Summary - Fwd: GF

[Guest guest]

The reason for my posting was concern that someone recently posted

incorrect information that might mislead people. All of the responses

I received confirm that there are no US Gov't regulations about Celiac

Disease.

The point is: DO NOT TAKE ANONE'S WORD ABOUT ANYTHING IMPORTANT.

If the information is valid, you should be able to find it in a

reputable publication, a gov't website (all laws and regulations can

be looked up easily from the web), or a reputable Celiac website. If

the information cannot backed up with a reference, credentials or

common sense; please question it. Also, if you are unsure of your

information, say so.

Celiac disease causes depression, ostracism, alienation and confusion.

We do not need to add misinformation to those feelings. We should be

here to support each other.

By the way, his can be confirmed at www.fda.gov, as well as numerous

Celiac research & support websites & publications. It also comes up

at conferences like the Stanford Celiac Conference, usually held in

September. This is a great conference for veteran, newbie & medical

professional alike.

I hope I didn't rant to much, but I feel very strongly about being

supportive and accurate in this environment.

Dan

---------- Forwarded message ----------

From: Dan Pollak <dan.apo@...>

Date: Dec 1, 2005 11:37 PM

Subject: Fwd: GF

Celiac Listserv <CELIAC@...>,

It is my understanding that the US Government has yet to determine a

standard for the term " Gluten Free. " I have been advised by

researchers & celiac resources that this is the case. I recently

researched the US FDA regulations, but I could not find any regulation

about this topic.

If anyone has knowledge of this regulation, please pass it along.

For now, I consider any label to say " Gluten Free " to be only as good

as the manufacturer's reputation.