Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 Can you post the results of his hair test and get some feedback? You are so wise to begin intervention for your son now. > > Hi everyone, > I am going to try to make this as short as possible...I bet you've > heard that before, ha ha. Who has a short story here?! > > We have a three year old with SPD, well that is where it started > anyway, then we unraveled a slew of food allergies, 23 to be exact - > oh, plus two that we have been able to add to that list since having > his IgG done in September of 08. So we are free of many foods in > addition to GF/CF and corn-free. We continue to struggle with > " symptoms " . This lead me to start researching the WHY of it all. I > believe he also has yeast issues and who knows what else. So we > decided to do the Doctor's Data hair elements test. And here I am! > > I used the counting rules and it looks like he has a high probability > of mercury poisoning. This is the part that got us: > " If the number of items entirely inside the middle band (white and > green) is 11 or less it indicates a high probability of abnormal > mineral transport and it indicates a high probability of mercury > poisoning. " He is at exactly 11! > > Regarding the specific levels - his antimony, nickel, titanium, > copper, cobalt and zirconium are high and low are calcium, sodium, > potassium, vanadium, molybdenum, boron, strontium and rubidium. > > Sooooo, we did see a dr who is on the DAN! list (The Woodlands in > Quakertown, PA), but we didn't really even realize we were seeing one > and why we were there in the first place. That is when we decided on > the IgG test. Visiting him (an hour away) is covered under our > insurance, but the test wasn't. So, now my concern is that we won't > be covered for chelation and testing, if that is the direction we need > to go. He doesn't seem to be on the same page as what I am reading in > Children with Starving Brains, so I wonder if I should even bother > using him anyway. We can't afford to pay a doctor out of pocket for > this, so where does that leave us? Do we get more testing from here? > Do we attempt chelation naturally on our own? What is next? I am > desperate to help our wonderful son and want to have consistently > normal days again. I am exhausted and drained, we have a 7 month old > as well and I just wish I could enjoy them both while they are little. > This craziness creeps into my days and has me wishing for bedtime > more than I like to admit. > > I have a blog that I started recently when we were just getting going > on the GFCF diet, feel free to check it out - > http://grayson-youarewhatyoueat.blogspot.com/ > > Should I post the results of the hair elements test here to be sure > that I am reading it right? And I guess the big question is, WHAT > NOW?? I bought and started treating him with Liver Life from BioRay, > but he can't seem to ramp up past 8-9 drops and I can't even get near > the NDF Plus for chelating, he is highly aggrevated by it, so we are > avoiding it until I can ramp up the Liver Life more. I am stuck here > at this cross roads now though, the test has my mind reeling! > > Oh and our list of supplements currently are: > Cod Liver Oil > Kirkman hypoallergenic multi vitamins > HLC MindLinx by Pharmax probiotics > DMG > liquid calcium magnesium citrate > additional magnesium > zinc/C drops > Biotin and/or Lauricidin with NoPhenol between meals for yeast > chewable AFP and Zyme Prime enzymes with meals > > Lucky for me, the kid swallows pills like a champ!! Who would'a known > that a three year old could swallow pills like him and he doesn't even > need water! > > Since some of his elements came in low, should I be adjusting our > supplements? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Hi , Welcome to the list. Comments interspersed. S S New here and confused Posted by: " jessicagalligani " jessicagalligani@... jessicagalligani Thu Feb 5, 2009 7:18 pm (PST) Hi everyone, I am going to try to make this as short as possible...I bet you've heard that before, ha ha. Who has a short story here?! We have a three year old with SPD, well that is where it started anyway, then we unraveled a slew of food allergies, 23 to be exact - oh, plus two that we have been able to add to that list since having his IgG done in September of 08. So we are free of many foods in addition to GF/CF and corn-free. *Have you considered NAET? www.naet.com We continue to struggle with " symptoms " . This lead me to start researching the WHY of it all. I believe he also has yeast issues and who knows what else. So we decided to do the Doctor's Data hair elements test. And here I am! I used the