Re: Glutenzyme and Spectrumzyme

[Guest guest]

Ruth, can you tell us something more about yourself and your disorder?

H.

[Guest guest]

Has anyone else tried these? I heard about this a few months ago and also read the press on the recent Stanford research on enzyme cocktails that could potentially break down all the gluten into easily-digestible compounds.

More info on the Stanford research here:http://soe.stanford.edu/research/pdf_khosla.pdf

http://www.sciencedaily.com/releases/2006/06/060630083712.htmThis is all very interesting. I'm sure we'll all want to watch these developments, since it would be nice to have a prescription for something that would prevent us all from doubling over ever time a spec of what flour accidentally passed our lips...

cheers,-JoeOn 2/12/07, ruthebaillie <ruthebaillie@...> wrote:

Just briefly, I was diagnosed with celiac and year ago and although I've been super careful,for the last year, I still haven't been doing well. I had developed alot of other foodallergies, digestion problems, leaky gut etc - but now, for the first time in ages, I've had

two good months!!!And the only difference has been that I have been taking these new digestive tablets -Spectrumzyme and glutenzyme. I haven't looked into the full research results yet etc - Ijust know that for me, I am actually feeling good. Spectrumzyme I take with every meal

and it contains a variety of digestive enzymes - including a low dose of glutenzyme - anenzyme that breaks down gluten. When I eat out and I'm worried about contamination ofmy food with wheat - I take both the spectrumzyme and the glutenzyme - the glutenzyme

is a high dose of the gluten enzyme. I haven't changed my diet - I still eat gluten free -but the tablets seem to have helped me immensely.They come from England - where they are a lot more progressive with coeliac - and you

can get them from www.foodreactions.orgAll I am saying is that for me - I feel well again after so long. No more of any celiacsymptoms at all!!! Who knows - maybe it was just my time......but if you are interested,

look at the website. I am in no way connected with this organization - but found it when Iwas looking up some other research. It seems that a lot of people that post on this groupare feeling pretty good generally anyhow - but just get hit with contamination or hidden

gluten - so maybe the glutenzyme would help?I am just so relieved. And so felt I had to share it in case it helps anyone else.Take careRuth

[Guest guest]

We are all certainly hoping for this.

Stanford’s research is NOT at market yet – that means that someone has hopped

on the bandwagon and is selling something that has NOT had the proper clinical

trials to show that it 1) works and 2) won’t hurt you. So buyer beware!!

Connie

From:

[mailto: ] On Behalf Of Joe

Sent: Thursday, February 15, 2007

3:49 PM

Subject: Re: [ ]

Glutenzyme and Spectrumzyme

Has anyone else tried these? I heard about this a few

months ago and also read the press on the recent Stanford research on enzyme

cocktails that could potentially break down all the gluten into

easily-digestible compounds.

More info on the Stanford research here:

http://soe.stanford.edu/research/pdf_khosla.pdf

http://www.sciencedaily.com/releases/2006/06/060630083712.htm

This is all very interesting. I'm sure we'll all want to watch

these developments, since it would be nice to have a prescription for something

that would prevent us all from doubling over ever time a spec of what flour

accidentally passed our lips...

cheers,

-Joe

On 2/12/07, ruthebaillie

<ruthebailliemac>

wrote:

Just briefly, I was

diagnosed with celiac and year ago and although I've been super careful,

for the last year, I still haven't been doing well. I had developed

alot of other food

allergies, digestion problems, leaky gut etc - but now, for the first time in

ages, I've had

two good months!!!

And the only difference has been that I have been taking these new digestive

tablets -

Spectrumzyme and glutenzyme. I haven't looked into the full research

results yet etc - I

just know that for me, I am actually feeling good. Spectrumzyme I

take with every meal

and it contains a variety of digestive enzymes - including a low dose of

glutenzyme - an

enzyme that breaks down gluten. When I eat out and I'm worried about

contamination of

my food with wheat - I take both the spectrumzyme and the glutenzyme - the

glutenzyme

is a high dose of the gluten enzyme. I haven't changed my diet - I

still eat gluten free -

but the tablets seem to have helped me immensely.

They come from England

- where they are a lot more progressive with coeliac - and you

can get them from www.foodreactions.org

All I am saying is that for me - I feel well again after so long. No

more of any celiac

symptoms at all!!! Who knows - maybe it was just my time......but if

you are interested,

look at the website. I am in no way connected with this organization

- but found it when I

was looking up some other research. It seems that a lot of people

that post on this group

are feeling pretty good generally anyhow - but just get hit with contamination

or hidden

gluten - so maybe the glutenzyme would help?

