Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 First - my best to you and congrats on finding this helpful website! I didn't catch how old your daughter was? But, we had the same issue - symptoms diagnosed at 2 months old and started pediatric physical therapy around 4 months. My only regret is that we did not start physical therapy earlier and our pediatrician was agressive. SO - I agree - why wait - unless it's a case of insurance requirements that you tried positining first. Our PT suggested no equiptment - swings, bouncy seat, car seat only limited to travel time. When in car seat - the wrapped towel is helpful for the tilt. Regarding tummy time - our daughter hated it as well. Our PT used a large gym ball - you know the ones for crunches. etc. We would place our daughter on the ball and roll back and forth for strenghening exercises. She liked this approach the best and she could see our faces rather than the floor! Of course, be careful and hold on tight! The physical therapy was wonderful and we actually enjoyed all the time we spent on the floor and exercising with our daughter! It made a big improvement in her strength and lifting head so she could eventually sleep on her tummy. Ultimately - we did not see much improvement in the flatness on the right side of her head - and this is perhaps due to when we started physical therapy...hard to know for sure. But we did have to fit our daughter with a starband helmet and that's been going well too. Hang in there! You're a great Mom and reach out to the group with any questions! Kind Regards, Byrdie's Mom > > Hi there. My daughter went to her one month appt. a few days ago and the dr diagnosed her with torticollis and plagiocephaly. Her flat spot is on the back right side of her head. I'm kind of more than overwhelmed right now and feeling guilty that I didn't do more to make her not have this spot. I honestlly didn't really know to keep moving her head around at night etc. We have some exercises that the dr. gaves us to do and she just HATES them. SCREAMS soooo loud when we do them and I in turn cry with her. I know it's for the best though but this is just really hard! > > Annnyway, on to my questions if you have a few minutes. Thanks in advance for answering: > > 1.) How can I help my daughter at night? Since we've known about this I have been turning her head after she falls asleep but then when I check on her five minutes later she has it turned to the side with the flat spot again! Any good advice? Does anyone here use a sleep positioner to try to get your child to stay on their side a little bit more so that they can't turn their head to the side with the flat spot? > > 2.) During the day what can I do for her? When we have been in the car seat I have been rolling up towels so that she can't turn to the right side. Same thing during the limited time that she's in her bouncer... Anything else I should be doing? > > 3.) I'm trying to give her a TON of tummy time as dr. said that would help. As luck would have it, she hates it of course. And hour a day is hard to get to for sure! I'm going out later today to buy one of the boppy tummy time mats to see if that helps...Maybe its' pillow propping her up will help a little bit? > > 4.) Is some back " play time " still okay??? She is supposed to be practicing turning to the left side so (as bad as it sounds) she LOVES watching tv. We've been letting her watch for 20 mins at a time or so as long as she's turned towards the left. Is this helping at all or is it just wishful thinking on our part that this could be helping her? I figure if she's turned to that side then it's good right??? > > 5.) Awaiting a call back from the dr. When we were at the appt last week she mentioned waiting another month and then re-evaluating whether or not my daughter needs physical therapy for everything. In my mind, WHY WAIT??? Would you agree that this is probably a better idea to move forward than to wait and have things possibly get worse? > > ***THANKS SO MUCH IF YOU READ THIS FAR!!*** I'm glad to have found a board with some women that will hopefully know how I'm feeling right now... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Hi! I don't have too many answers for you, but I just wanted to let you know that my son screamed when I started doing the stretches, but now he hardly cares. I always put a toy in his line of vision, sing, or give him kisses to make it fun. That has helped a lot. Good luck! > > Hi there. My daughter went to her one month appt. a few days ago and the dr diagnosed her with torticollis and plagiocephaly. Her flat spot is on the back right side of her head. I'm kind of more than overwhelmed right now and feeling guilty that I didn't do more to make her not have this spot. I honestlly didn't really know to keep moving her head around at night etc. We have some exercises that the dr. gaves us to do and she just HATES them. SCREAMS soooo loud when we do them and I in turn cry with her. I know it's for the best though but this is just really hard! > > Annnyway, on to my questions if you have a few minutes. Thanks in advance for answering: > > 1.) How can I help my