counting rules and it looks like he has a high probability of mercury poisoning. This is the part that got us: " If the number of items entirely inside the middle band (white and green) is 11 or less it indicates a high probability of abnormal mineral transport and it indicates a high probability of mercury poisoning. " He is at exactly 11! Regarding the specific levels - his antimony, nickel, titanium, copper, cobalt and zirconium are high and low are calcium, sodium, potassium, vanadium, molybdenum, boron, strontium and rubidium. *Have you identified and reduced/removed sources of exposure? www.danasview.net/metals lists sources of exposure. Sooooo, we did see a dr who is on the DAN! list (The Woodlands in Quakertown, PA), but we didn't really even realize we were seeing one and why we were there in the first place. That is when we decided on the IgG test. Visiting him (an hour away) is covered under our insurance, but the test wasn't. So, now my concern is that we won't be covered for chelation and testing, if that is the direction we need to go. *Whether you chelate with the DAN or on your own (many of us do) make sure you use Andy Cutler's protocol. He doesn't seem to be on the same page as what I am reading in Children with Starving Brains, so I wonder if I should even bother using him anyway. We can't afford to pay a doctor out of pocket for this, so where does that leave us? *Many of us chelate without a doc. DMSA and ALA are available without a prescription. Do we get more testing from here? Do we attempt chelation naturally on our own? What is next? I am desperate to help our wonderful son and want to have consistently normal days again. I am exhausted and drained, we have a 7 month old as well and I just wish I could enjoy them both while they are little. This craziness creeps into my days and has me wishing for bedtime more than I like to admit. I have a blog that I started recently when we were just getting going on the GFCF diet, feel free to check it out - http://grayson-youarewhatyoueat.blogspot.com/ Should I post the results of the hair elements test here to be sure that I am reading it right? And I guess the big question is, WHAT NOW?? I bought and started treating him with Liver Life from BioRay, but he can't seem to ramp up past 8-9 drops and I can't even get near the NDF Plus for chelating, *NDF is not a good idea. Get DMSA and ALA instead. DMSA is available from www.vrp.com, ALA at most health food stores and pharmacy but you have to look for the low dose. he is highly aggrevated by it, so we are avoiding it until I can ramp up the Liver Life more. I am stuck here at this cross roads now though, the test has my mind reeling! Oh and our list of supplements currently are: Cod Liver Oil Kirkman hypoallergenic multi vitamins HLC MindLinx by Pharmax probiotics DMG liquid calcium magnesium citrate additional magnesium zinc/C drops Biotin and/or Lauricidin with NoPhenol between meals for yeast chewable AFP and Zyme Prime enzymes with meals Lucky for me, the kid swallows pills like a champ!! Who would'a known that a three year old could swallow pills like him and he doesn't even need water! You'll want to chase the ALA with water anyway and make sure he's well hydrated. Since some of his elements came in low, should I be adjusting our supplements? ------------------------------------------------------------ Adult Education Get educated. Click here for Adult Education programs. http://tagline.excite.com/fc/BK72PcZave53xoj9v2PGiZoqxGxp5JrkroT214lRgCtZwiOK3kj\ 9Us/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 >>We can't afford to pay a doctor out of pocket for > this, so where does that leave us? Do we get more testing from here? > Do we attempt chelation naturally on our own? I used ALA for my kids, without a doctor. >>I can't even get near > the NDF Plus for chelating, he is highly aggrevated by it, Try something else. I used ALA for chelating, and it worked very well here. > Biotin and/or Lauricidin with NoPhenol between meals for yeast Lauricidin caused so much yeast overgrowth here that I had to discontinue it and use something else to address viruses. So in my experience, it does nothing for yeast, except increase the yeast. