Dapsone for DH and oats

[Guest guest]

You should talk to your doctor about using

Dapsone. Dapsone is a prescription medication that can suppress the DH

manifestation of celiac disease, but not the gut damage. Dapsone can help

with symptoms while the body is recovering from gluten exposure. I have

also heard something about rubbing or irritation causing outbreaks of DH, but I’m

not positive about this.

Sensitivity to other grains than WRBO is

common among celiacs. Celiacs often have leaky guts that allow foreign

proteins into the blood, where they cause autoimmune reactions. WRBO

glutens cause the damage to the gut and also create autoimmune reactions.

Thus, many celiacs are sensitive to corn, soy, peanuts, milk, etc.; but this is

separate from the celiac disease. If you avoid the grains causing the

reactions, the antibodies often eventually fade and those grains may be safely

eaten again. Of course, this is not the case with wheat, barley, rye, and

(often) oats. Some celiacs report sensitivity to alternative grains such

as canola, quinoa, and amaranth as well.

The oat protein is suspected to actually

cause gut damage, so it’s role is different than corn, soy, etc. Research

shows that some celiacs react to oats, others don’t. I have not

seen any studies that follow-up the subjects after 5 and 10 years of eating

oats. Until I do, oats are not part of my family’s diet.

Pam Newbury

Santa Cruz Celiac Support Group

From:

[mailto: ] On

Behalf Of jennenault

Sent: Tuesday, April 24, 2007 6:59

PM

Subject: [ ] Re:

gluten free oats for baby?

Well, here is my story...

I go to a clinic called HealthNow in Sunnyvale.

Within 5 minutes of

talking to the doctor, he said, " Stop eating wheat. " I am 36 with a

horrible case of DH, and have been unable to lose the last 20 pounds

no matter what diet I tried. Within two weeks of gluten free, my DH

was improved. I slept at night, and I had less anxiety.

My DH is better, but not completely cured. (anyone know someone who

can help?) We started going through the other grains, and after

eliminating them ALL, I started to slowly lose the rest of the

weight. About 5 pounds a month, but I am eating healthy and

exercising, so it is SLOW! If I have a serving of any other grain,

other than gluten, I gain several pounds overnight, but my DH isn't

affected. If I go near real pasta, I get blisters and my DH is so

much worse than it ever was.

This is only by a person by person basis. By no means does everyone

who have celiac have issues with other grains. But there may be a

link. For those who aren't completely cured, it is a starting point,

I would think.

It could be though, that the corn you were eating, Eula, was just

exposed to the dreaded gluten. If you are curious, cut out corn

completely for at least a week, then introduce it plain. If you have

a reaction, you know why. If not, try it prepared a different way

several days later, i.e. Polenta, Corn Chips, Gorilla Munch, etc...

You may find it's another ingredient altogether.

I am still new to this (9 months), so please take anything I have

stated with a grain of salt. I am still working through my issues, so

I probably shouldn't be stating anything at all! I am just really

excited to have found this group!

Jenn

> >

> > Hello Jenn,

> >

> > It's very interesting that your nutritionist said that other

grains,

> > like rice, have a protein similar to gluten. I always thought

that

> > the gluten-containing grains, wheat etc, were very different,

and

> > hence caused the celiac reaction.

> >

> > But I've wondered, since sometimes I do seem to react to corn,

for

> > example. Do you know where I might be able to find out more about

this?

> >

> > Thanks,

> > Eula

> >

>