Re: CT Scan to determine if skull bones are fused (plagiosynostosis)

[Guest guest]

Hi Virginia,

There have been parents on here who had cranial surgery, but I'm not sure if

they are active now. All the stories I've heard of this have gone very well, and

babies recovery quickly. However I would say in the majority of cases the CT

scan usually rules out craniosynostosis. Plagiocephaly (misshapen with not

fusion)is far more common. Hopefully that will be the case with your son too.

There is another online group that has more info on cranio. It is cappskids.org.

You may want to check that out. Please let us know what you find out about your

son's head.

-christine

sydney, 5 yrs, starband grad

>

> Our doctor, Dr. Pomerantz at the UCSF craniofacial anomolies center, is

concerned that our 5 month old son's skull plates might be fused

(plagiosynostosis). We are scheduled to have a CT scan next friday. He will

have to be under anesthesia so he doesn't move. They said the scan will last

about an hour. Needless to say we are nervous about all of this. It's

difficult to wait over a week to find out.

>

> I'm wondering....

>

> Has anyone else gone through this procedure with anesthesia?

>

> Is anyone familiar with Dr. Pomerantz or the UCSF craniofacial anomolies

center?

>

> Has anyone had to have surgery to correct the fused plates?

>

> Thanks,

>

> virginia

>

[Guest guest]

We had a MRI vs ct. Was MRI an option? There's no sedation with MRI. Sent from my iPhoneOn Feb 13, 2011, at 6:33 AM, "christineashok" <christineashok@...> wrote:

Hi Virginia,

There have been parents on here who had cranial surgery, but I'm not sure if they are active now. All the stories I've heard of this have gone very well, and babies recovery quickly. However I would say in the majority of cases the CT scan usually rules out craniosynostosis. Plagiocephaly (misshapen with not fusion)is far more common. Hopefully that will be the case with your son too.

There is another online group that has more info on cranio. It is cappskids.org. You may want to check that out. Please let us know what you find out about your son's head.

-christine

sydney, 5 yrs, starband grad

>

> Our doctor, Dr. Pomerantz at the UCSF craniofacial anomolies center, is concerned that our 5 month old son's skull plates might be fused (plagiosynostosis). We are scheduled to have a CT scan next friday. He will have to be under anesthesia so he doesn't move. They said the scan will last about an hour. Needless to say we are nervous about all of this. It's difficult to wait over a week to find out.

>

> I'm wondering....

>

> Has anyone else gone through this procedure with anesthesia?

>

> Is anyone familiar with Dr. Pomerantz or the UCSF craniofacial anomolies center?

>

> Has anyone had to have surgery to correct the fused plates?

>

> Thanks,

>

> virginia

>