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Oh no, Lauricidin INCREASED yeast for you guys? That isn't good. Maybe that is why he's acting out. He does better on the Biotin, I just switched it back to Biotin again today and he's doing better now. He was a mess on the Lauricidin and I couldn't figure it out. Now that you mention it, that is probably our trigger! SIGH The book Children with Starving Brains recommends alternating yeast treatments and we can't use GSE and most of the OoO has olive oil in it which he can't have either, except for the super expensive and highly concentrated kinds. I just haven't been able to drop another $50 on a supplement that might not work. We have a number of things piling up that don't work for him, it's such a waste of money and products! I know, I should sell them on the Autism for Sale site, I just haven't had the time. Thanks, you always manage to find me on all the groups, Dana!! You are like an angel sent from above, helping us all as you do! > >>We can't afford to pay a doctor out of pocket for > > this, so where does that leave us? Do we get more testing from here? > > Do we attempt chelation naturally on our own? > > > I used ALA for my kids, without a doctor. > > > >>I can't even get near > > the NDF Plus for chelating, he is highly aggrevated by it, > > > Try something else. I used ALA for chelating, and it worked very well > here. > > > > Biotin and/or Lauricidin with NoPhenol between meals for yeast > > > Lauricidin caused so much yeast overgrowth here that I had to > discontinue it and use something else to address viruses. So in my > experience, it does nothing for yeast, except increase the yeast. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 I won't have the graph bars in the copy and paste, is this good enough? Aluminum 7.3 < 8.0 Antimony 0.13 < 0.066 Arsenic 0.050 < 0.080 Barium 0.19 < 0.50 Beryllium < 0.01 < 0.020 Bismuth 0.10 < 2.0 Cadmium 0.016 < 0.070 Lead 0.23 < 1.0 Mercury 0.09 < 0.40 Platinum < 0.003 < 0.005 Thallium < 0.001 < 0.002 Thorium < 0.001 < 0.002 Uranium 0.027 < 0.060 Nickel 1.5 < 0.20 Silver 0.05 < 0.20 Tin 0.17 < 0.30 Titanium 1.2 < 1.0 Calcium 120 125- 370 Magnesium 22 12- 30 Sodium 7 20- 200 Potassium < 3 12- 200 Copper 25 11- 18 Zinc 170 100- 190 Manganese 0.24 0.10- 0.50 Chromium 0.71 0.43- 0.80 Vanadium 0.018 0.030- 0.10 Molybdenum 0.046 0.050- 0.13 Boron 0.19 0.70- 5.0 Iodine 0.92 0.25- 1.3 Lithium 0.010 0.007- 0.020 Phosphorus 189 150- 220 Selenium 0.77 0.70- 1.1 Strontium 0.11 0.16- 1.0 Sulfur 46300 45500- 53000 Cobalt 0.031 0.004- 0.020 Iron 15 7.0- 16 Germanium 0.035 0.030- 0.040 Rubidium 0.007 0.016- 0.18 Zirconium 2.3 0.040- 1.0 > > > > Hi everyone, > > I am going to try to make this as short as possible...I bet you've > > heard that before, ha ha. Who has a short story here?! > > > > We have a three year old with SPD, well that is where it started > > anyway, then we unraveled a slew of food allergies, 23 to be exact - > > oh, plus two that we have been able to add to that list since having > > his IgG done in September of 08. So we are free of many foods in > > addition to GF/CF and corn-free. We continue to struggle with > > " symptoms " . This lead me to start researching the WHY of it all. I > > believe he also has yeast issues and who knows what else. So we > > decided to do the Doctor's Data hair elements test. And here I am! > > > > I used the counting rules and it looks like he has a high > probability > > of mercury poisoning. This is the part that got us: > > " If the number of items entirely inside the middle band (white and > > green) is 11 or less it indicates a high probability of abnormal > > mineral transport and it indicates a high probability of mercury > > poisoning. " He is at exactly 11! > > > > Regarding the specific levels - his antimony, nickel, titanium, > > copper, cobalt and zirconium are high and low are calcium, sodium, > > potassium, vanadium, molybdenum, boron, strontium and rubidium. > > > > Sooooo, we did see a dr who is on the DAN! list (The Woodlands in > > Quakertown, PA), but we didn't really even realize we were seeing > one > > and why we were there in the first place. That is when we decided > on > > the IgG test. Visiting him (an hour away) is covered under our > > insurance, but the test wasn't. So, now my concern is that we won't > > be covered for chelation and testing, if that is the direction we > need > > to go. He doesn't seem to be on the same page as what I am reading > in > > Children with Starving Brains, so I wonder if I should even bother > > using him anyway. We can't afford to pay a doctor out of pocket for > > this, so where does that leave us? Do we get more testing from > here? > > Do we attempt chelation naturally on our own? What is next? I am > > desperate to help our wonderful son and want to have consistently > > normal days again. I am exhausted and drained, we have a 7 month > old > > as well and I just wish I could enjoy them both while they are > little. > > This craziness creeps into my days and has me wishing for bedtime > > more than I like to admit. > > > > I have a blog that I started recently when we were just