Plagio in Europe

[Guest guest]

Hi everyone,

My son Leonardo is 6 months old. I am from Brazil but we are living in Italy

(so please apologize for my English).

Two months ago he was diagnosticated with strabismus infantile (congenital).

Since then he was seemed by a bunch of doctors (each one told us different

things) and for the last 20 days he is wearing eyeglasses.

During an eye doctor appointment 3 different persons (the orthotic, the nurse

and the doctor) asked if Leonardo's flat head had been checked by an

specialist. That was like a punch on my stomach. I was so concern by the

strabismus that I didn't realized that Leonardo's head was very flat on the

right back side and the ears was very misalign.

Only 5 days later I got an appointment with a ped-neurosurgeon, who told us that

Leonardo has moderate-severe positional plagiocephalia. I still don't know if he

has torticollis as well (we are waiting an appointment the orthopedic

pediatrician). The doctor prescribed the orthopedic helmet that will be ready in

aprox 10 days.

Here in Italy nobody knows about plagio. I had to travel to Bologna (2 hours far

from Milan, where I live) in order to find a doctor that has some experience on

this issue. The pediatrician told us that this is normal and that we just had to

wait until his hair grow over!

Everyone that hears about the helmet thinks that I am neurotic and cruel with my

kid… In this context, can you imagine a baby with glasses and helmet! I'm afraid

someone will call social services (kidding, but no so much)

I've been a foreigner for 8 years but I never felt that alone in my life.

Anyway, it really helps to read about your journeys here in this group.

Based in your experience, is it too late to initiate the treatment (the helmet

will be used from 6,5 months old)? Do the ears go to the proper position?

Does anyone live outside the USA?

Greetings to everyone

Simone.