Guest guest Posted May 2, 1999 Report Share Posted May 2, 1999 I was unable to get the download on this articles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 1999 Report Share Posted August 16, 1999 Hey all.. I've been hearing about how to eliminate Wheat from your diet for us Hypo's... For health reasons I purchased a Pasta Machine and Bread Machine and have loved being able to make my own BUT have been unable to find any recipes (sp) for Wheat free pasta or bread... although I have been able to buy Rice Pasta and Potato Bread..... I WOULD LOVE it if anyone has recipes to share that are wheat free.... Thanks Bonnie Meredith Independent Kay Beauty Consultant send orders -- Kay@... personal mail -- Lovdatpink@... My Web Page -- www.lovdatpink.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2000 Report Share Posted February 5, 2000 Dear Marty, Thank you for that wonderful humble opinion. It's nice to see my confused feelings all thought out and organized into something coherent and useful. Claudine >From: " byteme " <byteme@...> >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Digest Number 38 >Date: Sat, 05 Feb 2000 19:25:41 -0600 > >I think everyone needs to be presented with as much factual data >possible, and make their own decision. If, someone comes back with >definite HCV, any increase in liver enzymes, viral load, symptoms, how >and when they might have acquired the virus, and any other information >applicable, then each person can make an " informed " decision. > >We are all living in a crap shoot. If we could go into the future, and >look back, 5 years and then 10 years, we might be able to make a better >decision now. But, none of us can, and therefore we need to make the >best decision based on what we know now, and live with it. HCV, like >many other diseases of our generation, are not fully understood, nor, >can anyone make a definite prediction of what will happen. > >Look at the victims that died from AIDs in the earlier years, and if we >had the knowledge and medication then, that we have now, many of these >people might be alive today, (again hindsight). Some may have decided to >do different things in their lives, had they known. Almost 10 years ago >I was taking care of this patient in NY who had AIDs. For 12 hours every >day, I would alternate placing bandages with an acid on them, for an >hours, and then use a salve on them for another 2 hours. During these >dressings he had to remain in bed. He endured these treatments because >he thought these would give him some more time. He even was given heavy >chemotherapy, all under the guise that he was getting better. > >After almost 3 months, I learned that he was considered terminal, >somewhere between 6 weeks to a maximum of 4 months. Neither he nor I >were ever told, and I was forbidden to tell him when I found out. The >tragic thing was that, during these long days in bed, he discussed, >unemotionally, what he would do if he thought his time was really near. >His plans were realistic, and practical. > >If he knew would he have done things differently, probably! Was he >entitled to make an informed choice, I believe he was. With all the >uncertainty of these many illnesses, looking back we might make >different decisions. But, only in hindsight do we know what we should >have done. He did die about 9 weeks after I left. > >If someone can achieve a remission, or stay status quo, would you take a >chance with an illness that could kill you? Thats really the question >here, because, maybe tomorrow, 5 years or 10 years from now, there will >be a cure!, or maybe not. But, depending on how bad these treatments are >to you, and what the future holds, you can only make a decision based on >what you have before you. > >If a year of this stuff, puts you into remission, is it worth it? If you >do nothing and you get worse, would your decision be different? There >are many, many questions, but few answers, at this point. So, just look >at what you have now, what information you believe to be viable, and >then never look back, because you should be comfortable with whatever >you decide, and the future will be whatever. Thats the best we can ask >for. My humble opinion. Marty > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2000 Report Share Posted February 5, 2000 I think everyone needs to be presented with as much factual data possible, and make their own decision. If, someone comes back with definite HCV, any increase in liver enzymes, viral load, symptoms, how and when they might have acquired the virus, and any other information applicable, then each person can make an " informed " decision. We are all living in a crap shoot. If we could go into the future, and look back, 5 years and then 10 years, we might be able to make a better decision now. But, none of us can, and therefore we need to make the best decision based on what we know now, and live with it. HCV, like many other diseases of our generation, are not fully