Re: Welcome newbies!

[Guest guest]

Hello Joyce S

I live in State College Pennsylvania, about 8 miles out of town actually.

I live alone and we got a foot of snow the other day.

I can't shovel much but I have a 4 wheeler with a plow on it.

I didn't figure the name thing mattered much except I might be more likely to

broach certain subjects as a unknown!

I have been exposed anyway so if you want I'll give you my address!!

Thanks for the welcome.

I'm hoping that blackiebowman made it to the mall (getting some deals).

ROCKY

----- Original Message -----

From: Joyce S

Sent: Thursday, January 10, 2002 12:33 PM

Subject: [] welcome newbies!

Dear June, Blackiebowman, and Rocky,

Welcome! I know Rocky you said you were from PA--what

area, if you don't mind? I'm originally from

Pittsburgh, but been living in Erie on my own for 13

years now. I suppose if you created a surname to use

the group you probably won't feel comfortable telling

us where you're from, but it helps to know what kinds

of obstacles you deal with. In Pgh, there were hills

and snow and ice. Here in Erie there is snow, but

it's pretty flat for the most part. And not as much

ice! And generally speaking, Erie people help each

other more--if my car is stuck, you behind me aren't

going anywhere til I get out of your way!--so people

help each other through the snow.

But as Blackiebowman said, here in Erie too the

handicapped parking spaces and ramps are the

designated snow piling areas. Pet peeve number 115!

Welcome to the group!

TTFN

Joyce

__________________________________________________

[Guest guest]

Marie,

Thatwasa wonderfulstory and heres one that I have IgD,that is no

immune system and my ID Dr. has depleated all my life time benefits from my

husband policy. I can no longer get sick. That Suck!!!!!!!

Lynn

-- Re: [ ] welcome newbies!

Hi, Everyone,

I've been away from email for a bit, and just encountered our new group of

Lymies!

I am so sorry that you all had to go looking for us -- it's not fun to

have Lyme. But this is a wonderful group of people! I've received a lot

of help and support here.

If anyone is interested in some excellent info about Lyme, I recommend two

websites to you: www.lymenet.org and also www.ilads.org. (That's

eye-ell--ads) LOL! I can never tell the difference in typed print!

For a good LLMD recommendation (that stands for Lyme Literate Doctor) you

can go to lymenet.org and click on Flash Discussion. Look for 1) the

category called Seeking a Doctor and 2) under Medical Questions look for

Tin Cup's Links for New Members.

It is absolutely imperative for all of you to find an LLMD. Normally we

don't think of Lyme as a disease that must be treated by specialists;

after all, can't our primary care physician give us antibiotic treatment?

The answer is that there is so much going on in Lyme studies right now,

and so many doctors who are NOT moving forward with the latest research

and information, that it is *terribly* important to see an LLMD.

If anyone needs one, try posting your state here, too, and I bet you'll

find someone on this list who can refer you to an LLMD in your area.

Yes, Lyme can be the cause of CFS and Fibromyalgia. I was dx'd with CFS

for 5 years before I found an LLMD who dx'd my Lyme. It gave my life a

whole new hope and meaning.

There is probably some debate ab. whether the CFS is triggered by Lyme, or

whether the CFS IS Lyme itself. But by treating the Lyme, you can

improve.

BTW, have all of you been checked out for co-infections? Something that

your PCP *won't* know, and won't test for, are the infections that a tick

can spit into you right along with the Lyme.

Nasty, huh!

These are: Erlichia, Babesia, and Bartonella.

These often require different treatments from the Lyme antibiotics.

And if these infections are not caught, you will remain sick, and a

non-LLMD who doesn't know ab. co-infections will give you the lines we

have all heard.... you're just anxious... you need a vacation, etc. etc.

I am interested in alternative things, too. In fact, I just started

trying acupuncture for my chest and rib pain.

It has been a long day and I am feeling Lyme brain come on, so I'll close

for now. But I wanted to wish all of you a sincere welcome. Feel free to

ask questions!

Hope to talk with you all more soon.

Sincerely,

Marie

[Guest guest]

On 1/4/07 9:11 PM, " piglet95037 " <csilverstein@...> wrote:

> I've noticed that we have recently added on a few new members!

> Welcome to the group. Please take a moment to introduce yourselves!

Greetings everyone. I've posted a few times already, but never properly

introduced myself. My name is Joe . I live in Danville with my wife and

two boys, ages 2 and 5.

