New Here!

[Guest guest]

Patti, my husband was recently diagnosed with PSC. I know exactly how you

are feeling right now, but I have to tell you that the information I have

gained just be reading these postings everyday (I dont post much) is very

helpful and it helps to know there are others out there experiencing the same

thing. I for one never met anyone else who has this disease. I'm a nurse

and i was only vaguely aware of it. Keep signing on and you will learn alot

of helpful facts, and you will feel less alone and frightened when you see

that many people have been living with this disease for quite a while. Any

support I can give I will be happy to. Liz

[Guest guest]

Rnurse987@... wrote:

>

> From: Rnurse987@...

>

> Patti, my husband was recently diagnosed with PSC. I know exactly how you

> are feeling right now, but I have to tell you that the information I have

> gained just be reading these postings everyday (I dont post much) is very

> helpful and it helps to know there are others out there experiencing the same

> thing. I for one never met anyone else who has this disease. I'm a nurse

> and i was only vaguely aware of it. Keep signing on and you will learn alot

> of helpful facts, and you will feel less alone and frightened when you see

> that many people have been living with this disease for quite a while. Any

> support I can give I will be happy to. Liz

>

> ------------------------------------------------------------------------

> ONElist: where the world talks!

>

> Join a new list today.

> ------------------------------------------------------------------------

> Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

>

> 2.) To UNsubscribe send to -unsubscribeonelist

>

> 3.) Digest e-mail format send to -digestonelist

>

> 4.) Normal e-mail format send to -normalonelist

Can I ask what your husbands symtoms were? Does he have colitis? What

is the prognosis he has been given and what meds was he put on. Thank

you for responding.

Patti

[Guest guest]

Patti, my husband had a long road before he was finally diagnosed. He had

some elevated liver enzymes on and off dating back to 1984 but they were mild

and the docs at his occupational health office were not alarmed, but did

advise him to follow up, which he did not. In 1996 he had a routine physical

and his ggt was 668. Our doctor is a friend of mine from the hospital where

I was working at the time and he was very alarmed and immediately sent us to

a g.i. guy who did a slew of different tests for everything from hepatitis of

every letter to wilsons disease. He had liver biopsy, (which was negative)

MRI , CT scan, HIDA scan, sonogram and eventually had his gallbladder removed

since he had large stones and a dilated cystic duct.

The doctors were hoping that the pressure from this may be responsible for

the elevation in enzymes, but once an ERCP was performed they began to allude

to " Autoimmune Liver Disease " but would not name it. By then I had looked it

up and knew more or less that they thought he had PSC. I was devastated but

hopeful that maybe things would improve after the gallbladder surgery.

Unfortunately I was wrong, and decided at that point to go to a hepatologist

associated with NYU, who confirmed the diagnosis based on the results of the

ERCP, and later reconfirmed with an MRCholangiogram done at NYU. Basically

he had no symptoms at all, except for an intolerance for heavy, fatty meals,

(like if we went out to dinnner) after which he may throw up several hours

later. This symptom, however, seemed more linked with his gallstones as once

the gallbladder was removed he had alot less belching and never threw up

again. Basically, he shows not colitis, however has not yet had colonoscopy.

Right now, he is very well and healthy, physically fit and strong. It is

hard to believe he even has this disease, and it is scary to think he may get

sick at any time. He was not feeling well the other night after eating one

too many brownies and cookies and two cups of coffee at a function at my sons

school and the old symptoms flared up again. I was checking his eyes for

jaundice and kept feeling his forehead for a fever and asking him if he had

chills. But he was fine. So thats the story Patti. Its kind of depressing

to think he may get very sick, but he has been keeping to a very low fat diet

(with the occasional brownie,) getting lots of exercise, completely avoids

things like tylenol and alcohol. His attitude is great, and he refuses to

give in to fearing the future. I am more fearful of the future than he is.

But I am praying for his continued good health and am encouraged by reading

many of the postings here. I hope you will be too. I am here for any

support I can give! Liz

[Guest guest]

Patti, I forgot to tell you he is on Actigall 300mg three times a day, and

tolerating it well without any side effects. Liz

[Guest guest]

Hi Amy,

I have the same problem, just shorter than you had,

I've had yeast infection for 5 months now, yes, once

every month, and all the crap: Diflucan, blah blah

blah...

But I start to use ia this month, thanks to

Agnes(from this group)'s suggestion. At the same time,

I am using the Kolorex cream sold on the Wholeapproach

site. This is the third day I started doing these 2

things. Although it is not all gone, but I really feel

a difference now. I am not having a lot of discharge

as usual, and just a little bit itching while I am

sitting at work the whole day. I am going to do 4

treatments on ia, each lasting 2 weeks, with 1

week break between each treatment, and see if I can

get rid of it altogether.

I can keep you posted if you are interested on my

progress, and I can tell you the websites to go to.

You can e-mail me individually if you want:

dudu43230@....

Good luck!

Dawn

--- beannmom@... wrote:

> Hi Everyone,

>

> I'm Amy, living in Southern California, I just

> recently turned 30,

> married with one adorable child.

>

> How I got here:

>

> Well, I lived my life yeast-infection free until I

> had my child five

> years ago. Since then, I have had a yeast infection

> once a month for

> that entire five years. I have taken so much

> diflucan, but of course

> nothing ever helped. I went to doctor after doctor

> after doctor but

> just was told the same crap over and over again (you

> know, the stuff

> that doesn't help at all and I was already doing:

> eat yogurt, don't

> wear nylon undies, blah, blah).

