Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Darn it - that sent before it was supposed to! I was going to go on to say this: I am trying to be peaceful with the asymmetry I can see now. But it is upsetting. It is not " in your face " - again - it's only visible from certain angles, in some photos (not all - in some photos you can't really tell at all), and in the mirror. Sometimes it jumps out at me and looks REALLY obvious - sometimes I look at him and almost can't see it. I try to tell myself - so what? So what, his eyes aren't perfectly symmetrical - they're a little off. Maybe it will get better. (Of course my fear is it will get worse - there is no way to know as his facial bones grow and develop.) I am angry about his plagiocephaly - a condition that I feel was preventable IF I'D HAD THE RIGHT INFORMATION. I am also unimpressed with his orthotist - 2mm correction in 15 weeks? He grew more than that during that time, a lot more. So why the minimal correction? I question if his helmet ever really fit correctly (and we took him out of it because one of the sideburns was pressing into his face.) No one at the time suggested a second helmet (starband) was necessary, and so I never pursued it (and was in fact advised not to by his specialist.) I know I've done the best I can. I have investigated some alternative therapies locally - but so far have been unimpressed (with the local providers, a general lack of knowledge, etc.) I think that where we are - is where we are. And I'm not sure how to come to terms with it. And move on. And stop looking - LOOKING at my son's face, his eyes, his forehead. At some point, he'll notice, and wonder why and what I'm looking at. And I don't want to do that to him, ever - maybe it will never bother him. So I don't want to plant a poison seed. I just feel RESPONSIBLE - and like I failed him. And I feel like others failed him too. And HE has to live with our failings - because it's had a physical effect - on his face. And it's painful. Thanks for reading. Quote Link to comment Share on other sites More sharing options...
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