Any help appreciated - new to group

[Guest guest]

My son has what I believe is Brachycephaly with plagio. I took him to Gilette

Childrens in St MN where they felt his head and said " oh he's a mild case

and you can do what you want. Here's a brochure on our helmet " . Well that didn't

sit well with me so I called back and complained. Turns out the person we saw

was new to their facility and they wanted feedback on her. Well they got it!

Anyway, I joined this group and was reading (a lot) and found that most of you

at your initial appointments had at least measurments done if not scans to find

out the severity of the condition. We never got measurments. I started to

research a little more on the StarBand and found 1 place in MN that offers it.

It's at Park tt in St. Loius Park. Just wondering if anyone has been there

and what your experience was like and also what everyones thoughts are on the

StarBand Helmet. I noticed that there are Active & Passive helmets. If I'm

correct the StarBand is Active. The CranioCap we were offered at Gilette is

Passive. In your opinion, which offers a faster/better result? Is it also true

that Brachy is harder to correct if not impossible? My son is 8mo old.

Thank you

[Guest guest]

Welcome to the group. Active bands generally offer faster/better correction.

Some people do get good results with passive bands, but I would certainly at

least visit the starband provider. My daughter had brachy and wore a starband.

She had very slight asymmetry (plagio) so we didn't worry about correcting it.

You can see her photos in the Photos area of this group under Our Plagio Babies

S/ Sydney M.

-christine

sydney, 5 yrs, starband grad

>

> My son has what I believe is Brachycephaly with plagio. I took him to Gilette

Childrens in St MN where they felt his head and said " oh he's a mild case

and you can do what you want. Here's a brochure on our helmet " . Well that didn't

sit well with me so I called back and complained. Turns out the person we saw

was new to their facility and they wanted feedback on her. Well they got it!

Anyway, I joined this group and was reading (a lot) and found that most of you

at your initial appointments had at least measurments done if not scans to find

out the severity of the condition. We never got measurments. I started to

research a little more on the StarBand and found 1 place in MN that offers it.

It's at Park tt in St. Loius Park. Just wondering if anyone has been there

and what your experience was like and also what everyones thoughts are on the

StarBand Helmet. I noticed that there are Active & Passive helmets. If I'm

correct the StarBand is Active. The CranioCap we were offered at Gilette is

Passive. In your opinion, which offers a faster/better result? Is it also true

that Brachy is harder to correct if not impossible? My son is 8mo old.

>

> Thank you

>

>

[Guest guest]

, I live in the cities too. My son had plagio / brachy. As far as I know there are 3 band providers in the area : Gilette , Park tt and Fairview Orthotics and Prosthetics. The first helmet my son wore was form Fairview. I would not recommend them. They treated my son for about 6 months and the improvement was minimal. When my son was 10.5 months old we went to Chicago to Cranial Technologies and had 2 Doc Bands with them. I can recommend them . I always say that they saved my son's head and my sanity. After we were done at Fairview I also went to Gilette and Park tt for consultations. But at that point I decided I was going to fly to Cranial

Technologies because they had/ have an amazing reputation treating

head deformities. Gilette's helmet ( cap ) is a passive device. Your baby is 8 months now, so I would not even try it. It is not as affective as an active band. If you have an Rx for a helmet from your pedi, they will give you a free consultation at Park tt .Brachy might be harder to correct than classic plagio, but it is not impossible. I hope this helps you a little. Tatiana.From: bainrebr <stuckeyrebecca@...>Plagiocephaly Sent: Wed, March 30, 2011 10:21:49 AMSubject: Any help appreciated - new to group

My son has what I believe is Brachycephaly with plagio. I took him to Gilette Childrens in St MN where they felt his head and said "oh he's a mild case and you can do what you want. Here's a brochure on our helmet". Well that didn't sit well with me so I called back and complained. Turns out the person we saw was new to their facility and they wanted feedback on her. Well they got it! Anyway, I joined this group and was reading (a lot) and found that most of you at your initial appointments had at least measurments done if not scans to find out the severity of the condition. We never got measurments. I started to research a little more on the StarBand and found 1 place in MN that offers it. It's at Park tt in St. Loius Park. Just wondering if anyone has been there and what your experience was like and also what everyones thoughts are on the StarBand Helmet. I noticed that there are Active & Passive helmets. If I'm correct the

StarBand is Active. The CranioCap we were offered at Gilette is Passive. In your opinion, which offers a faster/better result? Is it also true that Brachy is harder to correct if not impossible? My son is 8mo old.

Thank you

[Guest guest]

Thank you ! I looked at Sydney's pics and they look almost identical to

my son's head shape. Can I ask at what age did you start the band and how long

did she wear it. Also what were her numbers? You had amazing results! I made an

appointment today. We go in next Tuesday April 5th.

Thank you

> >

> > My son has what I believe is Brachycephaly with plagio. I took him to

Gilette Childrens in St MN where they felt his head and said " oh he's a

mild case and you can do what you want. Here's a brochure on our helmet " . Well

that didn't sit well with me so I called back and complained. Turns out the

person we saw was new to their facility and they wanted feedback on her. Well

they got it! Anyway, I joined this group and was reading (a lot) and found that

most of you at your initial appointments had at least measurments done if not

scans to find out the severity of the condition. We never got measurments. I

started to research a little more on the StarBand and found 1 place in MN that

offers it. It's at Park tt in St. Loius Park. Just wondering if anyone has

been there and what your experience was like and also what everyones thoughts

are on the StarBand Helmet. I noticed that there are Active & Passive helmets.

If I'm correct the StarBand is Active. The CranioCap we were offered at Gilette

is Passive. In your opinion, which offers a faster/better result? Is it also

true that Brachy is harder to correct if not impossible? My son is 8mo old.

> >

> > Thank you

> >

> >

>

[Guest guest]

Hi

She wore it from age 5 mo to 10 mo. It is a long time and docbands seem to

correct quicker (or at least they are in a second docband by that time). She

made progress at every appointment, so we always knew we were going in the right

direction. There is a photo of her scan with her other photos that shows her

numbers and starting and ending shape. I think she went from 96% to 85%, and 4.5

mm to 3.5 mm. Some people have more rounding after the band is off, but it seems

to me her head is more or less the same now as when she was a baby (only bigger

with more hair). The band did make a huge difference, even if her head isn't

perfect.

-christine

sydney, 5 yrs, starband grad

> > >

> > > My son has what I believe is Brachycephaly with plagio. I took him to

Gilette Childrens in St MN where they felt his head and said " oh he's a

mild case and you can do what you want. Here's a brochure on our helmet " . Well

that didn't sit well with me so I called back and complained. Turns out the

person we saw was new to their facility and they wanted feedback on her. Well

they got it! Anyway, I joined this group and was reading (a lot) and found that

most of you at your initial appointments had at least measurments done if not

scans to find out the severity of the condition. We never got measurments. I

started to research a little more on the StarBand and found 1 place in MN that

offers it. It's at Park tt in St. Loius Park. Just wondering if anyone has

been there and what your experience was like and also what everyones thoughts

are on the StarBand Helmet. I noticed that there are Active & Passive helmets.

If I'm correct the StarBand is Active. The CranioCap we were offered at Gilette

is Passive. In your opinion, which offers a faster/better result? Is it also

true that Brachy is harder to correct if not impossible? My son is 8mo old.

> > >

> > > Thank you

> > >

> > >

> >

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