>

> Just recently, I have been being treated by

> chiro/nutritionist who

> convinced me to give up sugar and go a low-carb

> diet. Now she is

> telling me to go on the yeast diet and giving me

> supplements to kill

> off the yeast (slowly) and replacing the good stuff.

>

> I have decided to start this diet on June 1. Mostly

> because I need

> atleast a day to figure out what I CAN eat. I'm

> having the worst

> time. The only info I can seem to find is " don't

> eat this, dont' eat

> anything with that in it " .

> But what the heck IS on the diet? I understand that

> meat (as long as

> its not smoked) is okay. Which for me isn't great

> since I never was

> a big meat eater. And also veggies are okay, I'm

> good with those as

> long as I can use some olive oil and garlic. Is

> mayo okay (as in

> tuna-fish?)

>

> But what does everyone do for breakfast?? a person

> can only eat so

> many eggs in life (especially if there isn't any

> cheese on it!!) And

> please dont' say " have a pork chop " , since that

> would make me throw

> up first thing in the morning!!! *lol*

>

> I'm sorry, I'm just a little overwhelmed right now.

> I'm sure I'll

> catch on to this and I KNOW it will be worth it.

>

> Amy

>

>

__________________________________________________

[Guest guest]

I am glad that you found us here. Welcome. Where in SoCal are you?

I am in San Diego County as is another list member. As far as what

it is you CAN eat:

1. Look in the archives here. Suggest maybe a search under " diet " .

Also, basically it's caveman's diet. I eat a little more liberally.

I don't know if I should be though. I eat rice and spelt spaghetti

(avail through Webvan by the way). I eat tons of flax. But I also

eat tons of vegies. I know others will have more suggestions.

Becca

> Hi Everyone,

>

> I'm Amy, living in Southern California, I just recently turned 30,

> married with one adorable child.

>

[Guest guest]

Hi!

Welcome to the group!

1. Breakfast: do a search through these archives. I recently posted

breakfast recommendations for another person on this list. Lots of

yummy ideas there. It helps if you throw out your old ideas for

breakfast...well, search ofr my list under " breakfast " and you will

see what I mean.

2. Here is a sample diet for candida:

http://www.mwilliamson.com/yeastdiet.htm

I did not follow that particular diet at first but am now following it

religiously, except for the avocados. I eat avocados and it says not

to during the first stage, but heck I need the potassium badly.

There are many other sample diets on the Web and they will all have

conflicting information, whic his VERY frustrating. In the end, as

your body heals, you will begin to know what works and does not work

for your body.

3. Don't give up! Do you already know that you may have a temporary

increase of symptoms when you first start? You will think you are

getting worse, you might have a rash or whatever symptoms

you had before reoccur...happened to me yesterday and today I feel

fantastic! It helps if you drinks LOTS of water to flush the nasty

critters out of your system. I drink about .05 ounces for each pound

of my body weight per day. I also take yellow dock herb to clean my

system out.

4. Natural antifungals like pau d'arco tea or SF Formula 722 at the

modernherbalist.com are useful, too.

Good luck!

> Hi Everyone,

>

> I'm Amy, living in Southern California, I just recently turned 30,

> married with one adorable child.

>

> How I got here:

>

> Well, I lived my life yeast-infection free until I had my child five

> years ago. Since then, I have had a yeast infection once a month

for

> that entire five years. I have taken so much diflucan, but of

course

> nothing ever helped. I went to doctor after doctor after doctor but

> just was told the same crap over and over again (you know, the stuff

> that doesn't help at all and I was already doing: eat yogurt, don't

> wear nylon undies, blah, blah).

>

> Just recently, I have been being treated by chiro/nutritionist who

> convinced me to give up sugar and go a low-carb diet. Now she is

> telling me to go on the yeast diet and giving me supplements to kill

> off the yeast (slowly) and replacing the good stuff.

>

> I have decided to start this diet on June 1. Mostly because I need

> atleast a day to figure out what I CAN eat. I'm having the worst

> time. The only info I can seem to find is " don't eat this, dont'

eat

> anything with that in it " .

> But what the heck IS on the diet? I understand that meat (as long

as

> its not smoked) is okay. Which for me isn't great since I never was

> a big meat eater. And also veggies are okay, I'm good with those as

> long as I can use some olive oil and garlic. Is mayo okay (as in

> tuna-fish?)

>

> But what does everyone do for breakfast?? a person can only eat so

> many eggs in life (especially if there isn't any cheese on it!!) And

> please dont' say " have a pork chop " , since that would make me throw

> up first thing in the morning!!! *lol*

>

> I'm sorry, I'm just a little overwhelmed right now. I'm sure I'll

> catch on to this and I KNOW it will be worth it.

>

> Amy

[Guest guest]

Amy -

Interesting! I am 30 also and have a beautiful 22 month old son, and

have had problems with candidiasis ever since his birth. Can I ask

you a question? Did you deliver vaginally? Was the delivery

difficult - excessive tearing or ripping, baby too big, shoulders got

caught, forceps or vacuum-extraction employed? Just wondering...I

was told I may not regain complete control over my bowels

afterwards. Luckily, I did - but I developed a horrid case of IBS

(irritable bowel syndrome) and lost TONS of weight - an unhealthy

amount of weight.

