Re: Jen:Neck advise please

[Guest guest]

Hi Jen, I am curious if you could tell me how you got your daughters neck dignosed, did your ped have the xrays taken? when I asked my sons she said she had never heard of taking xrays, and refused, so I am having trouble figuring out how to get them or some eval. My son has some issues with bending of the trunk , and rib and hip alignment so I am worried about the possibilty of spinal abnormalities. thanks leFrom:

"JenandLuli@..." <JenandLuli@...>Plagiocephaly Sent: Wed, February 24, 2010 6:42:31 PMSubject: Re: Neck advise please

My dd was diagnosed by our ped... but I had to do my own research and

bring it up and ask about tort before she got a dx.

And acually, my dd's tort wasn't the classic muscle tort, her's is

actually a structural asymmetry in her skull base and irregularities in

her spinal cord.

You can learn alot about tort just by googlng. You can find alot of

pictures, illustrations and descriptions of tort.

Jen

Mom to Luli - 4 yrs old

Torticollis, Plagio, Syringomyelia

Neck advise please

Hi,

I am thinking it is time to have 's neck evaluated more

thoroughly. The most concerned so far other than me has been the

chiropractor and all she says is his neck is a little off and then she

adjusts it. was never diagnosed with torticollis and I am fairly

confident he never had it. (Thinking back, I think my 5.5 year old had

mild torticollis that led to his plagio.) has a preference to

turn

right, especially when sleeping, but he never had a head tilt. He is

able to turn both directions. He just turns right more than left.

When

he is sleeping on his back, he sometimes turns so far that his chin is

to his shoulder. I had noticed it less since he started the

chiropractor visits last May.

However, lately it has regressed. This may be because he started

daycare in Jan and he will only nap there sitting up! He sleeps in a

low rocking chair at daycare. When the teachers try to lay him down,

he

wakes up. We are surprised that he refuses to nap like the other kids.

This has me very worried about his neck. Besides when we remove the

helmet, I would prefer he did not favor sleeping on his flat spot.

For those of you taking your children for neck therapy, who diagnosed

the neck problems? Was it the pediatrician? Should I see a physical

therapist? Are there neck specialists? We are in the process of

switching pediatricians. The old one wasn't concerned about the neck,

but then I am switching because of her casual attitude about multiple

things, including the head. Should I take into the new

pediatrician before his next scheduled check up, which isn't until

June?

Any advise on what to do about the neck? Thanks in advance. I don't

know what I would do without this group during this difficult time.

BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.

Thanks,

Kathy, mom to almost 21 months, almost 9 months in Starband

[Guest guest]

With my dd we went to alot of different drs. She did have alot of

x-rays taken.

If you are worried about the way your baby moves his body then request

to see an orthopedic dr. Or even a Physical therapist. They can help

you structurally.

With my dd we went 1st thru pediatric who referred us to orthopedic.

They thought that there was nothing structurally wrong and so referred

us to Physical Therapy. After months of therapy, her tort did not get

better and she was moving her body differently on the right then on the

left.(about 18 mo old) She had xrays, ct's and MRI's and that is when

they found the spinal cord abnormalities.

You need to be a LOUD voice for your son. I really had to push to get

diagnosis for my dd. They all thought I was crazy and 1 dr even told me

that my dd was fine and I was looking at her too closely. When they

finally found the spinal cord abnormalities, I was sad for my dd, but

happy that I had pushed. I was right! I knew that there was something

wrong with my dd - but it took alot of fighting to get heard.

Jen

Mom to Luli - 4 yrs old

Torticollis, Plagio, Syringomyelia

Neck advise please

Hi,

I am thinking it is time to have 's neck evaluated more

thoroughly. The most concerned so far other than me has been the

chiropractor and all she says is his neck is a little off and then she

adjusts it. was never diagnosed with torticollis and I am fairly

confident he never had it. (Thinking back, I think my 5.5 year old had

mild torticollis that led to his plagio.) has a preference to

turn

right, especially when sleeping, but he never had a head tilt. He is

able to turn both directions. He just turns right more than left.

When

he is sleeping on his back, he sometimes turns so far that his chin is

to his shoulder. I had noticed it less since he started the

chiropractor visits last May.

However, lately it has regressed. This may be because he started

daycare in Jan and he will only nap there sitting up! He sleeps in a

low rocking chair at daycare. When the teachers try to lay him down,

he

wakes up. We are surprised that he refuses to nap like the other kids.

This has me very worried about his neck. Besides when we remove the

helmet, I would prefer he did not favor sleeping on his flat spot.

For those of you taking your children for neck therapy, who diagnosed

the neck problems? Was it the pediatrician? Should I see a physical

therapist? Are there neck specialists? We are in the process of

switching pediatricians. The old one wasn't concerned about the neck,

but then I am switching because of her casual attitude about multiple

things, including the head. Should I take into the new

pediatrician before his next scheduled check up, which isn't until

June?

Any advise on what to do about the neck? Thanks in advance. I don't

know what I would do without this group during this difficult time.

BTW, I'm so relieved to finally being switching pediatricians! It is

mentally a tiny bit of closure to this plagio ordeal.

Thanks,

Kathy, mom to almost 21 months, almost 9 months in Starband