RE: Asymptomatic...with symptoms?

[Guest guest]

Hi,

I am not a celiac, but my 7 year old daughter is. She once ate 2 bowls of cereal thinking it was GF and absolutely no reaction to it outwardly. However, at one point my flour source (I do all the baking for her) wasn't pure, so after months of baked stuff from contaminated flour, she started belly aches again. So with her I find she shows symptoms after months of slight amounts of gluten and not if she has something once.

Sabreena>From: "chantelleglutenfree" <chantelleclawson@...>>Reply- > >Subject: [ ] Asymptomatic...with symptoms?>Date: Wed, 27 Jul 2005 05:11:00 -0000>>Hello,>I'm a recently diagnosed celiac who is supposedly asymptomatic, at>least of GI symptoms. I've been on the GF diet for about six months>now, although not without goof-ups. I'm trying to figure out what>symptoms I have, if any, when I eat gluten. For example, last Friday>I mistakenly ate a whole bag of Doritos made with wheat (I guess>Nacho>Cheese flavor ISN'T gluten-free, even though most other flavors are.>It was right there on the bag, I just didnt' even think to check.>Talk about feeling STUPID!) Last night I experienced a little>discomfort in the bowel, but it was three and a half days AFTER>eating>the gluten, so I didn't immediately link it with what I ate last>week. For those of you who have reactions, is the reaction>immediate,>or have you heard of it coming days later?>>Chantelle>>>

[Guest guest]

I react within a time frame of 1 to 7 days, I think - which is to say that I

think the thing that I'm now reacting to got eaten 3 days ago. But my first

reaction may just be " snippiness " or brain fog or some other non-obvious

sign. Usually the first one I notice is farting - that makes me start

looking for other reactions and for what I might have eaten. In this

current case, we went out to a sushi restaurant four days ago. No, I did

not use the soy sauce or have any sauced sushi. I asked if they put

anything in the sushi rice besides seasoned rice vinegar and the sushi chef

said No. But I think he was wrong, because what else could it have been?

Well, perhaps cross contamination... Damn! I so like going out to

restaurants. This is the one part of this that I'm having so much trouble

with.

Connie

-----Original Message-----

From: [mailto: ]

On Behalf Of chantelleglutenfree

Sent: Tuesday, July 26, 2005 10:11 PM

Subject: [ ] Asymptomatic...with symptoms?

Hello,

I'm a recently diagnosed celiac who is supposedly asymptomatic, at

least of GI symptoms. I've been on the GF diet for about six months

now, although not without goof-ups. I'm trying to figure out what

symptoms I have, if any, when I eat gluten. For example, last Friday

I mistakenly ate a whole bag of Doritos made with wheat (I guess

Nacho

Cheese flavor ISN'T gluten-free, even though most other flavors are.

It was right there on the bag, I just didnt' even think to check.

Talk about feeling STUPID!) Last night I experienced a little

discomfort in the bowel, but it was three and a half days AFTER

eating

the gluten, so I didn't immediately link it with what I ate last

week. For those of you who have reactions, is the reaction

immediate,

or have you heard of it coming days later?

Chantelle

[Guest guest]

Frequently symptoms will become worse over time with continued exposure to gluten. For many years my symptoms were misdiagnosed, but it wasn't until it became debilating that a diagnosis was forthcoming. Celiac disease has cumulative affects, so even if you aren't having immediate or severe symptoms, the long impact can be severe. I do not necessarily have immediate symptoms if some how I have been exposed (through eating something with unidentified or misidentified ingredients, or some other exposure as dog food or cat food, which by the way I don't eat, but sometimes touch). However, the anti-gliadin "trigger" or "switch" is then turned on again and I will have symptoms for a period of time until my body decides that there is no longer an "enemy" on board in my cells.

So, it is my theory that when and how your body reacts is only a partial indication that there is a problem, since long after ingestion of even a infintessimal amount of gluten, your body can reacting to it. Dedicate yourself to the diet--because the long term affects can be extremely bad.Sabreena Haque <bree1970@...> wrote:

Hi,

I am not a celiac, but my 7 year old daughter is. She once ate 2 bowls of cereal thinking it was GF and absolutely no reaction to it outwardly. However, at one point my flour source (I do all the baking for her) wasn't pure, so after months of baked stuff from contaminated flour, she started belly aches again. So with her I find she shows symptoms after months of slight amounts of gluten and not if she has something once.

Sabreena>From: "chantelleglutenfree" <chantelleclawson@...>>Reply- > >Subject: [ ] Asymptomatic...with symptoms?>Date: Wed, 27 Jul 2005 05:11:00 -0000>>Hello,>I'm a recently diagnosed celiac who is supposedly asymptomatic, at>least of GI symptoms. I've been on the GF diet for about six months>now, although not without goof-ups. I'm trying to figure out what>symptoms I have, if any, when I eat gluten. For example, last Friday>I mistakenly ate a whole bag of Doritos made with wheat (I guess>Nacho>Cheese flavor ISN'T gluten-free, even though most other flavors are.>It was right there on the bag, I just didnt' even think to check.>Talk about feeling STUPID!) Last night I experienced a little>discomfort in the bowel,

but it was three and a half days AFTER>eating>the gluten, so I didn't immediately link it with what I ate last>week. For those of you who have reactions, is the reaction>immediate,>or have you heard of it coming days later?>>Chantelle>>>__________________________________________________

[Guest guest]

Hi,

Another possibility is other food allergies. The gluten exposure messes

up our intestines and makes us more susceptible to other foods, too. I

know I did not get any gluten and yet wound up in the hospital with

what my internist saw as heart-attack symptoms. ( pressure on my chest,

difficulty breathing and extreme weakness after a 20 minute walk). My

heart & lungs checked out OK, so I went on a very restricted diet and

the symptoms disappeared. I am now taking a one hour brisk walk every

day with no fatigue.