Almost 2 years later, I am now at a decent weight for my height and

age, but still in much pain daily. I KNOW I need to change my diet,

but, like you, only get discouraged when EVERYTHING I read

says " nope, can't have that - don't eat that - are you kidding? you

can't EVER have ice cream again! " UGGGH! It is maddening!

I did buy a book recently called " Yeast Connection and the Woman " by

Dr. Crook. He is one of the gurus on systemic yeast and how

to treat it. The book is quite comprehensive and informative...you

might check it out. Or, go to Dr. Crook's website for more info:

http://www.candida-yeast.com/. He discusses diet and recommends a

cookbook for people like us.

I guess I just wanted to post to let you know that you are not alone,

and that our situations seemed similar. Misery loves company and I

realize there are worse diseases and disorders to have - so in that,

I feel fortunate. However, living each day in pain and really paying

for it later when I indulge a trigger food stinks. Good luck on your

diet and I hope you will reply to me!

Gail

> Hi Everyone,

>

> I'm Amy, living in Southern California, I just recently turned 30,

> married with one adorable child.

>

> How I got here:

>

> Well, I lived my life yeast-infection free until I had my child

five

> years ago. Since then, I have had a yeast infection once a month

for

> that entire five years. I have taken so much diflucan, but of

course

> nothing ever helped. I went to doctor after doctor after doctor

but

> just was told the same crap over and over again (you know, the

stuff

> that doesn't help at all and I was already doing: eat yogurt, don't

> wear nylon undies, blah, blah).

>

> Just recently, I have been being treated by chiro/nutritionist who

> convinced me to give up sugar and go a low-carb diet. Now she is

> telling me to go on the yeast diet and giving me supplements to

kill

> off the yeast (slowly) and replacing the good stuff.

>

> I have decided to start this diet on June 1. Mostly because I need

> atleast a day to figure out what I CAN eat. I'm having the worst

> time. The only info I can seem to find is " don't eat this, dont'

eat

> anything with that in it " .

> But what the heck IS on the diet? I understand that meat (as long

as

> its not smoked) is okay. Which for me isn't great since I never

was

> a big meat eater. And also veggies are okay, I'm good with those

as

> long as I can use some olive oil and garlic. Is mayo okay (as in

> tuna-fish?)

>

> But what does everyone do for breakfast?? a person can only eat so

> many eggs in life (especially if there isn't any cheese on it!!)

And

> please dont' say " have a pork chop " , since that would make me throw

> up first thing in the morning!!! *lol*

>

> I'm sorry, I'm just a little overwhelmed right now. I'm sure I'll

> catch on to this and I KNOW it will be worth it.

>

> Amy

[Guest guest]

Amy,

Hello! Believe it or not, there are things you can eat. As for

breakfast, I am not much help there, I just stopped eating it. I

know some people say that whole grains, such as oatmeal are ok in

limited quantity, and I fely fine when eating oatmeal every day for b-

fast. It was the eggs that made me feel sick.

As for mayo, I was disappointed to find out that it has both sugar

AND vinegar.

HOWEVER, there is hope - you can make your own mayo - here is a

recipie. I have also gotten to quite like lemon and oil as a salad

dressing. Being a vegetarian, this was hard for me too, but I have

started eating a lot of fish.

Homemade Mayo

2 egg yolks

1 whole egg

1tbl Dijon Mustard (I would leave this out if you are avoiding

vinegar in its entirety and maybe replaec with some mustard powder)

pinch of salt

Freshly ground black pepper to taste

2 - 4 Tbl fresh lemon juice

2 cups safflower or olive oil

Combine everything except the oil in a food processor and blend for 1

minute.

Gradullay add the oil with the motor running in a slow, steady

stream. When the mayo is fully blended, turn off and scrape sides of

bowl. Taste and adjust seasoning as desired.

Cover and refrigerate for up to 5 days. Let it return to room temp

before using. Makes 3 cups.

Ideas to add to your mayo:

Dill

Nicoise: tomato puree, red pepper, tarragon, chives

Green: fresh greens (like watercress, spinach, parsely and/or

scallions)

> Hi Everyone,

>

> I'm Amy, living in Southern California, I just recently turned 30,

> married with one adorable child.

>

> How I got here:

>

> Well, I lived my life yeast-infection free until I had my child

five

> years ago. Since then, I have had a yeast infection once a month

for

> that entire five years. I have taken so much diflucan, but of

course

> nothing ever helped. I went to doctor after doctor after doctor

but

> just was told the same crap over and over again (you know, the

stuff

> that doesn't help at all and I was already doing: eat yogurt, don't

> wear nylon undies, blah, blah).

>

> Just recently, I have been being treated by chiro/nutritionist who

> convinced me to give up sugar and go a low-carb diet. Now she is

> telling me to go on the yeast diet and giving me supplements to

kill

> off the yeast (slowly) and replacing the good stuff.

>

> I have decided to start this diet on June 1. Mostly because I need

> atleast a day to figure out what I CAN eat. I'm having the worst

> time. The only info I can seem to find is " don't eat this, dont'

eat

> anything with that in it " .

> But what the heck IS on the diet? I understand that meat (as long

as

> its not smoked) is okay. Which for me isn't great since I never

was

> a big meat eater. And also veggies are okay, I'm good with those

as

> long as I can use some olive oil and garlic. Is mayo okay (as in

> tuna-fish?)

>

> But what does everyone do for breakfast?? a person can only eat so

> many eggs in life (especially if there isn't any cheese on it!!)

