Flying

[Guest guest]

Hi ,

n had his titanium implant put in Nov. 2006, so it has almost been

2 years. The month after the implant he developed eczema type sores on

his elbows and knees that progressed to open sores on his bottom, back,

and down his legs that come and go now all over his body. At first we

were told it was flea bites (we have no animals), then a virus, then

staph infection, possibly chemical contact dermatitis, and then atopic

dermatitis. We have gone to 10 doctors (dermatologist, infectious

disease, contact allergy specialist, Otology/allergy expert, and now are

seeing an integrated medical doctor who is also a pediatrician. He

thinks that n got a dysbiosis (overgrowth of bacteria and yeast)

from all the antibiotics which in turn causes poor vitamin/mineral

absorption, immune system problems and food sensitivities/allergies. He

is not sure if the metal in the prosthesis is also causing an immune

response in n's body (some type of allergic sensitivity

-reaction). n has been taking over 20 pills of supplements a day

and is on a strict diet, but the skin rash still has not subsided. It

is not becoming inflamed anymore as we are no longer applying

creams/steroids or giving more antibiotics, which were part of the

problem. n is feeling a lot better physically and emotionally but

we are concerned that he still has the rash. We are again considering

removing the implant because nothing we have tried helps and it all

started after the implant. We had NONE of these issues before the

implant. n did have another CT scan in March and there was no

sign of further CToma. He has had patch testing twice - the first time

it was inconclusive and the second time negative. He also had a

lymphocyte transformation test that measured all metals in his body. He

had slight reactivity to the titanium, but the doctors weren't sure if

it was enough to cause the problem. One doctor said it just shows that

he has titanium in his body.

THIS WAS INTERESTING TO ME:

When we went to urgent care as n had an ear infection in Jan. (It

was so bad his head was swollen and we couldn't even touch his head).

The doctor told me that *whenever you have an implant and get an

infection the infection will tend to go to the implant. *Has anyone

else heard of this????

In talking with different doctors/specialists they told me that implants

can also get sub clinically infected and it may not show up on blood

tests and or it could form a biofilm. When your daughters implant was

removed did you have it sent out for testing??? (The Mayo Clinic is

supposedly a good place to have this done and if we have n's

implant out I will look into it) Whenever a foreign object is put in

the body the body will have a reaction to it. Metals such as titanium

are supposed to be inert, but these objects also are subject to the

body's chemicals causing them to degrade or experience corrosion which

can get into the body's cells and cause an immune response. The web

has a lot of information available.

It seems like there are a lot of other people that develop secondary

health issues after Ctoma surgery.

Best wishes to all - especially the children (I know they get tired of

going to the doctor like n does!!)

Peace,

Judy

s wrote:

> Judy,

> I would like to know more about your son's possible reaction to the

> prosthesis. Was it titanium?

>

> Chloe had a terrible case of mastoiditis resulting in osteomyelitis

> after her second try at the reconstruction. She was full of

> granulation tissue, which can be a foreign body response. In the same

> six weeks, she went from a dry ear to being completely full of ctoma.

> I saw the scans, and can vouch for the vast disparity between the two.

> The surgeon thought maybe there was a tiny amount of ctoma in the

> mastoid that was not on the scan--she did not have a mastoidectomy

> with the prosthesis repair because there was no evidence of ctoma and

> she had been ctoma free for a year and a half. He was just replacing

> the first prosthesis which had slipped. He also replaced her eardrum,

> so it was the first time in two years that she did not have a hole or

> tube in the TM. When the infection began, it had nowhere to go.

>

> I have wondered if the prosthesis was not partially to blame for the

> severity of the infection. He had to remove it in June when he did an

> emergency mastoidectomy. I asked him not to replace it in July when he

> did the revision mastoidectomy, since he was planning another look in

> six months. I am a little hesitant to try a third time, but her nerves

> are great and she is only five, so hearing ears would be a good thing

> LOL. I'd be interested in hearing if anyone has had trouble with the

> titanium prosthesis? I have friends who had similar events after a

> titanium joint replacement.