I am just so relieved. And so felt I had to share it in case it

helps anyone else.

Take care

Ruth

[Guest guest]

Lovely. Not thinking again. I really should have realized #1 and #2

seeing as I work in biotech. I just ordered gluten-zyme from a

company in England. I'll report back with my results once I get the

pills.

Man, I just did an audit at a clinical sit as well. Nice.

>

> Just briefly, I was diagnosed with celiac and year ago and although

I've

> been super careful,

> for the last year, I still haven't been doing well. I had

developed alot of

> other food

> allergies, digestion problems, leaky gut etc - but now, for the

first time

> in ages, I've had

> two good months!!!

>

> And the only difference has been that I have been taking these new

digestive

> tablets -

> Spectrumzyme and glutenzyme. I haven't looked into the full

research

> results yet etc - I

> just know that for me, I am actually feeling good. Spectrumzyme I

take with

> every meal

> and it contains a variety of digestive enzymes - including a low

dose of

> glutenzyme - an

> enzyme that breaks down gluten. When I eat out and I'm worried

about

> contamination of

> my food with wheat - I take both the spectrumzyme and the

glutenzyme - the

> glutenzyme

> is a high dose of the gluten enzyme. I haven't changed my diet - I

still

> eat gluten free -

> but the tablets seem to have helped me immensely.

>

> They come from England - where they are a lot more progressive with

coeliac

> - and you

> can get them from www.foodreactions. <http://www.foodreactions.org>

org

>

> All I am saying is that for me - I feel well again after so long.

No more

> of any celiac

> symptoms at all!!! Who knows - maybe it was just my time......but

if you

> are interested,

> look at the website. I am in no way connected with this

organization - but

> found it when I

> was looking up some other research. It seems that a lot of people

that post

> on this group

> are feeling pretty good generally anyhow - but just get hit with

> contamination or hidden

> gluten - so maybe the glutenzyme would help?

>

> I am just so relieved. And so felt I had to share it in case it

helps

> anyone else.

>

> Take care

> Ruth

>

>

>

>

>

[Guest guest]

Ruth, to be honest about it, I asked for more details because your message was so well written I feared it was commercial, not from a 'real person". Every now and then a spammer for a health-related product slides through our approval net.

I'm glad to learn my suspicions were unfounded.

H.

[Guest guest]

Ah, if only I could find a Japanese restaurant that made eel in wheat-free soy. My problem isn't so much putting soy sauce onto food when I eat out, but the soy sauce that's incorporated into dishes. When I first was diagnosed, I was very careful. I ate Chinese food only at a place that's noted for its healthful cooking; the owner founded it on that basis. It carefully cleans the woks between dishes, so vegetarians don't have to worry. They are meticulous. I established a relationship with one waiter, a student majoring in childhood nutrition; her younger brother has CD. She went through the menu with me to note the ones people with CD shouldn't eat. Months later, she was off duty, and my waiter was a nurse. I told her my parameters, and she said that was really a problem, as the bases for ALL the dishes, all the vegetables and meat, were put in a soy-sauce marinade before the place opened for the evening. She arranged for vegetables to be freshly cut with clean knives and sauted in a clean wok, and she put them together with plain rice. It was okay. All those months , I'd been eating there two or three times a week, thinking I was eating completely GF ---. I haven't been back, mostly because it's too much trouble for the bland results, even when I take along my own condiments.

The restaurant, incidentally, is in the Marina in SF. I don't want to disparage it; they are very careful, but their dishes aren't really compatible with eating GF.

H.

I'm giving you this lengthy story because something like it may be happening to some of you.

In a message dated 2/16/07 1:04:42 PM, seamaiden399@... writes:

There are a lot of alternatives to intentionally eating wheat

soy sauce though- like Kari Out gluten free soy sauce packets, or,

carrying a small flask with gluten free soy sauce. My husband bought

me one at Spencer gifts (i think) with an Amy Brown fairy on it- it's

cute AND really handy, with no leakage issues. I don't like sushi

plain either, but there really are alternatives. pl

[Guest guest]

Glutenzyme and Spectrumzyme are nutritional supplements and therefore

will not be tested through clinical trials. Like vitamin tablets and

probiotics and the such that we all take and don't wait on clinical

trials.........It is for this reason that I specifically noted in my

report that these were just my responses and that I hadn't seen

" research " .