And

> please dont' say " have a pork chop " , since that would make me throw

> up first thing in the morning!!! *lol*

>

> I'm sorry, I'm just a little overwhelmed right now. I'm sure I'll

> catch on to this and I KNOW it will be worth it.

>

> Amy

[Guest guest]

,

Welcome. Glad you are here to start cleansing.

You might be interested in a list called endonatural ,

or another: WITSENDO@....

--

* Health * Peace * Love * 4ever

@..@

(----)

( >__< ) Ribbit

[Guest guest]

In a message dated 12/11/01 6:00:15 PM Eastern Standard Time,

terridu1@... writes:

> Hello everyone! My name is and I am new to this group. I have

> been lurking for a little over a week or so now and have learned so

> much new information

Hi

Welcome to the group. I'm glad you found us! I'm sure you will find a

vast wealth of information, advice and support here. I'm fairly new also and

have really appreciated this crowd!

I just wanted to mention that Schulze is big on diseases that have no

cure. He was diagnosed with an " incurable " heart condition and is well now.

So you might want to check out his writing. That, unfortunately, is the

only word of advice I can offer you!

Glad you're here!

[Guest guest]

Hi ,

I am sorry you have such illness. I would like to suggest to

you that you might want to read some about the effects of

mercury poisoning to see if this may be part of your problems.

You can read about the symptoms here:

http://hometown.aol.com/noamalgam

You can read more about determining if you are toxic, and

what to do about it here:

/files/ANDY_INDEX

I think SOME of your problems sound like they COULD be caused

by this. It may be worth looking into it.

best,

Moria

[Guest guest]

Hi,

I'm Kristie, I have 2 boys aged 4 and 5 years. I'm hypothyroid -

tired, depressed, weepy/nasty, no interest in anything and just

miserable for years. Just in January I had a TSH test that came

back 'out of the normal range'. I was being treated for depression

for a few years and it didn't work - no wonder. I've had TSH tests

of 3 and 4 for at least 3 years now, but the docs considered

that 'normal'. I'd guess that you'd want to look into getting a

different med or a different doc. Can you see a different doc? Done

much reading on thyroid problems? Have you checked Shomone's

website? Patients really need to know about their condition so they

know what the docs are doing, or not doing for them.

http://thyroid.miningco.com/

Once you get the basics then this site is great:

http://personal.atl.bellsouth.net/w/u/wurmstei/Peatfield_Suggest.htm

I'm not very good at all this stuff - just starting to sort it out

myself, but there may be folks who can tell you what's going on by

your test results (with the lab ranges) if you were comfortable

posting them. Do you know what tests the doc ran recently?

There's another group in similiar to this one:

thyroid@... that's great too, and addresses a lot of the same

things. I found myself sitting in front of the computer reading

about other folks just like me (and us) not sure whether to laugh or

cry (done both!) - the archives are super. I felt it was all my

fault for being so messed up when the docs said I was " fine "

and " here, dearie, try this anti-depressant and do you have a

therapist? " Ugh. Now that I have an idea of what's going on -

reading on my own - I've had 2 docs laugh in my face for asking for

animal source thyroid, laugh at the idea that all these symptoms are

thyroid related, etc. It's discouraging.

I'm glad to find these groups, for sure. It's been good to have a

place where folks know something and have been through this too.

kristie

> Hi! I just joined tonight and I was so excited to find a group

that > talks about the problems I face with my thyroid. I have been

on > synthroid for 6 years now....with lots of ups and downs...mostly

> downs. I recently went in to dr...where he increased my dose to

> 175mcg. I was feeling pretty good....but I was losing hair like

> crazy and my neck was getting larger like in the begining..(never

> really totally went back to normal anyhow)...so I have now been

> taking this new dose for about 2 weeks.

> Um....although this is hard for me to talk about with

> strangers....and I am hoping that there is mostly women in

here.....I > was wondering if the increase in this hormone can bring

about > emotional changes. I have found that I tend to cry very

easily in the > last 3-4 days...it has been an emotional

rollercoaster.i was > wondering if it can tend to make your menstral

cycles be abnormal. I > say " abnormal " but it may be more like

normal. I have all the > symptoms of another cycle and it has only

been 2 1/2 weeks. > If anyone would care to talk or chat with me...I

sure would > appreciate it....greatly. I have 3 boys....ages 8,6,3

1/2.....and > the way I feel right now...I could sware I am pregnant

again.LOL

> Anyways, I wont jump to conclusions...I just need someone to talk

to.

>

> Christy

[Guest guest]

I would suggest not telling my coworkers unless it was

pertinent to you job . There are so, so many people

out there that do not understand this disease and will

chastise you for having it. I have even lost so called

" good friends " because of HepC. I have found that due

to ignorance on the part of the General Public, that

at times I am now treated the same way that HIV pos

people were treated in the 80's. I have even hsd

people refuse to let me get around their children. By

the Grace of God I am 2 yrs undetectable after

treatment and from my early experiences from when I

first tested positive, I simply choose not to tell

anyone unless it is detrimental. Heck, I still have

family members that don't want to use the restroom

after me.The choice is yours, but your biggest enemy

is a misinformed or uninformed public. BIll

--- Mike <nc_yankee89@...> wrote:

> Hi every one!

>

> I just joined moments ago.Just want to introduce

> myself.

