Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Several members of my family and myself have all used Enterolab for the stool tests and DNA tests. The DNA test will show whether or not you have either the gene for celiac and/or gluten sensitivity (I have the pair). The DNA test does not diagnose celiac disease. The stool test can include multiple screen options if I remember correctly, the key test being the anti-gliadin test that is becoming more accepted as a diagnostic tool for celiac disease. Enterolab made it very simple to obtain and deliver the samples.In my case, having these tests confirmed celiac disease and, for me, more than enough evidence to keep me strictly on a gluten-free diet for the rest of my life. on <vizlvr@...> wrote: Hi- A few weeks ago someone posted a link to Enterolab.com. I finally got around to checking it out and while I am somewhat interested in their stool gluten screens the HLA screen really caught my eye. I had been led to believe that having this done was very expensive, but $150 doesn't seem like 'very expensive' to me. Is this a reliable lab to have this done at? Are there others out there? This information would be very useful as we figure out how to proceed with our one year old. My husband has never formally been diagnosed (no blood test or biopsy) as having CD but he definitely is gluten sensitive (same story for his dad). So here's another question then-do I swab her (might be hard to get a good sample from a one year old?) or my husband? Thanks __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Yes, it was me who posted the enterolab website. They do a gene test there, a gliadin antibody test and also the antitissue transglutaminase antibody test. Combined with this, they did a fecal fat score, as that is also an indication of malabsorption. The guy who directs this lab is a really well-respected scientist. He is well published, has done alot of research and so I feel their labl is reliable. I have worked in the lab research field for many years and it was through Dr Fine's pioneering research work that I came across his lab. If I was looking for a diagnosis test, I wouldn't recommend having the gene test done alone - as even though it is useful to know that you have the gene - just having a gene for something doesn't mean you have the disease - it just shows that there is a likelihood for you getting it. But it depends on what your goal is.......If you or your family has all the symptoms of CD or gluten intolerance that are relieved with a gluten free diet -then maybe just the gene confirmation is enough. I would also suggest you check for malabsorption problems however, because that is a score you can repeat each year and see if you are seeing improvement. As far as a sample from a baby - I think it even mentions on the website how you can sample from a diaper... I do recommend this lab. Good luck with it. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 My understanding, from the Stanford celiac researchers and doctors, is that Dr. Fine's methods have not been published in peer-reviewed journals so that other scientists could replicate them. Does the enterolab website list his journal publications on celiac disease? Debbie On Jun 1, 2006, at 9:02 AM, ruthebaillie wrote: > Yes, it was me who posted the enterolab website. They do a gene > test there, a gliadin > antibody test and also the antitissue transglutaminase antibody > test. Combined with this, > they did a fecal fat score, as that is also an indication of > malabsorption. > > The guy who directs this lab is a really well-respected scientist. > He is well published, has > done alot of research and so I feel their labl is reliable. I have > worked in the lab research > field for many years and it was through Dr Fine's pioneering > research work that I came > across his lab. > > If I was looking for a diagnosis test, I wouldn't recommend having > the gene test done > alone - as even though it is useful to know that you have the gene > - just having a gene for > something doesn't mean you have the disease - it just shows that > there is a likelihood for > you getting it. But it depends on what your goal is.......If you > or your family has all the > symptoms of CD or gluten intolerance that are relieved with a > gluten free diet -then > maybe just the gene confirmation is enough. I would also suggest > you check for > malabsorption problems however, because that is a score you can > repeat each year and > see if you are seeing improvement. > > As far as a sample from a baby - I think it even mentions on the > website how you can > sample from a diaper... > > I do recommend this lab. Good luck with it. > Ruth > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Thanks to everyone for their replies. The Enterolab website does have a CV for Dr. Fine which includes a list of his publications. Scanning the titles, only a handful are on celiac disease specifically, but most are on GI subjects. I don't see any that appear to be specifically about the screening methods. At this time I am only doing the gene screening for my daughter which does not rely on his specially devised stool screening but is standard PCR based procedures. I don't need to bore everyone with the family 'story' but suffice to say that at this point the gene screen is the most useful piece of information for us. It may not be in other situations. I am aware that presence of the gene(s) does not in and of itself indicate or diagnose CD. I had just been given the impression in the past that having this screening done was very expensive so was surprised to find it only $150 on the site and wanted to see if the lab was reputable. Thanks again for the comments- --- Debbie Duncan <debbie@...