>

> Thanks,

>

>

> On Tue, Jul 22, 2008 at 2:39 PM, Judy Adkins

> <a2judyadkins@... <mailto:a2judyadkins@...>> wrote:

>

> Hi ,

> I have never heard of an artificial mastoid - I believe my son's

> surgeon

> said some of the bone structure would regenerate. The ear drum can be

> replaced with a fascia graft. There are several options for materials

> to replace the stapes, incus and malleus. There are several

> articles on

> the web comparing the effectiveness of some of the materials. I found

> this in doing research as we still question if my son may be having

> adverse reactions to his metal implant. (This would be a rare

> event, so

> please don't panic) I have read the prosthesis can be made of

> titanium,

> gold, plastipore, or other bone tissue. I have heard they no

> longer use

> cadaver bones to due possible contamination. If your are

> interested in

> the studies and hearing test studies on these, just Google it (ie:

> Titanium verses plastipore ear implants, hearing results)

> Some doctors are doing a REVERSIBLE CANAL WALL DOWN

> TYMPANOMASTOIDECTOMY

> which allows them to replace the ear canal allowing for no open

> mastoid

> and allowing you to get your ear wet and swim as usual.

> (for your info. see below)

> Peace,

> Judy

>

>

> Reversible canal wall down tympanomastoidectomy: An alternative to

> intact canal wall and canal wall down mastoidectomy procedures

>

>

> Auteur(s) / Author(s)

>

> MCELVEEN J. T. ^ (1) ; HULKA G. F.^ (2) ;

>

>

> Affiliation(s) du ou des auteurs / Author(s) Affiliation(s)

>

> ^(1) Carolina Ear Research Institute, Raleigh, North Carolina,

> ETATS-UNIS

> ^(2) Duke University Medical Center, Durham, North Carolina,

> ETATS-UNIS

>

>

> Résumé / Abstract

>

> Objective: To avoid the limitations of canal wall down surgery yet

> maintain the exposure provided by canal wall down mastoidectomy, the

> authors have developed a completely reversible canal wall down

> mastoidectomy technique. The purpose of this case report is to

> determine

> the feasibility of the reversible canal wall down mastoidectomy

> technique in the treatment of a patient with an aural cholesteatoma.

> Study Design: Having refined the surgical technique using cadaver

> temporal bones, the reversible canal wall down mastoidectomy was

> performed in a patient with a recurrent aural cholesteatoma. Setting:

> The surgical technique was refined in the Carolina Ear Research

> Institute's temporal bone dissection lab. The patient underwent the

> surgical procedure by JTM in a standard operating room setting at a

> private hospital in Raleigh, North Carolina. Patients: The patient

> was a

> private patient, referred to the Carolina Ear & Hearing Clinic for

> treatment of recurrent cholesteatoma. Intervention: A reversible'

> canal

> wall down mastoidectomy was performed in this patient. Main Outcome

> Measures: The surgeon determined the adequacy of cholesteatoma

> exposure

> following temporary removal of the posterior bony canal wall.

> Intra-operatively, the surgeon assessed the repositioned posterior

> bony

> canal segment, looking specifically at its stability and the

> absence of

> gaps along the canal cuts. Results: Temporary removal of the posterior

> bony canal wall improved exposure of the cholesteatoma and facilitated

> cholesteatoma removal. The repositioned bony canal segment was well

> stabilized by the bone cement (Oto-cem) and no gaps were noted

> along the

> canal cuts. Conclusion: Although it is premature to compare the

> effectiveness of the reversible' canal wall down technique to other

> mastoidectomy procedures, this case confirms the feasibility of this

> approach.

>

>

> Revue / Journal Title

>

> The American journal of otology *ISSN* 0192-9763 *CODEN* AJOTBN

>

> Source / Source

>

> 1998, vol. 19, n^o 4, pp. 415-419 (12 ref.)

>

>

>

> msteven5@... <mailto:msteven5@...> wrote:

> >

> > Hello everyone,

> >

> > s here,

> >

> > Can I ask what sort of reconstruction are you talking about? I'm

> > wondering if they can put in an artiafitial mastoid, bones or

> ear drum.

> > I'm really interested to find out more. Also can anyone tell me

> if you

> > have had the canal closed??

> >

> > Kind regards

> > S

> >

> > Quoting amber krasny <am81576@...

> <mailto:am81576@...> <mailto:am81576%40

> <mailto:am81576%2540>>>:

> >

> > > My doctor says no flying after reconstruction surgery for 3

> months.