>

> My name is Mike.I am 54 years ago.Separated for

> three years.But,have

> a wonderful girlfriend who supports me.Even though I

> have been

> recently diagnosed with Hep-C.I thank God for her.

>

> Even though I have really no visibaly symptoms of

> the disease right

> now.I probably have had it since 1974.The result

> from using a

> community IV needle while with the US Army in

> Germany. I had Hep

> back then.But,since then,I never was tested for

> Hep-C till recently.

>

> I really do not know about telling people I work

> with about it. I

> really have no idea how they will react.I have told

> the close family

> members and most of my friends.They are great about

> it.I was just

> wondering how you folks.Especially,those who have a

> job and

> coworkers have been accepted since revealing the

> disease.

>

> I am a christian.I love the Lord alot.

>

> I would really appreciate fellowshipping with those

> of you in this

> group.By e-mail,or even here.I am not on the

> computer alot.Just when

> I get here at my girlfriends.But,will respond as

> soon as I can.

>

> Thank you for allowing me to be a part,and I look

> forward to what

> this group has to offer.

>

> Mike

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Hey Bill!

Thanks! I kinda figured that.I really do not know where I stand with

this yet.I am waiting for the VA to do some follow up

testing,advising and treatment.The first tests seem to show no

damage as of yet,and I believe I have had it since about 1974.I feel

like at my age,and where I am with Hep-C.It probably will not be the

cause of my demise.But,anyways.THANKS! The security office I work at

has a bathroom,and I do not need to have that problem.I appreciate

this group. I will not be here all of the time.Probably,be the first

of the week before I can get back online.But,I look forward to

catching up on the messages then...

God Bless!

Mike

>

> > Hi every one!

> >

> > I just joined moments ago.Just want to introduce

> > myself.

> >

> > My name is Mike.I am 54 years ago.Separated for

> > three years.But,have

> > a wonderful girlfriend who supports me.Even though I

> > have been

> > recently diagnosed with Hep-C.I thank God for her.

> >

> > Even though I have really no visibaly symptoms of

> > the disease right

> > now.I probably have had it since 1974.The result

> > from using a

> > community IV needle while with the US Army in

> > Germany. I had Hep

> > back then.But,since then,I never was tested for

> > Hep-C till recently.

> >

> > I really do not know about telling people I work

> > with about it. I

> > really have no idea how they will react.I have told

> > the close family

> > members and most of my friends.They are great about

> > it.I was just

> > wondering how you folks.Especially,those who have a

> > job and

> > coworkers have been accepted since revealing the

> > disease.

> >

> > I am a christian.I love the Lord alot.

> >

> > I would really appreciate fellowshipping with those

> > of you in this

> > group.By e-mail,or even here.I am not on the

> > computer alot.Just when

> > I get here at my girlfriends.But,will respond as

> > soon as I can.

> >

> > Thank you for allowing me to be a part,and I look

> > forward to what

> > this group has to offer.

> >

> > Mike

> >

> >

> >

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

[Guest guest]

However, I have a very different position on all of the sharing. But then

I've never been a very private kind of person. I tell my employers, even

prospective employers. If they can't deal with it they can't support me to

the extent I need it. And if they are uneducated then I educate them.

Sometimes more than they wanted to know, but they get their lessons.

I tell my co-workers, my family, my friends, my prospective romantic

involvements. I tell the people that profess to care about me. If they care

they will care about this too, if they don't, they don't. And I don't need

to expend energy trying to make their reality comfortable for them.

I just am not comfortable with nor happy about hiding my candle under the

bushel, as the old Sunday school song warned. I let it shine. My disease

condition isn't all bad and horrible. Some of the reality of it gives me a

chance to shine, and shine bright.

Just my take on it.

Sally

[ ] Re: New Here!

Hey Bill!

Thanks! I kinda figured that.I really do not know where I stand with

this yet.I am waiting for the VA to do some follow up

testing,advising and treatment.The first tests seem to show no

damage as of yet,and I believe I have had it since about 1974.I feel

like at my age,and where I am with Hep-C.It probably will not be the

cause of my demise.But,anyways.THANKS! The security office I work at

has a bathroom,and I do not need to have that problem.I appreciate

this group. I will not be here all of the time.Probably,be the first

of the week before I can get back online.But,I look forward to

catching up on the messages then...

God Bless!

Mike

>

> > Hi every one!

> >

> > I just joined moments ago.Just want to introduce

> > myself.

> >

> > My name is Mike.I am 54 years ago.Separated for

> > three years.But,have

> > a wonderful girlfriend who supports me.Even though I

> > have been

> > recently diagnosed with Hep-C.I thank God for her.

> >

> > Even though I have really no visibaly symptoms of

> > the disease right

> > now.I probably have had it since 1974.The result

> > from using a

> > community IV needle while with the US Army in

> > Germany. I had Hep

> > back then.But,since then,I never was tested for

> > Hep-C till recently.

> >

> > I really do not know about telling people I work

> > with about it. I

> > really have no idea how they will react.I have told

> > the close family

> > members and most of my friends.They are great about

> > it.I was just

> > wondering how you folks.Especially,those who have a

> > job and

> > coworkers have been accepted since revealing the

> > disease.

> >

> > I am a christian.I love the Lord alot.

> >

> > I would really appreciate fellowshipping with those

> > of you in this

> > group.By e-mail,or even here.I am not on the

> > computer alot.Just when

> > I get here at my girlfriends.But,will respond as

> > soon as I can.