> wrote: > My understanding, from the Stanford celiac > researchers and doctors, > is that Dr. Fine's methods have not been published > in peer-reviewed > journals so that other scientists could replicate > them. Does the > enterolab website list his journal publications on > celiac disease? > > Debbie > > On Jun 1, 2006, at 9:02 AM, ruthebaillie wrote: > > > Yes, it was me who posted the enterolab website. > They do a gene > > test there, a gliadin > > antibody test and also the antitissue > transglutaminase antibody > > test. Combined with this, > > they did a fecal fat score, as that is also an > indication of > > malabsorption. > > > > The guy who directs this lab is a really > well-respected scientist. > > He is well published, has > > done alot of research and so I feel their labl is > reliable. I have > > worked in the lab research > > field for many years and it was through Dr Fine's > pioneering > > research work that I came > > across his lab. > > > > If I was looking for a diagnosis test, I wouldn't > recommend having > > the gene test done > > alone - as even though it is useful to know that > you have the gene > > - just having a gene for > > something doesn't mean you have the disease - it > just shows that > > there is a likelihood for > > you getting it. But it depends on what your goal > is.......If you > > or your family has all the > > symptoms of CD or gluten intolerance that are > relieved with a > > gluten free diet -then > > maybe just the gene confirmation is enough. I > would also suggest > > you check for > > malabsorption problems however, because that is a > score you can > > repeat each year and > > see if you are seeing improvement. > > > > As far as a sample from a baby - I think it even > mentions on the > > website how you can > > sample from a diaper... > > > > I do recommend this lab. Good luck with it. > > Ruth > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 I got diagnosed through enterolab also through learning through the web the high rates of false negatives of blood tests and biopsies. I didn't have insurance and I was really sick, so it was a really good choice for me. I have since seen a MD and a nutritionist who have gotten tested through enterolab, and have any clients/patients with possible celiac get tested through enterolab. I am so grateful that getting tested for celiac is getting easier. I just blogged about enterolab on my new celiac-related blog on my Celiac 101 post: http://awakeningtotruenourishment.wordpress.com/ a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Last time I looked (pretty recently), enterolab doesn't test for, nor claim to test for, celiac. They DO test for gluten intolerance, and it does appear that a non-dx'd celiac who hasn't yet gone gf will test positive as GI. But I don't think that means we should say enterolab's results equal a diagnosis of CD. Don't get me wrong - I'm all for anything that helps those who should be gf start eating gf. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 The test is specific for CD associated gene and non-celiac associated gluten sensitivity gene. They also test for presence of tissue reaction of the immune system to attack the body. You may want to check the tests available at Enterolab and see new developments and product descriptions. -----Original Message----- From: " HiDee HoMan " <hideehoman@...> " " < > Sent: 10/19/07 6:52 PM Subject: [ ] Re: enterolab Last time I looked (pretty recently), enterolab doesn't test for, nor claim to test for, celiac. They DO test for gluten intolerance, and it does appear that a non-dx'd celiac who hasn't yet gone gf will test positive as GI. But I don't think that means we should say enterolab's results equal a diagnosis of CD. Don't get me wrong - I'm all for anything that helps those who should be gf start eating gf. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 I've read that ~25% of the population has one or both of the genes. Of course, they don't all have CD. So, I'm just saying, since Enterolab doesn't claim to test for CD, we shouldn't say they do either. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 I've read that ~25% of the population has one or both of the genes. Of course, they don't all have CD. So, I'm just saying, since Enterolab doesn't claim to test for CD, we shouldn't say they do either. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 I see what you are saying. I wrote to Enterolab to ask them to give a statement in response to this issue. I’ll let you know when I hear. Thank you, Karie From: [mailto: ] On Behalf Of HiDee HoMan Sent: Saturday, October 20, 2007 10:44 AM Subject: [ ] Re: enterolab I've read that ~25% of the population has one or both of the genes. Of course, they don't all have CD. So, I'm just saying, since Enterolab doesn't claim to test for CD, we shouldn't say they do either. