New Here!

[Guest guest]

, bifidobacteria in the bowel will control candida,

particularly in conjunction with the anti-candida diet.

A meat/veggies diet won't put weight on as fast as a

whey/meat/veggies/inulin diet. Whey is the protein of choice for body

building.

Duncan

>

> Duncan,

>

> If high bifodobacteria population is the goal (and that has been

done), then what do I do regarding this candida issue? The idea that

the lab mixed up the results is still stuck in the back of my mind

since I clearly have candida and yet there was no sign of it in the

test results. I did ask for a blood test for futher confirmation (in

my mind, not my ND's) and the results will be back in a few weeks.

At any rate, I would assume you would suggest that I take Inulin and

do the candida diet?

>

> The whey protein is simply out of the question. The BioTek lab

pretty much confirmed what I was thinking, that any sort of whey or

casein or dairy upsets my system, so I won't risk taking it. . .but,

yet still the notion of the meat/veggies diet is daunting. I'm

barely of BMI weight and enjoy exercising, so living off so little

food won't work for me. How much meat can a person eat?

>

> At any rate, I do not entirely have confidence in my ND. Some of

the comments she's made have been a bit questionable to me and I do

feel a bit more educated regarding Candida/Leaky Gut than her, but

mostly I choose to go to her for the allergy/food sensitivity

testing, but not much more since the costs add up at a frightening

rate. From what I've read, the most successful way of treating LGS

is by biofeedback - doing skilled relaxation 20 minutes 2X per day,

but I haven't had time to do that yet, so I'm taking things one step

at a time.

>

>

>

> Re: Fwd: New here!

>

> , you are wasting your money by releasing lactobacilli into

a

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[Guest guest]

Hi

You are most welcome here.

We are a great group of folks

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don in ks

From: kelslucky13 <kelslucky13@...>Subject: [ ] New here! Date: Friday, September 4, 2009, 1:53 AM

Hi Everyone!My Name is , I am Geno 1, have tried full TX four times.... horrendous side effects.... I have a weird auto immmune type of hepatitis, which causes me various infections...so for the last two years I have been doing weekly injections of just inteferon which seems to be helping keep my auto immune disease under control and all the infections away! This is good! The weekly injections sometimes challeging!I am also the founder of Hepcanada, and work as an advocate and activist doing all I can to help set up supports and services for those with Hepatitis and their caregivers! I am also the organizer of Canada's Annual World Hepatitis Day. If I can help in anyway just ask!I want to thank Gloria for sending some of you to check out my work and my site! Thanks to those of you who have emailed me with your support that really means alot! And Don thank you for inviting me over to

check out your group!here I am!with much care,www.hepccanada.com------------------------------------

[Guest guest]

Hey Bud - welcome! Are you still thinking of coming over before I need my meds next or am I coming to see you?Gloria

Hi Everyone!

My Name is , I am Geno 1, have tried full TX four times.... horrendous side effects.... I have a weird auto immmune type of hepatitis, which causes me various infections.. .so for the last two years I have been doing weekly injections of just inteferon which seems to be helping keep my auto immune disease under control and all the infections away! This is good! The weekly injections sometimes challeging!

I am also the founder of Hepcanada, and work as an advocate and activist doing all I can to help set up supports and services for those with Hepatitis and their caregivers! I am also the organizer of Canada's Annual World Hepatitis Day.

If I can help in anyway just ask!

I want to thank Gloria for sending some of you to check out my work and my site! Thanks to those of you who have emailed me with your support that really means alot!

And Don thank you for inviting me over to check out your group!

here I am!

with much care,

www.hepccanada. com

Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now!

[Guest guest]

Hi ! We're new on here too...our 8.5 month old is going for his DSI

appointment on Tuesday and he'll be getting a DOC band in a couple weeks. I

also feel very guilty. I feel bad that it happened and I didn't try harder to

prevent it, but I feel worse that we didn't address it until now. So it's a

good thing your guy is so little...hopefully his head shape will correct

quickly. I am optimistic about my son....it can only help at this point! I am

happy to found this support, as well!

Take care,

>

> Hi everyone!

>

> I'm so excited to have found this group. We just got referral from our

pediatrician to have our 4.5 month old son fitted for a helmet for positional

plagiocephaly. I'm going through some serious mommy guilt right now and some

support from people who have gone/are going through the same thing might help to

lift my spirits a bit!

>

> Hope to get to know you all soon

>

>

>

[Guest guest]

Just wanted to introduce myself!

I'm -- and my daughter is Sophia. She's *almost* 8 months.

