Looking for information

January 20, 2009

Ruth,I think we could be going down this road with my 3.5 year old, Owen. He's been diagnosed on the spectrum with hyperlexia. BUT, he doesn't just read...he comprehends. He also grasps math concepts (like negative numbers!) easily and just astounds us at every turn. But, he's in a special ed. class, and I fear that the schools will have a difficult time dealing with his duality...obviously on the spectrum and needs special help in certain areas, but also obviously gifted.Mina -------------------------------Mina SmolinskiMommy to: 9/25/02 - NT 5/13/04 - PDD-NOSOwen 7/1/05 - PDD-NOS/HyperlexiaLila 3/3/07 - NT On Jan 20, 2009, at 6:02 PM, r_woman2 wrote:. Other people get the special ed servicesat a young age, but then everybody wants to ignore the giftedness. Itis very hard to get both aspects of your child considered--so betterto start as early as possible!

January 20, 2009

Thank you Ruth!

I think I will have to go to a pediatric neurodevelopmental

specialist. The guessing like you said isn't doing anyone any good.

I am going out of my mind and at the same time so hard to accept

anything could be " wrong " with your child. It breaks my heart and I

already start thinking: " what if he doesn't have any friends, what if

he is beat up, what if he gets picked on " I've been crying all day

today thinking the school is right and having to maybe accept this

but I need help accepting it and knowing that by accepting it I can

help him. Thank you so much for your input, you don't know how good

it feels because I feel I don't have anyone to talk to about this.

I'm thinking of seeking a support group here in Colorado just for my

own sanity.

I'm sure I will be posting quite a bit here just because you all seem

so knowlegeable on this subject and when I start trying to research,

my brain gets dizzy reading all these things. I also feel personal

knowledge and everyday having to deal with it is better information

anyway.

Thanks again

>

> > . Other people get the special ed services

> > at a young age, but then everybody wants to ignore the

giftedness. It

> > is very hard to get both aspects of your child considered--so

better

> > to start as early as possible!

>

January 21, 2009

When I got my son into behavioral therapy with a psychologist one-on-one, she insisted that we (me and her alone) spend the last 25 minutes just talking about parenting and how I feel about everything. It was the best thing EVER! I was so tunnel-vision-focused on what was wrong with my son that I would oftentimes (who am I kidding? Nearly all of the time!) completely ignore what I needed myself. I really think the time with her was a godsend to me b/c I had someone who would listen unbiased and offer constructive feedback/advice. She also helped me stop taking the blame for everything that was wrong in my life and instead see what I was capable of doing to make things better. If you can, I highly recommend having support like this. It was a great investment!

"Over-optimism is waiting for you ship to come in when you haven't sent one out."

From: Conlon <conmom_1@...> Sent: Tuesday, January 20, 2009 11:29:17 PMSubject: ( ) Re: looking for information

Thank you Ruth!I think I will have to go to a pediatric neurodevelopmental specialist. The guessing like you said isn't doing anyone any good. I am going out of my mind and at the same time so hard to accept anything could be "wrong" with your child. It breaks my heart and I already start thinking: "what if he doesn't have any friends, what if he is beat up, what if he gets picked on" I've been crying all day today thinking the school is right and having to maybe accept this but I need help accepting it and knowing that by accepting it I can help him. Thank you so much for your input, you don't know how good it feels because I feel I don't have anyone to talk to about this. I'm thinking of seeking a support group here in Colorado just for my own sanity. I'm sure I will be posting quite a bit here just because you all seem so knowlegeable on this subject and when I start trying to

research, my brain gets dizzy reading all these things. I also feel personal knowledge and everyday having to deal with it is better information anyway.Thanks again> > > . Other people get the special ed services> > at a young age, but then everybody wants to ignore the giftedness. It> > is very hard to get both aspects of your child considered-- so better> > to start as early as possible! >

January 21, 2009

Thank you

We actually went to see a behavioral therapist/family therapist with

specialty in special needs kids and she is a music therapist. She

seems like a good fit for our son. I know I also have to talk with

her myself and I was able to talk to a woman at work actually who has

a 10 y/o Aspie son, we had lunch today and we just started talking

about our boys. I was able to cry and tell her my frustrations, it

was a great outlet. We agreed to have more lunches together. She

made me feel good too, telling me that my son sounds wonderful since

she has LOTS of problems with her son. I guess it doesn't help

having pity on yourself when someone else may have a worse

situation!!

Lesson learned.

> >

> > > . Other people get the special ed services

> > > at a young age, but then everybody wants to ignore the

> giftedness. It

> > > is very hard to get both aspects of your child considered-- so

> better

> > > to start as early as possible!

> >

>

June 5, 2009

,

I would do all of the first listed choices, with the exception of the hospital

stay. That would NOT be helpful to you and could in fact make it worse. You

certainly should do PT and water therapy classes, they can be extremely helpful,

along with injections . Getting strong will decrease your pain, without a doubt.

But is has to be done in a controlled environment and with supervision or you

could easily hurt yourself. try to find a physical therapist who has a Master's

Degree.

No surgeon who is worth his salt will operate on anyone who hasn't gone through

the non-invasive route at least once. Surgery is and always should be the LAST

resort. It is NOT a cure all. Most people have lasting symptoms after surgery

that are often due to the surgery itself.

