I have been sick from

> doctors

> > > giving me anti

> > > anxiety medication that I did not need. It has

> taken

> > > me two years to

> > > recover, and now I find out I have candida and

> leaky

> > > gut. The support

> > > group I was in was a real support group. They

> talked

> > > about their day,

> > > how they were feeling. etc. We were all

> recovering

> > > together. That is

> > > what I am looking for in a support group. I

> don't

> > > know what to do or

> > > where to go for help.

> > >

> > > Faith

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> > __________________________________

> > Discover

> > Use to plan a weekend, have fun online and

> more. Check it out!

> > http://discover./

> >

> >

> >

[Guest guest]

Hi Marina,

Now it sounds even more like lyme because you are describing me for

sure. The antibiotics would cause dieoff of some of the lyme bacteria

and the herx reactions are exactly as you described. Also the bacteria

tend to harbor in the sinus as with me, and are very hard to get rid of

there. It also wrecks the adrenals and so low tyroid is most comomon.

The IBS, bloating and candida of course wold be common for many with

bowels that have been disrupted by antibiotics. I am on a forum called

lyme strategies and they are using salt and vitamin C, in conjuction

with other supplements to support the body. The one way you could tell

if maybe lyme is your problem is to do the salt and vitamin C for a few

days and if you start to herx after that it would be a good indicator.

Go on the forum and listen a bit, and then ask Marc, how to proceed just

as a check. It is cheap and since most lyme tests are not accurate, this

might be more effective. GOod luck, if you do have it , it can be beat.

Marina Isaac wrote:

> ,

>

> Thanks. Nobody tested me for it or thought it a

> possibility. I even looked into int a bit and I didn't

> have classic symptoms. I did take antibiotics last

> year and jsut before my breakdown (about a week) I had

> optical antibiotics after laser eye surgery. The

> doctors told my I had symptoms of MS and Thyroid

> problems even though MRI and blood work came up with

> nothign, so of course it was all in my head. I

> recently found out I have a sinus deformity that needs

> surgery that is the cause of chronic sinusitis that

> can be contributing to a lot of the head stuff, but

> ofcourse there has to be more. I have always had IBS

> also and bloating so I do have leaky gut and most

> likely candida caused by oversue of antibiotics and

> stress. But for right now healthy eating is fine for

> me, I just can't do tha diet. I am too weak on the

> diet.

>

> Thanks so much for responding to me. I will look into

> it.

>

> Marina

>

> --- " Kindscher (Charter) "

> <morningsunranch@...> wrote:

>

> > Marina,

> >

> > Did you have these trips to the ER after taking any

> > antibiotics? SOme

> > of your symptooms sound like a herx from lyme

> > disease. Have this ever

> > been considered as a possibility of what is causing

> > your many symptoms.

> > It is what I finally beleive was causing all my

> > problems. I had gone

> > thru many tests, they tried to put me one depression

> > drugs at one point

> > because they don't beleive that all these things are

> > wrong because their

> > tests show nothing. 2 years ago when I started on a

> > very complete

> > nutrtional program I was under the belief I had MS.

> > This was where the

> > doctors had left me, and I was not doingn to take

> > the MS drugs. I met

> > many people on the MS forums and started hearing

> > about lyme being

> > misdiagnosed alot as MS. I then started to read and

> > research lyme

> > disease as we beleived this is also what my husband

> > had. He had the more

> > typical symptoms and had the typical rash after

> > being bitten by a tick.

> > His first tests showed he did not have it though.

> > ANyway thru much

> > research I now believe this is what I had been

> > struggling with, and

> > candida, is one of the main problems that people

> > with lyme deal with

> > because they are on massive amount of antibtiotics.

> > Do I do know about

> > having candida. It would be worth considering since

> > you have no

> > answers.

> >

> > Marina Isaac wrote:

> > > Faith,

> > >

> > > I hear you. I feel exactly the same way you do. I

> > > hardly read anymore because everyday it's

> > something

> > > different, and what I was doing before is now

> > shown to

> > > be bad for me also! I'm completely confused and

> > don't

> > > know what the real problem is anymore.

> > >

> > > I was really sick last summer, I mean ER 4 times

> > in a

> > > month, panic attacks, anxiety, crawling skin, hair

> > > loss, skin probs, dizziness etc... told depression

> > by

> > > doctors, then candida by ND, went on diet, felt

> > 100%

> > > worse, stayed on for 6 weeks, lost another 5-10

> > lbs (I

> > > am a very thin person), could barely walk I was so

> > > weak.

