Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Hello everyone - We're new to the list. My son currently has his StarBand ordered and will hopefully get it next week. He was diagnosed with plagiocephaly and tort at 3 months of age and we did physical therapy for a long time. Through physical and positional therapy, we saw a 5 mm change with his plagio and got rid of the tort entirely, but he's still at a 9 mm difference and therapy won't help us any more. Does anyone have any positive stories to share about the helmets helping older babies (he'll be over 10 months before he starts) and also about tips on sending in an appeal to our insurance? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Welcome to the group! My son started treatment at 9 months and 11mm (calipers) or 12mm (scan) asymmetry. He wore his DOC band for a little over 3 months and exited at 4mm. He had torticollis that was never severe, but is still an ongoing issue at 17 months old. It's great that you started PT early and got the torticollis under control. This will positively impact how much improvement you get with banding. Everyone is different, and the amount of correction depends on how much your baby's head grows and how consistent you are with using the band 23 hours a day. However, I'm sure you'll see some good correction even starting at 10 months. BTW, don't stress if your baby is upset by the band the first few days. Most get used to it quickly and do just fine, and some - like my son - never get upset about it at all. Do expect him to sweat a lot, especially the first few days until his body adjusts. Just wipe the sweat out with a dry towel every few hours, and dress him lightly. And, be good about cleaning the band with rubbing alcohol and shampooing his hair. Make sure his hair and the band are dry before putting it back on. Good luck! > > Hello everyone - > > We're new to the list. My son currently has his StarBand ordered and will hopefully get it next week. He was diagnosed with plagiocephaly and tort at 3 months of age and we did physical therapy for a long time. Through physical and positional therapy, we saw a 5 mm change with his plagio and got rid of the tort entirely, but he's still at a 9 mm difference and therapy won't help us any more. Does anyone have any positive stories to share about the helmets helping older babies (he'll be over 10 months before he starts) and also about tips on sending in an appeal to our insurance? > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Welcome to the group. My daughter finished her band at 10 months, but I went for a follow up at 14 months and her head had still grown quite a bit. A lot of parents start around 12 months, I wouldn't consider your baby older. I think you'll see good progress. 9 mm isn't that much, and you're lucky you've already gotten a lot of correction. -christine sydney, 5 yrs, starband grad > > Hello everyone - > > We're new to the list. My son currently has his StarBand ordered and will hopefully get it next week. He was diagnosed with plagiocephaly and tort at 3 months of age and we did physical therapy for a long time. Through physical and positional therapy, we saw a 5 mm change with his plagio and got rid of the tort entirely, but he's still at a 9 mm difference and therapy won't help us any more. Does anyone have any positive stories to share about the helmets helping older babies (he'll be over 10 months before he starts) and also about tips on sending in an appeal to our insurance? > > Thanks! > Quote Link to comment Share on other sites More sharing options...
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