> > > You want to allow the reconstruction time to heal before you are

> > > exposed to all that pressure.

> > > Sorry hope this helps!

> > >

> > >

> > >

> > > From: tink442002 <tink442002 (DOT) com>

> > > Subject: flying

> > > cholesteatoma

> > > Date: Sunday, July 20, 2008, 9:39 PM

> > >

> > >

> > >

> > >

> > > Hi all,

> > > Just wanted to know how all of this effects flying? I'm going

> to be

> > > having a reconstruction surgery in Sept. and was suppose to

> fly out

> > > for

> > > my nephew's wedding in Oct. This will be my 3rd surgery in

> less than

> > > a

> > > year and I'm really worried about being able to fly. I would

> hate to

> > >

> > > get up there and then be miserable. thanks

> > >

> > > Jo

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

>

>

> ------------------------------------

>

>

[Guest guest]

I have both hips replaced and 1 knee. When I go through security anywhere I

tell them in advance so they aren't surprised when all the bells ring. At

the airport, I have to go through the full pat down.

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

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www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=82 & bcd=emailf

ooter)

[Guest guest]

Ha ha -- no.

Best is to tell the security officer before you go through that you

have an implant and will set off the alarms -- they will wand you and

if female there might be a delay while they get a female officer.

Begin forwarded message:

> From: Ummmmmmm@...

> Date: October 24, 2008 6:15:17 PM PDT

> Joint Replacement

> Subject: flying

> Reply-Joint Replacement

>

> Hi All --? simple question -- how do you get through security at the

> airport?? Do you show your scars??

> Thanks

> Vicki

>

>

[Guest guest]

I got a little card from my surgeon after my first THR and when I flew the first

time, the TSA people didn't pay any attention to it.  I went through security

and I did not set the alarms off.

When I had my second THR my surgeon said they do not hand out those cards

anymore (probably because they don't mean anything to the screeners) and that it

depends on what type of hardware you have in your replacements.  I happen to

have ceramic/plastic liner on both with the titanium stem.  I will find out in

less than a month when I fly again if I will set off alarms.  I think my ceramic

parts will keep me  " below the metal radar " in airport screenings.....thank

goodness!   If your parts are metal on metal......you will get a little extra

attention! 

From: Ummmmmmm@... <Ummmmmmm@...>

Subject: flying

Joint Replacement

Date: Friday, October 24, 2008, 6:15 PM

Hi All --? simple question -- how do you get through security at the airport??

Do you show your scars??

Thanks

Vicki

[Guest guest]

FWIW, I am ceramic on ceramic hip and I set off alarms.

One of the bank branches I have used has an alarm system where you

can't get through the door if you set off an alarm. If you set off an

alarm, the security guard has to manually press a button to open the

second door.

On Oct 25, 2008, at 7:52 AM, iamflustered insocal wrote:

> I got a little card from my surgeon after my first THR and when I

> flew the first time, the TSA people didn't pay any attention to it.

> I went through security and I did not set the alarms off.

> When I had my second THR my surgeon said they do not hand out those

> cards anymore (probably because they don't mean anything to the

> screeners) and that it depends on what type of hardware you have in

> your replacements. I happen to have ceramic/plastic liner on both

> with the titanium stem. I will find out in less than a month when I

> fly again if I will set off alarms. I think my ceramic parts will

> keep me " below the metal radar " in airport screenings.....thank

> goodness! If your parts are metal on metal......you will get a

> little extra attention!

>

>

>

> From: Ummmmmmm@... <Ummmmmmm@...>

> Subject: flying

> Joint Replacement

> Date: Friday, October 24, 2008, 6:15 PM

>

> Hi All --? simple question -- how do you get through security at the

> airport?? Do you show your scars??

> Thanks

> Vicki

>

>

[Guest guest]

are you setting off Airport security alarms or bank branch alarms with your

ceramic on ceramic?

Like I said, with the one ceramic THR I have not set off airport alarms. I am

anxious to see if I set of the airport alarms with two ceramics....

>

> From: Ummmmmmmaol (DOT) com <Ummmmmmmaol (DOT) com>

> Subject: [Total_Joint_ Replacement] flying

> Total_Joint_ Replacement

> Date: Friday, October 24, 2008, 6:15 PM

>

> Hi All --? simple question -- how do you get through security at the

> airport?? Do you show your scars??

