new to this

[Guest guest]

Hi Ruth,

Welcome to the board!!! I'd say that if you can take someone that

would be great, so it's nice that your sister is going with you. I

chose not to have anyone but then again, I'm a pain in the arse when I

am not feeling well...and just didnt want to put someone through my

attitude. As for loose skin, everyone has different things happening

to them. I know for myself I will have to have plastic surgery, as I

started out at 370 and I will want the breast lift and tummy tuck/or

lower body lift, I also want to have my face lifted. Anywho, it's just

something that you can tackle after you've lost your weight. I am

going to look into breast lift sometime at the end of the year or next

year. Best of luck to you, when are you going to have your surgery??

Kelli

>

> I am new to the website. I am still trying to figure everything out.

I

> am 38 years old, and I live in New Hampshire. I am going for the

> surgery on the 20th. I am so excited. I don't really know exactly

what

> to expect, even though I have read so many articles. I read 's

> blog. That is pretty exciting, and she looks amazing. I guess I was

> kind of wondering........I know everyone looks great, but does

> everybody also get the loose flappy skin afterwards? I know that is

> kind of a dumb question, but I didn't know. I would love to know if

> anyone here is in New Hampshire. I am nervous about the long flight,

> and going where I haven't gone before. My husband cannot go with me,

> but my sister is going to be going with me. Would love to hear from

> anyone. Thank you. Ruth

>

[Guest guest]

>

> Hi Ruth, Honestly everyone is a little different with the loose

skin. I would guess the larger one may be the more likely that

excess skin will be a problem although some people have great

elasticity and the skin shrinks along with them. ( I'm not one of

them) I'll take my wrinkly, flabby skin any-day over the dimpely,

fat rolls I had! ;-) I am 41, 2 kids, hubby for 24yrs & live in

land and my size 4 jeans hold everything in just fine!LOL....

Good luck on the 20th..It is a life changing day!! You will be fine!

> Post when you get back! Dana

>

> -------------- Original message --------------

> From: " Ruth wheeler " <ruth@...>

> I am new to the website. I am still trying to figure everything

out. I

> am 38 years old, and I live in New Hampshire. I am going for the

> surgery on the 20th. I am so excited. I don't really know exactly

what

> to expect, even though I have read so many articles. I read

's

> blog. That is pretty exciting, and she looks amazing. I guess I

was

> kind of wondering........I know everyone looks great, but does

> everybody also get the loose flappy skin afterwards? I know that

is

> kind of a dumb question, but I didn't know. I would love to know

if

> anyone here is in New Hampshire. I am nervous about the long

flight,

> and going where I haven't gone before. My husband cannot go with

me,

> but my sister is going to be going with me. Would love to hear

from

> anyone. Thank you. Ruth

>

Wow.........A size 4. I can't even imagine. Thank you for

responding. It really means a lot.

[Guest guest]

> >

> > I am new to the website. I am still trying to figure everything

out.

> I

> > am 38 years old, and I live in New Hampshire. I am going for the

> > surgery on the 20th. I am so excited. I don't really know

exactly

> what

> > to expect, even though I have read so many articles. I read

's

> > blog. That is pretty exciting, and she looks amazing. I guess I

was

> > kind of wondering........I know everyone looks great, but does

> > everybody also get the loose flappy skin afterwards? I know that

is

> > kind of a dumb question, but I didn't know. I would love to know

if

> > anyone here is in New Hampshire. I am nervous about the long

flight,

> > and going where I haven't gone before. My husband cannot go with

me,

> > but my sister is going to be going with me. Would love to hear

from

> > anyone. Thank you. Ruth

> >

>

I am going to have my surgery on the 20th 0f this month...Woo Hoo! I

am so excited. I loe reading what people are writing on here. This

is awesome.

[Guest guest]

Hi Ruth

I have known a couple people who have had to have some skin surgically removed/tucked. But I think that is more rare than common.

Goodluck!!

