NEW TO GROUP: Desperate for advice! Feeling so helpless!

[Guest guest]

Hi all:

I recently joined this forum and as my 6 month old, Raphael, has severe

brachycephaly with mild plagio (I figured it must be quite severe with a

Cephalic index of 99.25% on one side and 97% on the other side). I am located

in Montreal, Quebec in Canada. I have read most of the messages on the forum

and would like to obtain your advice.

We just got our helmet yesterday. It was made at the clinic in Montreal, but

once I saw it, it really look like a Hanger band, so I figure they must get the

helmets from them.

I was not pleased with our visit. The orthosist was 1.15 hr. late. Did not

provide any reason or did not apologize. Here are my concerns:

-the helmet has a piece of strip of material between the opening (scratch side);

-there was a huge gap behind the right ear, so I insisted to have it

symmetrical. They added a piece of material also.

-when I place the helmet in front of me, i notice that the back of the neck/nape

area is not centered. I would not want this to deform my son's neck.

When I look at the helmet, it just looks like it was " patched up " to correct

misconception in the first place.

I have also heard that brachy is almost impossible to correct with a passive

device. The problem is that I don't know if our helmet is active or passive. I

will post pictures on the forum for you to see and would highly appreciate any

advice. Look for plagio baby R under Raphael.

I am so sad my son cannot get the DOC band as it is not available in Canada and

would have me flying to Connecticut or Chicago for every appointment.

I don't know what to do. Should I look for another clinic or should I take my

helmet elsewhere to get a second advice.

Thanks for your input.