daughter at night? Since we've known about this I have been turning her head after she falls asleep but then when I check on her five minutes later she has it turned to the side with the flat spot again! Any good advice? Does anyone here use a sleep positioner to try to get your child to stay on their side a little bit more so that they can't turn their head to the side with the flat spot? > > 2.) During the day what can I do for her? When we have been in the car seat I have been rolling up towels so that she can't turn to the right side. Same thing during the limited time that she's in her bouncer... Anything else I should be doing? > > 3.) I'm trying to give her a TON of tummy time as dr. said that would help. As luck would have it, she hates it of course. And hour a day is hard to get to for sure! I'm going out later today to buy one of the boppy tummy time mats to see if that helps...Maybe its' pillow propping her up will help a little bit? > > 4.) Is some back " play time " still okay??? She is supposed to be practicing turning to the left side so (as bad as it sounds) she LOVES watching tv. We've been letting her watch for 20 mins at a time or so as long as she's turned towards the left. Is this helping at all or is it just wishful thinking on our part that this could be helping her? I figure if she's turned to that side then it's good right??? > > 5.) Awaiting a call back from the dr. When we were at the appt last week she mentioned waiting another month and then re-evaluating whether or not my daughter needs physical therapy for everything. In my mind, WHY WAIT??? Would you agree that this is probably a better idea to move forward than to wait and have things possibly get worse? > > ***THANKS SO MUCH IF YOU READ THIS FAR!!*** I'm glad to have found a board with some women that will hopefully know how I'm feeling right now... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Hi, I just pretty much want to agree with the moms who said ' get PT ASAP'. A good PT will find a way to do the stretches so that your baby can tolerate them. I bet it is overwhelming to do the stretches with a one month old. My son was 3 months when we started and I was so afraid that I was hurting him. Our PT showed me different ways I could implement the stretches. I also performed them on my child in front of her mutiple times. That gave me confidence at home. No, my child never fell in love with the therapy, but at least I knew I was doing the right thing:) Tatiana > > Hi there. My daughter went to her one month appt. a few days ago and the dr diagnosed her with torticollis and plagiocephaly. Her flat spot is on the back right side of her head. I'm kind of more than overwhelmed right now and feeling guilty that I didn't do more to make her not have this spot. I honestlly didn't really know to keep moving her head around at night etc. We have some exercises that the dr. gaves us to do and she just HATES them. SCREAMS soooo loud when we do them and I in turn cry with her. I know it's for the best though but this is just really hard! > > Annnyway, on to my questions if you have a few minutes. Thanks in advance for answering: > > 1.) How can I help my daughter at night? Since we've known about this I have been turning her head after she falls asleep but then when I check on her five minutes later she has it turned to the side with the flat spot again! Any good advice? Does anyone here use a sleep positioner to try to get your child to stay on their side a little bit more so that they can't turn their head to the side with the flat spot? > > 2.) During the day what can I do for her? When we have been in the car seat I have been rolling up towels so that she can't turn to the right side. Same thing during the limited time that she's in her bouncer... Anything else I should be doing? > > 3.) I'm trying to give her a TON of tummy time as dr. said that would help. As luck would have it, she hates it of course. And hour a day is hard to get to for sure! I'm going out later today to buy one of the boppy tummy time mats to see if that helps...Maybe its' pillow propping her up will help a little bit? > > 4.) Is some back " play time " still okay??? She is supposed to be practicing turning to the left side so (as bad as it sounds) she LOVES watching tv. We've been letting her watch for 20 mins at a time or so as long as she's turned towards the left. Is this helping at all or is it just wishful thinking on our part that this could be helping her? I figure if she's turned to that side then it's good right??? > > 5.) Awaiting a call back from the dr. When we were at the appt last week she mentioned waiting another month and then re-evaluating whether or not my daughter needs physical therapy for everything. In my mind, WHY WAIT??? Would you agree that this is probably a better idea to move forward than to wait and have things possibly get worse? > > ***THANKS SO MUCH IF YOU READ THIS FAR!!*** I'm glad to have found a board with some women that will hopefully know how I'm feeling right now... > Quote Link to comment Share on other sites More sharing options...
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