Liz

Re: New to this

>> Hi Ruth, Honestly everyone is a little different with the loose skin. I would guess the larger one may be the more likely that excess skin will be a problem although some people have great elasticity and the skin shrinks along with them. ( I'm not one of them) I'll take my wrinkly, flabby skin any-day over the dimpely, fat rolls I had! ;-) I am 41, 2 kids, hubby for 24yrs & live in land and my size 4 jeans hold everything in just fine!LOL.... Good luck on the 20th..It is a life changing day!! You will be fine! > Post when you get back! Dana> > ------------ -- Original message ------------ -- > From: "Ruth wheeler" <ruth@...> > I am new to the website. I am still trying to figure everything out. I > am 38 years old, and I

live in New Hampshire. I am going for the > surgery on the 20th. I am so excited. I don't really know exactly what > to expect, even though I have read so many articles. I read 's > blog. That is pretty exciting, and she looks amazing. I guess I was > kind of wondering... .....I know everyone looks great, but does > everybody also get the loose flappy skin afterwards? I know that is > kind of a dumb question, but I didn't know. I would love to know if > anyone here is in New Hampshire. I am nervous about the long flight, > and going where I haven't gone before. My husband cannot go with me, > but my sister is going to be going with me. Would love to hear from > anyone. Thank you. Ruth>Wow......... A size 4. I can't even imagine. Thank you for responding. It really means a lot.

Access over 1 million songs - Music Unlimited.

[Guest guest]

Ruth! Welcome!

I am having my surgery on the 19th so I will see you there! If you want

to write me at my email address please do! Looking forward to seeing

you & your sister in Mexico!

Deborah dstu98@...

>

> I am new to the website. I am still trying to figure everything out.

I

> am 38 years old, and I live in New Hampshire. I am going for the

> surgery on the 20th. I am so excited. I don't really know exactly

what

> to expect, even though I have read so many articles. I read 's

> blog. That is pretty exciting, and she looks amazing. I guess I was

> kind of wondering........I know everyone looks great, but does

> everybody also get the loose flappy skin afterwards? I know that is

> kind of a dumb question, but I didn't know. I would love to know if

> anyone here is in New Hampshire. I am nervous about the long flight,

> and going where I haven't gone before. My husband cannot go with me,

> but my sister is going to be going with me. Would love to hear from

> anyone. Thank you. Ruth

>

[Guest guest]

Hi ,

I can't believe how tube happy doctors are these days, especially

since evidence points to tubes as being a contributor to ctomas. If a

surgeon/doctor told you he's nervous about doing a surgery....RUN!

That's an obvious FBI clue he's not experienced with ctomas. You say

your son had a CT scan but you still don't know anything. Why? Did

you ask? Take charge and demand to know what came up on the CT and

what's going to be done........period! Unless you get a doctor who

actually cares, they are going to tell you the least amount of

information, spend the least amount on dianosis and do the least

amount of treatment. You need an ENT who has dealt with hundreds,if

not thousands, of ctomas. In light of the Walter fiasco,

threaten to go to the media! If the Air Force cannot handle your

son's illness in Germany, then obviously they NEED to send you to the

states for treatment. Be strong and take charge of the treatment and

do not let them lead you around.

Good Luck!

Rich

>

> hello everyone

>

> i am a mother of a soon to be 5yr old son in june he was recently as

> of feb 22 2007 diagnosed with a ctoma in his right ear i have been

> getting the run around this whole time from the doctors it seems

> like well first off my husband is in the air force and we are

> stationed in germany right now have another year left here he just

> had a ct-scan done but we still dont know anything he went to see

> the ent dr for follow-up for having tubes put in and adnoids

> removed but they did not put tube in right ear so he nows is to

> see a different dr that deals with these kinds of things but he

> told us he is nervous about doing surgery on my son so we go back

> on the 20 April and go from there plz i am at wits end here i

> dont know what to do ....what to ask .... i get overwelmed at things

> i read on internet ... he has alots and lots of ear infections and

> has hearing loss in the left ear a little bit he has a speak delay

> i am so scared that i dont know where do i begin plz plz any

> advice would greatly be appreciated

>

> this has also put added stress on my husband and my relationship

> and stress on my older son as well

>

>

> thank you all for listening to me

>

> heather

>

[Guest guest]

,

I have to agree with Rich on this one.....because you're Air Force, you do have the right to "demand" answers and treatment. I can't say the world is tube happy, because it does have its merits, however, I do know that you have the right to be given the best medical treatment possible.....It took us 10 yrs to get anywhere on my husbands ear, and it did require a little pushing on my side.

Because of your son's medical needs you are EFMP, which means you get or should get priority on medical treatment....make sure your husbands records reflect that...he may need to go to the orderly room and have them check his records....verify it every 6 mos to make sure the code is not dropped through administrative actions/oversights.......

