Flying

[Guest guest]

Ann, thank you for asking this question. It was on my list to ask but

hadn't gotten around to asking it yet. As you know, by the time I have

the answer for you it will be too late . I'm sure I'll see you in

Amarillo either before my surgery or after yours.

Tami

>

> Hi all. I am hoping to get some feedback from those of you who had to

> fly home after revision surgery. I have this image of the plane

> landing and the impact going right through your spine. I am 500

miles

> away from Amarillo. We discussed driving, but I don't think riding

is

> such a great idea, even if we break it up into two days. Thanks for

> any info you can give me.

>

> Ann

>

[Guest guest]

Ann,

If I had to do it again, I would definitly fly. The car ride was to

tough! It not only had me tensed up for 9 hours but so was my husband.

He was so afraid whenever someone would cut in front of him to close

and would have to put on the brakes. Also going through the cities and

larger towns was really scary!!! I was laying on the floor of the van

on top of an air filled mattress (it was to uncomfortably laying on the

seat). At least on the plane you only have the few minutes of taking

off and landing that are really bad. I haven't flown right after any of

my surgeries. The earliest was after the 2nd revision, I flew at 5

weeks post op.

Theresa

[Guest guest]

Thank you Theresa. Driving would take us about the same amount of

time as your trip home. I'll start checking into flying. Ann

-- In , " Theresa " <tabd1@...> wrote:

>

> Ann,

>

> If I had to do it again, I would definitly fly. The car ride was

to

> tough! It not only had me tensed up for 9 hours but so was my

husband.

> He was so afraid whenever someone would cut in front of him to

close

> and would have to put on the brakes. Also going through the cities

and

> larger towns was really scary!!! I was laying on the floor of the

van

> on top of an air filled mattress (it was to uncomfortably laying

on the

> seat). At least on the plane you only have the few minutes of

taking

> off and landing that are really bad. I haven't flown right after

any of

> my surgeries. The earliest was after the 2nd revision, I flew at 5

> weeks post op.

>

> Theresa

>

[Guest guest]

HI Ann,

I didn't fly home, but I think it would be better than driving. First, statistically, there are many more accidents related to driving than to flying. Second, after revision, the potholes are scary and you can't anticipate all of them. However, you can easily anticipate when the plane will touch ground. What I do, driving over bumps or landing in a plane is, just before the plane touches ground, I raise my tush off the seat, by putting all my body weight on my hands/arms, with my hands on both sides of my body next to my tush. I hope that make sense. It only takes a second until the plane actually touches ground, and then you relax on your tush again. I hope this all makes sense!

Bonnie

[ ] Flying

Hi all. I am hoping to get some feedback from those of you who had to fly home after revision surgery. I have this image of the plane landing and the impact going right through your spine. I am 500 miles away from Amarillo. We discussed driving, but I don't think riding is such a great idea, even if we break it up into two days. Thanks for any info you can give me. Ann

[Guest guest]

It helps a lot Bonnie. I love your " lift " tip. I will have to

take a puddle-jumper from DFW to Tyler or Longview. How long after

surgery did you travel? Did you havce A/P procedures? Thanks so

much. Ann

tback_Revised , " Bonnie " <bonnie@...> wrote:

>

> HI Ann,

>

> I didn't fly home, but I think it would be better than driving.

First, statistically, there are many more accidents related to

driving than to flying. Second, after revision, the potholes are

scary and you can't anticipate all of them. However, you can easily

anticipate when the plane will touch ground. What I do, driving

over bumps or landing in a plane is, just before the plane touches

ground, I raise my tush off the seat, by putting all my body weight

on my hands/arms, with my hands on both sides of my body next to my

tush. I hope that make sense. It only takes a second until the

plane actually touches ground, and then you relax on your tush

again. I hope this all makes sense!

>

> Bonnie

>

>

> [ ] Flying

>

>

> Hi all. I am hoping to get some feedback from those of you who

had to

> fly home after revision surgery. I have this image of the plane

> landing and the impact going right through your spine. I am 500

miles

> away from Amarillo. We discussed driving, but I don't think

riding is

> such a great idea, even if we break it up into two days. Thanks

for

> any info you can give me.

>

> Ann

>

[Guest guest]

In a message dated 10/16/2007 5:38:50 PM GMT Daylight Time,

jaime_schunkewitz@... writes:

I had no discernible reaction on a plane from Newark,

crap jersey to Florida. There was about 7 milli gauss on the

plane, which pulsed every few seconds.