> Thanks

> Vicki

>

>

[Guest guest]

Yes I set off alarms with ONE ceramic on ceramic hip.

On Oct 25, 2008, at 9:20 AM, iamflustered insocal wrote:

> are you setting off Airport security alarms or bank branch alarms

> with your ceramic on ceramic?

> Like I said, with the one ceramic THR I have not set off airport

> alarms. I am anxious to see if I set of the airport alarms with two

> ceramics....

>

>

> >

> > From: Ummmmmmmaol (DOT) com <Ummmmmmmaol (DOT) com>

> > Subject: [Total_Joint_ Replacement] flying

> > Total_Joint_ Replacement

> > Date: Friday, October 24, 2008, 6:15 PM

> >

> > Hi All --? simple question -- how do you get through security at the

> > airport?? Do you show your scars??

> > Thanks

> > Vicki

> >

> >

[Guest guest]

Bummer for you!  

I guess I am lucky not setting of the alarms with my ceramic!

Just goes to show that no two people are alike!

> >

> > From: Ummmmmmmaol (DOT) com <Ummmmmmmaol (DOT) com>

> > Subject: [Total_Joint_ Replacement] flying

> > Total_Joint_ Replacement

> > Date: Friday, October 24, 2008, 6:15 PM

> >

> > Hi All --? simple question -- how do you get through security at the

> > airport?? Do you show your scars??

> > Thanks

> > Vicki

> >

> >

[Guest guest]

I just had to chime in on this one. I have given up flying!

In 2002, I had both hips and shoulders replaced, and I did not set

off the alarms! Since 2005, I have always set them off and always

seem to get a TSA person with attitude! And that was in 5 different

airports.

For me it is not a pleasure to fly and I don't have to do it for any

other reason!

Hopefully most people have had better luck than I have.

Sue

> > >

> > > From: Ummmmmmmaol (DOT) com <Ummmmmmmaol (DOT) com>

> > > Subject: [Total_Joint_ Replacement] flying

> > > Total_Joint_ Replacement

> > > Date: Friday, October 24, 2008, 6:15 PM

> > >

> > > Hi All --? simple question -- how do you get through security

at the

> > > airport?? Do you show your scars??

> > > Thanks

> > > Vicki

> > >

> > >

[Guest guest]

The last time I flew which was after 9/11 before my TKR.. I sent off alarms

because my shoes are metal enforced. And that is where the hand scan beeped

So they made me take off my shoes and scanned them separately and it was the

shoes.. There was a huge line waiting for me to pass. They decided to pat me

down

just to make sure. As the not so happy woman patted me down from top to

bottom I saw everyone looking at me. I was feeling nervous and I calmly said

out loud so everyone can hear to the not so happy woman that patted me down

Was it as good for you as it was for me! " LMAO Well everyone in line

started laughing

even the pilot and stewardesses, Even that not so happy woman laughed...

I was let through.

After that I swore I would never fly again. And now with the TKR makes it

dead certain decision not to fly

Have a great day

hugs

Faye

-- [Total_Joint_ Replacement] flying

> > > Total_Joint_ Replacement

> > > Date: Friday, October 24, 2008, 6:15 PM

> > >

> > > Hi All --? simple question -- how do you get through security

at the

> > > airport?? Do you show your scars??

> > > Thanks

> > > Vicki

> > >

> > >

[Guest guest]

Faye,

I'm happy for you that you have the sort of life where you can declare you

will never fly again. I have business trips to make and the occasional

pleasure trip and I'm certainly not avoiding flight because of my TKR. Sure,

I get pulled aside, no big deal. The TSA people are always nice and make

sure my possessions don't get taken from the conveyor by anyone but me or

them. I just allow the right amount of time.

I can't imagine declaring I wouldn't fly the rest of my life, especially

over the inconvenience (but not too much) of knowing I will be patted down.

[Total_Joint_ Replacement] flying

> > > Total_Joint_ Replacement

> > > Date: Friday, October 24, 2008, 6:15 PM

> > >

> > > Hi All --? simple question -- how do you get through security

at the

> > > airport?? Do you show your scars??