I've never been to Germany, but there's no reason you/your son shouldn't get the medical treatment he requires.....You may need to have a meeting with your husbands chain-of-command.....to include the medical community.....Most commanders & shirts are willing to help their troops out when they need it. They can't help though if you or your husband doesn't tell them.

The positive side is that your son's doctor was honest about his nervousness regarding the surgery. You do need to know why though. Is it because they've never done it? or is it related to your sons' health? Find out so you're not guessing. The doctor could and probably does have a valid reason.

Please take time for you and your husband.....and don't let everything you read out here in the world wide web drive your decisions......it's a good guide and all, but not always the best source.......... You need to make decisions based upon what you know for fact about your son. This is stressful and I'm sure your husbands job is equally stressful, I know after 20 yrs that there aren't too many non-stressful jobs in the military.....having a sick child only adds to it......

As far as your oldest child goes, you have to make time for them.....it's not an option....you can't include them in the care aspect, but you can take time for them....besides it will help you destress....and that's what your 5 yr old needs.....a Mom with a clear head......

I'm no expert on C-tomas or anything else....but I do know that sometimes you have to take charge to get results....

Hope this helps ......Be Strong and keep us posted......Oh and by the way....enjoy Germany, I tried to get there and ended up in Hawaii of all places.....hahahaha

new to this

hello everyonei am a mother of a soon to be 5yr old son in june he was recently as of feb 22 2007 diagnosed with a ctoma in his right ear i have been getting the run around this whole time from the doctors it seems like well first off my husband is in the air force and we are stationed in germany right now have another year left here he just had a ct-scan done but we still dont know anything he went to see the ent dr for follow-up for having tubes put in and adnoids removed but they did not put tube in right ear so he nows is to see a different dr that deals with these kinds of things but he told us he is nervous about doing surgery on my son so we go back on the 20 April and go from there plz i am at wits end here i dont know what to do ....what to ask .... i get overwelmed at things i read on internet ... he has alots and lots of ear infections and has hearing loss in the left ear a little bit he has a speak

delay i am so scared that i dont know where do i begin plz plz any advice would greatly be appreciated this has also put added stress on my husband and my relationship and stress on my older son as well thank you all for listening to meheather

Need Mail bonding?Go to the Q&A for great tips from Answers users.

[Guest guest]

Hello heather,

My name is Mike and I am 19. I got surgery for a cholesteatoma when I was

16 but my doctor said it has probably been in my ear since the age of 5. It

was removed without problems. My main point is that you definitely should

not believe the hype that you read on the net. Relax and take things each

step at a time. I know the doctor was honest with you, but any doctor who

says he is nervous shouldn't be telling you that! I would try to find

another doctor. The internet is a great place to find one.

www.cholesteatoma.net. That's a site with many stories and personal

accounts. The TRUTH. Including my story. I am story 52 I believe, my name

is Mike coleman. Some of the other stories are truely outstanding and you

can also try to find a good ear doctor in your area with this site. Hope I

helped, best wishes to you, your husband, and your son...

>From: <illinoisbobcat@...>

>Reply-cholesteatoma

>cholesteatoma

>Subject: Re: new to this

>Date: Tue, 3 Apr 2007 15:29:55 -0700 (PDT)

>

>,

>I have to agree with Rich on this one.....because you're Air Force, you do

>have the right to " demand " answers and treatment. I can't say the world

>is tube happy, because it does have its merits, however, I do know that you

>have the right to be given the best medical treatment possible.....It took

>us 10 yrs to get anywhere on my husbands ear, and it did require a little

>pushing on my side.

>

>Because of your son's medical needs you are EFMP, which means you get or

>should get priority on medical treatment....make sure your husbands records

>reflect that...he may need to go to the orderly room and have them check

>his records....verify it every 6 mos to make sure the code is not dropped

>through administrative actions/oversights.......

>

>I've never been to Germany, but there's no reason you/your son shouldn't

>get the medical treatment he requires.....You may need to have a meeting

>with your husbands chain-of-command.....to include the medical

>community.....Most commanders & shirts are willing to help their troops out

>when they need it. They can't help though if you or your husband doesn't

>tell them.

>

>The positive side is that your son's doctor was honest about his

>nervousness regarding the surgery. You do need to know why though. Is it

>because they've never done it? or is it related to your sons' health?

