Update: New here--what would you do?

[Guest guest]

We had an appt. at CT in ndale, VA yesterday. I made the 3.5 hour drive

with my brother and his gf. I had been trying since we made the appt. on Monday

to get the Ped. Neurosurgeon we saw previously to update DSs Rx so that we could

go with the DOCband. I had to call them one more time while in the waiting room

at CT, but they finally faxed it. DS had his evaluation and the band was

recommended, so they got us in for the DSI also. We go on 4/22 to get his band.

I'm so excited. I'm going to the store next week to pick up paint and stickers

for his band. I want other people to think, " Oh, how cute! " before they think,

" Oh, what's wrong? " Thanks to everyone here for the advice.

>

> I'm new to this board and I'm so glad I found it. My youngest son has

> plagio and brachycephaly due to torticollis. We just finished up PT

> last week. Our pediatrician didn't even take it seriously until his 4

> month appt. (he was almost 5 months by then) and we couldn't get in to

> the pediatric neurosurgeon (Dr. in town, WV) until DS was

> almost 7 months. They have refered us to Hanger in town, WV (a

> 1.5 hour drive from our home). I read some of the archived messages on

> them, but the orthotist referred to isn't the one who is listed on their

> website. The orthotist there is Tom Pacak. I intend to call them

> tomorrow to get more info on his credentials. Everything I've read

> seems to point to DOC as superior, but our closest CT is over a 3 hour

> drive (one way) in ndale, VA. Dr. said that in his opinion

> he would helmet if our insurance will cover it, but he wouldn't pay out

> of pocket as it will get better on its own. I'm just not so sure how

> good his opinion is. I've gone over and over whether it will be more

> worthwhile to drive farther to CT or not. Here are some pics of his

> natural progress. Any advice is welcome. (The first pics he was 4

> months, 3 weeks. The second are from yesterday at 7 months, 3 weeks.)

>

>

> [http://sphotos.ak.fbcdn.net/hphotos-ak-snc3/hs238.snc3/22531_1046475595\

> 53222_100000239344850_114807_1785775_n.jpg]

>

> [http://sphotos.ak.fbcdn.net/hphotos-ak-ash1/hs426.ash1/23615_1117135688\

> 46621_100000239344850_197081_3638616_n.jpg]

>

>

> [http://hphotos-snc3.fbcdn.net/hs238.snc3/22531_104647602886551_10000023\

> 9344850_114809_1415922_n.jpg]

> [http://hphotos-snc3.fbcdn.net/hs386.snc3/23615_111713858846592_10000023\

> 9344850_197083_4006892_n.jpg]

>

>

> [http://sphotos.ak.fbcdn.net/hphotos-ak-snc3/hs218.snc3/22531_1046475862\

> 19886_100000239344850_114808_7862415_n.jpg]

> [http://sphotos.ak.fbcdn.net/hphotos-ak-ash1/hs426.ash1/23615_1117137288\

> 46605_100000239344850_197082_2133815_n.jpg]

>