> > > Thanks

> > > Vicki

> > >

> > >

[Guest guest]

I didn't set off alarms with my ceramic hip and the plate and screws in my

ankle.  My husband was disappointed that I didn't buzz.  I've added two knees to

the body so I'm expecting to ring the next time.  Time will tell.

________________________________

From: iamflustered insocal <iamflusteredinsocal@...>

Joint Replacement

Sent: Saturday, October 25, 2008 12:20:08 PM

Subject: Re: flying

are you setting off Airport security alarms or bank branch alarms with your

ceramic on ceramic?

Like I said, with the one ceramic THR I have not set off airport alarms. I am

anxious to see if I set of the airport alarms with two ceramics....

>

> From: Ummmmmmmaol (DOT) com <Ummmmmmmaol (DOT) com>

> Subject: [Total_Joint_ Replacement] flying

> Total_Joint_ Replacement

> Date: Friday, October 24, 2008, 6:15 PM

>

> Hi All --? simple question -- how do you get through security at the

> airport?? Do you show your scars??

> Thanks

> Vicki

>

>

[Guest guest]

I haven't had my replacements yet but I went to the air port to see my daughter

off and I was in a wheelchair they even mayde me stand up and looked under my

seat for a long time and then checked me out I told them if I could stand this

long I wouldn't be in this chair. That was before 9/11

Sharon LeVine

[Guest guest]

Now, what in the world would TSA do about someone who is PARALYZED and can't

stand up at all???? I'm all for safety, but let's use our heads a little, shall

we? Like that wonderful question we often get when checking our baggage: " Did

someone put something in your luggage without your knowledge? "

DDDUUUUUHHHHHH!!!!!!!!!!!!!!!!!!! If it was without our knowledge, how would we

know?????

I'm not putting down airport security. I understand the reasons for it, and

personally, have nothing to hide. But as I said, a little common sense in the

process would be more efficient. I haven't flown since my LTHR, which has a

chromium Femurial Stem, so I'm not sure if that will set off the alarm. But I

imagine it will; it is metal, after all. I'm surprised TSA doesn't X-RAY people

who claim to have joint replacements.

Tammy Klaus

tammy.kl@...

Re: Re: flying

I haven't had my replacements yet but I went to the air port to see my daughter

off and I was in a wheelchair they even mayde me stand up and looked under my

seat for a long time and then checked me out I told them if I could stand this

long I wouldn't be in this chair. That was before 9/11

Sharon LeVine

[Guest guest]

I just attended an information session put on by my surgeon's office, and

they said 6 weeks, and then get your surgeon's approval.

Chrissie

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

Flying

I am still awaiting my first of two knee replacements and have a

question for anyone... how long after surgery are you allowed to fly

(other than the mandatory flight I have to get home from the hospital).

I seem to remember reading something about flights are okay under a

certain time restriction in the air, but I don't know what it was or

how soon.

------------------------------------

[Guest guest]

//It makes sense if you think about it. The liquid in the band would not be

as

pressurized by the atmosphere as at ground level, so would take up more

volume, making the band tighter.//

This is a common misperception, actually. Liquids are essentially

incompressible. Your logic would be correct if the band were filled with

gas, which is strongly affected by atmospheric pressure. But liquids are

not affected by the small changes in pressure encountered flying (or diving

for that matter).

Most people don't notice any difference in their band while flying unless

they feel stressed by flying or traveling or just the hassle of the whole

journey. Stress will tighten the band in a heartbeat but flying per se

doesn't. Check the archives on the SmartBandster board for extensive

discussion of this topic.

Peggy

[Guest guest]

As someone who travels with a c-pap alot, You should not check your c-pap with

your luggage. It needs to be carried on the plane with you. Security(TSA

Agent) will ask you to take it out of the carry on bag to check it out. Please

tell them you have a c-pap before you go thru the line. If you check it, you

run the risk of damage c-pap or lost bag with c-pap.

Dave D.

dwarfism

From: reese@...

Date: Sat, 21 Feb 2009 19:15:27 -0500

Subject: flying

Dave:

Can you walk down the jet way without the use of the scooter? If so, they

will store the scooter down in the luggage compartment and return it back to

you upon landing.

I believe you will have to check the C-pap machine with your bags before

going through security.

You should always purchase travel insurance for an item such as this just

encase it should get miss placed. Definitely if you have a connection

flight. .

Reach me off list if you wish to discuss this any further since I am a

travel agent.