I was diagnosed with celiac about a year ago. It was hard at first, but it

is truly amazing how much better I feel now that I'm on a gluten-free diet.

I would feel sick whenever I ate, had headaches and joint aches all the

time, and would basically go to bed right after work because I had no

energy. I hardly ate anything at all because it was so unpleasant, but still

managed to keep gaining weight. All that is gone now - my energy is back,

the weight is going down, and I feel great.

My education and former profession was in classical music and I play the

double bass and some guitar as well. However about ten years ago I got

sucked into the whole boom of high tech and have been doing web design and

development ever since. I recently began classes in pursuit of a second

masters degree in computer science, just to make it official.

My hobbies include practicing the bass and guitar, computer geekery,

blogging, and playing duets and chamber music with my wife (an excellent

pianist) and other friends. (We are always looking for other string

players...)

I was glad to find this list recently. It is very helpful information, and

comforting to know that I'm not alone. ;-)

Cheers,

Joe

--

Joe

http://sanbeiji.com/

" You can't wait for inspiration. You have to go after it with a club. "

--Jack London

[Guest guest]

Hi Joe and thanks for posting...out of curiousity, do either of your

boys shows symptoms of CD?

I'm always amazed when people are so musical - mainly because I am so

not! I'm also in awe that you went back and earned a second master's

degree. You are someone I am absolutely going to be admiring for some

time.

Anywho, thank you for posting!

Carla

[Guest guest]

--- In , " piglet95037 " <csilverstein@...>

wrote:

>

> I've noticed that we have recently added on a few new members!

> Welcome to the group. Please take a moment to introduce yourselves!

>

> Carla

>

Hello all,

I haven't posted before, but I've enjoyed the group since joining just

before Christmas. I was diagnosed with CD 3 years ago after many years

of feeling unwell. I live in the north bay, but get to Berkeley or San

Francisco on occasion. Recently, I had lunch at Vik's, in Berkeley. I

was a little worried that it would cause problems, but I was fine. I

had the masala dosha, which I saw was cooked on a separate griddle.

You can see the food being prepared here, and it is a friendly, busy

place. I purchased some pappadams at the grocery next door to Vik's,

but I'm not sure how to warm them up. Any suggestions?

I've also been to a gluten-free cafe and bakery in downtown . I

don't remember the name, but I'll post it later.

Regards,

Eula

[Guest guest]

Hi Eula,

Welcome to the group! What part of the north bay do you live in? I live in San Anselmo and would love any local tips as I'm fairly new!

Cory

Hello all,I haven't posted before, but I've enjoyed the group since joining justbefore Christmas. I was diagnosed with CD 3 years ago after many yearsof feeling unwell. I live in the north bay, but get to Berkeley or SanFrancisco on occasion. Recently, I had lunch at Vik's, in Berkeley. Iwas a little worried that it would cause problems, but I was fine. Ihad the masala dosha, which I saw was cooked on a separate griddle.You can see the food being prepared here, and it is a friendly, busyplace. I purchased some pappadams at the grocery next door to Vik's,but I'm not sure how to warm them up. Any suggestions? I've also been to a gluten-free cafe and bakery in downtown . Idon't remember the name, but I'll post it later. Regards,Eula

[Guest guest]

Hello Cory,

I live in west Marin, but do some shopping in Petaluma and Santa

. I don't know where you would shop in San Anselmo, but I find

that fresh produce is a big part of my diet, so you might try the

Marin Farmers Market. I buy some things at Whole Foods, but it is

very expensive. They do have frozen baked goods that are made in a

gluten free kitchen. They also have gluten free cakes (that are made

on the premises?) which are nice for a really special treat. For

example, they have a Lemon Almond cake that is really good.

As for going out to eat, I don't do that very often, but Indian food

is a good choice. I haven't tried it yet, but I've heard of a rather

new restaurant called Om, in downtown San .

Regards,

Eula

[Guest guest]

Hi Eula,

Thanks for the info, I love farmer's markets, but somehow never seem to be available on the days and times they have them! I did go to the berkeley FM on sat, which is nice, but really overpriced. I love the thursday night SR FM in the summer. I buy at WF too, but it is def so expensive! I'm not very impressed with their WF brand baked goods, they tend to have SOOOO much sugar! Maybe I'll try the Om sometime!