>Find out so you're not guessing. The doctor could and probably does have a

>valid reason.

>

>Please take time for you and your husband.....and don't let everything you

>read out here in the world wide web drive your decisions......it's a good

>guide and all, but not always the best source.......... You need to make

>decisions based upon what you know for fact about your son. This is

>stressful and I'm sure your husbands job is equally stressful, I know

>after 20 yrs that there aren't too many non-stressful jobs in the

>military.....having a sick child only adds to it......

>

>As far as your oldest child goes, you have to make time for them.....it's

>not an option....you can't include them in the care aspect, but you can

>take time for them....besides it will help you destress....and that's what

>your 5 yr old needs.....a Mom with a clear head......

>

>I'm no expert on C-tomas or anything else....but I do know that sometimes

>you have to take charge to get results....

>

>Hope this helps ......Be Strong and keep us posted......Oh and by

>the way....enjoy Germany, I tried to get there and ended up in Hawaii of

>all places.....hahahaha

>

>

>

>

> new to this

>

>hello everyone

>

>i am a mother of a soon to be 5yr old son in june he was recently as

>of feb 22 2007 diagnosed with a ctoma in his right ear i have been

>getting the run around this whole time from the doctors it seems

>like well first off my husband is in the air force and we are

>stationed in germany right now have another year left here he just

>had a ct-scan done but we still dont know anything he went to see

>the ent dr for follow-up for having tubes put in and adnoids

>removed but they did not put tube in right ear so he nows is to

>see a different dr that deals with these kinds of things but he

>told us he is nervous about doing surgery on my son so we go back

>on the 20 April and go from there plz i am at wits end here i

>dont know what to do ....what to ask .... i get overwelmed at things

>i read on internet ... he has alots and lots of ear infections and

>has hearing loss in the left ear a little bit he has a speak delay

>i am so scared that i dont know where do i begin plz plz any

>advice would greatly be appreciated

>

>this has also put added stress on my husband and my relationship

>and stress on my older son as well

>

>thank you all for listening to me

>

>heather

>

>

>

>

>

>

>_______________________________________________________________________________\

_____

>Expecting? Get great news right away with email Auto-Check.

>Try the Beta.

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_________________________________________________________________

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[Guest guest]

,

keep the faith that all will work out, I am going through this with my

20 year old son Tony. It all sounds scary but stay strong! My prayers

and best wishes are with you & your son!

Barbara

[Guest guest]

Niki~

What are your lab results?

You said:

Hi - just want to introduce myself. I have just been diagnosed with

hypthyroidism. Have had to give up my teaching job and am finding it

hard to get to grips with it all. Any advice would be great.

**************************************

See what's free at http://www.aol.com.

[Guest guest]

hypothyroidism is not considered a disability and so you should not

have had to give up your teaching job. True, people can be cruel, but

if you hang in there you can work towards retirement and have the last

laugh.

>

> Hi - just want to introduce myself. I have just been diagnosed with

> hypthyroidism. Have had to give up my teaching job and am finding it

> hard to get to grips with it all. Any advice would be great.

>

[Guest guest]

Hi, Niki; and welcome to the group.

My advice would be to get a copy of the FAQ and read it. Then research

and read everything you can find about hypothyroidism.

Be aware that probably more than 90% of people obtain good results from

the standard medical practice. They tend to not be so active in seeking

out places like this for more information, so tend to be

underrepresented here. Some percentage of patients do not respond well

to standard treatment, and in some cases may have a life of literal hell

trying to get proper treatment. There tend to be more of these here

than in the general population of hypo patients; so you will hear all

the horror stories.

Be aware that what works for one person may not work for everyone; or

could even cause damage... or death... in someone else, so don't take my

advice or anyone's advice here as being 100% reliable. If there is an

exception to that it has to be Chuck, who has a very high level of

scientific expertise.

Best,

>

> New to thisi

>

<hypothyroidism/message/28609;_ylc=X3oDMTJxYm1vdDl\

xBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMjg2MDkEc2V\

jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTE4MTI5NzUzMQ-->

>

>

>

> Posted by: " niki5773 " niki5773@...

> <mailto:niki5773@...?Subject=%20Re%3ANew%20to%20this>

> niki5773 <niki5773>

>

>

> Thu Jun 7, 2007 4:29 pm (PST)

>

> Hi - just want to introduce myself. I have just been diagnosed with

> hypthyroidism. Have had to give up my teaching job and am finding it

> hard to get to grips with it all. Any advice would be great.

