discouraged

[Guest guest]

In a message dated 6/7/2005 12:09:10 P.M. Eastern Standard Time,

marina_isaac@... writes:

I am too weak on the

diet.

Tell me about it. I could barely walk today. I jumped on the scale and

lost 4 lbs too which is the GOOD thing though.

[Guest guest]

In a message dated 6/7/2005 12:36:42 P.M. Eastern Standard Time,

morningsunranch@... writes:

herx reactions

what is herx

[Guest guest]

I'm in a couple of Lyme groups that mentioned salt and C. We came to

an agreement of sorts that it's likely to be dangerous on its own

because salt seriously depletes potassium, a crucial electrolyte that

most of us are deficient in already.

To not forward the following information would disregard the safety

of the client: take into account the fact excess sodium will increase

potassium excretion by a factor of about nine.

> wrote:

> forum called lyme strategies and they are using salt and vitamin C, in

> conjuction with other supplements to support the body.

In a potassium depletion study that used rats, " We conclude that the

effects of a high salt diet on increasing blood pressure can be

potentiated by lack of potassium " . Others note renal injury was found

in potassium depletion in animals. In people, there's no abstract for

this study, but even the title might give one pause when considering

potassium depletion:

Saline-resistant metabolic alkalosis or " chloride-wasting

nephropathy " . Report of four patients with severe potassium

depletion.

Ann Intern Med. 1970 Jul;73(1):31-8. No abstract available.

PMID: 5433277 [PubMed - indexed for MEDLINE]

Salt excess results in agitation, excess saliva, increased excretion

of calcium, phosphate and magnsium, elevated blood pressure, cellular

edema, it also depletes potassium, which is injurious, so it would

seem wise to balance the salt/C therapy with potassium, magnesium and

calcium particularly since deficiencies in these are probable anyway.

I think 8 grams or more of potassium chloride might be a good

ballpark; I use a blend of a few potassiums in my no-salt substitute,

I take about 10 grams total daily, so I think I'm getting about an

extra 5 grams of elmental potassium. I'm not on a high-salt diet and

I don't have Lyme.

Duncan Crow

[Guest guest]

Hi Faith, I'm so sorry to hear that you are discouraged. I don't always read

my email because of my recovery symptoms so I understand your frustration. I

suggest that you key into Bee's Candida Support list that compliments this

one with files of information on how the diet works and other stuff we need

to recover from Candida.

/

I think she also put up some files here.

I can help you a little with your diet though, that as long as you stay away

from carbohydrates you otta be ok. The next thing to avoid is whatever you

are sensitive to. Meals I prepare are grilled Salmon, bbq'd chicken, roast

beef, Burgers without the potatoes, corn, carrots or buns are still very

delicious. Any recipe I can just leave out the noodles in, like stir fry

without rice and Chilli without beans. I also eat Ham chopped into omlets,

bacon and any other meat I can buy. I prepare extra cooked meat ahead to cut

up into salads. Any dark green veggie is great but for peas. I found that

fresh steamed & mashed colliflower with all the salt and butter I want, is a

great standin for mashed potatoes. For snacks I have toasted coconut,

hard boiled eggs, a spoonful of coconut oil and (if you can tolerate milk),

yogurt, kefer & eggnog made with stevia instead of sugar. I read

somewhere that you need to wean yourself off of stuff like sugar and breads

and that it's perfectly ok to take it slow because you want your body

adjusted before you start taking any extra stuff (besides coconut oil) to

kill candida like Oil of Oragano, Nystatin, GSE or MSN etc.

I have to say that I often don't read my email or my list mail because

sometimes my Candida hits me hard too. I hope though that I have answered at

least some of your questions. If you need to write me just send it to my

personal address wit the group.

Take care,

--nh

Date: Mon, 06 Jun 2005 23:40:21 -0000

From: " Faith " <Faithiegirl538@...>

Subject: Discouraged

Hi, I have been reading the posts on this site for about two weeks

now. There sure is a lot of information going back and forth which

seems to be about the same thing all the time. It is always about

Mannose and Ambrotose. Is this a support group? I have posted a few

times and never seem to get an answer.