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 The scientists at the International Celiac Symposium in New York last year said that stool testing is NOT reliable for CD. It's fair to ask Dr. Fine if he has published his methods and results in peer-reviewed scientific journals. Until his methods can be duplicated, buyer beware. DebbieOn 10/19/07, Karie Klim <Karie@...> wrote: The test is specific for CD associated gene and non-celiac associated gluten sensitivity gene. They also test for presence of tissue reaction of the immune system to attack the body. You may want to check the tests available at Enterolab and see new developments and product descriptions. -----Original Message----- From: " HiDee HoMan " <hideehoman@...> " " < > Sent: 10/19/07 6:52 PM Subject: [ ] Re: enterolab Last time I looked (pretty recently), enterolab doesn't test for, nor claim to test for, celiac. They DO test for gluten intolerance, and it does appear that a non-dx'd celiac who hasn't yet gone gf will test positive as GI. But I don't think that means we should say enterolab's results equal a diagnosis of CD. Don't get me wrong - I'm all for anything that helps those who should be gf start eating gf. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Interestingly enough, my brother has gone to the land Celiac specialists and they have asked him to start a gluten challenge so that they can run the small intestine biopsy and if that doesn't show anything new, they plan to perform the very same tests performed by Dr. Fine (the anti-gliadin tests). It is my understanding that, in the slow-moving world of Western medicine, Dr. Fine is trying to show that these tests are indicators and can be used as diagnostic tools, as there is currently a dearth of diagnotic tools for gluten intolerance. Debbie Duncan <debbiedunc@...> wrote: The scientists at the International Celiac Symposium in New York last year said that stool testing is NOT reliable for CD. It's fair to ask Dr. Fine if he has published his methods and results in peer-reviewed scientific journals. Until his methods can be duplicated, buyer beware. DebbieOn 10/19/07, Karie Klim <Kariejamesklim> wrote: The test is specific for CD associated gene and non-celiac associated gluten sensitivity gene. They also test for presence of tissue reaction of the immune system to attack the body. You may want to check the tests available at Enterolab and see new developments and product descriptions. -----Original Message----- From: "HiDee HoMan" <hideehoman > " " < > Sent: 10/19/07 6:52 PM Subject: [ ] Re: enterolab Last time I looked (pretty recently), enterolab doesn't test for, nor claim to test for, celiac. They DO test for gluten intolerance, and it does appear that a non-dx'd celiac who hasn't yet gone gf will test positive as GI. But I don't think that means we should say enterolab's results equal a diagnosis of CD. Don't get me wrong - I'm all for anything that helps those who should be gf start eating gf. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Remember that Celiac Disease is an end state of gluten intolerance, the point when the IgA antibodies in the gut are so abundant and the presence of gluten in the diet is so abundant that the IgA antibodies have killed off or damaged enough villi on the lining of the gut that a random sample can find it (after, of course, you have convinced your doctor to DO the biopsy based on your gastrointestinal symptoms). Gluten intolerance can cause many other states as well. And some huge percentage of people with biopsies that were taken for other causes show up as Celiac without them noticing gastrointestinal symptoms (so called silent celiac disease). What the Enterolab tests do is show how much IgA antibodies that are specific for gliadin (the gluten peptide that causes the issue) are in your stools. And then it is really about how much is a “normal IgA level” specific to gliadin given that no human can digest it. Enterolab will tell you that you are sensitive to gliadin if it is above a certain number. Most people who suspect something (and are not getting any action from their doctor) AND who are willing to $pring for the test, do indeed have a large number on this test, but some turn out NOT to be gluten sensitive. If the allopathic, regular doctors were doing a good job I would not be at all tempted to use Enterolab. As it is, I have a “slight gluten intolerance” diagnosis based on a blood test (IgA is NOT supposed to be in the blood stream by the way). And great relief on a GF diet. So I am not officially diagnosed so much so that my insurance company raises my rates. But I know what I need to do. You will notice that the International Celiac Symposium doctors did NOT say that stool testing is not reliable for gluten intolerance. Celiac Disease is to gluten intolerance what a stroke is to high blood pressure. Connie From: [mailto: ] On Behalf Of Debbie Duncan Sent: Sunday, October 21, 2007 8:06 AM Subject: Re: [ ] Re: enterolab The scientists at the International Celiac Symposium in New York last year said that stool testing is NOT reliable for CD. It's fair to ask Dr. Fine if he has published his methods and results in peer-reviewed scientific journals. Until his methods can be duplicated, buyer beware. Debbie On 10/19/07, Karie Klim <Kariejamesklim> wrote: The test is specific for CD associated gene and non-celiac associated gluten sensitivity gene. They also test for presence of tissue reaction of the immune system to attack the body. You may want to check the tests available at Enterolab and see new developments and product descriptions. -----Original Message----- From: " HiDee HoMan " <hideehoman > " " < > Sent: 10/19/07 6:52 PM Subject: [ ] Re: enterolab Last time I looked (pretty recently), enterolab doesn't test for, nor claim to test for, celiac. They DO test for gluten intolerance, and it does appear that a non-dx'd celiac who hasn't yet gone gf will test positive as GI. But I don't think that means we should say enterolab's results equal a diagnosis of CD. Don't get me wrong - I'm all for anything that helps those who should be gf start eating gf. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Here’s an article that includes Enterolab review. I do think that Enterolab’s testing method is in its infant stages and it’s only a matter of time before the appropriate research, experimentation, and reports will be available. It’s a process not unlike a food or drug product having to through the FDA approval process. Until all the hoops are covered, we cannot say one way or the other whether it’s a good thing or a bad thing. It may not be proper to “diagnose” at the developmental level of this test, but it looks like it’s having a positive response in the lay community and doctors are starting to use it and seeing results. Even without the “diagnosis” if a person can be helped by the treatment recommendation, it could be of value. It appears that GF treatment, not diagnosis, is the form that doctors are using and patients are benefiting. To add my testimony, I have been helped by taking the gluten out of my diet. I had just been to Stanford, and they have the research, for a workup and was told that I could eat gluten. It messed me up. I have genes for both CD and gluten sensitivity. Link: http://ezinearticles.com/?Diagnosing-Celiac-Disease-and-Gluten-Sensitivity & id=239028 Diagnosing Celiac Disease and Gluten Sensitivity By Dr. Scot Lewey Celiac disease, also known as gluten sensitive enteropathy is very common but frequently missed. It is an autoimmune disease of intestinal damage due to gluten in people who are genetically predisposed. Classic Celiac disease is diagnosed by abnormal blood tests and an abnormal appearing intestine on biopsy and symptoms that resolve with a gluten free diet. Several blood tests exist for Celiac disease. They have varying degrees of accuracy. Some are more sensitive, meaning they will be positive in milder forms of the disease but are not specific, meaning a positive test may not indicate Celiac disease. Others are felt to be very specific, meaning that when they are positive, it is almost certain you have the disease. The most specific tests are tests for Celiac disease endomysial antibodies (EMA) and tissue transglutaminase antibody (tTG) tests. These two tests are IgA based tests and can be negative if you are deficient in the immunoglobin IgA, which occurs in 10-20% of people with Celiac. When either EMA or tTG are positive Celiac disease is very likely and usually the intestine biopsy is positive. Recent studies indicate that the tTG may only be positive in 40% of true Celiacs when mild degrees of intestine damage are present on biopsy. Seronegative Celiac, meaning the blood tests are negative but the biopsy is positive, may occur in up to 20% of Celiacs. Antibodies for gliadin (AGA), the toxic fraction of gluten are considered very sensitive but not specific for Celiac disease. Newer assays for AGA antibodies for gluten that has undergone a chemical change called deamidation appear to be more specific for Celiac disease (Gliadin II, Inova) than the older gliadin tests. They also may be as or more accurate than EMA and tTG antibody tests but are not yet widely available. The most distressing problem for people with lesser forms of gluten intolerance who have blood tests and/or biopsies that are normal or borderline yet respond to a gluten free diet is either not being taken seriously or knowing for sure if they are sensitive to gluten. For these individuals stool antibody testing for antigliadin and tTG have been helpful. Such stool testing has been performed in research labs and published in a few studies but are only recently available through the commercial lab, Enterolab. Founded by a former Baylor research gastroenterologist, Dr Ken Fine, the tests are available to people online without a doctors order but are not generally covered by insurance. Dr. Fine, who patented the test, has yet to publish the results of his findings in a peer reviewed journal so his tests are not widely accepted. However, his unpublished data and the clinical experience of some of us who have used his test have indicated the tests are very sensitive for signs of gluten sensitivity. He reports that they are 100% sensitive for Celiac disease and highly sensitive for gluten sensitivity of lesser degrees. In the presence of symptoms, that reverse on a gluten-free diet, abnormal stool antibody levels can be found in most people before blood tests or biopsies become abnormal. Small intestine biopsies during upper gastrointestinal endoscopy are considered the “gold standard” for the diagnosis of Celiac