It was surprising that I didn't get a terribly bad

reaction to the magnetic field. Such a high

measurement from high voltage power lines on the

ground causes severe symptoms for me.

Eli

Same for me - I can handle a quick flight ok, last yr I was stranded in

airport for 12 ht-rs that was different so I wore my headnet after 4hrs, theory

-

maybe the body can take a good wack when adrenaline etc is present such as

the type you get when embarking on hols ?but in normal lfe not so

p uk

[Guest guest]

> I'd like to hear what other people's experiences are with flying and if

> you've stayed in hotels, how that went.

When I was at my most sensitive, I went on a trip -- being at the airport

was bothersome, mostly due to the monitor screens everywhere. The

airplane was bothersome due to the fluorescent lights above your

head, also due to people next to you with their portable DVD players

and laptops. The hotels were bad due to the energy-efficient florescent

lighting (which I would sometimes replace with my own incandescent bulbs),

also you can have trouble if the room next door has their TV on, and

the TV is on the other side of the wall to your bed. Also, wi-fi

transmitters can be a problem if your room is too close to the

transmitter.

Before going on the trip, I was worried about being too close to the

airplane's engines. However, as it turned out, this wasn't a problem

at all -- and on one leg of the trip, I was sitting in the back of

the plane right next to an engine!

Marc

[Guest guest]

I just recently did a plane trip to NY and back. I used Bach's Rescue

Remedy with some success.

On Oct 16, 2007, at 10:09 AM, Marc wrote:

>> I'd like to hear what other people's experiences are with flying and

>> if

>> you've stayed in hotels, how that went.

>

> When I was at my most sensitive, I went on a trip -- being at the

> airport

> was bothersome, mostly due to the monitor screens everywhere. The

> airplane was bothersome due to the fluorescent lights above your

> head, also due to people next to you with their portable DVD players

> and laptops. The hotels were bad due to the energy-efficient

> florescent

> lighting (which I would sometimes replace with my own incandescent

> bulbs),

> also you can have trouble if the room next door has their TV on, and

> the TV is on the other side of the wall to your bed. Also, wi-fi

> transmitters can be a problem if your room is too close to the

> transmitter.

>

> Before going on the trip, I was worried about being too close to the

> airplane's engines. However, as it turned out, this wasn't a problem

> at all -- and on one leg of the trip, I was sitting in the back of

> the plane right next to an engine!

>

> Marc

>

>

>

>

[Guest guest]

I found (based on recent measurements in two planes, one a Boeing 787) the

back of the plane is better. The strobe lights on the planes may be part of

the problem. There are pulsing magnetic

fields, and RF or microwaves throughout the flight.

I've worn a silver veil, shirt and shorts my last 2 trips.

Be aware of wi-fi in the airports; also cell users on the plane before

take-off and after landing.

Ask for a hotel room away from Wi-Fi antennas, and elevators, ice machine

etc.

Good idea to bring a couple light bulbs. In one hotel maintenance was nice

about bringing me a normal bulb.

Good luck (set a limit for gambling...)

Bill

On 10/16/07, Marc <marc@...> wrote:

>

> > I'd like to hear what other people's experiences are with flying and

> if

> > you've stayed in hotels, how that went.

>

> When I was at my most sensitive, I went on a trip -- being at the airport

> was bothersome, mostly due to the monitor screens everywhere. The

> airplane was bothersome due to the fluorescent lights above your

> head, also due to people next to you with their portable DVD players

> and laptops. The hotels were bad due to the energy-efficient florescent

> lighting (which I would sometimes replace with my own incandescent bulbs),

> also you can have trouble if the room next door has their TV on, and

> the TV is on the other side of the wall to your bed. Also, wi-fi

> transmitters can be a problem if your room is too close to the

> transmitter.

>

> Before going on the trip, I was worried about being too close to the

> airplane's engines. However, as it turned out, this wasn't a problem

> at all -- and on one leg of the trip, I was sitting in the back of

> the plane right next to an engine!

>

> Marc

>

>

[Guest guest]

> with ES my life is different. I'm now quite sensitive to the

> frequencies from televisions, computers and high voltage wires, cell

> towers when driving. I don't watch televison at all and stay on the

> computer for short periods.

Sounds awfully similar to my situation.

I had no discernible reaction on a plane from Newark,

crap jersey to Florida. There was about 7 milli gauss on the

plane, which pulsed every few seconds.