I found out I had candida a week before we went on vacation. While on

vacation I ate anything and everything including dessert every

night.I felt fine. I go on this diet and I am feeling pretty lousy;

headaches off and on, lots of symptoms after eating, bloating, tiny

intestinal pains, head symptoms, sleepy. The diet looks impossible.

What in the world is a person to eat? I am hungry all the time. How

can I go on a rotation diet when there are only about five things I

can eat. Now I find out I can't eat oatmeal for breakfast, I can't

eat grits, I can't eat eggs. What do I eat. For lunch it is turkey or

tuna on a rice cake.Or a salad of lettuce and tuna with olive oil.

For dinner it is meat and a few vegies. I have lost five pounds in

two weeks.

Every diet I print out is different. I am getting so frustrated. Is

anybody getting better? How do you support each other? Do you just

argue back and forth about supplements?

For the last six years I have been sick from doctors giving me anti

anxiety medication that I did not need. It has taken me two years to

recover, and now I find out I have candida and leaky gut. The support

group I was in was a real support group. They talked about their day,

how they were feeling. etc. We were all recovering together. That is

what I am looking for in a support group. I don't know what to do or

where to go for help.

Faith

__________________________________________________

[Guest guest]

In a message dated 3/6/2006 7:48:46 AM Eastern Standard Time,

Faithiegirl538@... writes:

I seem to have lost my appetite yet I am hungry between meals. Maybe I

am tired of eating things I just don't care for. Nothing has taste to

me, not good taste anyway.

I am sorry, sounds like on top of the candida alot of stress factors are

closing in. Around the h olidays I got that way and went off the diet and I am

very sorry I did. Let me encourage you to keep on keeping on with your

candida goals and let you know I am thinking about you, cause I am trying to

keep

myself up right now. GOD BLESS, JESSICA

[Guest guest]

In a message dated 3/6/2006 9:18:34 A.M. Eastern Standard Time,

NJB00ts@... writes:

I am sorry, sounds like on top of the candida alot of stress factors are

closing in. Around the h olidays I got that way and went off the diet and

I am

very sorry I did. Let me encourage you to keep on keeping on with your

candida goals and let you know I am thinking about you, cause I am trying

to keep

myself up right now. GOD BLESS, JESSICA

Thanks for your for your reply . I will not go off the diet, I

promise. I know I can't. I am very strong in the area of discipline. God bless

you

too.

Faith

[Guest guest]

>

> Well I did another spit test this morning, and it looks like the

same horrible yeast. I have really been sick with fatigue and just

feeling positively horrible. I thought things must be getting better,

but this mornings test didn't show that.

==>You haven't been on the candida diet long enough to cure candida

for sure. It takes time my friend. I wouldn't rely on the spit test

totally because it can be inaccurate. Go by how you feel. You will

know when you are cured. Natural healing is not the quick fix route

for sure but you will eventually get well if you are persistence on

following the diet and program.

>

> I seem to have lost my appetite yet I am hungry between meals.

Maybe I am tired of eating things I just don't care for. Nothing has

taste to me, not good taste anyway.

==>Maybe you need to take a bit of zinc for a few days which affects

taste buds - take 50 mgs. per day in two doses for 10 days and then

stop. Zinc is only needed in trace amounts by the body but you may

need a boost. Do ensure you are taking enough ocean sea salt = 1 1/2

teaspoons per day.

>

> I am up to 4 drops a day of the Oil of Oregano and two probotics

that are just 2.9 billion each.

==>That's good. You can up doses every 5-7 days.

>

> We are moving. We just bought a house in an over 55 community and

ours is up for sale just today. I hope this all will not be too much

stress on me. I feel like I am handling it ok, and it gives me

something to think about other than myself.

==>It should be exciting for you too. Look at it as a new adventure

and enjoy it as much as you can. It's a time when you can get rid of

stuff. Of course you know that planning helps alleviate the stress -

a very good list of things to do is very important.

Bee

[Guest guest]

In a message dated 3/6/2006 10:46:35 AM Eastern Standard Time,

Faithiegirl538@... writes:

Thanks for your for your reply . I will not go off the diet, I

promise. I know I can't. I am very strong in the area of discipline. God

bless you

too.