disease. However, recent studies have demonstrated that some people with gluten sensitivity, especially relatives of Celiacs with little or no symptoms, have changes from gluten injury to the intestine that can not be seen with normal microscope examination. They can only be seen with special stains not routinely done or with a research electron microscope. The special stains are known as immunohistochemistry stains. They stain specialized white blood cells called lymphocytes in the intestinal lining tips or villi. When these lymphocytes are increased it is known as intraepithelial lymphocytosis or increased IELs and it is the earliest sign of gluten induced injury or irritation. Electron microscopy also reveals very early ultrastructural changes in some individuals when blood tests and standard biopsy examination are normal. When people who have these changes are offered the option of a gluten-free diet they usually responded favorably. In contrast, those who continue to eat gluten often later developed classic Celiac disease. What these studies suggest is that a “normal small intestine biopsy” may exclude Celiac disease as defined by strict criteria but it is not a gold standard for detecting gluten sensitivity. This fact is appreciated by many individuals who have respond to a gluten-free diet they start based on their symptoms, family history, suggestive blood test or stool antibody test(s). Another source of confusion is in the genetics of Celiac and gluten sensitivity. Testing for specific blood type patterns on white blood cells known as HLA DQ2 and DQ8 is increasingly being employed to determine if a person carries either of the two gene pattern present in 95-98% of Celiacs and predisposing them to the development of Celiac disease. Some use the absence of these two patterns as a way of excluding the possibility of Celiac disease and the need for testing or gluten-free diet. However, there are rare reports of documented Celiac disease in people who are DQ2 and DQ8 negative. Moreover, recent studies indicate other DQ patterns may be associated with gluten sensitivity though unlikely to predispose to classic Celiac disease. Testing for all the DQ patterns is advocated by Dr. Fine, based on his experience with stool antibody test results. He reports that other DQ types are associated with elevated levels of gliadin and tTG in the stool and symptoms that respond to a gluten-free diet. According to his unpublished data, all the DQ types except DQ4 are associated with a risk of intolerance to gluten. Therefore, testing for all the DQ types allows a person to determine if they carry one of the two high risk gene types for Celiac disease or any of the other " minor DQ " genes Fine has found associated with gluten sensitivity. Enterolab's stool testing for gliadin antibodies and tissue transglutaminase antibodies, though not widely accepted, have gained favor in the lay public’s opinion as an option for determining sensitivity to gluten either despite negative blood tests and/or biopsies or in place of the more invasive tests. Most doctors still recommend the accepted blood tests and small bowel biopsy for confirmation of Celiac. Though the reports in the lay community are overwhelmingly positive they have not been subjected to peer review in the medical community pending Dr. Fine publishing his data or other researchers reproducing his results. However, doctors open to the broader problem of gluten sensitivity are reporting these tests helpful in many patients suspected of gluten intolerance. Especially when someone has symptoms consistent with gluten sensitivity but has negative or inconclusive blood tests and/or biopsies these tests may be very helpful though some are not certain how to interpret the tests. The national Celiac organizations are uncertain about how to comment on their application without published research though a recent article in the British Medical Journal did show stool tests highly specific for Celiac. Dr. Fine has publicly commented that his unpublished data demonstrates those with abnormal stool tests indicating gluten sensitivity overwhelmingly respond favorably to a gluten free diet with improvement of symptoms and general quality of life. Another problem is that there are not universally agreed upon definitions for gluten sensitivity or intolerance. This becomes especially difficult for those who do not meet strict criteria for Celiac disease yet may have abnormal tests and/or symptoms that respond to a gluten-free diet. Those individuals become confused when they try to find information but do not have a formal diagnosis of Celiac disease. Consensus in the medical community on definitions and more research in this area is greatly needed. The few doctors who appreciate the spectrum of gluten intolerance or sensitivity are outnumbered by the medical majority that continue to insist on strict criteria for diagnosis for Celiac disease before recommending a gluten-free diet. Doctors either unfamiliar with the limitations of the tests as documented by Celiac research or who insist on the strict criteria for Celiac being the only indication for recommending a gluten free diet unfortunately may confuse or frustrate gluten sensitive individuals. Some of these people then seek answers on the internet or from alternative