It was surprising that I didn't get a terribly bad

reaction to the magnetic field. Such a high

measurement from high voltage power lines on the

ground causes severe symptoms for me.

Eli

[Guest guest]

I agree it's surprising for me also I tolerated the magnetic

field so well. It could be that it has essentially no 60Hz component?

Or because there's no corresponding electric field as there tends

to be when not in a metal fuselage?

Bill

PS: I said Boing 787 but those aren't flying yet; should have said 767.

On 10/16/07, jaime_schunkewitz <jaime_schunkewitz@...> wrote:

>

> > with ES my life is different. I'm now quite sensitive to the

> > frequencies from televisions, computers and high voltage wires, cell

> > towers when driving. I don't watch televison at all and stay on the

> > computer for short periods.

>

> Sounds awfully similar to my situation.

>

> I had no discernible reaction on a plane from Newark,

> crap jersey to Florida. There was about 7 milli gauss on the

> plane, which pulsed every few seconds.

>

> It was surprising that I didn't get a terribly bad

> reaction to the magnetic field. Such a high

> measurement from high voltage power lines on the

> ground causes severe symptoms for me.

>

> Eli

>

>

>

[Guest guest]

Hi Everyone:

Thanks to all for your feedback on reactions to flying. I appreciate the

info.

Donna

[Guest guest]

i would request hand search i whent though the metial detectes a long while ago with y firsted icd fired off four tmes and then was totlay wiped ( ended up goign to a local hspital to have it reset as it didnot fire when i needed it to for bad ryrthmia ) i learned my leason i request hand search i inform thim the wand can ease or be harmfull to the device as well though i dont knoif they reset the guidelines for the metial detecters or not ! btu i would be firm with the point you would refer afemale officer or male if your ocnfertible with that hasnd seach you becaus of you icd befirm NO wand i could tell horrier storyed to that as well and show thim your card also get a note form your doctor with your idcd settings and program range this way if it should get eased it's easy for thim to reprogram if possible at a hospital where your goign ! and also if you have any problems the doctors would knwo if

it fired apporperrtly or not ! oood luck and have funn !ocking life for shocking people to be truelful these and the ones when my wire broken last july are the only missfireings i ahve and there not included in my count for zaps ! stacie ,24 sh Baker <laurarn@...> wrote: Ok I know this has been discussed before but this is my first time and I’m

freaked out about it. We’re going to Jamaica. Medtronic’s site says to go through the metal detector and only say something if it goes off. Is that a good idea? It also says you might get a shock from interference from the equipment. Oh happy fun. Is it better to give the card right away? At what point do you tell them?? What about in Jamaica where security is a bit lax.. (or at least it was 5 years ago when we there

last)

[Guest guest]

If you dont have a card from the maker of your icd that is strictly for the information that is for airport securit then call your tech and have them send you one. ake sure you have that card and your icd card with you. refuse to go thru the security gate (always go around and refuse the wand, dont get 10 feet from it. I have always had their cooperation and tey walk me around. I've even had them shut down the security gate while i went thru a couple of times. I think they are getting pretty used to us shocking people now days.

Enjoy your trip (one jealous gal here)

Debbie

From: lightingpaw@...Date: Sat, 12 Apr 2008 21:54:01 -0700Subject: Re: Flying

i would request hand search i whent though the metial detectes a long while ago with y firsted icd fired off four tmes and then was totlay wiped ( ended up goign to a local hspital to have it reset as it didnot fire when i needed it to for bad ryrthmia ) i learned my leason i request hand search i inform thim the wand can ease or be harmfull to the device as well though i dont knoif they reset the guidelines for the metial detecters or not ! btu i would be firm with the point you would refer afemale officer or male if your ocnfertible with that hasnd seach you becaus of you icd befirm NO wand i could tell horrier storyed to that as well and show thim your card also get a note form your doctor with your idcd settings and program range this way if it should get eased it's easy for thim to reprogram if possible at a hospital where your goign ! and also if you have any problems the doctors would knwo if it fired apporperrtly or not ! oood luck and have funn !ocking life for shocking people to be truelful these and the ones when my wire broken last july are the only missfireings i ahve and there not included in my count for zaps !

stacie ,24 sh Baker <laurarnrochester (DOT) rr.com> wrote:

Ok I know this has been discussed before but this is my first time and I’m freaked out about it.