Sophia was just recently diagnosed with Brachycephaly, and was evaluated at

Cranial Tech in Clinton, CT. She was found to have " moderate " brachycephaly

with some facial asymmetry. We are in the process of getting her into a DOC

Band. They estimate that she'll need it for approx 3 months. I found this

group on the Cranial Tech webpage, and am hoping to find some support and info!

We live in Danbury, CT -- any families near that area?

Thanks in advance for everything!

Val (and Sophia, too!)

[Guest guest]

,

I am so sorry that you have to join us but am glad that you found us. We have a

great group of people here with all sorts of knowledge and support. My daughter

just turned 17 yesterday and was diagnosed with Polyarticular JRA when she was

11. You will soon learn that all kids present different with JRA. There is no

" typical " JRA kid unless you just lump them together knowing they all are

different. We have kids with so many different types of JRA on this list. Any

questions you have, feel free to ask. Any frustrations you have, feel free to

vent. That is what we are here for. We cry together and we celebrate together.

For some kids, the ibuprophin actually works, but not most. That was our first

treatment also and after three months switched to celebrex and after a few

months switched to another and then another. I was one of the moms that just

did not want to give in to any of the injections for my daughter. Each of the

nsaids she was on would start to work for a bit and seem to help and then fail.

I am not sure if they were really helping or if we were just being positive.

She did seem to have the most help from mobic but not for too long. Now she is

on hydroxichloriquine, mobic, methotrexate, folic acid and enbrel as well as

prevacid for her tummy and Keppra for seizures. Many kids are on many meds and

many are on only one. I do not say this to scare you but to say, try to take it

easy and be ready to fight for your daughter at the same time. You said that

you had her on ibuprophin already and it did not work, was that a daily dose for

a while or just when she was struggling? We were told that it has to get in the

system and stay there before it will do the job. So maybe after two months of

regular daily doses it will help. If not then you will be ready for the next

step. Every time we try a new drug, I try to stay very positive and believe

that it is going to be her miracle drug. We have just added the enbrel 8 weeks

ago and will see the rheumy on February 7th, we will see what he says then. We

know that it has helped and if it is doing a good enough job we hope to wein her

offf of some of her other meds.

Stay strong and be patient with your husband, i will pray that he will see what

you see and come out of the denial stage. It is hard for a mom to see their

child hurt and not be able to make them better, for some daddys they just can

not admit that they can not do what needs to be done for their babies and so

denial is easier then admiting defeat.

Veri & Jaye 17 poly

New Here!

Hi! I just joined and wanted to introduce myself. My name is and I am the

mother to five beautiful little girls (ages 9, 8, 6, 5, and 3). My youngest

daughter, Ella, was diagnosed with JRA last Friday (1/21) after 7 months of off

and on joint pain (unfortunately, more on than off lately...). Right now she is

having a lot of trouble with her right knee. They have her on 150 mgs of

ibuprofen 3 times a day and she sees her doctor on 2/23 to see how she's doing.

If that doesn't help (which honestly, I don't see how it will...we've been

giving her ibuprofen when she's had pain for the past 7 months...which is a lot

of the time, and it hasn't helped) then they will try her on something else.

After 2 months (so mid-end of March) she is still having trouble with her knee

(or if another joint starts bothering her) they want to do steroid injections.

I've been reading everything I can find on JRA for the past few months and I am

kinda overwhelmed. It sucks wonde ring if your child will be able to walk when

she wakes up every morning. It sucks that being in pain is now normal to her.

I'm sure you guys know the feeling. I had never even heard of JRA until it was

mentioned as a possible diagnosis months ago. We've only been dealing with this

for a few months and I'm already frustrated and the lack of understanding from

the majority of people. They seem to think its no big deal and have even accused

me of faking it because Ella seemed fine when they see her. I think my husband

is still in denial (I mean he knows something is going on with her, but I think

he's hoping she's just going to wake up one morning and its all going to be a

think of the past). I am just not getting much support in real life.

[Guest guest]

Hi ,

Sorry you are not getting the support you need in other places. This is a great

place to talk to people who understand and are going through the same thing, all

at different stages.

My daughter Rose had a steroid shot. At first, I thought that's all she needed,

but they turned out to not be the " cure " , but they did help quite a bit at the

time.

Jo

Welcome. Jo

>

>

> ,

>

> I am so sorry that you have to join us but am glad that you found us. We have

a great group of people here with all sorts of knowledge and support. My

daughter just turned 17 yesterday and was diagnosed with Polyarticular JRA when

she was 11. You will soon learn that all kids present different with JRA. There

is no " typical " JRA kid unless you just lump them together knowing they all are

different. We have kids with so many different types of JRA on this list. Any

questions you have, feel free to ask. Any frustrations you have, feel free to

vent. That is what we are here for. We cry together and we celebrate together.