Faith

How you doing Faith? so far so good here and i keep reading and reading the

files here, what a great help! ty bee )

[Guest guest]

I was ready, willing, and, eager for my son, , to begin his treatment in

his DOCBand at Cranial Technologies in Connecticut. However, today when I took

him for his DSI scan I was very discouraged by our orthoist. When I asked her to

show me pictures of other children's cases who are my son's age ( he will begin

treatment at 11 mos.)she brought me a thick book full of photos but could only

show me one child his age with Torticollis in the whole book. The outcome in

this child was minimal and she pretty much told me that 's chage would be

minimal as well. My biggest concern is the asymmetry of his ears. His left ear

is much more foward on the face than the right ear. She told me not expect much

change in the aysymmetry of his face. She said it is more likely to see

correction in the back of his head, although, because of his age it may not be a

lot. He was measaured at 15mm, which by looking at other's children's number on

here, I assume is severe. I have done research on Torticollis and I have read

posts from many other mothers who say physical therapy did not work to correct

the tilt. Both our pedi & pt are insisting that will not need surgery

but I see absolutely no change in his tilt and we've been at this for a while. I

am so frustrated and angry with 's pediatrcian for sending us to our

first therapist who had absolutely no experience with child torticollis (which

we did not know until weeks into treatment). I am so worried that my precious

baby boy will grow up unhappy with his face and his head, as I have read many

stories from adults with Tort & Plagio who have wished they were treated as an

infant. I am still going to go through with the DOCBand, I couldn't live with

myself if I didn't atleast try but my confidence in it's success has dropped

tremendously after today's appointment. Do any of you have experience with both

severe tort & plagio and do any of you know when the decission should be made

whether or not Mikey will need surgery to correct his head tilt?

Thank you for reading,

- mother of 10 month old twins (Tort & Plagio) & Audrey

[Guest guest]

Hi ,I know it's a very difficult time for you.  I understand the frustration with the pediatrician.  My son Evan always turned his head to the right.  He was like an owl.  I kept asking her about it.  She never said it was torticollis and she never warned me to watch for plagiocephaly.  She just said to gently turn his head the other way which did no good because it would immediately spring back to the right.  If she had mentioned torticollis or plagiocephaly I would've immediately researched it and maybe could've prevented the problem.  

Try not to be so discouraged about you sons treatment.  It can only help him.  When you say he has asymmetry in his face do you mean that one forehead is bossed and the whole side of the face (cheek, eye) is pushed forward?  My son's right side of forehead and whole right side of his face is pushed forward.  We see a plastic surgeon named Dr. at Vanderbilt Medical Center in Nasvhille, TN.  He has been dealing with plagio for over 20 years.  He is confident that once the forehead becomes symmetric with the helmet, the face will follow.  But he did say it could take up to 2 years after helmet therapy is over for the face to catch up.  That may be why the pics that you were shown did not show much improvement.  They take the pics right after the helmet comes off, not 2 years later.  I was very doubtful and discouraged when the doctor told me this.  I felt like he was just trying to make me feel better.  But I came across  someone on a plagio group on facebook who's child went to the same doctor.  She said that the doctor was completely right.  She said that after the helmet came off they could still see asymmetry in the face ,but over the next couple of years it has evened out and they cannot see it at all anymore.  That made me feel so much better hearing from a parent who has seen it first hand.  I also asked the doctor what if it doesn't even out.  He said that it is rare that that is ever the case, but if it is, he can correct it with surgery.  So I at least have some peace of mind that there is a way to fix it.  It's definitely last resort, but I would do anything to help my child.  I feel like it was my fault that I didn't recognize the problem soon enough.  

I hope this eases your mine a little.  Believe me I know exactly how you feel.  This has consumed my life!  I worry about it all the time.  Some days are better than others.  But I just keep reminding myself that Dr. is an experienced surgeon and knows how children's face develops and grows.  I have to trust him.  Take care.

