FW: Bay Area Celiac News January 2004

[Guest guest]

Reminder: Santa Cruz support group meeting is tomorrow (see below).

-----Original Message-----

From: Deutsch [mailto:deutschm@...]

Sent: Thursday, January 15, 2004 1:40 PM

Martha Deutsch

Subject: Bay Area Celiac News January 2004

SAN FRANCISCO BAY AREA CELIAC NEWS....January 2004

CELIAC SPRUE RESEARCH FOUNDATION DINNER

SATURDAY, JANUARY 31, 6:30PM

Gluten Free Mexican Dinner in Berkeley as a fundraiser for CSRF.

Dr. Gail Pyle will speak on the latest CSRF research.

Restaurant: 's La Fiesta - Banquet room

2506 Haste St, Berkeley, CA 94704

(510) 848-2588 (Talk to or Cesar)

Menu Choice: Chicken in Salsa Verde & Beef Steak Ranchero

Cost: $30 per person

***Reservation deadline: Friday, January 23***

Directions by car: Take Route 80 to the Ashby exit in Berkeley.

Go east on Ashby about 2-3 miles to Telegraph. Left on Telegraph

and go about ten blocks toward UC Berkeley. Left on Haste Street

and the restaurant's banquet room is on the right at the corner.

Allow time to find a parking space.

Directions by BART: Go to Downtown Berkeley Station. Exit at

Shattuck and head North toward UC Berkeley. Walk 0.3 miles,

then turn right on Haste. Walk 0.5 miles on Haste and the restaurant's

banquet room will be on the left at the corner.

To reserve a seat please contact Rohlfs at 650-725-4771 or

kellyr@... with your name and number in party.

Bring cash or a check to pay after the meal.

======================================================

SUPPORT GPOUPS

SANTA CRUZ

The Santa Cruz Celiac Support Group will meet at 11AM this Saturday,

January 17 in Meeting Room 1 at Dominican Hospital. We will have a

gluten free potluck lunch. Please bring a list of the ingredients or the

recipe. Additional information or directions: Pam Newbury at 831-423-6904

or e-mail pknewbury@...

OAKLAND

The Oakland group will meet from 10:30AM to 12:30PM on Saturday,

January 24 , 1950 lin Street in Oakland. Speaker will be Joan Wade

of Sylvan Border Farms, producer of the very best gluten free baking flours

and mixes, and long time supporter of our group. Joan will talk about tips

for gluten free baking. Please bring a gluten free brunch item with recipe

or

ingredient list. Everyone is welcome. Subsequent meetings are tentatively

scheduled for March 6, April 17 and June 6.

Additional information or directions: Ellen Switkes at 510-655-0215

(evenings)

or e-mail ellen.switkes@...

SEBASTOPOL

The Sebastopol Celiac Group will meet for lunch on Saturday, Feb 28 at

12 noon at the Golden Wok Chinese Restaurant.

Additional information or directions: Leilani at 707-829-9105,

or e-mail lsmith@... (please note new e-mail address)

CONTACTS FOR OTHER LOCAL GROUPS

Stanford: Rohlfs, kellyr@..., 650-725-4771

Napa: Marie Dell'Isola, 707-255-4027 (no meetings planned, but

welcomes phone calls)

SF ROCK: Jackie Corley, __Corley@...,

415-885-5171

East Bay Area ROCK: Dana Sylvester-Doscher, ddoscher11@...,

925-648-3217

Palo Alto ROCK: Fowell-Velez, kfowell00@..., 650-216-6405

========================================================

GLUTEN REPORTS:

There is a report out that Kellogg's will start adding wheat gluten to their

Corn Pops breakfast cereal as of this month. I called the Customer

Service phone number to confirm and was told that this is true. Those

of you who buy this product may want to make your own inquiry and/or

protest: 1-800-962-1413 or e-mail www.kelloggs.com

Pam Newbury discovered plastic food utensils that contain wheat in a

local Santa Cruz market, the New Leaf on Mission Street. The utensils

are a light tan in color, and the package is clearly labeled that they are

made from wheat. Rohlfs says they are using wheat containing

disposable knives, forks and spoons at the organic cafe in the Stanford

Museum, but they also have metal utensils available. We do not know

if they are hazardous to our health, but we probably should try to avoid

using these utensils. As if we didn't have enough to worry about!

(I have no company name.)

=========================================================

CELIAC DISEASE SURVEY

Dear Fellow Celiac or Celiac Parent,

Below is a quick survey about gender and celiac disease for my eighth grade

science fair project. I am trying to get as many responses as possible.

Could

you please take a few minutes to e-mail me your answers? If you have celiac

friends, please let them know also. I need to collect all my data by

Friday,

February 6. I will be happy to share my findings with all of you.

Thanks for your help!

Molly Duncan Stone

13-year-old celiac and member of Palo Alto R.O.C.K

molly@...

CELIAC SURVEY QUESTIONS:

Gender:

Age now:

Age at time of diagnosis:

Home city, state, country:

Biopsy diagnosed: Yes/No

============================================================

Note to new members: Support group meetings are held in Oakland, Santa

Cruz,

Sebastopol, and at Stanford University. R.O.C.K. (Raising Our Celiac Kids)

meetings are in Danville, Palo Alto, and San Francisco. Meeting notices are

sent out monthly announcing upcoming events. You can receive an e-mail or

snail mail notice. To subscribe or report address changes, please send your

name, address, phone number and e-mail address to your local support group

leader or to Martha Deutsch, 341 Central Ave, Half Moon Bay 94019,

650-726-9562, deutschm@....

This list is confidential and will be used only to keep you informed of

local celiac

activities and important celiac concerns the group leaders wish to share.

Even if

you do not participate in a group, all of the leaders are happy to answer

questions

and refer you to other resources.