I am gradually adding foods one at a time and have reacted badly to

organic bananas, melons & chamomile tea. So I don't think it was

hidden gluten that I reacted to, but I think gluten was the culprit

that has made me susceptible to other foods.

Now I am waiting for the results of 113 foods I had tested at York

Laboratories. Will pass on the results once they come.

Good luck to all of you.

Anne

On Jul 27, 2005, at 9:27 AM, Kat wrote:

> Frequently symptoms will become worse over time with continued

> exposure to gluten.  For many years my symptoms were misdiagnosed, but

> it wasn't until it became debilating that a diagnosis was

> forthcoming.  Celiac disease has cumulative affects, so even if you

> aren't having immediate or severe symptoms, the long impact can be

> severe.  I do not necessarily have immediate symptoms if some how I

> have been exposed (through eating something with unidentified or

> misidentified ingredients, or some other exposure as dog food or cat

> food, which by the way I don't eat, but sometimes touch).   However,

> the anti-gliadin " trigger " or " switch " is then turned on again and I

> will have symptoms for a period of time until my body decides that

> there is no longer an " enemy " on board in my cells. 

>  

> So, it is my theory that when and how your body reacts is only a

> partial indication that there is a problem, since long after ingestion

> of even a infintessimal amount of gluten, your body can reacting to

> it.  Dedicate yourself to the diet--because the long term affects can

> be extremely bad.

>

> Sabreena Haque <bree1970@...> wrote:

>> Hi,

>>

>> I am not a celiac, but my 7 year old daughter is.  She once ate 2

>> bowls of cereal thinking it was GF and absolutely no reaction to it

>> outwardly.  However, at one point my flour source (I do all the

>> baking for her) wasn't pure, so after months of baked stuff from

>> contaminated flour, she started belly aches again.  So with her I

>> find she shows symptoms after months of slight amounts of gluten and

>> not if she has something once.

>>

>> Sabreena

>>

>>

>>

>>

>> >From: " chantelleglutenfree " <chantelleclawson@...>

>> >Reply-

>> >

>> >Subject: [ ] Asymptomatic...with symptoms?

>> >Date: Wed, 27 Jul 2005 05:11:00 -0000

>> >

>> >Hello,

>> >I'm a recently diagnosed celiac who is supposedly asymptomatic, at

>> >least of GI symptoms.  I've been on the GF diet for about six months

>> >now, although not without goof-ups.  I'm trying to figure out what

>> >symptoms I have, if any, when I eat gluten.  For example, last Friday

>> >I mistakenly ate a whole bag of Doritos made with wheat (I guess

>> >Nacho

>> >Cheese flavor ISN'T gluten-free, even though most other flavors are.

>> >It was right there on the bag, I just didnt' even think to check.

>> >Talk about feeling STUPID!)  Last night I experienced a little

>> >discomfort in the bowel, but it was three and a half days AFTER

>> >eating

>> >the gluten, so I didn't immediately link it with what I ate last

>> >week.  For those of you who have reactions, is the reaction

>> >immediate,

>> >or have you heard of it coming days later?

>> >

>> >Chantelle

>> >

>> >

>> >

> __________________________________________________

>

[Guest guest]

Chantelle,

Reaction to gluten is very individual. The best thing I can suggest is to keep notes about what you experience and when; over time as you keep track of your experiences you will see a pattern emerge. Even if you aren't sure you have had gluten or if a particular symptom is related to CD, write down what the symptoms are and what/where you have eaten in the last few days that is different or unusual. Reaction to gluten can also change over time. Some people react more severely to gluten the longer they are gluten-free. It may be that as you observe your reactions to accidental gluten you will find that problems you never connected to celiac disease are actually the result of eating gluten.

Some of the reactions my family experiences are tiredness, reduced immune function (getting colds), emotional (loss of control, especially for the kids; fuzzy mindedness); diarrhea and bloating; vomiting; itching. They may experience one or more of these symptoms when accidentally exposed to gluten. The time frame varies from hours to days; when my son was recently off gluten, he would get an itchy bottom immediately after eating anything with gluten; this reaction has faded over time.

Pam Newbury Santa Cruz Celiac Support Group 831-423-6904 pknewbury@...

-----Original Message-----From: [mailto: ]On Behalf Of chantelleglutenfreeSent: Tuesday, July 26, 2005 10:11 PM Subject: [ ] Asymptomatic...with symptoms?Hello,I'm a recently diagnosed celiac who is supposedly asymptomatic, at least of GI symptoms. I've been on the GF diet for about six months now, although not without goof-ups. I'm trying to figure out what symptoms I have, if any, when I eat gluten. For example, last Friday I mistakenly ate a whole bag of Doritos made with wheat (I guessNacho Cheese flavor ISN'T gluten-free, even though most other flavors are. It was right there on the bag, I just didnt' even think to check. Talk about feeling STUPID!) Last night I experienced a little discomfort in the bowel, but it was three and a half days AFTEReating the gluten, so I didn't immediately link it with what I ate last week. For those of you who have reactions, is the reactionimmediate, or have you heard of it coming days later?Chantelle