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I never had a weight problem, either, until I began taking Prednisone. LIke you, I weighed under 90 pounds in my early 20s, at 5'6". Once I began Prednisone, I was hungry every minute. I'm now on a low maintenance dose of Prednisone. I do not overeat, and I'm puzzled that I don't lose the weight I gained at a high dose.

A few weeks ago I began taking Percoset for pain. Oddly, the desire to eat vanished. I have to remind myself to eat. (I've been up since 5 AM, it's 10 AM now, and I simply forgot to have breatkfast. I'm not at all hungry.) I enjoy food very much when I sit down to a meal, but I have no particular wish to eat otherwise.

Now, Percoset is a drug for pain. It is NOT something to take unless you absolutely must, for pain. I will drop it the moment pain allows. One should NEVER take it except when absolutely necessary for the prescribed use. However, I'm curious about this unexpected side effect, looking for clues to appetite that I can use after I stop taking it (which I hope will be soon.)

Harper

In a message dated 1/20/2004 7:38:57 AM Pacific Standard Time, shersom@... writes:

I KNOW why we gain weight. This is from someone who never, ever had a weight problem in 54 years, and since being diagnosed 1-1/2 years ago, I am struggling with trying NOT to gain weight.

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Excuse "reply to all" to the group, but maybe everybody would like to hear responses?

There have been two changes to my diet since being diagnosed with CD. One change is that I am now eating some chicken/turkey and a little bit of beef. The second change is that I am eating a lot of carbohydrates - it seems to be the only thing that satisfies my appetite: bread, muffins, cookies, etc. I think I have read that the calories from carbohydrates are harder to burn off (hence, the Atkins diet). I don't know the medical reason why the calories from carbohydrates are harder to burn off, but if anyone knows, I would like to be informed.

Thanks!

Hersom Litigation Secretary Pillsbury Winthrop LLP 2475 Hanover Street Palo Alto, CA 94304 (650) 233-4783 shersom@...

-----Original Message-----From: flatcat9@... [mailto:flatcat9@...] Sent: Tuesday, January 20, 2004 10:08 AM Subject: Re: [ ] Appetite?

I never had a weight problem, either, until I began taking Prednisone. LIke you, I weighed under 90 pounds in my early 20s, at 5'6". Once I began Prednisone, I was hungry every minute. I'm now on a low maintenance dose of Prednisone. I do not overeat, and I'm puzzled that I don't lose the weight I gained at a high dose.

A few weeks ago I began taking Percoset for pain. Oddly, the desire to eat vanished. I have to remind myself to eat. (I've been up since 5 AM, it's 10 AM now, and I simply forgot to have breatkfast. I'm not at all hungry.) I enjoy food very much when I sit down to a meal, but I have no particular wish to eat otherwise.

Now, Percoset is a drug for pain. It is NOT something to take unless you absolutely must, for pain. I will drop it the moment pain allows. One should NEVER take it except when absolutely necessary for the prescribed use. However, I'm curious about this unexpected side effect, looking for clues to appetite that I can use after I stop taking it (which I hope will be soon.)

Harper

In a message dated 1/20/2004 7:38:57 AM Pacific Standard Time, shersom@... writes:

I KNOW why we gain weight. This is from someone who never, ever had a weight problem in 54 years, and since being diagnosed 1-1/2 years ago, I am struggling with trying NOT to gain weight.

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, I think we're all "invested" in every message in this sort of group. Thanks for the reply.

You mention your desire for carbohydrates. I no longer keep lots of information in my "immediate data bank" (also known as brain); I erase information and look it up when needed. I can't remember whether carbohydrates are generally believed to be harder to burn off (than protein? than fats?). I'll speak of the little bit I know -- others can probably tell you better.

I have a serious autoimmune liver disease, which very likely was triggered by undiagnosed/untreated CD. I've read that carbohydrates were a good source of energy for people with liver problems, as they were quicker and easier for the liver to process than fats and proteins. People with liver disease generally have problems with sudden bouts of fatigue, and therefore often grab carbohydrates. Perhaps you, like me, are always looking for a quick energy boost. (I do NOT mean that you have liver disease!!! I'm just using this as a parallel situation.)

Before I read that stagement about carbohydrates, my liver doctors had advised me just to eat a good, balanced diet, which seems more reasonable to me, over all. I've not spoken to them about carbohydrates and I doubt that I will.

A well-regarded book on liver disease says that a good diet for all people, with liver disease or not, is 60-70% carbohydrates, primarily complex carbohydrates, 20-30 % protein, and 10-20% polyunsaturated fat.

Best wishes.

Harper

In a message dated 1/20/2004 1:31:30 PM Pacific Standard Time, shersom@... writes:

Excuse "reply to all" to the group, but maybe everybody would like to hear responses?

