Re: fatigue and muscle soreness--long after eating gluten free

[Guest guest]

It sounds as if you're doing all the right things to get a diagnosis. Just as a reminder, those of us with one autoimmune disease are at higher risk for others. Some researchers believe that there is only one autoimmune disease, which affects different people in different ways. Some of us get CD, others get scleroderma or MS or skin problems etc. etc. etc.

Keep this in mind when you talk with your doctors; make sure they are aware of the commonality.

Best wishes.

H.

In a message dated 6/3/06 7:57:58 AM, redchickn@... writes:

I have seen a neurologist and a rheumatologist and an

endocrinologist and have been cleared of related diseases.

[Guest guest]

Yes, anemia often is an indicator of CD. However, please, please don't start taking iron pills without talking with a knowledgeable doctor. There are many kinds of anemia, with many causes, and iron pills aren't always the appropriate solution. They can cause considerable damage, in some situations.

H.

In a message dated 6/3/06 9:39:59 AM, swoodsf@... writes:

Have you been tested for anemia?  I'm a 54 year old

woman, and being diagnosed with anemia was my first

step toward being diagnosed with CD about a year and a

half ago.  I still get occasional leg cramps at night

but iron pills really got rid of my tiredness.

best,

Sharon 

[Guest guest]

Have you been tested for anemia? I'm a 54 year old

woman, and being diagnosed with anemia was my first

step toward being diagnosed with CD about a year and a

half ago. I still get occasional leg cramps at night

but iron pills really got rid of my tiredness.

best,

Sharon

--- redchickn <redchickn@...> wrote:

> Hello there,

>

> I am a 37-year-old woman, diagnosed very

> definitively with CD last year. I have been

> eating gluten free this whole time but have had

> several ongoing problems.

>

> For the past month or so, I have been feeling

> overall much more functional but then in the

> past few days I have been very weak, particularly

> sore and weak in my limbs. Even walking

> upstairs is difficult, which is very scary. I have

> had these episodes in the past, too. They

> seem to come on after I have used my muscles a bit,

> but not to any great degree that

> would explain the fatigue. I have seen a neurologist

> and a rheumatologist and an

> endocrinologist and have been cleared of related

> diseases.

>

> So my questions are --

> --Do any other celiacs experience this? Or did they,

> and it has gone away (I hope)?

> --My Vitamin D level is borderline/low, and I've

> just started taking a supplement - could

> that be the problem?

> --Do you think these episodes could be related to an

> accidental exposure to a bit of

> gluten (I am very strict, but maybe it's happened)?

>

> --Also, my brother, who doesn't have celiac disease,

> at least according to the tests, was

> diagnosed with fibromyalgia years ago and has been

> suffering terribly with it -- could this

> be related? God, I hope I'm not developing something

> like that.

>

> I'd appreciate any thoughts/advice you'd have.

>

> best,

>

>

>

>

>

>

>

[Guest guest]

,

I have fibromyalgia and the prognosis tends to be grim or there is a lack of acceptance of this disorder and other auto-immune disorders. Because of my own frustration and not getting better after going gf myself, I started seeing a nutritionist who practices in an alternative fashion and discovered that autoimmune disorders can be treated with a nutritional and lifestyle change approach. Today I am doing much better and am having my environmental sensitivities treated as well.

You could have an autoimmune disorder, but you could also just have a host of food and environmental allegies (major symptoms include pain and aches and fatigue).

Medical doctors tend not to accept the major role of poor nutrition, stress, etc in causing the body to get out of whack and illness to set in. If you think this might be going on with you, I would invite you to do some research on the internet and/or look for a naturopath, nutritionist or other alternative healer to consult with. They generally do not take insurance and it can be a little more expensive. I swear by it because of the host of physical and emotional problems I was dealing with a few short months ago and questioning whether I could continue in my profession. My turnaround has been well worth the expense. I have my life back now.

On 6/3/06, redchickn <redchickn@...> wrote:

Hello there,I am a 37-year-old woman, diagnosed very definitively with CD last year. I have been

eating gluten free this whole time but have had several ongoing problems.For the past month or so, I have been feeling overall much more functional but then in thepast few days I have been very weak, particularly sore and weak in my limbs. Even walking

upstairs is difficult, which is very scary. I have had these episodes in the past, too. Theyseem to come on after I have used my muscles a bit, but not to any great degree thatwould explain the fatigue. I have seen a neurologist and a rheumatologist and an

endocrinologist and have been cleared of related diseases.So my questions are ----Do any other celiacs experience this? Or did they, and it has gone away (I hope)?--My Vitamin D level is borderline/low, and I've just started taking a supplement - could

that be the problem?--Do you think these episodes could be related to an accidental exposure to a bit ofgluten (I am very strict, but maybe it's happened)?--Also, my brother, who doesn't have celiac disease, at least according to the tests, was

diagnosed with fibromyalgia years ago and has been suffering terribly with it -- could thisbe related? God, I hope I'm not developing something like that.I'd appreciate any thoughts/advice you'd have.

best,