[Guest guest]

OKAY CHUCK, YOU CAN LET THE AIR OUT OF YOUR HEAD NOW! JUST KIDDING,

WE ALL LOVE YOU....EVEN GRACIA! WE LOVE YOUR KNOWLEDGE. I HAVE EVEN

REFERRED PEEPS TO THIS GROUP TO ASK YOU THE QUESTIONS. OKAY, NOW LET

SOME MORE AIR OUT!!!! :)

>

> Hi, Niki; and welcome to the group.

>

> My advice would be to get a copy of the FAQ and read it. Then research

> and read everything you can find about hypothyroidism.

>

> Be aware that probably more than 90% of people obtain good results from

> the standard medical practice. They tend to not be so active in seeking

> out places like this for more information, so tend to be

> underrepresented here. Some percentage of patients do not respond well

> to standard treatment, and in some cases may have a life of literal hell

> trying to get proper treatment. There tend to be more of these here

> than in the general population of hypo patients; so you will hear all

> the horror stories.

>

> Be aware that what works for one person may not work for everyone; or

> could even cause damage... or death... in someone else, so don't take my

> advice or anyone's advice here as being 100% reliable. If there is an

> exception to that it has to be Chuck, who has a very high level of

> scientific expertise.

>

> Best,

>

>

> >

> > New to thisi

> >

<hypothyroidism/message/28609;_ylc=X3oDMTJxYm1vdDl\

xBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMjg2MDkEc2V\

jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTE4MTI5NzUzMQ-->

> >

> >

> >

> > Posted by: " niki5773 " niki5773@...

> > <mailto:niki5773@...?Subject=%20Re%3ANew%20to%20this>

> > niki5773 <niki5773>

> >

> >

> > Thu Jun 7, 2007 4:29 pm (PST)

> >

> > Hi - just want to introduce myself. I have just been diagnosed with

> > hypthyroidism. Have had to give up my teaching job and am finding it

> > hard to get to grips with it all. Any advice would be great.

>

[Guest guest]

sweetenloe1 wrote:

>

> OKAY CHUCK, YOU CAN LET THE AIR OUT OF YOUR HEAD NOW! ...

I am, indeed, deflated.

BTW, my apologies to all for using the term " quack " to describe certain

medical opinions about iodine.

Chuck

[Guest guest]

Why??? I thought it precise, accurate, and totally on target.

>

> Re: New to this

>

<hypothyroidism/message/28643;_ylc=X3oDMTJxMmc0aHI\

4BF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMjg2NDMEc2V\

jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTE4MTM1NzYzMA-->

>

>

>

> Posted by: " Chuck B " gumboyaya@...

> <mailto:gumboyaya@...?Subject=%20Re%3A%20New%20to%20this>

> gumbo482001 <gumbo482001>

>

>

> Fri Jun 8, 2007 4:13 pm (PST)

>

> sweetenloe1 wrote:

> >

> > OKAY CHUCK, YOU CAN LET THE AIR OUT OF YOUR HEAD NOW! ...

>

> I am, indeed, deflated.

>

> BTW, my apologies to all for using the term " quack " to describe certain

> medical opinions about iodine.

>

> Chuck

[Guest guest]

thank you.

I was thinking o tonight of how using iodine properly the way it used to be

used or can be used would impact big pharma profits.

Gracia

sweetenloe1 wrote:

>

> OKAY CHUCK, YOU CAN LET THE AIR OUT OF YOUR HEAD NOW! ...

I am, indeed, deflated.

BTW, my apologies to all for using the term " quack " to describe certain

medical opinions about iodine.

Chuck

------------------------------------------------------------------------------

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PM

[Guest guest]

OY

I will be loving the dinner he is going to have to buy me.

Gracia

OKAY CHUCK, YOU CAN LET THE AIR OUT OF YOUR HEAD NOW! JUST KIDDING,

WE ALL LOVE YOU....EVEN GRACIA! WE LOVE YOUR KNOWLEDGE. I HAVE EVEN

REFERRED PEEPS TO THIS GROUP TO ASK YOU THE QUESTIONS. OKAY, NOW LET

SOME MORE AIR OUT!!!! :)

---

Recent Activity

a.. 7New Members

Visit Your Group

[Guest guest]

,

You wrote about deflating my head:

>

> Why??? I thought it precise, accurate, and totally on target.