There have been two changes to my diet since being diagnosed with CD. One change is that I am now eating some chicken/turkey and a little bit of beef. The second change is that I am eating a lot of carbohydrates - it seems to be the only thing that satisfies my appetite: bread, muffins, cookies, etc. I think I have read that the calories from carbohydrates are harder to burn off (hence, the Atkins diet). I don't know the medical reason why the calories from carbohydrates are harder to burn off, but if anyone knows, I would like to be informed.

Thanks!

Hersom

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After hearing rave reviews about seeing an

acupuncturalist, and having tried one with wonderful results, I realized that I

could no longer indulge in carbohydrates like I used to. The acupuncturalist

explained that any type of flour as well as prepackaged foods become a paste or

glue-like substance once they’re in your system making it harder for your

body to digest and do it’s job. Basically clogging

everything up.

*****************************************

Carbohydrates have just as many calories

in wheat-filled products as they do in non-gluten products. Eat them sparingly.

*****************************************

I keep coming back to the Latin definition

of “gluten” – Glue + ten. In essence what our food

intolerance is, is an intolerance to sticky, glue-type

foods or foods that become paste or glue-like in our systems. Our bodies just

can’t digest them with our spleen and liver and kidneys doing most of the

work (where I’m hearing a lot of your problems stemming from).

Also, most of the blood in our bodies resides

in our intestines, so I can’t help but wonder how this is affecting our

CD problem or other health-related problems, especially to gluten with gluten

being a binder or glue-like substance.

*****************************************

I’ve found I get more energy, and a

pick-me-up, from fruit that from anything else. If I’m tired, I reach for

fruit. If I’m hungry I reach for fruit and then tons of water. I couldn’t

believe that after only two or three days of eating almost nothing but fruit,

my body adjusted, and I’m no longer hungry all of the time. I used to get

screaming headaches if I didn’t eat every four hours when I ate

carbohydrates (or flour products). Now, if I’m hungry, and I eat mainly

fruit, I can go for hours and do just fine *and* without headaches!!

*****************************************

It’s nice to see so many gluten-free

products becoming more available on the market, but I can’t help but

wonder if we’re just trying to trade one problem for another. In the long

run I think it’s just better to stay away from flours or prepackaged

foods all together (or at least for the most part). You’d be amazed at

what you can come up with for strictly fruit, veggies, rice, and potatoes.

Dehydrates are also great for creating veggie crackers, veggie-only lasagnas,

etc. Be imaginative in your cooking, look for alternatives, and you’ll be

amazed at what you find.

Louise Audell

Graphic Designer

1 [415] 348-1022

www.louise-gd.com

-----Original Message-----

From: flatcat9@...

[mailto:flatcat9@...]

Sent: Tuesday, January 20, 2004 3:41 PM

Subject: Re: [ ]

Appetite?

, I think we're all

" invested " in every message in this sort of group. Thanks for

the reply.

You mention your desire for carbohydrates.

I no longer keep lots of information in my " immediate data bank "

(also known as brain); I erase information and look it up when needed. I

can't remember whether carbohydrates are generally believed to be harder to

burn off (than protein? than fats?). I'll speak of the little bit I know

-- others can probably tell you better.

I have a serious autoimmune

liver disease, which very likely was triggered by undiagnosed/untreated

CD. I've read that carbohydrates were a good source of energy

for people with liver problems, as they were quicker and easier for the liver

to process than fats and proteins. People with liver disease generally

have problems with sudden bouts of fatigue, and therefore often grab

carbohydrates. Perhaps you, like me, are always looking for a quick

energy boost. (I do NOT mean that you have liver disease!!! I'm

just using this as a parallel situation.)

Before I read that stagement about

carbohydrates, my liver doctors had advised me just to eat a good,

balanced diet, which seems more reasonable to me, over all. I've not

spoken to them about carbohydrates and I doubt that I will.

A well-regarded

book on liver disease says that a good diet for all people, with liver disease

or not, is 60-70% carbohydrates, primarily complex carbohydrates, 20-30 %

protein, and 10-20% polyunsaturated fat.

Best wishes.

Harper

In a message dated 1/20/2004 1:31:30

PM Pacific Standard Time, shersom@... writes:

Excuse " reply to all " to

the group, but maybe everybody would like to hear responses?

There have been two changes to my

diet since being diagnosed with CD. One change is that I am now eating

some chicken/turkey and a little bit of beef. The second change is

that I am eating a lot of carbohydrates - it seems to be the only thing that

satisfies my appetite: bread, muffins, cookies, etc. I think I have read

that the calories from carbohydrates are harder to burn off (hence, the Atkins

diet). I don't know the medical reason why the calories from

carbohydrates are harder to burn off, but if anyone knows, I would like to be

informed.

Thanks!

Hersom

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