For some kids, the ibuprophin actually works, but not most. That was our first

treatment also and after three months switched to celebrex and after a few

months switched to another and then another. I was one of the moms that just

did not want to give in to any of the injections for my daughter. Each of the

nsaids she was on would start to work for a bit and seem to help and then fail.

I am not sure if they were really helping or if we were just being positive.

She did seem to have the most help from mobic but not for too long. Now she is

on hydroxichloriquine, mobic, methotrexate, folic acid and enbrel as well as

prevacid for her tummy and Keppra for seizures. Many kids are on many meds and

many are on only one. I do not say this to scare you but to say, try to take it

easy and be ready to fight for your daughter at the same time. You said that

you had her on ibuprophin already and it did not work, was that a daily dose for

a while or just when she was struggling? We were told that it has to get in the

system and stay there before it will do the job. So maybe after two months of

regular daily doses it will help. If not then you will be ready for the next

step. Every time we try a new drug, I try to stay very positive and believe

that it is going to be her miracle drug. We have just added the enbrel 8 weeks

ago and will see the rheumy on February 7th, we will see what he says then. We

know that it has helped and if it is doing a good enough job we hope to wein her

offf of some of her other meds.

>

> Stay strong and be patient with your husband, i will pray that he will see

what you see and come out of the denial stage. It is hard for a mom to see

their child hurt and not be able to make them better, for some daddys they just

can not admit that they can not do what needs to be done for their babies and so

denial is easier then admiting defeat.

>

> Veri & Jaye 17 poly

>

>

>

>

>

>

> New Here!

>

>

>

>

> Hi! I just joined and wanted to introduce myself. My name is and I am

the mother to five beautiful little girls (ages 9, 8, 6, 5, and 3). My youngest

daughter, Ella, was diagnosed with JRA last Friday (1/21) after 7 months of off

and on joint pain (unfortunately, more on than off lately...). Right now she is

having a lot of trouble with her right knee. They have her on 150 mgs of

ibuprofen 3 times a day and she sees her doctor on 2/23 to see how she's doing.

If that doesn't help (which honestly, I don't see how it will...we've been

giving her ibuprofen when she's had pain for the past 7 months...which is a lot

of the time, and it hasn't helped) then they will try her on something else.

After 2 months (so mid-end of March) she is still having trouble with her knee

(or if another joint starts bothering her) they want to do steroid injections.

I've been reading everything I can find on JRA for the past few months and I am

kinda overwhelmed. It sucks wonde ring if your child will be able to walk when

she wakes up every morning. It sucks that being in pain is now normal to her.

I'm sure you guys know the feeling. I had never even heard of JRA until it was

mentioned as a possible diagnosis months ago. We've only been dealing with this

for a few months and I'm already frustrated and the lack of understanding from

the majority of people. They seem to think its no big deal and have even accused

me of faking it because Ella seemed fine when they see her. I think my husband

is still in denial (I mean he knows something is going on with her, but I think

he's hoping she's just going to wake up one morning and its all going to be a

think of the past). I am just not getting much support in real life.

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Welcome to you ! So sorry you are here but you will find support here.

My little guy was diagnosed two years ago in March....and it was so

overwhelming. Our rheumy started out with mentioning either Humira or Enbrel for

....so we knew from the get go he was destined for a biologic.

He has an issue with a swollen knee but our rheumy went from naproxen to

injectible MTX to Enbrel (all three at the same time) rather quickly. We never

did steroid injections because once we introduced the Enbrel his JIA went into

hiding. We have never had to do steroid injections but many here have.

has has no signs of active disease since November of 2009 and is currently

being weaned very slowly from the MTX and has been off the naproxen for over a

year. We are hoping he will get to a medicated remission with being only on

Enbrel.

It was very hard for me when he was first diagnosed...especially because he has

some other 'issues'. It is very hard some days having a chronically ill

child...some days I am so angry that it had to be my poor baby who had to be one

of the kids stuck living with this awful disease.

Most days now, however, I am so thankful for the drugs and therapy (he goes for

occupational therapy to help with writing and fine motor skills due to his

shoulders and elbows being impacted). My little guy is finally getting to enjoy

being a little boy. Last week I watched him running (no longer like an old man)

and playing with the kids in aftercare and felt so darned blessed and happy for

him. We have learned to appreciate the little things.

All the best to you...come here for support and to vent anytime!!

& , 7, poly, plus a bunch of other 'stuff'

Sent from my iPhone