We’re going to Jamaica. Medtronic’s site says to go through the metal detector and only say something if it goes off. Is that a good idea? It also says you might get a shock from interference from the equipment. Oh happy fun.

Is it better to give the card right away? At what point do you tell them?? What about in Jamaica where security is a bit lax.. (or at least it was 5 years ago when we there last)

Pack up or back up–use SkyDrive to transfer files or keep extra copies. Learn how.

[Guest guest]

I really hate uncertainty. As a result of that, I prefer to take

ownership of the situation by going directly to the person at the

gate, holding my hand over my ICD (shoulder) and saying " I have a

defibrillator and need to be hand screened. " I've only been asked to

show my card a few times, and as ICDs become more common the security

folks are becoming more educated/aware. Look confident

and " authoritative " and they usually do what you want them to do and

even appreciate the " direction within the limits " that the request of

a hand search provides.

>

> Ok I know this has been discussed before but this is my first time

and I'm

> freaked out about it.

>

>

>

> We're going to Jamaica. Medtronic's site says to go through the

metal

> detector and only say something if it goes off. Is that a good

idea? It also

> says you might get a shock from interference from the equipment. Oh

happy

> fun.

>

>

>

> Is it better to give the card right away? At what point do you tell

them??

> What about in Jamaica where security is a bit lax.. (or at least it

was 5

> years ago when we there last)

>

>

>

>

>

[Guest guest]

,

Even at the amusement parks they now make you go through a search. I have

found that they fall all over you trying to be nice when you tell them you

have an ICD.

I agree that it isn't as bad as one might think. They would rather give you

special treatment than have you get zapped in front of a crowd. I suspect

they have been trained how to handle the special people of the world.

That's us, right?

I usually have my driver's license and ICD card out so that the other folks

around me know that I am not faking just to get through the line quicker.

Joe Schmidt

God Loves Us All

But isn't always happy with us!

Re: Flying

I really hate uncertainty. As a result of that, I prefer to take

ownership of the situation by going directly to the person at the

gate, holding my hand over my ICD (shoulder) and saying " I have a

defibrillator and need to be hand screened. " I've only been asked to

show my card a few times, and as ICDs become more common the security

folks are becoming more educated/aware. Look confident

and " authoritative " and they usually do what you want them to do and

even appreciate the " direction within the limits " that the request of

a hand search provides.

>

> Ok I know this has been discussed before but this is my first time

and I'm

> freaked out about it.

>

>

>

> We're going to Jamaica. Medtronic's site says to go through the

metal

> detector and only say something if it goes off. Is that a good

idea? It also

> says you might get a shock from interference from the equipment. Oh

happy

> fun.

>

>

>

> Is it better to give the card right away? At what point do you tell

them??

> What about in Jamaica where security is a bit lax.. (or at least it

was 5

> years ago when we there last)

>

>

>

>

>

------------------------------------

Be sure to visit and use other ZapLife.org services:

The ZapperBBS at

http://zaplife.org/phpBB2/viewforum.php?f=1

1 - Email list forum at

/

2 - Email delivery of the Zapper Newsletter at

2/

3 - Email list forum for those involved in ICD litigation at

3/

ZapChat - Real time online support group (Thursdays 8PM EST) at

http://www.zaplife.org/chat.html

ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at

http://www.zaplife.org/zap4.htm

The ZAPPER Home page at

http://www.zaplife.org/

[Guest guest]

> >

> > Ok I know this has been discussed before but this is my first time

> and I'm

> > freaked out about it.

> >

> >

> >

> > We're going to Jamaica. Medtronic's site says to go through the

> metal

> > detector and only say something if it goes off. Is that a good

> idea? It also

> > says you might get a shock from interference from the equipment.

Oh

> happy

> > fun.

> >

> >

> >

> > Is it better to give the card right away? At what point do you

tell

> them??

> > What about in Jamaica where security is a bit lax.. (or at least

it

> was 5

> > years ago when we there last)

> >

> >

> >

> >

> >

As a very frequent flyer and one who often enters govt buildings with

arches and guards with wands, I am VERY up-front in announcing that I

have an ICD, cannot go through the arches or be wanded, and

require " the full body massage " :-)

Generally everyone is very accomodating, though, while *I* have never

experienced it (yet, at least), I have heard that some security

personnel in govt buildings may not be as well trained as the TSA

folks (that's scary, isn't it?) and may be a bit " wand happy, " so

caution is advised ... don't be afraid of being as assertive as it

takes to keep that wand away from your device.