Good Luck to you,

in RI

(spine surgical nurse and 6 time spine surgery recipient)

From: daniel <cdnlager2001@...>

Subject: Looking for Information

spinal problems

Date: Friday, June 5, 2009, 2:36 PM

Hello all, I have posted on here a couple of times, and want to thank the people

that have shared their suggestions and thoughts with me. Basically, I have

spondylotheisis( slipped Vertbra) L5/S1, The pain in my leg started in Feb of

this year, it has progressed, my right foot is numb and I have shooting pain in

my foot. This past week I have started getting lower back pain, (never had this

before), walking is becoming very difficult, pain has now moved up to the back

of my knee and back of my thigh (feels like hamstring pull), also the pain in my

foot increases more.

So, I have two options offered to me by two different doctors. (A). Injection

Therapy, 10 day hospital stay, water therapy, physical therapy and heat therapy.

I am told that it will strengthen my back muscles which will take away the pain

etc I am.

(. Surgery, placing a cage into my spinal chord, no removal of bone from the

hip.

So, if anyone has anything to share, suggestions, stories, experience, please do

not hesitate to share.

I hope this finds everyone healing as best they can be for their circumstance.

June 6, 2009

I totally agree.

From: daniel <cdnlager2001>

Subject: Looking for Information

spinedisorderssuppo rtgroup@gro ups.com

Date: Friday, June 5, 2009, 2:36 PM

Hello all, I have posted on here a couple of times, and want to thank the people

that have shared their suggestions and thoughts with me. Basically, I have

spondylotheisis( slipped Vertbra) L5/S1, The pain in my leg started in Feb of

this year, it has progressed, my right foot is numb and I have shooting pain in

my foot. This past week I have started getting lower back pain, (never had this

before), walking is becoming very difficult, pain has now moved up to the back

of my knee and back of my thigh (feels like hamstring pull), also the pain in my

foot increases more.

So, I have two options offered to me by two different doctors. (A). Injection

Therapy, 10 day hospital stay, water therapy, physical therapy and heat therapy.

I am told that it will strengthen my back muscles which will take away the pain

etc I am.

(. Surgery, placing a cage into my spinal chord, no removal of bone from the

hip.

So, if anyone has anything to share, suggestions, stories, experience, please do

not hesitate to share.

I hope this finds everyone healing as best they can be for their circumstance.

June 6, 2009

,

How are you doing? Have you decided to accept the job offer? Is the

decision still plaguing you?

My aging body is recovering amazingly well from posterior cervical

decompression with fusion c2-T2. It's been four weeks. Some days are

good, some are not, and I have no energy. Hate being on pain meds but

when I went off them for a couple of days last week, my body protested.

Hope you're well, body and soul,

in DC

On Jun 5, 2009, at 4:55 PM, Babbitt wrote:

,

I would do all of the first listed choices, with the exception of the

hospital stay. That would NOT be helpful to you and could in fact make

it worse. You certainly should do PT and water therapy classes, they

can be extremely helpful, along with injections . Getting strong will

decrease your pain, without a doubt. But is has to be done in a

controlled environment and with supervision or you could easily hurt

yourself. try to find a physical therapist who has a Master's Degree.

No surgeon who is worth his salt will operate on anyone who hasn't

gone through the non-invasive route at least once. Surgery is and

always should be the LAST resort. It is NOT a cure all. Most people

have lasting symptoms after surgery that are often due to the surgery

itself.

Good Luck to you,

in RI

(spine surgical nurse and 6 time spine surgery recipient)

From: daniel <cdnlager2001@...>

Subject: Looking for Information

spinal problems

Date: Friday, June 5, 2009, 2:36 PM

Hello all, I have posted on here a couple of times, and want to thank

the people that have shared their suggestions and thoughts with me.

Basically, I have spondylotheisis( slipped Vertbra) L5/S1, The pain in

my leg started in Feb of this year, it has progressed, my right foot

is numb and I have shooting pain in my foot. This past week I have

started getting lower back pain, (never had this before), walking is

becoming very difficult, pain has now moved up to the back of my knee

and back of my thigh (feels like hamstring pull), also the pain in my

foot increases more.

So, I have two options offered to me by two different doctors. (A).

Injection Therapy, 10 day hospital stay, water therapy, physical

therapy and heat therapy. I am told that it will strengthen my back

muscles which will take away the pain etc I am.

(. Surgery, placing a cage into my spinal chord, no removal of bone

from the hip.

So, if anyone has anything to share, suggestions, stories, experience,

please do not hesitate to share.

I hope this finds everyone healing as best they can be for their

circumstance.

June 6, 2009

Hi ,

Yes, I did choose to accept the job offer, if/when it comes to me. i went for a

pre-interview and the Chief ME is interested in having me join the team. The

hold up is waiting for the state to post the position, as it has to be a fair

and equal opportunity position.

I am not plagued by the decision anymore. I take comfort in the fact that I can

move laterlly or vertically with other positions within the state if I can't

handle it. But with the increased strength I've gotten from PT and regular

aexercize...I feel like I can conquer the world!!! I have NO PAIN whatsoever on

9.5 out of ten days!!!!!!!!!!!!!!!!!!!!!!!!!! I take the Ultram ER 300mg in the

morning, and withthat and exercize...I AM PAIN FREE!!!!!!!!!

It's a miracle. This is why i stress so much the importance of finding a highly

trained PT with a masters degree and working your butt off to get fit. If you do

it with properly trained

supervision...it will do amazing things. Even for me, after six surgeries and

16 years of this!!! I have never seen a PT with a Masters Degree before. I have

done several PT rounds all with different people with little to no luck, but I

also never gave it my all like I am now. This PT is different than those I had

before, and I am working harder at it than I ever have...and it's paid off! I

want this for all of you here! I want you all to experience even HALF of the

relief I've experienced with getting stronger. It has changed my life!!!

Thanks for asking about me...it makes me feel good! I hope you are doing well...