Guest guest Posted April 5, 2010 Report Share Posted April 5, 2010 Thanks ! I definitely think that in your experience, you had some great supporting information that made you confident in your decision. My guy is going to PT on Wednesday in polis, and I am looking forward to getting his neck situation straightened out. The imaging today went well. He was fantastic, but needed three ladies to keep him straight and then they did a few more photos once they realized the first ones didn't come out so great. I asked the clinician, when it was just my husband and I with her, how many bands had she done and she kind of looked at me sideways like she was a bit offended. I just keep reading here that it is the orthotist that is SO important, I felt like it was a valid question and I definitely did not put her on the spot in front of her colleagues or in front of my MIL and FIL who were with us. > > > > > > I'm new to this board and I'm so glad I found it. My youngest son > has > > > plagio and brachycephaly due to torticollis. We just finished up PT > > > last week. Our pediatrician didn't even take it seriously until his > 4 > > > month appt. (he was almost 5 months by then) and we couldn't get in > to > > > the pediatric neurosurgeon (Dr. in town, WV) until DS > was > > > almost 7 months. They have refered us to Hanger in town, WV (a > > > 1.5 hour drive from our home). I read some of the archived messages > on > > > them, but the orthotist referred to isn't the one who is listed on > their > > > website. The orthotist there is Tom Pacak. I intend to call them > > > tomorrow to get more info on his credentials. Everything I've read > > > seems to point to DOC as superior, but our closest CT is over a 3 > hour > > > drive (one way) in ndale, VA. Dr. said that in his > opinion > > > he would helmet if our insurance will cover it, but he wouldn't pay > out > > > of pocket as it will get better on its own. I'm just not so sure how > > > good his opinion is. I've gone over and over whether it will be more > > > worthwhile to drive farther to CT or not. Here are some pics of his > > > natural progress. Any advice is welcome. (The first pics he was 4 > > > months, 3 weeks. The second are from yesterday at 7 months, 3 > weeks.) > > > > > > > > > [ > http://sphotos.ak.fbcdn.net/hphotos-ak-snc3/hs238.snc3/22531_1046475595\ > > > 53222_100000239344850_114807_1785775_n.jpg] > > > > > > [ > http://sphotos.ak.fbcdn.net/hphotos-ak-ash1/hs426.ash1/23615_1117135688\ > > > 46621_100000239344850_197081_3638616_n.jpg] > > > > > > > > > [ > http://hphotos-snc3.fbcdn.net/hs238.snc3/22531_104647602886551_10000023\ > > > 9344850_114809_1415922_n.jpg] > > > [ > http://hphotos-snc3.fbcdn.net/hs386.snc3/23615_111713858846592_10000023\ > > > 9344850_197083_4006892_n.jpg] > > > > > > > > > [ > http://sphotos.ak.fbcdn.net/hphotos-ak-snc3/hs218.snc3/22531_1046475862\ > > > 19886_100000239344850_114808_7862415_n.jpg] > > > [ > http://sphotos.ak.fbcdn.net/hphotos-ak-ash1/hs426.ash1/23615_1117137288\ > > > 46605_100000239344850_197082_2133815_n.jpg] > > > > > > Quote Link to comment Share on other sites More sharing options...
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