Carl

[Guest guest]

Thanks. We just got back. It was traumatic (I think that PTSD thing

about having the ICD in the first place of course) but I survived.

The first time I was terrified because I don't like drawing attention

to myself. The lady asked if I was nervous because she of course had

no idea why I was about to cry. The lady was professional but

extremely throrough and it was intrusive. That didn't help the trauma

of course but she was doing her job.

In Jamaica they didn't seem to know at first but as soon as I said I

need a hand search it was kind of pat pat then you're done (scary..)

and then in NYC the woman was professional but not as intrusive as

the lady at home. I think an authoritative voice helped, that's

exactly what I did.

> >

> > Ok I know this has been discussed before but this is my first

time

> and I'm

> > freaked out about it.

> >

> >

> >

> > We're going to Jamaica. Medtronic's site says to go through the

> metal

> > detector and only say something if it goes off. Is that a good

> idea? It also

> > says you might get a shock from interference from the equipment.

Oh

> happy

> > fun.

> >

> >

> >

> > Is it better to give the card right away? At what point do you

tell

> them??

> > What about in Jamaica where security is a bit lax.. (or at least

it

> was 5

> > years ago when we there last)

> >

> >

> >

> >

> >

>

[Guest guest]

I would speak with your doctor a little more on it. My daughter had her 1st surgery June 23rd and we went on vacation the 28th. Only thing is we were told we couldn't fly and we couldn't do swimming.

I have ear popping as a normal part of my ear because I have a hole in my right ear drum, anyway when I fly it puts pressure so I'm guessing it would in this case but not sure.

Good luck with your next surgery. We are playing the waiting game on our daughters next one. We shall see.

From: tink442002 <tink442002@...>Subject: flyingcholesteatoma Date: Sunday, July 20, 2008, 9:39 PM

Hi all,Just wanted to know how all of this effects flying? I'm going to be having a reconstruction surgery in Sept. and was suppose to fly out for my nephew's wedding in Oct. This will be my 3rd surgery in less than a year and I'm really worried about being able to fly. I would hate to get up there and then be miserable. thanks Jo

[Guest guest]

Hi

s here

Yes I agree with you before flying following surgery on a Ctoma you must

speak to your Dr before you go flying. It certainly can be challenging

going on holidays and not getting the ear wet. This must be so

difficult for children when they see the other kids playing in the water.

I was never allowed to swin as a child because water and my ears didn't

get along. Only had to think about water and I got a nasty ear infection.

Good luck and hope the surgery goes well.

Regards

S

Quoting Neer <neermom@...>:

> I would speak with your doctor a little more on it. My daughter had

> her 1st surgery June 23rd and we went on vacation the 28th. Only

> thing is we were told we couldn't fly and we couldn't do swimming.

>

> I have ear popping as a normal part of my ear because I have a hole

> in my right ear drum, anyway when I fly it puts pressure so I'm

> guessing it would in this case but not sure.

>

> Good luck with your next surgery. We are playing the waiting game on

> our daughters next one. We shall see.

>

>

>

> From: tink442002 <tink442002@...>

> Subject: flying

> cholesteatoma

> Date: Sunday, July 20, 2008, 9:39 PM

>

>

>

>

>

>

> Hi all,

> Just wanted to know how all of this effects flying? I'm going to be

> having a reconstruction surgery in Sept. and was suppose to fly out

> for

> my nephew's wedding in Oct. This will be my 3rd surgery in less than

> a

> year and I'm really worried about being able to fly. I would hate to

>

> get up there and then be miserable. thanks

>

> Jo

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My doctor says no flying after reconstruction surgery for 3 months. You want to allow the reconstruction time to heal before you are exposed to all that pressure.

Sorry hope this helps!

From: tink442002 <tink442002 (DOT) com>Subject: flyingcholesteatomaDate: Sunday, July 20, 2008, 9:39 PM

Hi all,Just wanted to know how all of this effects flying? I'm going to be having a reconstruction surgery in Sept. and was suppose to fly out for my nephew's wedding in Oct. This will be my 3rd surgery in less than a year and I'm really worried about being able to fly. I would hate to get up there and then be miserable. thanks Jo

[Guest guest]

Hello everyone,

s here,

Can I ask what sort of reconstruction are you talking about? I'm

wondering if they can put in an artiafitial mastoid, bones or ear drum.