understood, nor, can anyone make a definite prediction of what will happen. Look at the victims that died from AIDs in the earlier years, and if we had the knowledge and medication then, that we have now, many of these people might be alive today, (again hindsight). Some may have decided to do different things in their lives, had they known. Almost 10 years ago I was taking care of this patient in NY who had AIDs. For 12 hours every day, I would alternate placing bandages with an acid on them, for an hours, and then use a salve on them for another 2 hours. During these dressings he had to remain in bed. He endured these treatments because he thought these would give him some more time. He even was given heavy chemotherapy, all under the guise that he was getting better. After almost 3 months, I learned that he was considered terminal, somewhere between 6 weeks to a maximum of 4 months. Neither he nor I were ever told, and I was forbidden to tell him when I found out. The tragic thing was that, during these long days in bed, he discussed, unemotionally, what he would do if he thought his time was really near. His plans were realistic, and practical. If he knew would he have done things differently, probably! Was he entitled to make an informed choice, I believe he was. With all the uncertainty of these many illnesses, looking back we might make different decisions. But, only in hindsight do we know what we should have done. He did die about 9 weeks after I left. If someone can achieve a remission, or stay status quo, would you take a chance with an illness that could kill you? Thats really the question here, because, maybe tomorrow, 5 years or 10 years from now, there will be a cure!, or maybe not. But, depending on how bad these treatments are to you, and what the future holds, you can only make a decision based on what you have before you. If a year of this stuff, puts you into remission, is it worth it? If you do nothing and you get worse, would your decision be different? There are many, many questions, but few answers, at this point. So, just look at what you have now, what information you believe to be viable, and then never look back, because you should be comfortable with whatever you decide, and the future will be whatever. Thats the best we can ask for. My humble opinion. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2000 Report Share Posted February 5, 2000 I think everyone needs to be presented with as much factual data possible, and make their own decision. If, someone comes back with definite HCV, any increase in liver enzymes, viral load, symptoms, how and when they might have acquired the virus, and any other information applicable, then each person can make an " informed " decision. We are all living in a crap shoot. If we could go into the future, and look back, 5 years and then 10 years, we might be able to make a better decision now. But, none of us can, and therefore we need to make the best decision based on what we know now, and live with it. HCV, like many other diseases of our generation, are not fully understood, nor, can anyone make a definite prediction of what will happen. Look at the victims that died from AIDs in the earlier years, and if we had the knowledge and medication then, that we have now, many of these people might be alive today, (again hindsight). Some may have decided to do different things in their lives, had they known. Almost 10 years ago I was taking care of this patient in NY who had AIDs. For 12 hours every day, I would alternate placing bandages with an acid on them, for an hours, and then use a salve on them for another 2 hours. During these dressings he had to remain in bed. He endured these treatments because he thought these would give him some more time. He even was given heavy chemotherapy, all under the guise that he was getting better. After almost 3 months, I learned that he was considered terminal, somewhere between 6 weeks to a maximum of 4 months. Neither he nor I were ever told, and I was forbidden to tell him when I found out. The tragic thing was that, during these long days in bed, he discussed, unemotionally, what he would do if he thought his time was really near. His plans were realistic, and practical. If he knew would he have done things differently, probably! Was he entitled to make an informed choice, I believe he was. With all the uncertainty of these many illnesses, looking back we might make different decisions. But, only in hindsight do we know what we should have done. He did die about 9 weeks after I left. If someone can achieve a remission, or stay status quo, would you take a chance with an illness that could kill you? Thats really the question here, because, maybe tomorrow, 5 years or 10 years from now, there will be a cure!, or maybe not. But, depending on how bad these treatments are to you, and what the future holds, you can only make a decision based on what you have before you. If a year of this stuff, puts you into remission, is it worth it? If you do nothing and you get worse, would your decision be different? There are many, many questions, but few answers, at this point. So, just look at what you have now, what information you believe to be viable, and then never look back, because you should be comfortable with whatever you decide, and the future will be whatever. Thats the best we can ask for. My humble opinion. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Marty, What an elegantly written letter. How very true what you wrote, one can only make decisions on what one knows and then have to live with the decision you make, the story about the person you wrote about with aids was so sad. Thank you for your opinion and keep up the correspondence, Suzy From: " byteme " <byteme@...> Reply-Hepatitis Conelist Hepatitis Conelist Subject: Re: Digest Number 38 Date: Sat, 05 Feb 2000 19:25:41 -0600 I think everyone needs to be presented with as much factual data possible, and make their own decision. If, someone comes back with definite HCV, any increase in liver enzymes, viral load, symptoms, how and when they might have acquired the virus, and any other information applicable, then each person can make an " informed " decision. We are all living in a crap shoot. If we could go into the future, and look back, 5 years and then 10 years, we might be able to make a better decision now. But, none of us can, and therefore we need to make the best decision based on what we know now, and live with it. HCV, like many other diseases of our generation, are not fully understood, nor, can anyone make a definite prediction of what will happen. Look at the victims that died from AIDs in the earlier years, and if we had the knowledge and medication then, that we have now, many of these people might be alive today, (again hindsight). Some may have decided to do different things in their lives, had they known. Almost 10 years ago I was taking care of this patient in NY who had AIDs. For 12 hours every day, I would alternate placing bandages with an acid on them, for an hours, and then use a salve on them for another 2 hours. During these dressings he had to remain in bed. He endured these treatments because he thought these would give him some more time. He even was given heavy chemotherapy, all under the guise that he was getting better. After almost 3 months, I learned that he was considered terminal, somewhere between 6 weeks to a maximum of 4 months. Neither he nor I were ever told, and I was forbidden to tell him when I found out. The tragic thing was that, during these long days in bed, he discussed, unemotionally, what he would do if he thought his time was really near. His plans were realistic, and practical. If he knew would he have done things differently, probably! Was he entitled to make an informed choice, I believe he was. With all the uncertainty of these many illnesses, looking back we might make different decisions. But, only in hindsight do we know what we should have done. He did die about 9 weeks after I left. If someone can achieve a remission, or stay status quo, would you take a chance with an illness that could kill you? Thats really the question here, because, maybe tomorrow, 5 years or 10 years from now, there will be a cure!, or maybe not. But, depending on how bad these treatments are to you, and what the future holds, you can only make a decision based on what you have before you. If a year of this stuff, puts you into remission, is it worth it? If you do nothing and you get worse, would your decision be different? There are many, many questions, but few answers, at this point. So, just look at what you have now, what information you believe to be viable, and then never look back, because you should be comfortable with whatever you decide, and the future will be whatever. Thats the best we can ask for. My humble opinion. Marty ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2000 Report Share Posted February 18, 2000 Joan- Just have a minute here- My gut reaction was, I don't want to feel like I have to be really careful about everything I say here, and I know that I would feel like I was being observed through a one-way mirror if there were more " professionals " on this list. But I don't know if you can keep people out, because the info about joining the list is on the Disability Solutions site, isn't it? Also, good luck on the risperdal for Andy! I think it is hard to get them started on the drugs with longer half-lives, because you have to really give it a few solid weeks before you can start making judgments about what's going on. Is he still on buspar?? Did you have to wait for the Buspar to leave his system bfore starting the risperdal? the two may be interacting somehow. Good luck!! Kepp us posted. Hugs, MB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 Hi "Healing Hepatitis C with Modern Chinese Medicine" by Dr Zhang is a book that should be read by all in my opinion. I have spoke with Dr Zhang himself on the phone and by email and was very impressed with his knowledge and understanding of hep c............. And I believe Naomi Judd took organic glandular thymus, I remember reading something she said about that once in a local paper in tennessee. Just in case anyone here has not been there before, which I doubt, here is link to Dr zhang's site.....