Cory

Hello Cory,I live in west Marin, but do some shopping in Petaluma and Santa . I don't know where you would shop in San Anselmo, but I find that fresh produce is a big part of my diet, so you might try the Marin Farmers Market. I buy some things at Whole Foods, but it is very expensive. They do have frozen baked goods that are made in a gluten free kitchen. They also have gluten free cakes (that are made on the premises?) which are nice for a really special treat. For example, they have a Lemon Almond cake that is really good.As for going out to eat, I don't do that very often, but Indian food is a good choice. I haven't tried it yet, but I've heard of a rather new restaurant called Om, in downtown San .Regards,Eula

[Guest guest]

Not that I know of, and I think I've found most places now. We have

a choice of Whole Foods, TJ's, Beehive - and my local Lunardi's has

some good cake mixes. I'm trying to get them to stock Crave's baked

goods, and Mariposa's biscotti, so we'll see.

I've been fairly successful now at baking bread with a mix of rice,

millet, corn and buckwheat flours. You need to add a hint of sugar

to make the yeast rise, but the bread is very hearty, not sweet. I

also find that it doesn't have the strange aftertaste of garbanzo or

amaranth flours.

Steph

At WF, try Bakehouse Prairie Bread;

it's definitely not sugary! It's rich flavor comes from the use of

various seeds. WF Bakehouse also makes a tomato-garlic bread that's

not at all sweet; it's great with cheese. I've not tried their

sandwich bread. Their cinnamon raisin bread is very sweet, to my

taste.

>

> Also look at the lovely " I Can Eat That " bread (and their pizza

crust), sold at Real Foods and other stores, but not at WF. You buy

it frozen, defrost it and let it rise, and bake it yourself - - you

wind up with fresh-baked bread, when you want it!

>

> H.

> In a message dated 1/15/07 12:08:34 PM, cory66katt@... writes:

>

>

> I'm not very impressed with their WF brand baked goods, they

tend to have SOOOO much sugar!

>

[Guest guest]

Hello,

I am a newbie and thought I'd introduce myself. I've been living a GF

life for over two years now and have spent/wasted more money that I

should have trying to find GF bread that tastes good.

Can you give me the price point for the " I Can Eat That " products? I

am currently paying $9.00 for a small, yet tasty loaf of Grindstone GF

bread. Yikes!

Any help would be appreciated.

Thanks!

>

> > Also look at the lovely " I Can Eat That " bread (and

> > their pizza crust), sold

> > at Real Foods and other stores, but not at WF. You

> > buy it frozen, defrost it

> > and let it rise, and bake it yourself - - you wind

> > up with fresh-baked bread,

> > when you want it!

>

> Actually the owners of I Can Eat That posted here just

> last week that their products are now being carried by

> a couple of Whole Foods markets (Walnut Creek at Los

> Altos) and that people can request/suggest to the

> frozen foods buyer in their local WFM to start

> stocking them too. I know I plan to do just that! I

> like their pizza crusts a lot.

>

>

>

>

>

>

________________________________________________________________________________\

____

> The fish are biting.

> Get more visitors on your site using Search Marketing.

> http://searchmarketing./arp/sponsoredsearch_v2.php

>

[Guest guest]

Ouch- that price is on par with Whole Foods bakehouse bread (in Ca

that is). I can Eat that is/was a very reasonable $4 last time I

bought it at the Spica coffeeshop in Mountain View on Castro street.

Local company, local prices. And IMO it tastes way better than the

other " bargain " doorstop, Food for life bread. My favorite product is

their unbaked bread- I'm a pizza snob so make my own.

The best, cheapest bread is probably homemade, though- I am a big fan

of Bette Hagman, as everyone who sees me online is probably entirely

too aware. Lol.

>

> Hello,

>

> I am a newbie and thought I'd introduce myself. I've been living a GF

> life for over two years now and have spent/wasted more money that I

> should have trying to find GF bread that tastes good.

>

> Can you give me the price point for the " I Can Eat That " products? I

> am currently paying $9.00 for a small, yet tasty loaf of Grindstone GF

> bread. Yikes!

>

> Any help would be appreciated.

>

> Thanks!

[Guest guest]

Hi,

My name is Kathleen. I live in the Willow Glen area of San . I'm

a newly diagnosed Celiac (one week before Thanksgiving 2006 -- thank-

you-very-much!) And am looking for GF resources, a support group, and

events to better help me manage my disease. This is my first time

posting to a message board (of any kind). Truly a newbie.

Kathleen

--- In , " piglet95037 " <csilverstein@...>

wrote:

>

> I've noticed that we have recently added on a few new members!

> Welcome to the group. Please take a moment to introduce yourselves!

>

> Carla

>