> >

> > Thank you for allowing me to be a part,and I look

> > forward to what

> > this group has to offer.

> >

> > Mike

> >

> >

> >

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

[Guest guest]

Hi out there:

Even though I've not been actively involved in all the correspondence for the past couple of years, I've always enjoyed reading all of the posts from all of you old guys. I'm perplexed that I haven't heard anything from Jan, Terry, DZ, Sharon, Diane, Dennis, and all of you other guys lately. What's going on? I'm particularly concerned about Jan and any of you who have been exposed to the hurricane. Please let me know about why the sudden silence?

Gordon

[Guest guest]

I agree. I tell people on a " need to know basis "

Sharon

--- billy lewis <bill0443@...> wrote:

> I would suggest not telling my coworkers unless it

> was

> pertinent to you job . There are so, so many people

> out there that do not understand this disease and

> will

> chastise you for having it. I have even lost so

> called

> " good friends " because of HepC. I have found that

> due

> to ignorance on the part of the General Public, that

> at times I am now treated the same way that HIV pos

> people were treated in the 80's. I have even hsd

> people refuse to let me get around their children.

> By

> the Grace of God I am 2 yrs undetectable after

> treatment and from my early experiences from when I

> first tested positive, I simply choose not to tell

> anyone unless it is detrimental. Heck, I still have

> family members that don't want to use the restroom

> after me.The choice is yours, but your biggest enemy

> is a misinformed or uninformed public. BIll

>

> --- Mike <nc_yankee89@...> wrote:

>

> > Hi every one!

> >

> > I just joined moments ago.Just want to introduce

> > myself.

> >

> > My name is Mike.I am 54 years ago.Separated for

> > three years.But,have

> > a wonderful girlfriend who supports me.Even though

> I

> > have been

> > recently diagnosed with Hep-C.I thank God for her.

> >

> > Even though I have really no visibaly symptoms of

> > the disease right

> > now.I probably have had it since 1974.The result

> > from using a

> > community IV needle while with the US Army in

> > Germany. I had Hep

> > back then.But,since then,I never was tested for

> > Hep-C till recently.

> >

> > I really do not know about telling people I work

> > with about it. I

> > really have no idea how they will react.I have

> told

> > the close family

> > members and most of my friends.They are great

> about

> > it.I was just

> > wondering how you folks.Especially,those who have

> a

> > job and

> > coworkers have been accepted since revealing the

> > disease.

> >

> > I am a christian.I love the Lord alot.

> >

> > I would really appreciate fellowshipping with

> those

> > of you in this

> > group.By e-mail,or even here.I am not on the

> > computer alot.Just when

> > I get here at my girlfriends.But,will respond as

> > soon as I can.

> >

> > Thank you for allowing me to be a part,and I look

> > forward to what

> > this group has to offer.

> >

> > Mike

> >

> >

> >

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

I'm here, and your right, it's scary how quiet it's

been. I'm pretty sure Tammy lived on the LA. coast and

I worry for her and Jan. Where is everyone?

Sharon

--- gordonrcameron@... wrote:

> Hi out there:

>

> Even though I've not been actively involved in all

> the correspondence for the

> past couple of years, I've always enjoyed reading

> all of the posts from all

> of you old guys. I'm perplexed that I haven't heard

> anything from Jan, Terry,

> DZ, Sharon, Diane, Dennis, and all of you

> other guys lately. What's

> going on? I'm particularly concerned about Jan and

> any of you who have been

> exposed to the hurricane. Please let me know about

> why the sudden silence?

>

> Gordon

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Hi everyone. It's Dennis from NH. Long time no write. I've been pretty

busy with my job, helping my son with the new home he is building, and

fixing and cleaning up our place to sell so we can buy a place in Maine.

We've been looking since spring and now our place is on the market. We

haven't found the right place yet. It's difficult leaving the school I have

worked at for 32 years and the home we have lived in for 28.

Sorry I haven't had time to keep up with all the new members.

Best to everyone,

Dennis

Re: [ ] New Here!

> I'm here, and your right, it's scary how quiet it's

> been. I'm pretty sure Tammy lived on the LA. coast and

> I worry for her and Jan. Where is everyone?

> Sharon

>

> --- gordonrcameron@... wrote:

>

> > Hi out there:

> >

> > Even though I've not been actively involved in all

> > the correspondence for the

> > past couple of years, I've always enjoyed reading

> > all of the posts from all

> > of you old guys. I'm perplexed that I haven't heard

> > anything from Jan, Terry,

> > DZ, Sharon, Diane, Dennis, and all of you

> > other guys lately. What's

> > going on? I'm particularly concerned about Jan and

> > any of you who have been

> > exposed to the hurricane. Please let me know about

> > why the sudden silence?

> >

> > Gordon

> >

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

>

>

>

>

[Guest guest]

Thank you for that out put Sally! most people close to me know.But,I

guess the candle is still under the lamp at work. they are a pecular

people there.I really have to pray about this one.I appreciate all

the help.

Mike

>

> Hey Bill!

>

> Thanks! I kinda figured that.I really do not know where I stand

with

> this yet.I am waiting for the VA to do some follow up

> testing,advising and treatment.The first tests seem to show no

> damage as of yet,and I believe I have had it since about 1974.I

feel

> like at my age,and where I am with Hep-C.It probably will not be

the

> cause of my demise.But,anyways.THANKS! The security office I work

at

> has a bathroom,and I do not need to have that problem.I appreciate

> this group. I will not be here all of the time.Probably,be the

first

> of the week before I can get back online.But,I look forward to

> catching up on the messages then...

