Nashville/lin helmet wearers

May 11, 2010

I'm new to this group. My son has mild tort, mild hypotonia, and has

(moderate??) plagio on his back right side. All along, our Ped and PT

discouraged us from getting a helmet, saying once he gets more mobile, it will

start to self-correct.

He's 1 year old now (9months adjusted as he was a preemie twin born 3 months

early --and weighing 2 lb 3 oz) and he is still quite delayed in his motor

skills, so he's not demonstrating the type of mobility that our medical

professionals were advising would help round out the flat area --hence, they are

now for the helmet, albiet very, very late in the game.

I'm trying to move quickly now. We've gotten our cat scan at Vandy and will be

seeing Dr. at Vandy around the first of June. I know he sends everyone to

Restorative Health for the casting and actual helmet, but I've learned that we

also have a Hanger orthotist in town. (I've also learned, unfortunately that we

don't have DocBands or StarBands near our city.)

Would any of you kind folks in Nashville/lin area be willing to share some

information with me --such as:

-who you went to

-did you have problems with any of these providers

-how old was your child when the helmet was put on and how long will it stay on

-does the helmet bother your child in terms of rashes, sleep issues, and does it

interfere with or actually help your child with their developmental milestones.

-did you have problems with the helmet being properly molded and/or fitted and

were you able to get it corrected easily and to your satisfaction

-did you get a cat scan or have to see a pediatric neurologist

I know this is lots of questions, so whatever you can see to sharing would most

helpful.

Thanks so much

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