getting > going > > on the GFCF diet, feel free to check it out - > > http://grayson-youarewhatyoueat.blogspot.com/ > > > > Should I post the results of the hair elements test here to be sure > > that I am reading it right? And I guess the big question is, WHAT > > NOW?? I bought and started treating him with Liver Life from > BioRay, > > but he can't seem to ramp up past 8-9 drops and I can't even get > near > > the NDF Plus for chelating, he is highly aggrevated by it, so we are > > avoiding it until I can ramp up the Liver Life more. I am stuck > here > > at this cross roads now though, the test has my mind reeling! > > > > Oh and our list of supplements currently are: > > Cod Liver Oil > > Kirkman hypoallergenic multi vitamins > > HLC MindLinx by Pharmax probiotics > > DMG > > liquid calcium magnesium citrate > > additional magnesium > > zinc/C drops > > Biotin and/or Lauricidin with NoPhenol between meals for yeast > > chewable AFP and Zyme Prime enzymes with meals > > > > Lucky for me, the kid swallows pills like a champ!! Who would'a > known > > that a three year old could swallow pills like him and he doesn't > even > > need water! > > > > Since some of his elements came in low, should I be adjusting our > > supplements? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Is it normal to have fluctuating numbers on different tests? We had the wrong hair toxic elements test done initially so we had the correct one done which means I have two reports within 3-4 weeks to compare. Many of his levels bounced around. Some went down and some jumped way up, like the nickel. I had trouble getting the second sample from his head since I had just cut off most of his hair for the first test, so I was scraping the strands together to make it for the second test. Could I have contaminated it with something? I used the same clippers for both hair cuts. > > Hi everyone, > I am going to try to make this as short as possible...I bet you've > heard that before, ha ha. Who has a short story here?! > > We have a three year old with SPD, well that is where it started > anyway, then we unraveled a slew of food allergies, 23 to be exact - > oh, plus two that we have been able to add to that list since having > his IgG done in September of 08. So we are free of many foods in > addition to GF/CF and corn-free. We continue to struggle with > " symptoms " . This lead me to start researching the WHY of it all. I > believe he also has yeast issues and who knows what else. So we > decided to do the Doctor's Data hair elements test. And here I am! > > I used the counting rules and it looks like he has a high probability > of mercury poisoning. This is the part that got us: > " If the number of items entirely inside the middle band (white and > green) is 11 or less it indicates a high probability of abnormal > mineral transport and it indicates a high probability of mercury > poisoning. " He is at exactly 11! > > Regarding the specific levels - his antimony, nickel, titanium, > copper, cobalt and zirconium are high and low are calcium, sodium, > potassium, vanadium, molybdenum, boron, strontium and rubidium. > > Sooooo, we did see a dr who is on the DAN! list (The Woodlands in > Quakertown, PA), but we didn't really even realize we were seeing one > and why we were there in the first place. That is when we decided on > the IgG test. Visiting him (an hour away) is covered under our > insurance, but the test wasn't. So, now my concern is that we won't > be covered for chelation and testing, if that is the direction we need > to go. He doesn't seem to be on the same page as what I am reading in > Children with Starving Brains, so I wonder if I should even bother > using him anyway. We can't afford to pay a doctor out of pocket for > this, so where does that leave us? Do we get more testing from here? > Do we attempt chelation naturally on our own? What is next? I am > desperate to help our wonderful son and want to have consistently > normal days again. I am exhausted and drained, we have a 7 month old > as well and I just wish I could enjoy them both while they are little. > This craziness creeps into my days and has me wishing for bedtime > more than I like to admit. > > I have a blog that I started recently when we were just getting going > on the GFCF diet, feel free to check it out - > http://grayson-youarewhatyoueat.blogspot.com/ > > Should I post the results of the hair elements test here to be sure > that I am reading it right? And I guess the big question is, WHAT > NOW?? I bought and started treating him with Liver Life from BioRay, > but he can't seem to ramp up past 8-9 drops and I can't even get near > the NDF Plus for chelating, he