Re: Re: gluten free oats for baby?

[Guest guest]

oops, i didn't explain...I am diagnosed celiac (via skin biopsy for DH) and am awaiting gene test results. I thought I had read something about the protein chains, and wondered if there was a strong reason for him not to eat gf oats. jennenault <jennenault@...> wrote: >> Hi all, > I have an 8 month old who I am

trying to keep gluten free until a year > old, when I will slowly introduce it. I bought oats from Gluten Free > Oats--is there any reason why I can't feed this to my little one? > If not, what other options do I have besides rice cereal? > Thanks!> Jill>Hi Jill - Just curious as to why you are keeping baby gluten free? I know there are a lot of reasons, but I was just curious. I think the Gluten Free Oats should be OK if you are staying away from the gluten protien. My nutritionist has warned me that all grains, even rice, soy, GF oats and corn, have similar protien structures, and some digestive systems (including mine) may be "confused." So if you have a specific problem you are trying to address with your little one, you may want to ask your pediatrician.Best of luck!Jenn

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

OK I'm not a science expert but here is my understanding of why rice and corn are fine for all celiacs (except those with other food intolerances)Glutens exist in many grains (corn, rice, etc), however it is not actually all glutens that people with celiac disease are intolerant of. We are only intolerant of gliadins, which are a glycoprotein that only exist in wheat, rye and ther derivatives... And I think one other gluten that is specific to Barley. Corn and rice and other grains we call " gluten-free " do not contain gliadins, so my understanding is if person is intolerant of them it has nothing to do with celiac disease (besides perhaps that our guts are damaged to begin with which makes us intolerant of other foods sometimes).

http://www.medterms.com/script/main/art.asp?articlekey=11381Corn is a very common allergen but an even more common trigger of IBS and other digestive symptoms - it is INCREDIBLY hard to digest (less so once it's ground up, such as masa). I cannot ea too many whole kernels of corn because I will immediately be in the bathroom - But it has nothing to do with the gluten in it, since I'm only intolerant of gliadin glutens (and the other one that's found in Barley).

So apparently the term " gluten-free " or " gluten intolerance " is a misnomer. And believe me, from the lists I'm on, it seems many new celiacs have sadly and mistakenly avoided rice, corn, etc because they discovered those foods contained " gluten " when in fact they don't contain the gluten that a celiac has to be concerned bout.

Isaiah-- Gluten-Free By The Bayhttp://glutenfreebay.blogspot.com

[Guest guest]

Jenn, I started this thread, but funny enough, I live in Sunnyvale too (33 yo) and was initially diagnosed with DH. Going GF has hugely helped the itching, and I know within a day if I accidentally glutened myself bec. the blisters reappear. they are a good reminder of why i am on this diet bec. the itching is so intense!! I have been on the diet about 8 mos. as well hope you are feeling better soon. as far as my son goes, i have heard so many conflicting things about what to feed babies of cd parents, so for me, i am keeping him off of all wheat, barley, rye and will slowly introduce it around a year and watch him. jilljennenault <jennenault@...> wrote: Well, here is my story...I go to a clinic called HealthNow in Sunnyvale. Within 5 minutes of talking to the doctor, he said, "Stop eating wheat." I am 36 with a horrible case of DH, and have been unable to lose the last 20 pounds no matter what diet I tried. Within two weeks of gluten free, my DH was improved. I slept at night, and I had less anxiety.My DH is better, but not completely cured. (anyone know someone who can help?) We started going through the other grains, and after eliminating them ALL, I started to slowly lose the rest of the weight. About 5 pounds a month, but I am eating healthy and exercising, so it is SLOW! If I have a serving of any other grain, other than gluten, I gain several pounds