It was all that extra stuff about me being charming, handsomely rugged,

and alluring. I was pretending to be modest.

Chuck

[Guest guest]

LOL

you mean ruggedly handsome

I am trying to figure out how to rant about the medical system we have on

myspace and facebook

gracia

,

You wrote about deflating my head:

>

> Why??? I thought it precise, accurate, and totally on target.

It was all that extra stuff about me being charming, handsomely rugged,

and alluring. I was pretending to be modest.

Chuck

[Guest guest]

rofl!!!!!!

>

> ,

>

> You wrote about deflating my head:

> >

> > Why??? I thought it precise, accurate, and totally on target.

>

> It was all that extra stuff about me being charming, handsomely rugged,

> and alluring. I was pretending to be modest.

>

> Chuck

>

[Guest guest]

What I have come to find out is that its pretty much different for everybody. My c-toma formed when negative pressure in my ear sucked in the top part of my ear drum into my middle ear. My eardrum is skin so when the skin sheds it has no where to go but to remain in the middle ear building and eventually destroying the tiny ear bones and if letft untreated it can affect the inner ear and worse. It really depends on what they see once they get in there. I am due for surgery on the 21st. The cat scan shows that I do have a c-toma but they are not sure how extensive it is until they get in there. My docter said it will be about a 1 1/2 surgery or up to 3hrs depending on what he finds. I will caution you that this site tends to dwell on the negative. Which is quite ok because there are some people with incredible stories but i have talked to quite a few who have said they had their two

surgeries and have had no problems ever sense. Anyway c-toma is kind of a big deal if you leave it untreated. I feel for your son since he is so young. My prayers are with ya but he should be fine. Davemiller10312003 <miller1031@...> wrote: Hello, I am new to the whole cholesteatoma world. My 7 year old son was diagnosed with a c-toma in July, he is having it removed on Sept 25. I think our ENT has sugar coated things though. She is intending to remove the tiny bit of tumor growing around his t-tube

while removing the tube. She made it sound like it's just a quick, no big deal procedure and I have been assuming that they are just going to go in through the ear canal as they did to place his 3 sets of tubes. She did say that they will have to go back in and remove more if it's a bigger tumor than she claims to be expecting.If these things form behind the ear drum, and he's got it coming through the ear drum at the tube site, doesn't this mean that it's more extensive? In my reading, the c-tomas don't form outside the ear drum, but rather behind it.If anyone could give me their impressions on this, I'd really appreciate it. I just don't want any more shocks like I've had this summer!ThanksPam mom to scott 7, and 3 others!

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

I would have an otologist check him out. ENT's are like the general practitioners, otologist's are the specialists. A second opinion is also always a good thing. Good luck. new to this

Hello, I am new to the whole cholesteatoma world. My 7 year old son

was diagnosed with a c-toma in July, he is having it removed on Sept

25. I think our ENT has sugar coated things though. She is

intending to remove the tiny bit of tumor growing around his t-tube

while removing the tube. She made it sound like it's just a quick,

no big deal procedure and I have been assuming that they are just

going to go in through the ear canal as they did to place his 3 sets

of tubes. She did say that they will have to go back in and remove

more if it's a bigger tumor than she claims to be expecting.

If these things form behind the ear drum, and he's got it coming

through the ear drum at the tube site, doesn't this mean that it's

more extensive? In my reading, the c-tomas don't form outside the

ear drum, but rather behind it.

If anyone could give me their impressions on this, I'd really

appreciate it. I just don't want any more shocks like I've had this

summer!

Thanks

Pam

mom to scott 7, and 3 others!

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[Guest guest]

I agree with others on here if you possibly can get you son to an otologist.

They usually have a lot more experience in c-toma surgery.

new to this

Hello, I am new to the whole cholesteatoma world. My 7 year old son

was diagnosed with a c-toma in July, he is having it removed on Sept

25. I think our ENT has sugar coated things though. She is

intending to remove the tiny bit of tumor growing around his t-tube

while removing the tube. She made it sound like it's just a quick,

no big deal procedure and I have been assuming that they are just

going to go in through the ear canal as they did to place his 3 sets

of tubes. She did say that they will have to go back in and remove

more if it's a bigger tumor than she claims to be expecting.

