Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Sorry for the repeat, I don't know how I did that. > > I'm wondering what to expect with a teenager starting the gfcf diet > with enzymes. How long it might take to really see good things? Will > the good behavior stick? (when it begins) > We started medications in the past and they were great, for > three weeks. Once that was over, everything turned around and > backfired on us and everything was as it was before. All the crying, > screaming, aggressiveness, etc. So you can see I'm still holding my > breath for a few weeks. > I've seen stories of recovering kids, but they were under the > age of five, so I don't know if I should expect that, but I would > expect less crying, and more concentration, etc. > Can anyone share their story? Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 hi, how about sugars? is your child getting a lot of sugars in their diet? [ ] What to expect I'm wondering what to expect with a teenager starting the gfcf diet with enzymes. How long it might take to really see good things? Will the good behavior stick? (when it begins) We started medications in the past and they were great, for three weeks. Once that was over, everything turned around and backfired on us and everything was as it was before. All the crying, screaming, aggressiveness, etc. So you can see I'm still holding my breath for a few weeks. I've seen stories of recovering kids, but they were under the age of five, so I don't know if I should expect that, but I would expect less crying, and more concentration, etc. Can anyone share their story? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Not much sugar allowed, he hits the roof if he has sugar. > > hi, how about sugars? is your child getting a lot of sugars in their diet? > > [ ] What to expect > > > I'm wondering what to expect with a teenager starting the gfcf diet > with enzymes. How long it might take to really see good things? Will > the good behavior stick? (when it begins) > We started medications in the past and they were great, for > three weeks. Once that was over, everything turned around and > backfired on us and everything was as it was before. All the crying, > screaming, aggressiveness, etc. So you can see I'm still holding my > breath for a few weeks. > I've seen stories of recovering kids, but they were under the > age of five, so I don't know if I should expect that, but I would > expect less crying, and more concentration, etc. > Can anyone share their story? Thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 We still had very slight flattening behind the ear at the end of treatment and it was on the opposite side of the velcro. So I don't think that inability to get the spot near the ear perfect is attributed to the velcro. I don't think they ever claim to get the heads 100% perfect but they can make great improvement. To me, that's the most we can hope for really. I mean, their skull has been deformed and that is a major thing, so we are thankful for any improvement that doesn't require dangerous surgery. Our son had a moderate case and the top part you are referring to did fill out more. But it all depends on the individual child's age they start the band, growth rate, and I am sure other factors. We're just thankful that most babies grow to have hair that covers up any slight differences. It sounds like your clinician is pretty pessimistic because we never heard that much negative prognoses like gave you. In fact, I had to ask about things like the chance of regression once the helmet comes off and the baby is back sleeping on their head again. I think the only thing she told me is that parents who have babies born with normal heads often expect the lower back to pop out like it was before, but that the helmet is not designed to squish the head out but give room for the flattened part to grow out. So the head will never be the same exact shape in the back as when the baby was born. I guess it is good though that they are forewarning you if that has been their experience with their patients. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 Hello Kim,I am in a neighboring county, Trinity, and we are part of the same regional center. You are in luck in that Rowell Family Empowerment services has offices in Redding also. They have a website and are in the local phone directory. There are training classes about services, IEPs and other disability/education related issues. Far Northern Regional Center is the local regional center. If you contact the regional center, there are various services available depending on your child's needs and what is provided by the school district and what is locally available. There are also some parent support groups that Rowell can put you in touch with. When prepping for a meeting on eligibility for services with the school, you can have support with you from Rowell, Far Northern and even from the Area 2 Board if you contact them and your situation sounds like you need the support to get what your child needs to get an education. Some of the services are things like scholarships for some trainings, in some cases respite care and assistance in getting the paperwork for medical under a disability waiver if needed. This is just a quick sample. If you contact the Family empowerment center you can tell them that Kathy from Trinity County SELPA CAC told you about them. Your local CAC can also be a source of information and contacts with other parents going through the same journey. Kathy J.On Sun, Dec 12, 2010 at 3:53 PM, Kim Elliott <kimkelliott@...> wrote: Hi, Does anyone live in California and have regional Services? We live in Redding and my son , age 5 was just diagnosed with Aspergers. I'm wondering what services the Regional Center provides. also has Cystic Fibrosis and we just recently put him on home/hospital because he was getting sick and ending up in the hospital a lot. We have an appointment soon with the Regional Center just wondering what to expect. He already qualifies for services. Hope this makes sense, I'm a little overwhelmed right now! Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2010 Report Share Posted December 14, 2010 Thanks Kathy,I'm a little familiar with the process. I'm a social worker here at a foster family agency. I'm a little concerned about the education piece since he is on home/hospital. I do have a friend, her name is Betsy, here in Shasta County who works for SELPA here. She told me she would go to any IEP meeting I wanted her too. I think I may ask her now. We'll have another IEP after the holidays to start addressing this stuff. Far Northern will come out on Monday at 530. We've made contact with Rowell and they will also be at the IEP. Honestly, I really don't know how to read the psychoeducational report, not my thing, so I may contact Betsy to see if she can help. I really always knew was going to be diagnosed but wow, when it happens it's a whole lot different!Thank you so much!KimFrom: Kathy <rrabbits@...> Sent: Tue, December 14, 2010 7:51:10 PMSubject: Re: ( ) What to expect Hello Kim,I am in a neighboring county, Trinity, and we are part of the same regional center. You are in luck in that Rowell Family Empowerment services has offices in Redding also. They have a website and are in the local phone directory. There are training classes about services, IEPs and other disability/education related issues. Far Northern Regional Center is the local regional center. If you contact the regional center, there are various services available depending on your child's needs and what is provided by the school district and what is locally available. There are also some parent support groups that Rowell can put you in touch with. When prepping for a meeting on eligibility for services with the school, you can have support with you from Rowell, Far Northern and even from the Area 2 Board if you contact them and your situation sounds like you need the support to get what your child needs to get an education. Some of the services are things like scholarships for some trainings, in some cases respite care and assistance in getting the paperwork for medical under a disability waiver if needed. This is just a quick sample. If you contact the Family empowerment center you can tell them that Kathy from Trinity County SELPA CAC told you about them. Your local CAC can also be a source of information and contacts with other parents going through the same journey. Kathy J.On Sun, Dec 12, 2010 at 3:53 PM, Kim Elliott <kimkelliott@...> wrote: Hi, Does anyone live in California and have regional Services? We live in Redding and my son , age 5 was just diagnosed with Aspergers. I'm wondering what services the Regional Center provides. also has Cystic Fibrosis and we just recently put him on home/hospital because he was getting sick and ending up in the hospital a lot. We have an appointment soon with the Regional Center just wondering what to expect. He already qualifies for services. Hope this makes sense, I'm a little overwhelmed right now! Kim Quote Link to comment Share on other sites More sharing options...
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