Reese

[Guest guest]

Dave:

I just checked this out with one of my contacts who works for the FAA and

you are indeed correct. Thanks for the information and I will be filing it

away for future use with any clients who enquire.

Still you should purchase travel insurance with use of this item.

Reese

----- Original Message -----

As someone who travels with a c-pap alot, You should not check your c-pap

with your luggage. It needs to be carried on the plane with you.

Security(TSA Agent) will ask you to take it out of the carry on bag to check

it out. Please tell them you have a c-pap before you go thru the line. If

you check it, you run the risk of damage c-pap or lost bag with c-pap.

[Guest guest]

I fly with both a Cpap and a scooter.

The Cpap I often pack into my suitcase. . Yes, I risk the luggage being

lost and then being without it. I pack it snuggly around my other

clothes so there is minimal chance of being bounced around inside.

Sometimes I will use it as a carry on. In this day and age of charging

per back, make sure you let the TSA and ticket agents know it is a Cpap

and a medical necessity so you don't get charged for the bag.

My scooter I ride all the way down to the plane door at the end of the

walkway. At the boarding gate they always put a tag on it, in case it

get's lost or damaged. I make sure and switch it to " free ride " so the

guys can easily move it. Always remember to take the key with

you....Usually the scooter is then returned right at the end of the

walkway. Often I have to wait for it to come up, but that's ok. It's

worth the wait. Make sure and do a quick check on the scooter when it is

returned. If it get's damaged the airline is responsible. I do know

folks who's scooters have gotten quite banged up and the airline has had

to replace it for the passenger.

Marge

On Sun, 22 Feb 2009 10:18:28 -0600 DAVE D'AVIA <Davedman@...> writes:

As someone who travels with a c-pap alot, You should not check your c-pap

with your luggage. It needs to be carried on the plane with you.

Security(TSA Agent) will ask you to take it out of the carry on bag to

check it out. Please tell them you have a c-pap before you go thru the

line. If you check it, you run the risk of damage c-pap or lost bag with

c-pap.

Dave D.

dwarfism

From: reese@...

Date: Sat, 21 Feb 2009 19:15:27 -0500

Subject: flying

Dave:

Can you walk down the jet way without the use of the scooter? If so, they

will store the scooter down in the luggage compartment and return it back

to

you upon landing.

I believe you will have to check the C-pap machine with your bags before

going through security.

You should always purchase travel insurance for an item such as this just

encase it should get miss placed. Definitely if you have a connection

flight. .

Reach me off list if you wish to discuss this any further since I am a

travel agent.

Reese

[Guest guest]

Junie - You're doing great - way to go!

One of the best things for me is also being able to keep better control. I might

gain a couple pounds over a 1-2 week vacation, but it is NOTHING like the

10-15 # I could and did easily gain before.

Pretty easy to get off again when we get back to our usual band routine.

Sandy r

>

> I just flew last week for the first time since being banded six months ago and

went from Phoenix to Newark then on to Syracuse. Had no problems at all and this

is the first time in probably twenty years that my feet and ankles did not swell

and I fit SO much better into my seat. My first meal back on the ground was

lunch at a restaurant and I did have a little discomfort...I should have stopped

a few bites b/4 I did..but I did not PB...just sat up straight & took a couple

slow breaths and few sips of iced tea.

> The rest of my vacation was terrific...I gained 2 lbs in that one week from

grazing and liquid calories..margaritas and mojitos...but had a fun time and no

one even knew I had a lapband. Today I'm back to 1/2 pound less than before I

left town so I'm back on track with very little backsliding. It was a good

lesson learning how to do everything in moderation as I will have to do the rest

of my life...but I'm SO happy to be 46lbs lighter right now & SO happy I did

this for myself.

> Junie in AZ

>

>

>

>

>

[Guest guest]

>

> Hi, I have a two part question:

>

> I feel like I need to post the same question every few weeks or I'll lose

faith and go off the diet. I've been on the diet for a few months (completely on

it for a couple of months) and I wonder sometimes about my progress. In some

ways, I can see the progress eg. I'm not sweating constantly anymore, the dark

puffy circles under my eyes are going away...in other ways I feel worse. I have

had reoccuring bouts of diarrhea-is that a normal part of candida die-off? I

sometimes have sinus congestion, I've lost a good bit of weight and don't want

to lose anymore, patches of eczema come out on my face when I'm experiencing

die-off...And just eating two eggs fried in butter seems to set off the die-off

reaction. I am moving from Ireland back to the states after living in Ireland

for almost six years so I'm trying to take it somewhat easy at the moment. I'm

not taking coconut oil at the moment for fear of the die-off...I just feel that

I should be further along at this point after sticking so strictly to the diet!