On Fri, Mar 19, 2010 at 8:22 PM, <jsilli@...> wrote:

 

I was ready, willing, and, eager for my son, , to begin his treatment in his DOCBand at Cranial Technologies in Connecticut. However, today when I took him for his DSI scan I was very discouraged by our orthoist. When I asked her to show me pictures of other children's cases who are my son's age ( he will begin treatment at 11 mos.)she brought me a thick book full of photos but could only show me one child his age with Torticollis in the whole book. The outcome in this child was minimal and she pretty much told me that 's chage would be minimal as well. My biggest concern is the asymmetry of his ears. His left ear is much more foward on the face than the right ear. She told me not expect much change in the aysymmetry of his face. She said it is more likely to see correction in the back of his head, although, because of his age it may not be a lot. He was measaured at 15mm, which by looking at other's children's number on here, I assume is severe. I have done research on Torticollis and I have read posts from many other mothers who say physical therapy did not work to correct the tilt. Both our pedi & pt are insisting that will not need surgery but I see absolutely no change in his tilt and we've been at this for a while. I am so frustrated and angry with 's pediatrcian for sending us to our first therapist who had absolutely no experience with child torticollis (which we did not know until weeks into treatment). I am so worried that my precious baby boy will grow up unhappy with his face and his head, as I have read many stories from adults with Tort & Plagio who have wished they were treated as an infant. I am still going to go through with the DOCBand, I couldn't live with myself if I didn't atleast try but my confidence in it's success has dropped tremendously after today's appointment. Do any of you have experience with both severe tort & plagio and do any of you know when the decission should be made whether or not Mikey will need surgery to correct his head tilt?

Thank you for reading,

- mother of 10 month old twins (Tort & Plagio) & Audrey

[Guest guest]

Hey, . Don't be discouraged: a little change can do a lot!

Clara doesn't have the torticollis problem, and I admit I don't know

much about it. Have you found the available information more

reliable than what's available for plagio? I suspect pediatricians

use torticollis as a cop-out for failures in treating plagio with

repositioning alone, then play it the other way when torticollis

fails to resolve in the presence of untreated plagio. It's kind of a

chicken-and-egg thing, is it not?

The thin thread of hope that I would offer is what I've seen in the

context of Clara's eye tracking problem, that muscular control can be

exquisitely sensitive to bone displacement. As if the absolute

anatomical improvement isn't the important thing, rather, whether

bone growth is redirected enough to allow the muscle to catch up.

Her eye crossed a most dramatic threshold when her first helmet,

which had to be replaced, mistakenly caused her face to slant a

little, and her right eye was temporarily displaced downward, ever so

slightly. She looked toward the ceiling when we were out to dinner

one night, and her eyeball zig-zagged like she was a broken robot or

something! But I doubt we'll need surgery for strabismus now, even

though I fear we would probably fall into Cranial Tech's " minimal

change " category.

Clara's ears are out of whack in the same way as your son's. Her

left ear also seemed to protrude, noticeable soon after birth, which

I guess is called a " bat ear. " It used to bother the heck out of me,

but I recently realized that it is now acting as a visual bridge

between the skewed long axis of her head, and the plane of her face.

Turns out, the angle of the ear is a more important visual cue than

depth perception; and since both ears are now at the same angle

relative to her face, she's quite suddenly started *looking* normal!

Now, if she can just avoid bowing her head, getting a crew cut, or

going swimming, she should be able to conceal the plagio...

For us, functionally and aesthetically, banding has been worth

considerable effort and strife. We try to forget the statistics.

Being out in the sticks, only hand measurements are available to us;

I guess I wouldn't turn down a scan if I were offered. Just

remember, there are measures of success you may not have conceived of

yet. And there never will be any statistics regarding what would

have happened to *your kid* without the helmet. So in the end, from

a consumer standpoint, it's just a matter of money and politics, same

as everything else. (Oh, dear: now *I'm* discouraged.)

--

Thad Launderville

Montpelier, VT

Clara age 23 months, in STARband 7 months

On Mar 19, 2010, at 9:22 PM, wrote:

> My biggest concern is the asymmetry of his ears. His left ear is

> much more foward on the face than the right ear. She told me not

> expect much change in the aysymmetry of his face. She said it is

> more likely to see correction in the back of his head, although,

> because of his age it may not be a lot.

[Guest guest]

I read your email and can really feel what you are going through,

especially the discouragement part.

