lingering Torticollis

[Guest guest]

My daughter has had a major preference for turning her head to the right and

tilting to the left pretty much since birth. Of course, the turning to the

right caused Plagiocephaly on that side of her head. After her 6 month

appointment we were referred to a physical therapist which we've been going to

see ever since. About a month after starting PT, she got the band, which she

just got removed last week. So we've been going to PT for about 5 months now.

She has gotten MUCH better about turning her head to the left. She is pretty

much over that part. But the tilting has her therapist stumped. She was

tilting for the longest time to the left. Then she started tilting to the

right. The therapist said sometimes that can happen. But then the next time

she was tilting to the left and it's pretty much been back and forth for about

two months now with some days where she holds it pretty much straight. The

therapist said she's never seen it swap back and forth like that. She thought

maybe it was due to weak core muscles because she was slow to crawl and mostly

army crawls, but today she said she was transitioning and crawling really well,

so she doesn't think it's the core muscles anymore. Last PT she was tilting to

the right and now today it's to the left. She says after 11 years, my daughter

has finally stumped her. The last couple of appointments the therapist said

that her neck muscles weren't tense and she didn't have the red crease on her

neck, either. She's wondering if maybe she has a vision problem. Which

watching her play and pick up food and things like that, I've never thought to

myself that she was having problems seeing. So maybe she has problems seeing

further away? Anyway, I was wondering if anyone else has had a similar problem

and could shed some light on this. We're doing the neck stretches at home about

5-7 times a day. Thanks.