Re: Starband consult and ped visit (sorry...long)

[Guest guest]

Hi .

Go for the 2nd opinion. With those numbers you really don't want to wait 3

months - you could be done by then. you're doing a good job, and the doctor is

not!

-christine

sydney, 4 yrs, starband grad

> > > >

> > > > Well...it's been an interesting morning. Midwest ortho (starband

provider) came

> > > >out and did a home eval today. Explained everything thoroughly and was

very much

> > > >helpful. Took some measurements (no scan today) and said her cranial

vault

> > > >asymmetry is 15mm. They consider anything over 10mm to be severe and

recommend

> > > >helmet treatment. The good thing is that she surprisingly doesn't have

much

> > > >facial aysmmetry. So...at the end of the appt we had decided we wanted to

go

> > > >with them. They will do a 5 day post getting the cap...then a week after

> > > >that...then 2 weeks after that and if fit is good they will not see us

for a

> > > >month unless we start to notice some redness or feel she's had a huge

growth

> > > >spurt. I asked him the reason since docband wants to see her weekly. He

said

> > > >they used to do weekly for the first 6 weeks but found it wasn't

necessary. He

> > > >said he owuld gladly see us more often just to check if that made us more

> > > >comfortable.

> > > >

> > > >

> > > > Then the ped visit...she is adamantly against helmets. She thinks they

are

> > > >cruel...said she's never seen a child that isn't miserable in one. I

stood my

> > > >ground and told her we'd researched it and decided this is the way we

want to go

> > > >if she qualifies (and that we have even researched our insurance and at

what

> > > >point they will cover...and our measurements are in the covered

category). We

> > > >told her what the orthotist said at Midwest. She replied that we would

need to

> > > >go through the craniofacial center at Riley. I agree...they will tell us

for

> > > >sure it's just plagio and not cranio. She was a bit alarmed that my

daughter's

> > > >head circumference jumped from the 50th percentile to the 80th percentile

in the

> > > >last 2 months (while weight and height percentile remained the same). She

said

> > > >it could be due to the way it is growing because of the flat spot. She

even had

> > > >the nerve at the start of the appt to say she probably wouldn't have

given us

> > > >the referral to Riley had she seen her (our pt called her office and

asked for

> > > >the referral). Ugh! So...Riley appt on Monday and praying those docs are

pro

> > > >helmet (and praying most of all that it just the plagio).

> > > >

> > > >

> > > > Sorry for being so windy...I just realize everyone's frustration with

the

> > > >process now...

> > > >

> > >

> >

>