Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Thanks for the additional input Gretchen. I am looking at many options. I suspect your ortho man works out of SJ in SM? My biggest concern is being able to go to an internist that understands CMT. I recently went to a dermetologist for my yearly head to toe look over, (I do love the sunshine). When he got to my feet the first thing he asked me was if I had polio as a child, after I told him no he ran down 3 or 4 other conditions, all prompted a negative response from me. When I told him I had CMT he screwed up his face and said, " you have what " ? After my brief explanation he recalled reading about it somewhere. Mind you this doctor has written numerous papers and articles for the AMA Journal on skin cancer! He reminded me to lather on the sunscreen and beat a hasty retreat. I had a good laugh! In fact it made my day. Regards, BC ----- Original Message ----- From: Gretchen Glick <liliwigg@...> < > Sent: Tuesday, January 30, 2001 4:45 PM Subject: [] Health Insurance > Hey Bill, > > Blue Cross has a booklet outlining there 'different menu items' LOL a > 'menu' for health insurance! Anyway, the one I have is called " Prudent > Buyer " since I don't need all that pregnancy/maternity/jazz, so that is > out, and with the prescriptions, they would only pay for a 30 day > supply. And 1 script at a time. I found this to be aggravating, so I > just get my meds,as many as I need, pay for them myself, and get the > deduction I need. I am not 100% sure that Genetically Handicapped > Persons Program is still up and running. It would have been good > insurance, all with UCLA. However, it required a physical FIRST at UCLA, > which required another EMG! TO which I said HE-- NO! > > Since you are in Calif. here's something else, you might look into > Kaiser's HMO program if you want to go that route. Everybody I know who > goes to Kaiser's Docs likes them and the 'service' - however they don't > have CMT. > > I do not think that a person can be turned down for health insurance and > pre-existing conditions anymore. Somewhere in my head is a law about > that, I think. However, I hear it still happens. > > Also look into Blue Sheild...I think more pricey, maybe. What I said > earlier about Blue Cross, well, St. 's hospital in Santa will > NO LONGER take persons who have Blue Cross! Something with the terms of > the contract couldn't be renegotiated, or somebody somewhere can't make > enough money.... > > ~ Gretchen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 This has nothing to do with this reply here but i have a question i have had cmt sice i 6 1977 i lost both calf muscles by the age 11 and now that i`m 29 i have noticed the speed of wich it works its now in my hands i have four parts of my body that have polllarase has set in is there any other people out there that can tell when it`s working on them now that think i`ts active in them and scared about what more damages can be done-and where i have it my lower legs real bad not to mention the surgray i have had to my feet as a kid but being 29 now and feel like i`m in a 70 yr old body my upper body is being attact now what do i have to look forward too? thought this disease worked slow ???????? i some times just cant cope watching my body melt away i`m only 29 !!!!-- Gretchen Glick <liliwigg@...> wrote: > Hey Bill, > > Blue Cross has a booklet outlining there 'different > menu items' LOL a > 'menu' for health insurance! Anyway, the one I have > is called " Prudent > Buyer " since I don't need all that > pregnancy/maternity/jazz, so that is > out, and with the prescriptions, they would only pay > for a 30 day > supply. And 1 script at a time. I found this to be > aggravating, so I > just get my meds,as many as I need, pay for them > myself, and get the > deduction I need. I am not 100% sure that > Genetically Handicapped > Persons Program is still up and running. It would > have been good > insurance, all with UCLA. However, it required a > physical FIRST at UCLA, > which required another EMG! TO which I said HE-- NO! > > Since you are in Calif. here's something else, you > might look into > Kaiser's HMO program if you want to go that route. > Everybody I know who > goes to Kaiser's Docs likes them and the 'service' - > however they don't > have CMT. > > I do not think that a person can be turned down for > health insurance and > pre-existing conditions anymore. Somewhere in my > head is a law about > that, I think. However, I hear it still happens. > > Also look into Blue Sheild...I think more pricey, > maybe. What I said > earlier about Blue Cross, well, St. 's hospital > in Santa will > NO LONGER take persons who have Blue Cross! > Something with the terms of > the contract couldn't be renegotiated, or somebody > somewhere can't make > enough money.... > > ~ Gretchen > __________________________________________________ Get personalized email addresses from - only $35 a year! http://personal.mail./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2005 Report Share Posted December 6, 2005 Hi all, I've got celiac disease, ulcerative colitis, and psoriasis. The psoriasis hasn't affected me since 2004. I'm very good about eating gluten free, but while I can't afford the medicine for my ulcerative colitis I try to manage it as best as I can and haven't had a flare up in a long time. The question I have is about health insurance. Does anyone know of any good plans that help with these specific disorders without huge premiums? Also, are there any groups that can help a person like me find health insurance? (I work freelance and most places that would hire me don't provide health insurance, unfortunately.) Thanks, Alice __________________________________________ DSL – Something to write home about. Just $16.99/mo. or less. dsl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Bluegrass / Remicaid ,,, only @ homehealth care for administeringFoodCity / too high of copay and deductable to receive it Eastern , Kentucky Christie Costello <clcostello@...> wrote: Hello everyone, I have been a lurker for about 2 months. I will be getting group insurance for my own company, and I will be starting treatment for newly diagnosed RA. After doing some research and getting lots of wonderful information from all of you, I would like my doctor to go the aggressive route with my treatment...straight to TNF-blockers/biologics such as Enbrel, Humira, or Remicade, if possible. I would like to hear about your experiences with various health insurance companies and their coverage in order to more easily make my decision. Here are my questions...for those of you who wanted to go or did go the biologics route: 1. What state are you in? 2. What insurance company do you have, if any? 3. What did your insurer cover or decline? 4. Tell me anything else you can about the experience with your insurer. Thank you, in advance for your input. If I hear from enough of you, it really may help me choose the best insurance plan. So, please...lurkers respond too!!! I need you!!! Thanks, Christie f/30, So. California Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Hi Christie, This is Steph in VA. In response to your questions: 1. I'm in Virginia 2. I have MAMSI Optimum Choice Insurance, based in land. (http://www.mamsi.com/w/index.jsp) 3. My insurance has covered everything. My rheumy is a participating provider so I get my labs, X-rays & bone density scans at his office. All of my meds are covered. I take Sulfasazine, Ibuprofen, Methotrexate, Prednisone & Folic Acid and each Rx costs $10 per month. I get Remicade through Home Health care, which is covered 100% -- without a co-pay. I get the Remicade & supplies sent directly to me & a home health nurse comes to my house every 6 weeks. The home health company contracts with MAMSI (the agency isn't a participating provider, so the agency bills MAMSI, MAMSI sends payments to me, and I send them to the agency). I pay $20 for a Primary Care visit & $40 for a Specialist. 4. I have also had Blue Cross/Blue Shield but they stink. Take care, Steph in VA Christie Costello <clcostello@...> wrote: 1. What state are you in?2. What insurance company do you have, if any?3. What did your insurer cover or decline?4. Tell me anything else you can about the experience with your insurer.Thank you, in advance for your input. If I hear from enough of you, it really may help me choose the best insurance plan. So, please...lurkers respond too!!! I need you!!!Thanks,Christief/30, So. California . ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ "Never underestimate the power of a small, dedicated group of people to change the world -- indeed, it's the only thing that ever has." (Margaret Mead) AmeriCorps Alums -- We're Still Getting Things Done Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.