practitioners. Many have their diagnosis missed, challenged, dismissed, or are misinformed. As a result they fail to benefit from the health benefits of a gluten-free diet because they are advised that it is not required based on normal blood tests and/or normal biopsies. In the meantime, Celiac disease and gluten sensitivity continue to be undiagnosed or misdiagnosed. For more information visit http://www.thefooddoc.com. Dr. Scot Lewey is a physician who is specialty trained and board certified in the field of gastroenterology (diseases of the digestive system) who practices his specialty in Colorado. He is the physician advisor to the local Celiac Sprue support group and is a published author and researcher who is developing a web based educational program for people suffering from food intolerances, http://www.thefooddoc.com Article Source: http://EzineArticles.com/?expert=Dr._Scot_Lewey From: [mailto: ] On Behalf Of Debbie Duncan Sent: Sunday, October 21, 2007 8:06 AM Subject: Re: [ ] Re: enterolab The scientists at the International Celiac Symposium in New York last year said that stool testing is NOT reliable for CD. It's fair to ask Dr. Fine if he has published his methods and results in peer-reviewed scientific journals. Until his methods can be duplicated, buyer beware. Debbie On 10/19/07, Karie Klim <Karie@...> wrote: The test is specific for CD associated gene and non-celiac associated gluten sensitivity gene. They also test for presence of tissue reaction of the immune system to attack the body. You may want to check the tests available at Enterolab and see new developments and product descriptions. -----Original Message----- From: " HiDee HoMan " <hideehoman@...> " " < > Sent: 10/19/07 6:52 PM Subject: [ ] Re: enterolab Last time I looked (pretty recently), enterolab doesn't test for, nor claim to test for, celiac. They DO test for gluten intolerance, and it does appear that a non-dx'd celiac who hasn't yet gone gf will test positive as GI. But I don't think that means we should say enterolab's results equal a diagnosis of CD. Don't get me wrong - I'm all for anything that helps those who should be gf start eating gf. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 > > Remember that Celiac Disease is an end state of gluten intolerance, . . .. I don't think this statement is true, tho I've seen others occasionally assert it. I see them as 2 seperate conditions, in varying degrees, not as segments along a continuum. I don't think I've ever seen any research papers claiming that " CD is an end state of GI " , but I must admit I don't still follow it as closely as I once did. On a related topic, all the genetic research I've seen admits that it's not all nailed down, and that there ARE ppl w/ CD who have neither of the accepted " associated " genes, DQ2 & DQ8. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 I agree that there are probably lots of factors about CD that have not been nailed down. There is plenty that is known about CD, but a vast world of unknowns. It is important to keep an eye open for new research as we move into the future. Research of the past always comes into review and revision potential as we move into the world of the unknown. In the research world, the structures of thinking are always moving and reorganizing in order to entertain new knowledge. The important thing is, are people benefiting? Or, are people being hindered because of a slow-moving socio-medical model structure? Are we so stuck on being right that we sacrifice the benefit we could have be being open? The bell curve honors mostly people who fall within the 68% of the population on any subject. There is a lot of room for individualizing outside of that framework and we need to keep an open mind to consider options for people who fall outside of the norms. Western Medicine and Alternative Medicine are so complimentary for this reason. Where do most people go who have not found answers in Western medicine? Who are the people who do not find answers in Western medicine? Are they the people who fall outside of the 68%? The remaining 32% of the population are a pretty significant chunk of society. These people are seeking care in alternative medicine and many are finding answers. There is a segment of medical care providers and a trend that I’ve seen in the past decade who are seeking more of a balance of Western and Alternative care, such as those in integrative medicine because our society is calling for openness. My 2-cents, Karie From: [mailto: ] On Behalf Of HiDeeHoMan Sent: Sunday, October 21, 2007 12:38 PM Subject: [ ] Re: enterolab > > Remember that Celiac Disease is an end state of gluten intolerance, . . .. I don't think this statement is true, tho I've seen others occasionally assert it. I see them as 2 seperate conditions, in varying degrees, not as segments along a continuum. I don't think I've ever seen any research papers claiming that " CD is an end state of GI " , but I must admit I don't still follow it as closely as I once did. On a related topic, all the genetic research I've seen admits that it's not all nailed down, and that there ARE ppl w/ CD who have neither of the accepted " associated " genes, DQ2 & DQ8. Quote Link to comment Share on other sites More sharing options...
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