is highly aggrevated by it, so we are > avoiding it until I can ramp up the Liver Life more. I am stuck here > at this cross roads now though, the test has my mind reeling! > > Oh and our list of supplements currently are: > Cod Liver Oil > Kirkman hypoallergenic multi vitamins > HLC MindLinx by Pharmax probiotics > DMG > liquid calcium magnesium citrate > additional magnesium > zinc/C drops > Biotin and/or Lauricidin with NoPhenol between meals for yeast > chewable AFP and Zyme Prime enzymes with meals > > Lucky for me, the kid swallows pills like a champ!! Who would'a known > that a three year old could swallow pills like him and he doesn't even > need water! > > Since some of his elements came in low, should I be adjusting our > supplements? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 No, we need the color of the bar and whether it's to the right or left. >I won't have the graph bars in the copy and paste, is this good enough? > >Aluminum 7.3 < 8.0 >Antimony 0.13 < 0.066 >Arsenic 0.050 < 0.080 >Barium 0.19 < 0.50 >Beryllium < 0.01 < 0.020 >Bismuth 0.10 < 2.0 >Cadmium 0.016 < 0.070 >Lead 0.23 < 1.0 >Mercury 0.09 < 0.40 >Platinum < 0.003 < 0.005 >Thallium < 0.001 < 0.002 >Thorium < 0.001 < 0.002 >Uranium 0.027 < 0.060 >Nickel 1.5 < 0.20 >Silver 0.05 < 0.20 >Tin 0.17 < 0.30 >Titanium 1.2 < 1.0 >Calcium 120 125- 370 >Magnesium 22 12- 30 >Sodium 7 20- 200 >Potassium < 3 12- 200 >Copper 25 11- 18 >Zinc 170 100- 190 >Manganese 0.24 0.10- 0.50 >Chromium 0.71 0.43- 0.80 >Vanadium 0.018 0.030- 0.10 >Molybdenum 0.046 0.050- 0.13 >Boron 0.19 0.70- 5.0 >Iodine 0.92 0.25- 1.3 >Lithium 0.010 0.007- 0.020 >Phosphorus 189 150- 220 >Selenium 0.77 0.70- 1.1 >Strontium 0.11 0.16- 1.0 >Sulfur 46300 45500- 53000 >Cobalt 0.031 0.004- 0.020 >Iron 15 7.0- 16 >Germanium 0.035 0.030- 0.040 >Rubidium 0.007 0.016- 0.18 >Zirconium 2.3 0.040- 1.0 > > >> > >> > Hi everyone, >> > I am going to try to make this as short as possible...I bet you've >> > heard that before, ha ha. Who has a short story here?! >> > >> > We have a three year old with SPD, well that is where it started >> > anyway, then we unraveled a slew of food allergies, 23 to be exact - >> > oh, plus two that we have been able to add to that list since having >> > his IgG done in September of 08. So we are free of many foods in >> > addition to GF/CF and corn-free. We continue to struggle with >> > " symptoms " . This lead me to start researching the WHY of it all. I >> > believe he also has yeast issues and who knows what else. So we >> > decided to do the Doctor's Data hair elements test. And here I am! >> > >> > I used the counting rules and it looks like he has a high >> probability >> > of mercury poisoning. This is the part that got us: >> > " If the number of items entirely inside the middle band (white and >> > green) is 11 or less it indicates a high probability of abnormal >> > mineral transport and it indicates a high probability of mercury >> > poisoning. " He is at exactly 11! >> > >> > Regarding the specific levels - his antimony, nickel, titanium, >> > copper, cobalt and zirconium are high and low are calcium, sodium, >> > potassium, vanadium, molybdenum, boron, strontium and rubidium. >> > >> > Sooooo, we did see a dr who is on the DAN! list (The Woodlands in >> > Quakertown, PA), but we didn't really even realize we were seeing >> one >> > and why we were there in the first place. That is when we decided >> on >> > the IgG test. Visiting him (an hour away) is covered under our >> > insurance, but the test wasn't. So, now my concern is that we won't >> > be covered for chelation and testing, if that is the direction we >> need >> > to go. He doesn't seem to be on the same page as what I am reading >> in >> > Children with Starving Brains, so I wonder if I should even bother >> > using him anyway. We can't afford to pay a doctor out of pocket for >> > this, so where does that leave us? Do we get more testing from >> here? >> > Do we attempt chelation naturally on our own? What is next? I am >> > desperate to help our wonderful son and want to have consistently >> > normal days again. I am exhausted and drained, we have a 7 month >> old >> > as well and I just wish I could enjoy them both while they are >> little. >> > This craziness creeps into my days and has me wishing for bedtime >> > more than I like to admit. >> > >> > I have a blog that I started recently when we were just getting >> going >> > on the GFCF diet, feel free to check it out - > > > ><http://grayson-youarewhatyoueat.blogspot.com/>http://grayson-youarewhatyoueat.