> > >

> > > Got off the diet, went to acupuncture, felt 65%

> > better

> > > just from that, I have slowly been getting better,

> > > still have a lot of emotional problems as a result

> > of

> > > my little (big) break down last year, but

> > physically I

> > > am about 75-80% better and have not been on any

> > diet

> > > (just eating a little healthier)in 6 months.

> > >

> > > I don't have the answers for you or anybody else,

> > but

> > > I agree with you that this is all very confusing.

> > We

> > > are all so genetically different that not all

> > things

> > > work for all of us.

> > >

> > > Marina

> > >

> > > --- Faith <Faithiegirl538@...> wrote:

> > >

> > > > Hi, I have been reading the posts on this site

> > for

> > > > about two weeks

> > > > now. There sure is a lot of information going

> > back

> > > > and forth which

> > > > seems to be about the same thing all the time.

> > It is

> > > > always about

> > > > Mannose and Ambrotose. Is this a support group?

> > I

> > > > have posted a few

> > > > times and never seem to get an answer.

> > > >

> > > > I found out I had candida a week before we went

> > on

> > > > vacation. While on

> > > > vacation I ate anything and everything

> > including

> > > > dessert every

> > > > night.I felt fine. I go on this diet and I am

> > > > feeling pretty lousy;

> > > > headaches off and on, lots of symptoms after

> > eating,

> > > > bloating, tiny

> > > > intestinal pains, head symptoms, sleepy. The

> > diet

> > > > looks impossible.

> > > > What in the world is a person to eat? I am

> > hungry

> > > > all the time. How

> > > > can I go on a rotation diet when there are only

> > > > about five things I

> > > > can eat. Now I find out I can't eat oatmeal for

> > > > breakfast, I can't

> > > > eat grits, I can't eat eggs. What do I eat. For

> > > > lunch it is turkey or

> > > > tuna on a rice cake.Or a salad of lettuce and

> > tuna

> > > > with olive oil.

> > > > For dinner it is meat and a few vegies. I have

> > lost

> > > > five pounds in

> > > > two weeks.

> > > >

> > > > Every diet I print out is different. I am

> > getting so

> > > > frustrated. Is

> > > > anybody getting better? How do you support each

> > > > other? Do you just

> > > > argue back and forth about supplements?

> > > >

> > > > For the last six years I have been sick from

> > doctors

> > > > giving me anti

> > > > anxiety medication that I did not need. It has

> > taken

> > > > me two years to

> > > > recover, and now I find out I have candida and

> > leaky

> > > > gut. The support

> > > > group I was in was a real support group. They

> > talked

> > > > about their day,

> > > > how they were feeling. etc. We were all

> > recovering

> > > > together. That is

> > > > what I am looking for in a support group. I

> > don't

> > > > know what to do or

> > > > where to go for help.

> > > >

> > > > Faith

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >

> > > __________________________________

> > > Discover

> > > Use to plan a weekend, have fun online and

> > more. Check it out!

> > > http://discover./

> > >

> > >

> > >

[Guest guest]

I want to thank the many of you who responded so quickly to me. All of

your posts are very important to me. I will be busy for the next day or

two, but I wanted you all to know that I will answer each one when I

can. Probably Thursday. I might have some time tonight.

Now this seems like a real support group and I thank you again.

Faith

[Guest guest]

Hi Faith,

I know a lot of good people have already given you lots of good advice,

so I'll skip all that (be sure to check the " Files " section of the

group, though!), and point out something that you noticed :

We may and do spend a lot of time nit-picking treatments or

supplements, and I think there's two reasons for that:

1 - Many of us have already made lots of progress (or not) in our

healing and have had lots of time to reflect on exactly what has worked

or not, and we can now afford to discuss it to excrutiating detail.

Since each person is different, no one can ever agree on the " ideal

treatment " .

2 - This list is rapidly growing (yay!!), and different people have

different needs for the group - I myself am more intellectual about it

(now that I don't feel like killing myself), so like others, I tend to

focus on the chemistry or biology of the disease and its various

treatments. NEXT TIME JUST SHOUT TO GET THROUGH THE FOG OF ALL THE

BLAH-BLAH Putting a good description in the subject line is

helpful , like you did.

And don't forget, we're all here to support each other, whatever that

support may need to be.

Good luck to you,

Asli

--- Faith <Faithiegirl538@...> wrote:

> I want to thank the many of you who responded so quickly to me. All

> of

> your posts are very important to me. I will be busy for the next day

> or

> two, but I wanted you all to know that I will answer each one when I

> can. Probably Thursday. I might have some time tonight.

>

> Now this seems like a real support group and I thank you again.

>

> Faith

>

>

>