Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 , I’ve gotten a lot of support here and at the group GFCFNN. I like Heidi’s characterization of gluten as “rat poison” and am working on thinking of the whole wheat dependent culture as just crazy, addicted and SAD (standard American diet). And of wheat and wheat based products as the sad consequence of great minds seduced and addicted to the opioid that gluten breaks down to in the gut. Connie From: [mailto: ] On Behalf Of Stanoff Sent: Sunday, July 24, 2005 6:44 AM Subject: [ ] newly diagnosed Hi, I was diagnosed about a month ago and would love to hear how any of you guys have dealt with the emotional side of celiac. I am thrilled to be feeling better, but am still adjusting to this huge lifestyle change, especially when I think of how this change is for forever. Or, how frustrated I get when I trip up and accidentally eat something that makes me sick again... Thanks -- it's good to know you guys are out there. S. Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Sue, I live in Clayton, near Walnut Creek and Concord. I'll definitely give you a call. Thanks so much! "Hersom, A." <susan.hersom@...> wrote: , where do you live in the Bay Area? I would love to talk with you if you want to give me a call any time. I live in San . Sue (408) 723-0804 susan.hersom@... From: on behalf of StanoffSent: Sun 7/24/2005 6:44 AM Subject: [ ] newly diagnosed Hi, I was diagnosed about a month ago and would love to hear how any of you guys have dealt with the emotional side of celiac. I am thrilled to be feeling better, but am still adjusting to this huge lifestyle change, especially when I think of how this change is for forever. Or, how frustrated I get when I trip up and accidentally eat something that makes me sick again... Thanks -- it's good to know you guys are out there. S. Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 , some resources that may help are all of the groups and organizations that have been formed to help us through this disease. Here are a few: I find that celiac.com is one of the most informative websites out there. There is also the Gluten Intolerance Group (GIG) (http://www.gluten.net) website and the Celiac Disease Foundation (http://celiac.org) website. The Stanford Celiac Group is a wonderful wealth of local information, too (http://celiacsupport.stanford.edu). Give me a call at home any time at night after about 6:30 p.m. Hersom Litigation Secretary Pillsbury Winthrop Shaw Pittman LLP 2475 Hanover Street Palo Alto, CA 94304 (650) 233-4783 susan.hersom@... From: [mailto: ] On Behalf Of StanoffSent: Monday, July 25, 2005 7:02 AM Subject: RE: [ ] newly diagnosed Sue, I live in Clayton, near Walnut Creek and Concord. I'll definitely give you a call. Thanks so much! "Hersom, A." <susan.hersom@...> wrote: , where do you live in the Bay Area? I would love to talk with you if you want to give me a call any time. I live in San . Sue (408) 723-0804 susan.hersom@... From: on behalf of StanoffSent: Sun 7/24/2005 6:44 AM Subject: [ ] newly diagnosed Hi, I was diagnosed about a month ago and would love to hear how any of you guys have dealt with the emotional side of celiac. I am thrilled to be feeling better, but am still adjusting to this huge lifestyle change, especially when I think of how this change is for forever. Or, how frustrated I get when I trip up and accidentally eat something that makes me sick again... Thanks -- it's good to know you guys are out there. S. Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Hi , Gluten-free is a process, not an absolute state. I know it's hard to make mistakes and get sick, but try to think of it as a learning experience; you will get better as you continue to learn about and practice the gluten-free diet. No one learns to play the piano in one month; the more you practice the fewer mistakes you will make. Changing to a gluten-free diet is huge. I would encourage you to find an outlet for your feelings (a friend, a diary, support group meetings, this list) and express them. The goal is to mourn what you have lost and move on to figuring out a new celiac lifestyle that suits your needs and desires. I recommend reading one or more of the many books out there on CD. Here are a few I would suggest. "A Personal Touch on Celiac Disease" is a collection of personal stories by people with celiac disease. It is very helpful to hear stories of what others have gone through and how they learned and coped. "The Gluten-Free Bible" by Jax s Lowell is an excellent and comprehensive book on all aspects of CD. She writes extensively and humorously on how to handle social situations and the emotional aspects of CD as well as the basics. If you don't have time or the desire for a longer book, "What? No Wheat? A lighthearted Primer to Living the Gluten-Free Wheat-Free Life" by LynnRae Ries is a short book with lots of drawings that give an overview of the gluten-free life. This is a good book to give to friends and relations to help them understand what you are dealing with. Also good is Dana Korn's "Wheat Free, Worry Free." Many of these are available at local bookstores and on line (celiac.com or amazon.com). I would also highly recommend attending the Stanford Celiac Conference coming up on October 8 (more information will be on this list about registration soon). Also attend as many support group events as you can. Above all, be gentle with yourself and keep in mind that it will get easier as you go. I and others on this list are always willing to answer any questions, so don't hesitate to ask. Pam Newbury Santa Cruz Celiac Support Group 831-423-6904 pknewbury@... -----Original Message-----From: [mailto: ]On Behalf Of StanoffSent: Sunday, July 24, 2005 6:44 AM Subject: [ ] newly diagnosed Hi, I was diagnosed about a month ago and would love to hear how any of you guys have dealt with the emotional side of celiac. I am thrilled to be feeling better, but am still adjusting to this huge lifestyle change, especially when I think of how this change is for forever. Or, how frustrated I get when I trip up and accidentally eat something that makes me sick again... Thanks -- it's good to know you guys are out there. S. Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
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