(www.dr-zhang.com) Dr Zhang Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 , I wanted to thank you for sharing this information and letter on Naomi Judd. I read her book, Love can build a bridge, when I first found out I had hepatitis C. I was a little let down that it didn't say that much about what she actually DID to get rid of the hep c. It seemed to be vague. It gave a lot of information about her and how she grew up, relationships, but didn't let me in on her exact protocol. :+( I can't afford to buy all of those books that are recommended, but I do love to read and I try to get to the library as often as I can. With thre esmall kids, I'm limited on what time I can spend researching. I have past on the Love Can Build a Bridge book to my friend. But I remember there was a supplement for the thymus gland that she took, can't remember the name, do you know?? Thanks again !!! Lots of love, Sher wrote: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 Thymic Protein A is a patented item of Bio Pro. Iwas not aware that it had been available that long...I use it myself and have added it to my protocol, but, I read her statement in the Tennessean sunday paper once that it was glandular thymus. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 dEAR sHER, I believe it was " Thymic Protein A " . Also, I am going to order her book " How to Heal Hepatitis Naturally " (maybe this book as more about the specifics on her protocol). This book is less than $6, affordable. I am looking forward to reading it. If she doesn't get specific in that book, one has to wonder! If I am disappointed with it, you can be sure I will send a letter about it to her and the publisher. I have a page on my site about her protocol (with a real quick list/summary): http://www.objectivemedicine.com/naomi.htm I'm glad you liked the info. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 Hi Ginmaree: I agree that Dr. Zhang is very knowledgable in Hepatitis C. I frequent his site and discussion groups daily. Merilee ginmaree wrote: > > Hi > " Healing Hepatitis C with Modern Chinese Medicine " by Dr Zhang is a > book that should be read by all in my opinion. I have spoke with Dr > Zhang himself on the phone and by email and was very impressed with > his knowledge and understanding of hep c............. > And I believe Naomi Judd took organic glandular thymus, I remember > reading something she said about that once in a local paper in > tennessee. > > Just in case anyone here has not been there before, which I doubt, > here is link to Dr zhang's site.....(www.dr-zhang.com) > > Dr Zhang > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Hello Bonnie I just joined not too long ago and thought I'd say hi to you.... my son is 5, he's autistic, and his name is ! Fortunately my does well in a regular booster seat -- only because he hasn't figured out how to release the seatbelt yet! He goes to special ed classes in a local public elementary school, and the bus depot had to have a leather harness (normally used for kids with MD, MS, or partially paralzyed kids) cut down to fit him because he kept zipping out of his seat and hurtling around the bus. Great luck to you finding an affordable seat that your will be happy with.... I know it's out there somewhere! Let me know what you find... I may be looking for something similar in the near future. Best Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 >Also, does anyone else have extreme >problems with beans and legumes? Hi Louise and all, I do. It's funny, because I'm one of those " silent celiacs " who can eat all the wheat I want with no bowel upset. (What I DID get was osteopenia from malabsorbtion). But any kind of high roughage food (including salad) causes me a lot of problems. It seems like more comes out than went in! Not to get too graphic, but it ends up as a sticky, pasty, unending " toothpaste " ribbon, rather than watery dire-rear. The " end " result <G> is the same, tho---too much time on the bowl. Beans also make me bloated. This is unfortunate, because I really like beans and Mexican food. Also, a lot of the better GF bread mixes have some kind of bean flour in them. I get so discouraged because there is so much I can't eat, like dairy. I do eat beans occasionally, but try to limit them to small amounts, once a week or so. Seems like only kind of food I can eat on a continuous, day after day basis with no upset, is Chinese. Wish I had a Chinese grandma to cook for me every day :^) Lori Quote Link to comment Share on other sites More sharing options...
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