\ blogspot.com/ >> > >> > Should I post the results of the hair elements test here to be sure >> > that I am reading it right? And I guess the big question is, WHAT >> > NOW?? I bought and started treating him with Liver Life from >> BioRay, >> > but he can't seem to ramp up past 8-9 drops and I can't even get >> near >> > the NDF Plus for chelating, he is highly aggrevated by it, so we are >> > avoiding it until I can ramp up the Liver Life more. I am stuck >> here >> > at this cross roads now though, the test has my mind reeling! >> > >> > Oh and our list of supplements currently are: >> > Cod Liver Oil >> > Kirkman hypoallergenic multi vitamins >> > HLC MindLinx by Pharmax probiotics >> > DMG >> > liquid calcium magnesium citrate >> > additional magnesium >> > zinc/C drops >> > Biotin and/or Lauricidin with NoPhenol between meals for yeast >> > chewable AFP and Zyme Prime enzymes with meals >> > >> > Lucky for me, the kid swallows pills like a champ!! Who would'a >> known >> > that a three year old could swallow pills like him and he doesn't >> even >> > need water! >> > >> > Since some of his elements came in low, should I be adjusting our >> > supplements? >> > >> > >> > >> > >> > > > -- Ralph Nader on the need for moral courage: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2009 Report Share Posted February 7, 2009 We need colors on everything and over or under 50% on the essentials. S S Re: New here and confused Posted by: " jessicagalligani " jessicagalligani@... jessicagalligani Fri Feb 6, 2009 12:13 pm (PST) I won't have the graph bars in the copy and paste, is this good enough? Aluminum 7.3 < 8.0 Antimony 0.13 < 0.066 Arsenic 0.050 < 0.080 Barium 0.19 < 0.50 Beryllium < 0.01 < 0.020 Bismuth 0.10 < 2.0 Cadmium 0.016 < 0.070 Lead 0.23 < 1.0 Mercury 0.09 < 0.40 Platinum < 0.003 < 0.005 Thallium < 0.001 < 0.002 Thorium < 0.001 < 0.002 Uranium 0.027 < 0.060 Nickel 1.5 < 0.20 Silver 0.05 < 0.20 Tin 0.17 < 0.30 Titanium 1.2 < 1.0 Calcium 120 125- 370 Magnesium 22 12- 30 Sodium 7 20- 200 Potassium < 3 12- 200 Copper 25 11- 18 Zinc 170 100- 190 Manganese 0.24 0.10- 0.50 Chromium 0.71 0.43- 0.80 Vanadium 0.018 0.030- 0.10 Molybdenum 0.046 0.050- 0.13 Boron 0.19 0.70- 5.0 Iodine 0.92 0.25- 1.3 Lithium 0.010 0.007- 0.020 Phosphorus 189 150- 220 Selenium 0.77 0.70- 1.1 Strontium 0.11 0.16- 1.0 Sulfur 46300 45500- 53000 Cobalt 0.031 0.004- 0.020 Iron 15 7.0- 16 Germanium 0.035 0.030- 0.040 Rubidium 0.007 0.016- 0.18 Zirconium 2.3 0.040- 1.0 ------------------------------------------------------------ Debt Consolidation Click to consolidate your debt in minutes, stop late or over-limit fees, pay less. http://tagline.excite.com/fc/BK72PcZaafJVnpFwnlEZde9gWhL9AMXH4qhs38mWSWyjN8jZl9a\ Vuo/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2009 Report Share Posted February 10, 2009 > > I am new here and I have been struggling with the decision of TKR > bilatteral for a few weeks now. I am only 36 yrs old, lots of sports > injuries over the years and weight is an issue as well. > <snip> > How much time does one > truely need for recovery, before they go back to work? 6 weeks? Any > input would be great. > > Deena > Hi, Deena. I think it can rarely be done in 6 weeks, but plan for more, maybe a lot more. Take your time to be able to do your PT, which is hard to do while working, even if you are able to work from home. Bill in MN Bilateral TKR a little over a year ago. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2009 Report Share Posted February 10, 2009 I would get a second and third opinion that you only have the option of a TKR. After 4 or more excellent ortho docs told me that was the only thing they could do to fix my knees, then I resigned myself to it. I would not take the word of just one surgeon. I assume Euflexxa is like Synvisc and others, an HLA substance they inject into your knees. If this stuff works for you to where you still have a life, a lot of people really benefit from it and it does postpone surgery. It didn't work on me, my knees were shot. I decided to get TKR when I noticed I was making excuses to go out and do things, because of knee pain, and my quality of life was diminished. Personally I wouldn't have a bilateral, too tough emotionally and physically. But there are people who do. Good luck Hollie > I am new here and I have been struggling with the decision of TKR > bilatteral for a few weeks now. I am only 36 yrs old, lots of sports > injuries over the years and weight is an issue as well. I have been > getting Euflexxa injections in both knees every 6 months and steroid > injections every other three months this has been going on for about a > year now. I was told by a surgeon last week that I need both knees > replaced and I should not wait any longer due to compromising the > ligaments. Is this true? Has