I'm really interested to find out more. Also can anyone tell me if you

have had the canal closed??

Kind regards

S

Quoting amber krasny <am81576@...>:

> My doctor says no flying after reconstruction surgery for 3 months.

> You want to allow the reconstruction time to heal before you are

> exposed to all that pressure.

> Sorry hope this helps!

>

>

>

> From: tink442002 <tink442002 (DOT) com>

> Subject: flying

> cholesteatoma

> Date: Sunday, July 20, 2008, 9:39 PM

>

>

>

>

> Hi all,

> Just wanted to know how all of this effects flying? I'm going to be

> having a reconstruction surgery in Sept. and was suppose to fly out

> for

> my nephew's wedding in Oct. This will be my 3rd surgery in less than

> a

> year and I'm really worried about being able to fly. I would hate to

>

> get up there and then be miserable. thanks

>

> Jo

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I think there are two common reconstructions for the hearing bones.

Some folks are able to use their original stapes, but the other two

ossicles are replaced with a prosthesis. Then folks like me ... all

three bones were destroyed in my right ear, so I've received a

prosthesis that acts for all three. For my left ear, my doctor reshaped

my hearing bones (since he caught things early - second ear diagnosed).

If you're on Facebook, you can see the tip of the prosthesis attached to

my ear drum at:

http://www.facebook.com/group.php?gid=2210476882

I used to have it as my screensaver, but my wife made me change it. :-)

I do know that others on the list have mentioned mastoid reconstruction,

so I'd better let them comment about that.

Matt

msteven5@... wrote:

>

> Hello everyone,

>

> s here,

>

> Can I ask what sort of reconstruction are you talking about? I'm

> wondering if they can put in an artiafitial mastoid, bones or ear drum.

> I'm really interested to find out more. Also can anyone tell me if you

> have had the canal closed??

>

> Kind regards

> S

>

> Quoting amber krasny <am81576@... <mailto:am81576%40>>:

>

> > My doctor says no flying after reconstruction surgery for 3 months.

> > You want to allow the reconstruction time to heal before you are

> > exposed to all that pressure.

> > Sorry hope this helps!

> >

> >

> >

> > From: tink442002 <tink442002 (DOT) com>

> > Subject: flying

> > cholesteatoma

> > Date: Sunday, July 20, 2008, 9:39 PM

> >

> >

> >

> >

> > Hi all,

> > Just wanted to know how all of this effects flying? I'm going to be

> > having a reconstruction surgery in Sept. and was suppose to fly out

> > for

> > my nephew's wedding in Oct. This will be my 3rd surgery in less than

> > a

> > year and I'm really worried about being able to fly. I would hate to

> >

> > get up there and then be miserable. thanks

> >

> > Jo

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

--

[Guest guest]

Hi ,

I have never heard of an artificial mastoid - I believe my son's surgeon

said some of the bone structure would regenerate. The ear drum can be

replaced with a fascia graft. There are several options for materials

to replace the stapes, incus and malleus. There are several articles on

the web comparing the effectiveness of some of the materials. I found

this in doing research as we still question if my son may be having

adverse reactions to his metal implant. (This would be a rare event, so

please don't panic) I have read the prosthesis can be made of titanium,

gold, plastipore, or other bone tissue. I have heard they no longer use

cadaver bones to due possible contamination. If your are interested in

the studies and hearing test studies on these, just Google it (ie:

Titanium verses plastipore ear implants, hearing results)

Some doctors are doing a REVERSIBLE CANAL WALL DOWN TYMPANOMASTOIDECTOMY

which allows them to replace the ear canal allowing for no open mastoid

and allowing you to get your ear wet and swim as usual.

(for your info. see below)

Peace,

Judy

Reversible canal wall down tympanomastoidectomy: An alternative to

intact canal wall and canal wall down mastoidectomy procedures

Auteur(s) / Author(s)

MCELVEEN J. T. ^ (1) ; HULKA G. F.^ (2) ;

Affiliation(s) du ou des auteurs / Author(s) Affiliation(s)

^(1) Carolina Ear Research Institute, Raleigh, North Carolina, ETATS-UNIS

^(2) Duke University Medical Center, Durham, North Carolina, ETATS-UNIS

Résumé / Abstract

Objective: To avoid the limitations of canal wall down surgery yet

maintain the exposure provided by canal wall down mastoidectomy, the

authors have developed a completely reversible canal wall down

mastoidectomy technique. The purpose of this case report is to determine

the feasibility of the reversible canal wall down mastoidectomy

technique in the treatment of a patient with an aural cholesteatoma.

