Starband consult and ped visit (sorry...long)

July 15, 2010

Well...it's been an interesting morning. Midwest ortho (starband provider) came

out and did a home eval today. Explained everything thoroughly and was very much

helpful. Took some measurements (no scan today) and said her cranial vault

asymmetry is 15mm. They consider anything over 10mm to be severe and recommend

helmet treatment. The good thing is that she surprisingly doesn't have much

facial aysmmetry. So...at the end of the appt we had decided we wanted to go

with them. They will do a 5 day post getting the cap...then a week after

that...then 2 weeks after that and if fit is good they will not see us for a

month unless we start to notice some redness or feel she's had a huge growth

spurt. I asked him the reason since docband wants to see her weekly. He said

they used to do weekly for the first 6 weeks but found it wasn't necessary. He

said he owuld gladly see us more often just to check if that made us more

comfortable.

Then the ped visit...she is adamantly against helmets. She thinks they are

cruel...said she's never seen a child that isn't miserable in one. I stood my

ground and told her we'd researched it and decided this is the way we want to go

if she qualifies (and that we have even researched our insurance and at what

point they will cover...and our measurements are in the covered category). We

told her what the orthotist said at Midwest. She replied that we would need to

go through the craniofacial center at Riley. I agree...they will tell us for

sure it's just plagio and not cranio. She was a bit alarmed that my daughter's

head circumference jumped from the 50th percentile to the 80th percentile in the

last 2 months (while weight and height percentile remained the same). She said

it could be due to the way it is growing because of the flat spot. She even had

the nerve at the start of the appt to say she probably wouldn't have given us

the referral to Riley had she seen her (our pt called her office and asked for

the referral). Ugh! So...Riley appt on Monday and praying those docs are pro

helmet (and praying most of all that it just the plagio).

Sorry for being so windy...I just realize everyone's frustration with the

process now...

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