overnight, but my DH isn't affected. If I go near real pasta, I get blisters and my DH is so much worse than it ever was.This is only by a person by person basis. By no means does everyone who have celiac have issues with other grains. But there may be a link. For those who aren't completely cured, it is a starting point, I would think.It could be though, that the corn you were eating, Eula, was just exposed to the dreaded gluten. If you are curious, cut out corn completely for at least a week, then introduce it plain. If you have a reaction, you know why. If not, try it prepared a different way several days later, i.e. Polenta, Corn Chips, Gorilla Munch, etc... You may find it's another ingredient altogether.I am still new to this (9 months), so please take anything I have stated with a grain of salt. I am still working through my issues, so I probably shouldn't be stating anything at all! I am just

really excited to have found this group!Jenn> >> > Hello Jenn,> > > > It's very interesting that your nutritionist said that other grains, > > like rice, have a

protein similar to gluten. I always thought that > > the gluten-containing grains, wheat etc, were very different, and > > hence caused the celiac reaction.> > > > But I've wondered, since sometimes I do seem to react to corn, for > > example. Do you know where I might be able to find out more about this?> > > > Thanks,> > Eula> >>

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Iodine is known to cause itching in some

DH cases because it seems to reactivate the gluten stored in the skin or

perhaps activates the immune cells in the skin which then react to the gluten

stored there. What is the half life of gluten anyway? How long does it take

to get all of it out of the system?

You might want to reduce your iodine load

for a time (iodized salt, seaweed, shrimp, etc.) and then reintroduce it to see

if that might be the culprit. We need more iodine than we normally get on an

American diet low in seaweed and fish, but one has to be off of ALL gluten for

some time (a year? Two years?) before it doesn’t activate the DH when we

reintroduce it and get the iodine up to the level we really need for health.

Connie

From:

[mailto: ] On

Behalf Of jennenault

Sent: Tuesday, April 24, 2007 6:59

PM

Subject: [ ] Re:

gluten free oats for baby?

Well, here is my story...

I go to a clinic called HealthNow in Sunnyvale.

Within 5 minutes of

talking to the doctor, he said, " Stop eating wheat. " I am 36 with a

horrible case of DH, and have been unable to lose the last 20 pounds

no matter what diet I tried. Within two weeks of gluten free, my DH

was improved. I slept at night, and I had less anxiety.

My DH is better, but not completely cured. (anyone know someone who

can help?) We started going through the other grains, and after

eliminating them ALL, I started to slowly lose the rest of the

weight. About 5 pounds a month, but I am eating healthy and

exercising, so it is SLOW! If I have a serving of any other grain,

other than gluten, I gain several pounds overnight, but my DH isn't

affected. If I go near real pasta, I get blisters and my DH is so

much worse than it ever was.

This is only by a person by person basis. By no means does everyone

who have celiac have issues with other grains. But there may be a

link. For those who aren't completely cured, it is a starting point,

I would think.

It could be though, that the corn you were eating, Eula, was just

exposed to the dreaded gluten. If you are curious, cut out corn

completely for at least a week, then introduce it plain. If you have

a reaction, you know why. If not, try it prepared a different way

several days later, i.e. Polenta, Corn Chips, Gorilla Munch, etc...

You may find it's another ingredient altogether.

I am still new to this (9 months), so please take anything I have

stated with a grain of salt. I am still working through my issues, so

I probably shouldn't be stating anything at all! I am just really

excited to have found this group!

Jenn

[Guest guest]

I’ve noticed that I too, have issues

with other grains. Oats, Rice (long grain brown rice seems to be okay).

My sister is macrobiotic, and had me go

off a bunch of foods, and talk to a friend of hers who is celiac who is also

macrobiotic. Anyway, this celiac macrobiotic told me that often there are

other grains, such as rice, that, while they do not cause a celiac reaction,

are too hard on a celiac’s digestive system. It wasn’t until

I cut out all grain, except long grain brown rice, that I noticed that short

grain brown rice hurts my tummy. Not like doubled over or anything, but enough

to feel the discomfort.

I also recall at the celiac conference

last year hearing that a certain % of folk with CD also have a celiac reaction

to Oats & other “non-gluten” grains. And, corn is a grain

– NOT a vegetable (as my son’s second grade teacher said –

grrrrrr).