anyone heard anything like this? My > theory is why not buy myself as much time possible if the injections > are working some what. And they are, I am 3 weeks out from injection > #3 of Euflexxa and still have pain but it is minimal, can't do stairs > but hey thats ok. Any suggestions? Ideas? How much time does one > truely need for recovery, before they go back to work? 6 weeks? Any > input would be great. > > Deena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Hi Deena, I wouldn't do both knees at once - just my own personal suggestion. That said, if you can't do STAIRS, how do you get around? And if you can't do stairs, you can't really get good exercise - and good exercise is vital to the health of your whole body. If you can do a complete exercise program, walk several miles, and go up and down stairs, then you don't need knee replacement yet. But if your knees are keeping you from doing any one of those things, the rest of you is suffering. claire Callahan Goodman I am new here and I have been struggling with the decision of TKR bilatteral for a few weeks now. I am only 36 yrs old, lots of sports injuries over the years and weight is an issue as well. I have been getting Euflexxa injections in both knees every 6 months and steroid injections every other three months this has been going on for about a year now. I was told by a surgeon last week that I need both knees replaced and I should not wait any longer due to compromising the ligaments. Is this true? Has anyone heard anything like this? My theory is why not buy myself as much time possible if the injections are working some what. And they are, I am 3 weeks out from injection #3 of Euflexxa and still have pain but it is minimal, can't do stairs but hey thats ok. Any suggestions? Ideas? How much time does one truely need for recovery, before they go back to work? 6 weeks? Any input would be great. Deena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 Deena, I agree with , I wouldn't get both knees done at the same time either. It's been 5 months since I had my left TKR and my right one is scheduled for March 17, and I can barely wait! The difference is unbelievable. I also have weight issues and my doctor didn't think that I should do both at once. The impatient part of me says " I wish I had " but the thinking part of me knows that it was the right choice. It also helps to have the comparison of the " new " knee vs. the " old " knee. I went back to work last time at 5 weeks, but since I will need to be using my leg to drive, I will wait the 6 weeks this time. I thought 5 was too early, but it was time off work and money situation.. Anyway, it's been a struggle for the past 5 months to have to still deal with pain in my right knee, so I would suggest that if you are doing well with the first knee, do the other one as soon as you feel confident. (again, mine was an insurance thing.) You will be so glad you did it! Good luck! =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 > > Deena, > I agree with , I wouldn't get both knees done at the same time > either. It's been 5 months since I had my left TKR and my right one is > scheduled for March 17, and I can barely wait! The difference is > unbelievable. Regarding doing one at a time vs. two at once - that is mostly between you and your doctor, but a lot of the choice is whether you are up to it or not. When I made the choice, I was talking with two surgeons, One wanted to do two, the other, one at a time. My dad was pretty sick with cancer at the time, and a long-time friend of the family came over to visit him. This man had two done at once, a couple of years before, and had just come back from a week of skiing in Colorado. And he was 80 years old! Since he was now my hero, I asked him if he had any regrets about doing two, and in his words, " it is the only way to go! " Based on his comments and his success, I went ahead and scheduled the bilateral. A few weeks later, I was talking with him about another matter related to cars, and happened to ask him, " why is it the only way to go? " He said, " because if I only did one, I would never have done the other. " That said, now having done a bilateral, I wouldn't discourage you from having both done, nor would I discourage you from the choice of one at a time. The thing is, go into the choice with both eyes open, and with realistic expectations. For me, the main advantage of bilateral was that I'd only have to go through the big surgery once. The recovery of the bilateral will take longer than one knee, but I would argue that it is less than the total time of doing two separately. The recovery and PT are obviously a little more harsh with two at