Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 Hi, It seems there's been a spate of news coverage about gluten and/or Celaic Disease in the wake of the poisoned pet food crisis. Even though these topics are totally unrelated. (In the case of the pet food, the problem wasn't gluten, but gluten spiked with toxic deadly chemicals.) While I am always glad for coverage that heightens awareness of Celiac Disease, I think some of these stories have been off-base. Take for example, the May 8 New York Times article entitled " Jury Is Still Out on Gluten, the Latest Dietary Villian. " Basically it's saying that while there are people with Celiac Disease who truly need to avoid gluten, there are others who are following a trend and who probably don't need to be avoiding it. In a way the article is likening this so-called trend to the low-carb craze etc. First off, I think that there is something valid to the idea of lower- level gluten sensitivity -- and if people feel better not eating gluten even though they are not officially Celiacs, more power to them. Whatever improves their health. And plus there's lots of people who had to self-diagnose for financial and/or insurance reasons. Second, this kind of article appears to be misinforming doctors. I have been feeling really ill lately and I saw an internist two days ago, a nice man who I had seen twice before, and he expressed doubt about Celiac Disease. Have you seen the New York Times article from a couple of weeks ago? he asked. I said no, but proceeded to remind him that I had the actual disease proper, that I had been diagnosed with all the proper tests, and that he shouldn't doubt me just because he didn't have my prior records. Why did he jump to the conclusion that I had just made it up? It was really frustrating. Anyway, just thought I'd vent. Here's a link to the article. Hope it works: http://www.nytimes.com/2007/05/08/health/08glut.html? ex=1180152000 & en=b33462822436b79d & ei=5070 Otherwise you can look it up by title and date. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2007 Report Share Posted May 24, 2007 ,I was interviewed by this journalist though I ended up not letting her use our interview- she was really nasty and clearly had an agenda. This article is full of misinformation and she misquoted several people I know. Isaiah-- Gluten-Free By The Bayhttp://glutenfreebay.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 I saw that article as well last week. I'm glad I was not the only one that thought that article was off base. -- Joe http://sanbeiji.com/ " The world we have created is a product of our thinking; it cannot be changed without changing our thinking. " --Albert Einstein > From: <lillythdenaghykeogh@...> > Reply- " " < > > Date: Fri, 25 May 2007 18:32:34 +0000 > " " < > > Subject: Re: [ ] New York Times article > > I just sent the following letter to the NY Times. And, oh, Isaiah, it might > be worth it to send them what you just sent us... > > Dear New York Times, > > I was very disappointed to read your article " Jury Is Still Out on Gluten, the > Latest Dietary Villain " . As someone who never ate junk food, and therefore > did not " stop eating the beloved Twinkie " I find this article offensive to say > to the least. > > For those of us with Celiac, Outback Steakhouse & P.F. Changes can be like > Shangri-la. For many years, eating out in a restaurant was just as mythical. > The first time I ate at P.F. Chang's, I actually cried because it had been so > long since I had any Chinese food. (There is wheat in soy sauce, and > therefore most Chinese food is off-limits). > > Granted, later in the article, you did talk about symptoms and how difficult > it can be for those of us with the disease, but I found it hard to even get to > that point because the beginning of the article seems so dismissive. Your > writer seems to be saying that eating gluten-free is a " fad " diet, and that > the food industry is merely catering to a bunch of silly sheep on the latest > dietary bandwagon. I assure you, for those of us with celiac, it is nothing > short of miraculous. > > As a person who must maintain a gluten-free lifestyle, or suffer horrific > symptoms, I am appalled that your writer chose to take this tack, and even > more appalled that you would print the article. People with celiac disease, > or who suspect they may have celiac disease should be helped, not made to feel > they should not follow their " fad " diet. > > Sincerely, > > Lillyth Keogh > -------------- Original message ---------------------- > From: " Isaiah h " <isaiah.benjamin@...> >> , >> >> I was interviewed by this journalist though I ended up not letting her use >> our interview- she was really nasty and clearly had an agenda. This article >> is full of misinformation and she misquoted several people I know. >> >> Isaiah >> >> >> -- >> >> Gluten-Free By The Bay >> http://glutenfreebay.blogspot.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 It's as if we still live in the dark ages. From: SBShaft@... <SBShaft@...>Subject: [ ] Re:New York Times article Date: Wednesday, July 16, 2008, 10:01 AM Amen.....I know about this all too well. I never thought to ask if my child's school had a time-out room....until I found out my Asperger's son had been locked in one on and off for two months without my knowledge or consent. The psychological ramifications are HUGE for this. My son developed Post Traumatic Stress Disorder and has an extremely heightened anxiety level as a result. The psycotherapy costs have been substantial. ..and there's no end in sight. When the new school year begins for many next month, I would strongly advise parents to ask if their child's school has an isolation room. You may be very surprised to learn they have one. If so, I'd ask to see it. And, while you're looking at it, decide if it's the kind of thing you want to have used as an "intervention" for your child. If not, speak up...and put your request for it not to be used on your child in writing. It may be the best thing you ever do. The Famous, the Infamous, the Lame - in your browser. Get the TMZ Toolbar Now! Quote Link to comment Share on other sites More sharing options...
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