I’d be happy to start a

macrobiotic/celiac thread & share what I’ve learned so far, if anyone

wants me to. But please respond & let me know you want me to,

otherwise I won’t bother. If only a few people want that info, we

can take it offline.

Oh, and amaranth ROCKS!!!! Just

plain amaranth. It’s yummy! Try it!

Lil

From: [mailto: ] On Behalf Of jennenault

Sent: Tuesday, April 24, 2007 6:59

PM

Subject: [ ] Re:

gluten free oats for baby?

Well, here is my story...

I go to a clinic called HealthNow in Sunnyvale.

Within 5 minutes of

talking to the doctor, he said, " Stop eating wheat. " I am 36 with a

horrible case of DH, and have been unable to lose the last 20 pounds

no matter what diet I tried. Within two weeks of gluten free, my DH

was improved. I slept at night, and I had less anxiety.

My DH is better, but not completely cured. (anyone know someone who

can help?) We started going through the other grains, and after

eliminating them ALL, I started to slowly lose the rest of the

weight. About 5 pounds a month, but I am eating healthy and

exercising, so it is SLOW! If I have a serving of any other grain,

other than gluten, I gain several pounds overnight, but my DH isn't

affected. If I go near real pasta, I get blisters and my DH is so

much worse than it ever was.

This is only by a person by person basis. By no means does everyone

who have celiac have issues with other grains. But there may be a

link. For those who aren't completely cured, it is a starting point,

I would think.

It could be though, that the corn you were eating, Eula, was just

exposed to the dreaded gluten. If you are curious, cut out corn

completely for at least a week, then introduce it plain. If you have

a reaction, you know why. If not, try it prepared a different way

several days later, i.e. Polenta, Corn Chips, Gorilla Munch, etc...

You may find it's another ingredient altogether.

I am still new to this (9 months), so please take anything I have

stated with a grain of salt. I am still working through my issues, so

I probably shouldn't be stating anything at all! I am just really

excited to have found this group!

Jenn

> >

> > Hello Jenn,

> >

> > It's very interesting that your nutritionist said that other

grains,

> > like rice, have a protein similar to gluten. I always thought

that

> > the gluten-containing grains, wheat etc, were very different,

and

> > hence caused the celiac reaction.

> >

> > But I've wondered, since sometimes I do seem to react to corn,

for

> > example. Do you know where I might be able to find out more about

this?

> >

> > Thanks,

> > Eula

> >

>

[Guest guest]

I believe the podcast you heard was referring to a

study carried out in Sweden and reported in the New

England Journal of Medicine.

In this study, infants who were born with a high risk

of developing celiac disease (strong first degree

family history including genotyping) were followed.

They compared when these children were introduced to

gluten vs. whether or not they developed celiac

disease (I think they followed them for 8 years but I

can't remember for sure. I can pull up the NEJM

article if people want). They found that children who

were introduced to gluten between 4-6 months had the

lowest rates of developing celiac disease later on.

It is important to note that all these infants were

still breastfed at the time of gluten introduction.

Interestingly, they noted that the rate of celiac

diagnosis increased in groups who were introduced to

gluten later...around 8-12months and beyond. This

study was specific to celiac disease and not general

wheat or gluten allergy.

Allergy advocates are the ones who say no top 10

allergens (including wheat) until after 1 year. It's

not really specific to celiac. I believe there was

also a smaller Italian study that had similar results

to the Swedish one.

This is one high profile study but it had some

interesting/promising information. There are lots of

factors to weigh in this decision.

I know that this is not considered a method of

diagnosis of celiac but IF you have had genotyping

done and know that you have one or more of the

" celiac genes " you might consider having your baby's

DNA screened. You'll know for sure then if they have

the alleles (though since we still don't know ALL the

genetic factors I wouldn't consider the absence of the

alleles to be a ticket to 'throw caution to the

wind'). I think this is valuable information to have

even though it doesn't mean the child actually does or

doesn't have celiac. I did DNA testing on my DD and

she has 2 copies of alleles associated with gluten

intolerance but non of the 'celiac genes' identified

to date.