once. I noticed that when the people I went through PT with could focus on only one knee, they got their flexion back sooner. Just a few disconnected thoughts... Bill in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 I can understand your apprehension. I'm only 43 and just had total hip replacement. I also did the different steroid shots/injections as a last resort. However, after doing the research, many of those injections on a regular basis can do more harm than good. I strongly recco you research the long term effects of continuing these injections vs. the benefits/drawbacks of the surgery. I can say without a doubt that I am SO pleased I had the surgery. While it may not be the last resort for you, when you eventually do have it done, you will wonder why you waited so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 I can only speak from friends' experiences who said that they were glad they had gotten both knees done at once. Recovery was a little harder in terms of mobility but once it was done, it was done. My friend who had both knees done had someone at home to help her with everything including the physical therapy for (I think) two weeks. My other friend who needs both knees done also wants to have both at the same time. The OS told her it would be a matter of how long it took to do one knee as she has some respiratory difficulties and he doesn't think it would be wise for her to have a prolonged operation if he couldn't do them both in the " normal " time. On Feb 13, 2009, at 4:06 AM, Bill wrote: > > > > > Deena, > > I agree with , I wouldn't get both knees done at the same time > > either. It's been 5 months since I had my left TKR and my right > one is > > scheduled for March 17, and I can barely wait! The difference is > > unbelievable. > > Regarding doing one at a time vs. two at once - that is mostly between > you and your doctor, but a lot of the choice is whether you are up to > it or not. When I made the choice, I was talking with two surgeons, > One wanted to do two, the other, one at a time. My dad was pretty sick > with cancer at the time, and a long-time friend of the family came > over to visit him. This man had two done at once, a couple of years > before, and had just come back from a week of skiing in Colorado. And > he was 80 years old! Since he was now my hero, I asked him if he had > any regrets about doing two, and in his words, " it is the only way to > go! " Based on his comments and his success, I went ahead and > scheduled the bilateral. > > A few weeks later, I was talking with him about another matter related > to cars, and happened to ask him, " why is it the only way to go? " He > said, " because if I only did one, I would never have done the other. " > > That said, now having done a bilateral, I wouldn't discourage you from > having both done, nor would I discourage you from the choice of one at > a time. The thing is, go into the choice with both eyes open, and with > realistic expectations. > > For me, the main advantage of bilateral was that I'd only have to go > through the big surgery once. The recovery of the bilateral will take > longer than one knee, but I would argue that it is less than the total > time of doing two separately. The recovery and PT are obviously a > little more harsh with two at once. I noticed that when the people I > went through PT with could focus on only one knee, they got their > flexion back sooner. > > Just a few disconnected thoughts... > > Bill in MN > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 Hi there I am new here, have a 5.5 month old son with I guess brachy - his head is kinda flat in the back and wide, but it isn't uneven and we don't have any assymetry issues. We were referred to a plastic/neurosurgeon who said she recommends a helmet but said to try keeping him off the back of his head for a month before we decide - see if it rounds out at all. Meanwhile I am obsessing...half of my friends and family say we should get the helmet, and half say his head is fine and it's a waste of money. Me and my husband don't know what to think. I don't think his head is all that abnormal...a little big maybe, but his dad has a big noggin'. I need some more opinions from people who know what they are talking about. I'll try to post some pics. His name Is Jack... Also, I know this is ridiculous, but I keep tearing up thinking about his poor little head being in a helmet for 4 months. I know it's not that big of a deal and it will probably fly by, but for some reason it hurts me...I'm scared he is going to hate it!! Quote Link to comment Share on other sites More sharing options...
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