+++Hi Samia. All of your symptoms and reactions are normal since that is how

the body heal itself naturally. In fact the dis-ease processes are exactly the

same as the healing processes, with the only difference being that you are now

progressing towards health rather than becoming more and more unhealthy.

>

> Part two of my question is: Since I'm going to be flying from Dublin to

Dallas, Tx in a few days, I've been thinking about what I'm going to eat on the

trip since it's such a long day. Any suggestions about what to take on a plane?

I'm thinking I might just bring a container with some food made at home, but any

suggestions would be appreciated.

+++How about boiled eggs and cold chicken? Be sure to pack your supplements,

coconut oil, etc. in your check-in luggage, with them each wrapped with tin foil

so they don't get affected by scanning.

All the best, Bee

[Guest guest]

I'm sixteen and I've flown at least 6 or 7 times in my life, last time being

last year. I'm also type II and my o2 is usually between 96-97%. I don't use

oxygen either. I'm supposed to use bi-pap while I sleep but I oftentimes don't.

Hope this helps

Jade

Flying

I am most likely going to fly in the next few months. I haven't flown since I

was 6 and I am now 20. I am just a little nervous about my breathing being that

high up altitude wise. I had no breathing problems when I flew last, but I have

14 more years of the disease process on me. I'm a lower functioning Type II. I

sleep on BiPAP with settings of 17/6, and I use it when I'm sick with a

respiratory cold. I generally have no breathing trouble (unless i'm sick of

course), but I'm definitely a very shallow breather (about 25-35 breaths per

min). My o2 saturation's usually run about 95-96% during the day when i'm up in

my wheelchair. I NEVER need oxygen (if I do - it's time for the hospital).

Thoughts on how my breathing will be during the flight?

[Guest guest]

Hi, new here! My 7.5 month son is getting his DOC band today. We are flying on

Saturday. Has anyone had experience with this? Does security require you to

remove the band when going through the detectors?

Also, I'm a little worried about our trip..timing wise. We get the band today,

will go for a follow-up on Friday and then won't return until the following

Monday (a week and a half). Do you think this is too long between the first

follow-ups?

Thanks!

[Guest guest]

We flew with our daughter wearing her helmet. I don't recall them

making her take it off, and if they did it was a very uneventful

experience. Traveling with liquids was a much more involved process,

though even that isn't that big of a deal.

Safe travels!

Amy

daughter Zia, 26.5 months, STARband since 9/10

On Mar 8, 2011, at 3:41 AM, lmichalc wrote:

> Hi, new here! My 7.5 month son is getting his DOC band today. We

> are flying on Saturday. Has anyone had experience with this? Does

> security require you to remove the band when going through the

> detectors?

>

> Also, I'm a little worried about our trip..timing wise. We get the

> band today, will go for a follow-up on Friday and then won't return

> until the following Monday (a week and a half). Do you think this

> is too long between the first follow-ups?

>

> Thanks!

>

>

>

> ------------------------------------

>

> For more plagio info

[Guest guest]

We flew about a month ago with our 7 month old. At the DFW Airport, my husband

just walked through the metal detector while holding our little guy. At the

Phoenix Airport, my husband and son were pulled to the side for additional

screening. They swabbed my son's helmet and my husband's hands. We were never

required to remove my son's helmet at either airport. I'd suggest arriving

early and giving yourself plenty of time to pass through security. Like a

previous poster said, it took longer to get through with liquids. Good luck!

>

> Hi, new here! My 7.5 month son is getting his DOC band today. We are flying on

Saturday. Has anyone had experience with this? Does security require you to

remove the band when going through the detectors?

>

> Also, I'm a little worried about our trip..timing wise. We get the band today,

will go for a follow-up on Friday and then won't return until the following

Monday (a week and a half). Do you think this is too long between the first

follow-ups?

>

> Thanks!

>