--- jennenault <jennenault@...> wrote:

> And being intolerant myself, I totally agree. I did

> hear a british

> expert via a podcast saying that infants that are

> exposed to wheat

> between 4 and 6 months are less likely to develop an

> intolerance to

> gluten. I was skeptical, hence my question. If

> someone has heard

> something different, I am always all ears.

>

> Thanks for the info.

>

> Jenn

>

>

> > > >

> > > > Hi all,

> > > > I have an 8 month old who I am trying to keep

> > > gluten free until a

> > > year

> > > > old, when I will slowly introduce it. I bought

> > > oats from Gluten

> > > Free

> > > > Oats--is there any reason why I can't feed

> this to

> > > my little one?

> > > > If not, what other options do I have besides

> rice

> > > cereal?

> > > > Thanks!

> > > > Jill

> > > >

> > > Hi Jill -

> > >

> > > Just curious as to why you are keeping baby

> gluten

> > > free? I know

> > > there are a lot of reasons, but I was just

> curious.

>

=== message truncated ===

__________________________________________________

[Guest guest]

DNA testing can be done with a simple cheek swab. I

see no reason this can't be carried out on a newborn

other than it may be a little more challenging to get

the sample, but not a big deal. My daughter was 11mo

when we swabbed her but we would have done it earlier

if we knew how to go about it. I certainly can't make

any promises about getting an insurance company to pay

for it though. We paid for it ourselves. I would try

to use the same lab that did the rest of your family.

HTH!

--- squirt2476 <kerihourigan@...> wrote:

> Can they do gene testing on a newborn to see if they

> have the celiac

> gene? My 2 1/2 year old son was recently diagnosed

> and has a double

> gene, so my husband and I were tested. We each

> carry one gene. I

> know the chances are high that my next baby will

> have the gene ( I am

> 34 weeks pregnant) and would love to know for sure

> if she has the

> gene so we know what we are dealing with down the

> road when we

> introduce solids. Thanks for any help and input!

>

> Keri

>

>

> >

> > I believe the podcast you heard was referring to a

> > study carried out in Sweden and reported in the

> New

> > England Journal of Medicine.

> >

> > In this study, infants who were born with a high

> risk

> > of developing celiac disease (strong first degree

> > family history including genotyping) were

> followed.

> > They compared when these children were introduced

> to

> > gluten vs. whether or not they developed celiac

> > disease (I think they followed them for 8 years

> but I

> > can't remember for sure. I can pull up the NEJM

> > article if people want). They found that children

> who

> > were introduced to gluten between 4-6 months had

> the

> > lowest rates of developing celiac disease later

> on.

> > It is important to note that all these infants

> were

> > still breastfed at the time of gluten

> introduction.

> > Interestingly, they noted that the rate of celiac

> > diagnosis increased in groups who were introduced

> to

> > gluten later...around 8-12months and beyond. This

> > study was specific to celiac disease and not

> general

> > wheat or gluten allergy.

> >

> > Allergy advocates are the ones who say no top 10

> > allergens (including wheat) until after 1 year.

> It's

> > not really specific to celiac. I believe there

> was

> > also a smaller Italian study that had similar

> results

> > to the Swedish one.

> >

> > This is one high profile study but it had some

> > interesting/promising information. There are lots

> of

> > factors to weigh in this decision.

> >

> > I know that this is not considered a method of

> > diagnosis of celiac but IF you have had genotyping

> > done and know that you have one or more of the

> > " celiac genes " you might consider having your

> baby's

> > DNA screened. You'll know for sure then if they

> have

> > the alleles (though since we still don't know ALL

> the

> > genetic factors I wouldn't consider the absence of

> the

> > alleles to be a ticket to 'throw caution to the

> > wind'). I think this is valuable information to

> have

> > even though it doesn't mean the child actually

> does or

> > doesn't have celiac. I did DNA testing on my DD

> and

> > she has 2 copies of alleles associated with gluten

> > intolerance but non of the 'celiac genes'

> identified

> > to date.

> >

> >

> >

> >

>

>

__________________________________________________