If these things form behind the ear drum, and he's got it coming

through the ear drum at the tube site, doesn't this mean that it's

more extensive? In my reading, the c-tomas don't form outside the

ear drum, but rather behind it.

If anyone could give me their impressions on this, I'd really

appreciate it. I just don't want any more shocks like I've had this

summer!

Thanks

Pam

mom to scott 7, and 3 others!

Email and AIM finally together. You've gotta check out free AOL Mail!

[Guest guest]

Hi Jenn. Welcome. I also have an 11 year old boy,,,,,Ian. RobinJenn <anglzeyez04@...> wrote: Hi all, I'm Jenn and i'm the mother of a son who is 11 and just recently diagnosed with AS.... a little of his backround..has had problems since birth..i thought he was deaf at 6 mths....had him evaluated with early intervention..said his hearing is fine but he needed speech thearapy...hes been diagnosed in the past with adhd, odd, bipolar, and also said he

had pdd-nos..recently they changed it all and is now diagnosed with aspergers, adhd, and specific learning disability speech and language impairment....hes in 6th grade was held back last year due to not being able to focus...he is not a bad behaved boy, but prefers to be alone...stay home...and cant focus much on anything but trains, having a hard time trying to get him to understand that he needs to bathe daily and use deoderaunt and change his clothes daily he doesnt think these things are important....Im trying to find as much info on aspergers and all...not knowing much about it and how to handle differnt situations dealing with him. He has a lot of problems focusing, and understanding what is important, he has a big obsession with trains. The school recently evalutated him for full time learning support he is currently in part time learning support so i'm waiting to hear on that..he has many problems

remembering things, ex...homework what to bring home from school, what he needs to do, he needs to be redirected constantly and the school teachers and principal say he often seems lost, and low functioning not knowing where to go and what needs to be done. I just want to find out what i can do to help him to live a normal life...the dr. currently has him on adderall XR and Remerun which is supossed to help him with sleeping. he has a really hard time falling asleep, cant have any lights or sound in the house at all...the lights and sound really seem to bother him at bed time...and the other concern is motion sickness...he seems to have that alot being on meds...sometimes even when hes off meds...he wont join any school activities, did in past but wont do it again, even tried basketball, he was very uncorrdinated and not knowing what to do boyscouts he did enjoy but didnt want to go to camp...now he doesnt want to

join at all...he sits in his room and plays with trains or spends his time looking on tv and computer looking for train stuff....

Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

[Guest guest]

Hi Jenn. One more very important thing to consider with your son is

that he's going through puberty, which by itself is very complicated

for them. I don't think any boy 11-13 needs to have AS to seem low

functioning. And I read a while a go nice study about how the boy's

brain (girl's too but probably to a lesser extent) goes through a

serious cleansing of unused stuff... kind of getting rid of all the

circuits that have not been used... and is not at all that they are

not functional... is that what is at work, very active, is the brain

rearranging itself. In addition, middle school is so dramatically

different to elementary school, that most AS children have a hard time

adapting, even though most of them get great grades in elementary

school. So your son has very big challenges to deal with at his age.

My son is younger than yours, but he learns really well from

educational electronic games and software. Does your son like those

types of games?

About the social interaction... I don't know if I've given up too

early to my son having an active social life... he's a loner... but my

wife and I are loners too, and so are millions of great people. If our

AS kids need more individualized learning tools and methods... so be

it! As long as they learn to be respectful to others, I really wonder

what the problem with wanting to be by themselves is...

BTW, my son is always looking for info about trains, buses and planes

on the internet... and he has an amazing amount of knowledge about

them. I actually think it's great and I try to follow-up with his

interests and show some interest myself (well, we kind of like similar

stuff anyway lol). But his intense interests may end up being a way

for him to find a satisfactory career in the future.

Good luck with your son. Have a great day. F

>

> Hi all, I'm Jenn and i'm the mother of a son who is 11 and just

> recently diagnosed with AS.... a little of his backround..has had

> problems since birth..i thought he was deaf at 6 mths....had him

> evaluated with early intervention..said his hearing is fine but he

> needed speech thearapy...hes been diagnosed in the past with adhd,

> odd, bipolar, and also said he had pdd-nos..recently they changed it

> all...he sits in his room and plays with trains or spends his time

> looking on tv and computer looking for train stuff....

>