>

> God Bless!

> Mike

>

> >

> > > Hi every one!

> > >

> > > I just joined moments ago.Just want to introduce

> > > myself.

> > >

> > > My name is Mike.I am 54 years ago.Separated for

> > > three years.But,have

> > > a wonderful girlfriend who supports me.Even though I

> > > have been

> > > recently diagnosed with Hep-C.I thank God for her.

> > >

> > > Even though I have really no visibaly symptoms of

> > > the disease right

> > > now.I probably have had it since 1974.The result

> > > from using a

> > > community IV needle while with the US Army in

> > > Germany. I had Hep

> > > back then.But,since then,I never was tested for

> > > Hep-C till recently.

> > >

> > > I really do not know about telling people I work

> > > with about it. I

> > > really have no idea how they will react.I have told

> > > the close family

> > > members and most of my friends.They are great about

> > > it.I was just

> > > wondering how you folks.Especially,those who have a

> > > job and

> > > coworkers have been accepted since revealing the

> > > disease.

> > >

> > > I am a christian.I love the Lord alot.

> > >

> > > I would really appreciate fellowshipping with those

> > > of you in this

> > > group.By e-mail,or even here.I am not on the

> > > computer alot.Just when

> > > I get here at my girlfriends.But,will respond as

> > > soon as I can.

> > >

> > > Thank you for allowing me to be a part,and I look

> > > forward to what

> > > this group has to offer.

> > >

> > > Mike

> > >

> > >

> > >

> >

> >

> >

> >

> > __________________________________

> > - PC Magazine Editors' Choice 2005

> > http://mail.

>

>

>

>

>

>

>

[Guest guest]

I think THAT is my answer... " NEED TO KNOW " I appreciate that Sharon..

Mike

> >

> > > Hi every one!

> > >

> > > I just joined moments ago.Just want to introduce

> > > myself.

> > >

> > > My name is Mike.I am 54 years ago.Separated for

> > > three years.But,have

> > > a wonderful girlfriend who supports me.Even though

> > I

> > > have been

> > > recently diagnosed with Hep-C.I thank God for her.

> > >

> > > Even though I have really no visibaly symptoms of

> > > the disease right

> > > now.I probably have had it since 1974.The result

> > > from using a

> > > community IV needle while with the US Army in

> > > Germany. I had Hep

> > > back then.But,since then,I never was tested for

> > > Hep-C till recently.

> > >

> > > I really do not know about telling people I work

> > > with about it. I

> > > really have no idea how they will react.I have

> > told

> > > the close family

> > > members and most of my friends.They are great

> > about

> > > it.I was just

> > > wondering how you folks.Especially,those who have

> > a

> > > job and

> > > coworkers have been accepted since revealing the

> > > disease.

> > >

> > > I am a christian.I love the Lord alot.

> > >

> > > I would really appreciate fellowshipping with

> > those

> > > of you in this

> > > group.By e-mail,or even here.I am not on the

> > > computer alot.Just when

> > > I get here at my girlfriends.But,will respond as

> > > soon as I can.

> > >

> > > Thank you for allowing me to be a part,and I look

> > > forward to what

> > > this group has to offer.

> > >

> > > Mike

> > >

> > >

> > >

> >

> >

> >

> >

> > __________________________________

> > - PC Magazine Editors' Choice 2005

> > http://mail.

> >

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

[Guest guest]

I just took on a new job almost a year ago right after treatment was done.

I did tell my new employees before I was hired, and found out that her

husband has the same thing. They immediately put me on back health

insurance before I was hired to make sure I didn't miss a month of being

covered. It was nice of them.

But I consider them a Need To Know for it will come out thru the health

insurance anyways, so why not be upfront in the first place. Everyone else

doesn't need to know, I just don't have the time to explain to them or go

thru phase where they look at you differently. I want to live life fully,

and just go on with my life. Lynne

[ ] Re: New Here!

Thank you for that out put Sally! most people close to me know.But,I guess

the candle is still under the lamp at work. they are a pecular people

there.I really have to pray about this one.I appreciate all the help.

Mike

>

> Hey Bill!

>

> Thanks! I kinda figured that.I really do not know where I stand

with

> this yet.I am waiting for the VA to do some follow up testing,advising

> and treatment.The first tests seem to show no damage as of yet,and I

> believe I have had it since about 1974.I

feel

> like at my age,and where I am with Hep-C.It probably will not be

the

> cause of my demise.But,anyways.THANKS! The security office I work

at

> has a bathroom,and I do not need to have that problem.I appreciate

> this group. I will not be here all of the time.Probably,be the

first

> of the week before I can get back online.But,I look forward to

> catching up on the messages then...

>

> God Bless!

> Mike

>

> >

> > > Hi every one!

> > >

> > > I just joined moments ago.Just want to introduce myself.

> > >

> > > My name is Mike.I am 54 years ago.Separated for three

> > > years.But,have a wonderful girlfriend who supports me.Even though

> > > I have been recently diagnosed with Hep-C.I thank God for her.

> > >

> > > Even though I have really no visibaly symptoms of the disease

> > > right now.I probably have had it since 1974.The result from using

> > > a community IV needle while with the US Army in Germany. I had Hep

> > > back then.But,since then,I never was tested for Hep-C till

> > > recently.