Study Design: Having refined the surgical technique using cadaver

temporal bones, the reversible canal wall down mastoidectomy was

performed in a patient with a recurrent aural cholesteatoma. Setting:

The surgical technique was refined in the Carolina Ear Research

Institute's temporal bone dissection lab. The patient underwent the

surgical procedure by JTM in a standard operating room setting at a

private hospital in Raleigh, North Carolina. Patients: The patient was a

private patient, referred to the Carolina Ear & Hearing Clinic for

treatment of recurrent cholesteatoma. Intervention: A reversible' canal

wall down mastoidectomy was performed in this patient. Main Outcome

Measures: The surgeon determined the adequacy of cholesteatoma exposure

following temporary removal of the posterior bony canal wall.

Intra-operatively, the surgeon assessed the repositioned posterior bony

canal segment, looking specifically at its stability and the absence of

gaps along the canal cuts. Results: Temporary removal of the posterior

bony canal wall improved exposure of the cholesteatoma and facilitated

cholesteatoma removal. The repositioned bony canal segment was well

stabilized by the bone cement (Oto-cem) and no gaps were noted along the

canal cuts. Conclusion: Although it is premature to compare the

effectiveness of the reversible' canal wall down technique to other

mastoidectomy procedures, this case confirms the feasibility of this

approach.

Revue / Journal Title

The American journal of otology *ISSN* 0192-9763 *CODEN* AJOTBN

Source / Source

1998, vol. 19, n^o 4, pp. 415-419 (12 ref.)

msteven5@... wrote:

>

> Hello everyone,

>

> s here,

>

> Can I ask what sort of reconstruction are you talking about? I'm

> wondering if they can put in an artiafitial mastoid, bones or ear drum.

> I'm really interested to find out more. Also can anyone tell me if you

> have had the canal closed??

>

> Kind regards

> S

>

> Quoting amber krasny <am81576@... <mailto:am81576%40>>:

>

> > My doctor says no flying after reconstruction surgery for 3 months.

> > You want to allow the reconstruction time to heal before you are

> > exposed to all that pressure.

> > Sorry hope this helps!

> >

> >

> >

> > From: tink442002 <tink442002 (DOT) com>

> > Subject: flying

> > cholesteatoma

> > Date: Sunday, July 20, 2008, 9:39 PM

> >

> >

> >

> >

> > Hi all,

> > Just wanted to know how all of this effects flying? I'm going to be

> > having a reconstruction surgery in Sept. and was suppose to fly out

> > for

> > my nephew's wedding in Oct. This will be my 3rd surgery in less than

> > a

> > year and I'm really worried about being able to fly. I would hate to

> >

> > get up there and then be miserable. thanks

> >

> > Jo

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

[Guest guest]

Judy,

I would like to know more about your son's possible reaction to the prosthesis. Was it titanium?

Chloe had a terrible case of mastoiditis resulting in osteomyelitis after her second try at the reconstruction. She was full of granulation tissue, which can be a foreign body response. In the same six weeks, she went from a dry ear to being completely full of ctoma. I saw the scans, and can vouch for the vast disparity between the two. The surgeon thought maybe there was a tiny amount of ctoma in the mastoid that was not on the scan--she did not have a mastoidectomy with the prosthesis repair because there was no evidence of ctoma and she had been ctoma free for a year and a half. He was just replacing the first prosthesis which had slipped. He also replaced her eardrum, so it was the first time in two years that she did not have a hole or tube in the TM. When the infection began, it had nowhere to go.

I have wondered if the prosthesis was not partially to blame for the severity of the infection. He had to remove it in June when he did an emergency mastoidectomy. I asked him not to replace it in July when he did the revision mastoidectomy, since he was planning another look in six months. I am a little hesitant to try a third time, but her nerves are great and she is only five, so hearing ears would be a good thing LOL. I'd be interested in hearing if anyone has had trouble with the titanium prosthesis? I have friends who had similar events after a titanium joint replacement.