I had a THR in January and had lost about 25 pounds previous to the

surgery. I was still overweight but was going in the right direction. After

the surgery, I lost another 12 pounds due to the morphine and blood thinner.

I was really starting to feel good, emotionally and physically and was

feeling hopeful about losing the last 30 pounds and having an active life

again. Then some of that weight began to creep back and here I am six months

later and 20 pounds heavier.

What originally worked for me was Weightwatchers. Yesterday, I began

doing the Momentum program at home with some of the materials from last year's

meetings. All day, I did well and was not really even hungry. Then around

4:00 some friends came over, we ordered a pizza and had a fruit tarte for

desert. I must have used up the whole week's extra 35 points allowance. I

was so miserable with myself that I had a hot dog before going to bed.

Today is another day.

Reen

[Guest guest]

Socializing with friends is the biggest problem with losing weight. I have

never found Weight Watches helpful, as it has a lot of bread and other starches,

and ridiculous amounts, like 1/2 a banana. What do you so with the other half?

The low GI diet that I try to follow is infinitely easier and very clear.

Nothing made from wheat, like bread, pasta, pastry etc. No processed foods,

like corn flakes and other cereals in boxes, no white potato, especially French

fries, or chips, or crisps, (depending on your country), no deep fried foods.

I eat a lot of veg, fish, and some meat. I sometimes go off, but if I see a

pound or two creeping back, I go right back on the diet. I always have some

chicken salad on hand, made with light mayo, for a hunger attack. I also eat a

lot of fruit. That usually keeps the pizza at bay!

Yes, it was great losing weight because of the morphine, but those pounds did

come back. The pounds that didn't were the 25 I lost on this diet before my

surgery. Yes, i would love to lose those 10 " vanity " pounds, but I need to

live.

So good luck, keep heart, and know that you are not alone in this battle. And

every ounce makes the burden on your knees lighter!

All the best, Joan

________________________________

From: " nhasior@... " <nhasior@...>

Joint Replacement

Sent: Sat, July 10, 2010 11:54:26 AM

Subject: Re: discouraged

I read your email and can really feel what you are going through,

especially the discouragement part.

I had a THR in January and had lost about 25 pounds previous to the

surgery. I was still overweight but was going in the right direction. After

the surgery, I lost another 12 pounds due to the morphine and blood thinner.

I was really starting to feel good, emotionally and physically and was

feeling hopeful about losing the last 30 pounds and having an active life

again. Then some of that weight began to creep back and here I am six months

later and 20 pounds heavier.

What originally worked for me was Weightwatchers. Yesterday, I began

doing the Momentum program at home with some of the materials from last year's

meetings. All day, I did well and was not really even hungry. Then around

4:00 some friends came over, we ordered a pizza and had a fruit tarte for

desert. I must have used up the whole week's extra 35 points allowance. I

was so miserable with myself that I had a hot dog before going to bed.

Today is another day.

Reen

[Guest guest]

Reen did you learn something from yesterday's experience?? Almost three years

ago I had Lap Band surgery and am currently a Lifetime Weight Watcher member. I

have lost about over 150 lbs. The thing I have learned is to not beat myself up.

Look at each bump in the road as a learning experience.

Good luck

..

Sent from my Verizon Wireless BlackBerry

Re: discouraged

I read your email and can really feel what you are going through,

especially the discouragement part.

I had a THR in January and had lost about 25 pounds previous to the

surgery. I was still overweight but was going in the right direction. After

the surgery, I lost another 12 pounds due to the morphine and blood thinner.

I was really starting to feel good, emotionally and physically and was

feeling hopeful about losing the last 30 pounds and having an active life

again. Then some of that weight began to creep back and here I am six months

later and 20 pounds heavier.

What originally worked for me was Weightwatchers. Yesterday, I began

doing the Momentum program at home with some of the materials from last year's

meetings. All day, I did well and was not really even hungry. Then around

4:00 some friends came over, we ordered a pizza and had a fruit tarte for

desert. I must have used up the whole week's extra 35 points allowance. I

was so miserable with myself that I had a hot dog before going to bed.

Today is another day.

Reen