> > >

> > > I really do not know about telling people I work with about it. I

> > > really have no idea how they will react.I have told the close

> > > family members and most of my friends.They are great about it.I

> > > was just wondering how you folks.Especially,those who have a job

> > > and coworkers have been accepted since revealing the disease.

> > >

> > > I am a christian.I love the Lord alot.

> > >

> > > I would really appreciate fellowshipping with those of you in this

> > > group.By e-mail,or even here.I am not on the computer alot.Just

> > > when I get here at my girlfriends.But,will respond as soon as I

> > > can.

> > >

> > > Thank you for allowing me to be a part,and I look forward to what

> > > this group has to offer.

> > >

> > > Mike

> > >

> > >

> > >

> >

> >

> >

> >

> > __________________________________

> > - PC Magazine Editors' Choice 2005 http://mail.

>

>

>

>

>

>

>

[Guest guest]

Hi Mike. Your decision ~ like for anyone else ~ is a very personal call. I think it depends on those who are close to you and your own comfort level. It would be great if everyone was aware and educated on the risks and affects of hcv but that's not the case. I hope one day we'll ALL be better informed. It's just such a constantly changing situation and everyone seems to respond somewhat differently. We all have to find our own way and you'll know what is best for you to do for YOU. I have shared my condition with very few people. I don't want to be treated any differently. And I don't want people speculating about my future. I have plenty of that going on in my head as it is! It's one step at a time and one person at a time for me. Finding my way w/ babysteps robin>> Hi every one!> > I just joined moments ago.Just want to introduce myself.> > My name is Mike.I am 54 years ago.Separated for three years.But,have > a wonderful girlfriend who supports me.Even though I have been > recently diagnosed with Hep-C.I thank God for her.> > Even though I have really no visibaly symptoms of the disease right > now.I probably have had it since 1974.The result from using a > community IV needle while with the US Army in Germany. I had Hep > back then.But,since then,I never was tested for Hep-C till recently.> > I really do not know about telling people I work with about it. I > really have no idea how they will react.I have told the close family > members and most of my friends.They are great about it.I was just > wondering how you folks.Especially,those who have a job and > coworkers have been accepted since revealing the disease.> > I am a christian.I love the Lord alot.> > I would really appreciate fellowshipping with those of you in this > group.By e-mail,or even here.I am not on the computer alot.Just when > I get here at my girlfriends.But,will respond as soon as I can.> > Thank you for allowing me to be a part,and I look forward to what > this group has to offer.> > Mike>

[Guest guest]

Thanks! Lynne.The good thing about it with me in regard to my place

of employment. I do not have health insurance there.Probably,never

will. The wages aren't anything to brag about,and the insurance is

hardly worth the premium.So,if it wasn't for the blessings of the

possible culprit (Army).I would not have never known at this time I

am infected.It was through a routine check up at the VA I was

diagnosed with Hep-C.When,I learned about the different situations

that suggest a test.I found I needed to get tested.So,that helps

alot that I am under VA treatment.Also,pertaining to my job. A good

thing there.We all carry rubber gloves should a bleeding incident

occur.Every one was trained for a bleeding situation.Thank you!

Lynne,for the output. By the way...Any one here from NC?

Mike

> >

> > Hey Bill!

> >

> > Thanks! I kinda figured that.I really do not know where I stand

> with

> > this yet.I am waiting for the VA to do some follow up

testing,advising

> > and treatment.The first tests seem to show no damage as of

yet,and I

> > believe I have had it since about 1974.I

> feel

> > like at my age,and where I am with Hep-C.It probably will not be

> the

> > cause of my demise.But,anyways.THANKS! The security office I work

> at

> > has a bathroom,and I do not need to have that problem.I

appreciate

> > this group. I will not be here all of the time.Probably,be the

> first

> > of the week before I can get back online.But,I look forward to

> > catching up on the messages then...

> >

> > God Bless!

> > Mike

> >

> > >

> > > > Hi every one!

> > > >

> > > > I just joined moments ago.Just want to introduce myself.

> > > >

> > > > My name is Mike.I am 54 years ago.Separated for three

> > > > years.But,have a wonderful girlfriend who supports me.Even

though

> > > > I have been recently diagnosed with Hep-C.I thank God for

her.

> > > >

> > > > Even though I have really no visibaly symptoms of the

disease

> > > > right now.I probably have had it since 1974.The result from

using

> > > > a community IV needle while with the US Army in Germany. I

had Hep

> > > > back then.But,since then,I never was tested for Hep-C till

> > > > recently.

> > > >

> > > > I really do not know about telling people I work with about

it. I

> > > > really have no idea how they will react.I have told the

close

> > > > family members and most of my friends.They are great about

it.I

> > > > was just wondering how you folks.Especially,those who have a

job

> > > > and coworkers have been accepted since revealing the disease.

> > > >

> > > > I am a christian.I love the Lord alot.

> > > >

> > > > I would really appreciate fellowshipping with those of you

in this

> > > > group.By e-mail,or even here.I am not on the computer

alot.Just

> > > > when I get here at my girlfriends.But,will respond as soon

as I

> > > > can.

> > > >

> > > > Thank you for allowing me to be a part,and I look forward to

what

> > > > this group has to offer.

> > > >

> > > > Mike

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >

> > > __________________________________

> > > - PC Magazine Editors' Choice 2005

http://mail.

> >

> >

> >

> >

> >

> >

> >