Thanks,

On Tue, Jul 22, 2008 at 2:39 PM, Judy Adkins <a2judyadkins@...> wrote:

Hi ,I have never heard of an artificial mastoid - I believe my son's surgeonsaid some of the bone structure would regenerate. The ear drum can be

replaced with a fascia graft. There are several options for materialsto replace the stapes, incus and malleus. There are several articles onthe web comparing the effectiveness of some of the materials. I found

this in doing research as we still question if my son may be havingadverse reactions to his metal implant. (This would be a rare event, soplease don't panic) I have read the prosthesis can be made of titanium,

gold, plastipore, or other bone tissue. I have heard they no longer usecadaver bones to due possible contamination. If your are interested inthe studies and hearing test studies on these, just Google it (ie:

Titanium verses plastipore ear implants, hearing results)Some doctors are doing a REVERSIBLE CANAL WALL DOWN TYMPANOMASTOIDECTOMYwhich allows them to replace the ear canal allowing for no open mastoidand allowing you to get your ear wet and swim as usual.

(for your info. see below)Peace,JudyReversible canal wall down tympanomastoidectomy: An alternative tointact canal wall and canal wall down mastoidectomy procedures Auteur(s) / Author(s)

MCELVEEN J. T. ^ (1) ; HULKA G. F.^ (2) ; Affiliation(s) du ou des auteurs / Author(s) Affiliation(s)^(1) Carolina Ear Research Institute, Raleigh, North Carolina, ETATS-UNIS^(2) Duke University Medical Center, Durham, North Carolina, ETATS-UNIS

Résumé / AbstractObjective: To avoid the limitations of canal wall down surgery yetmaintain the exposure provided by canal wall down mastoidectomy, theauthors have developed a completely reversible canal wall down

mastoidectomy technique. The purpose of this case report is to determinethe feasibility of the reversible canal wall down mastoidectomytechnique in the treatment of a patient with an aural cholesteatoma.Study Design: Having refined the surgical technique using cadaver

temporal bones, the reversible canal wall down mastoidectomy wasperformed in a patient with a recurrent aural cholesteatoma. Setting:The surgical technique was refined in the Carolina Ear ResearchInstitute's temporal bone dissection lab. The patient underwent the

surgical procedure by JTM in a standard operating room setting at aprivate hospital in Raleigh, North Carolina. Patients: The patient was aprivate patient, referred to the Carolina Ear & Hearing Clinic for

treatment of recurrent cholesteatoma. Intervention: A reversible' canalwall down mastoidectomy was performed in this patient. Main OutcomeMeasures: The surgeon determined the adequacy of cholesteatoma exposure

following temporary removal of the posterior bony canal wall.Intra-operatively, the surgeon assessed the repositioned posterior bonycanal segment, looking specifically at its stability and the absence ofgaps along the canal cuts. Results: Temporary removal of the posterior

bony canal wall improved exposure of the cholesteatoma and facilitatedcholesteatoma removal. The repositioned bony canal segment was wellstabilized by the bone cement (Oto-cem) and no gaps were noted along the

canal cuts. Conclusion: Although it is premature to compare theeffectiveness of the reversible' canal wall down technique to othermastoidectomy procedures, this case confirms the feasibility of thisapproach.

Revue / Journal TitleThe American journal of otology *ISSN* 0192-9763 *CODEN* AJOTBN Source / Source1998, vol. 19, n^o 4, pp. 415-419 (12 ref.)

msteven5@... wrote:>

> Hello everyone,>> s here,>> Can I ask what sort of reconstruction are you talking about? I'm> wondering if they can put in an artiafitial mastoid, bones or ear drum.

> I'm really interested to find out more. Also can anyone tell me if you> have had the canal closed??>> Kind regards> S>

> Quoting amber krasny <am81576@... <mailto:am81576%40>>:>> > My doctor says no flying after reconstruction surgery for 3 months.

> > You want to allow the reconstruction time to heal before you are> > exposed to all that pressure.> > Sorry hope this helps!> >> > > >> > From: tink442002 <tink442002 (DOT) com>> > Subject: flying

> > cholesteatoma> > Date: Sunday, July 20, 2008, 9:39 PM> >> >> >> >> > Hi all,> > Just wanted to know how all of this effects flying? I'm going to be

> > having a reconstruction surgery in Sept. and was suppose to fly out> > for> > my nephew's wedding in Oct. This will be my 3rd surgery in less than> > a> > year and I'm really worried about being able to fly. I would hate to

> >> > get up there and then be miserable. thanks > >> > Jo> >> >> >> >> >> >> >> >> >> >

> >> >> >> >> >> >> >> >>>------------------------------------