Here we go again :( extra question for those starting with brachy over 100

[Guest guest]

Hello again!

My son, Devin (18 months) was in a DOC band last year for 14 weeks. Yesterday I

brought in my new baby, (4 months) in for an evaluation. I have been so

mindful of tummy time since he was born. When he was 6 weeks old he was

hospitalized for RSV for 9 days. During that time we were not able to hold him

as we usually did and tummy time was out (unless it was chest to chest). After

the hospital stay he really had some flattening, but we did everything we could

to help it. Needless to say we didn't have any luck. The only time has

been on his back is to sleep or go somewhere in the car, he is always worn in a

sling while we are out.

Anyway, I knew that his brachy was significant but honestly I was expecting them

to say that it was borderline - it didn't look nearly as bad as my older son. I

was wrong. He is 106%. My older son was 96.

I feel so crushed.

So, those who started with a brachy over 100, what type of results did you get?

Dev ended up 86%, is a 10% the best to expect? I am just feeling so discouraged

today.

Thanks!

[Guest guest]

Hellow again,

I am surprised his brachy is so severe given that you were working on it, but it

sounds like you did what you could. 4 mo is a good time to start so you should

do well. My daughter started at 96 also and got to about 85%. She was banded at

5 mo. You might do a little better than that since you're starting early. Also

there is the option of multiple bands. Since he doesn't look as bad as the

numbers seem to say it is also possible that there are measurement errors. They

measure by hand and babies move. My doctor measured my daughter at 100% by hand

but the starscanner said 96%, and it went down from there.

-christine

sydney, 5 yrs, starband grad

>

> Hello again!

>

> My son, Devin (18 months) was in a DOC band last year for 14 weeks. Yesterday

I brought in my new baby, (4 months) in for an evaluation. I have been so

mindful of tummy time since he was born. When he was 6 weeks old he was

hospitalized for RSV for 9 days. During that time we were not able to hold him

as we usually did and tummy time was out (unless it was chest to chest). After

the hospital stay he really had some flattening, but we did everything we could

to help it. Needless to say we didn't have any luck. The only time has

been on his back is to sleep or go somewhere in the car, he is always worn in a

sling while we are out.

>

> Anyway, I knew that his brachy was significant but honestly I was expecting

them to say that it was borderline - it didn't look nearly as bad as my older

son. I was wrong. He is 106%. My older son was 96.

>

> I feel so crushed.

>

> So, those who started with a brachy over 100, what type of results did you

get? Dev ended up 86%, is a 10% the best to expect? I am just feeling so

discouraged today.

>

> Thanks!

>

[Guest guest]

Oh my gosh Amy, that's amazing how sensitive their heads are! I guess that tells me that this problem seems almost inevitable for some babies, despite all of our efforts and best intentions. I mean if it could happen in just nine short days, how coul we possibly avoid it? And you had been actively trying to prevent it from birth! I'm so glad your recovered from RSV, at 6 weeks that is so young...

Carmen

From: AmyM <alb5118@...>Plagiocephaly Sent: Wed, March 30, 2011 4:39:00 PMSubject: Here we go again extra question for those starting with brachy over 100

Hello again!My son, Devin (18 months) was in a DOC band last year for 14 weeks. Yesterday I brought in my new baby, (4 months) in for an evaluation. I have been so mindful of tummy time since he was born. When he was 6 weeks old he was hospitalized for RSV for 9 days. During that time we were not able to hold him as we usually did and tummy time was out (unless it was chest to chest). After the hospital stay he really had some flattening, but we did everything we could to help it. Needless to say we didn't have any luck. The only time has been on his back is to sleep or go somewhere in the car, he is always worn in a sling while we are out. Anyway, I knew that his brachy was significant but honestly I was expecting them to say that it was borderline - it didn't look nearly as bad as my older son. I was wrong. He is 106%. My older son was 96. I feel so crushed. So, those who started with a brachy over 100, what

type of results did you get? Dev ended up 86%, is a 10% the best to expect? I am just feeling so discouraged today. Thanks!