I just put the two products " out there " as they have helped me

personally. Now I feel like I shouldn't have even mentioned it!

Ruth

[Guest guest]

Ruth,

Mostly I just did not want anyone

confusing the work being done at Stanford with this nutritional

supplement. I personally use a bauxite clay called Pascalite (www.pascalite.com) to help calm my system

after a glutenization or before I eat out when I am afraid of cross

contamination. My dietician recommended another clay and ox bile tablet

for the same purpose. And I have certainly heard of the usefulness of

enzymes. But none of this has been tested in anything like a scientific

way – and it may even be that each of us is different enough that even

clinical trials will not really give each of us the answer to the question of

how to live in a fully glutened society.

I would like to apologize for my frankly

bitchy response – I will plead that shortly after I answered the email I

did get my typical glutened headache and gut response. I’m still

working out how to tell when I’ve been poisoned and not inflict it on the

people around me – bitchiness is one very obvious symptom.

Connie

From:

[mailto: ] On Behalf Of ruthebaillie

Sent: Friday, February 16, 2007

9:30 AM

Subject: [ ] Re:

Glutenzyme and Spectrumzyme

Glutenzyme and Spectrumzyme are nutritional

supplements and therefore

will not be tested through clinical trials. Like vitamin tablets and

probiotics and the such that we all take and don't wait on clinical

trials.........It is for this reason that I specifically noted in my

report that these were just my responses and that I hadn't seen

" research " .

I just put the two products " out there " as they have helped me

personally. Now I feel like I shouldn't have even mentioned it!

Ruth

[Guest guest]

I'm personally glad you mentioned it and I can't wait to try out the

pills. It gave me hope! Heck, I can't wait to see if I can handle soy

sauce with my sushi.

--- In , ruthebaillie <ruthebaillie@...>

wrote:

>

> Glutenzyme and Spectrumzyme are nutritional supplements and therefore

> will not be tested through clinical trials. Like vitamin tablets and

> probiotics and the such that we all take and don't wait on clinical

> trials.........It is for this reason that I specifically noted in my

> report that these were just my responses and that I hadn't seen

> " research " .

>

> I just put the two products " out there " as they have helped me

> personally. Now I feel like I shouldn't have even mentioned it!

>

> Ruth

>

[Guest guest]

I think it's good to mention it, as enzymes can be helpful in aiding

digestion- and I think how you are trying to use them is probably the

best way, with remaining gluten free but using them in cases with

higher risks of cross contamination.

They are not the same thing they are working on at Stanford, which is

still a dream for the future, but that doesn't mean they can't help

people feel better. As you know though, they just aren't the magic

cure to make it safe for us to purposefully eat gluten though... even

if your stomach feels better , that doesn't mean the antibodies which

are so damaging to our long term health will not be activated.

I know it would be more convenient to eat soy sauce at the sushi

restaurant- but pills or no, it's still not good for your body to eat

it on purpose... we get enough gluten accidentally to mess us up,

right? There are a lot of alternatives to intentionally eating wheat

soy sauce though- like Kari Out gluten free soy sauce packets, or,

carrying a small flask with gluten free soy sauce. My husband bought

me one at Spencer gifts (i think) with an Amy Brown fairy on it- it's

cute AND really handy, with no leakage issues. I don't like sushi

plain either, but there really are alternatives...

And maybe someday there will be a product that will allow us to cheat-

I just don't think it's out there yet.

Best wishes,

Peace,

B-

> >

> > Glutenzyme and Spectrumzyme are nutritional supplements and therefore

> > will not be tested through clinical trials. Like vitamin tablets and

> > probiotics and the such that we all take and don't wait on clinical

> > trials.........It is for this reason that I specifically noted in my

> > report that these were just my responses and that I hadn't seen

> > " research " .

> >

> > I just put the two products " out there " as they have helped me

> > personally. Now I feel like I shouldn't have even mentioned it!

> >

> > Ruth

> >

>

[Guest guest]

Yes -- no more unagi. And I was dismayed to learn that miso is usually wheat-based.

H.

[Guest guest]

I haven't been able to find travel packs of wheat-free soy sauce, and since I travel a lot & love sushi, it's really annoying. Of course in SF, where I live, it's no problem to bring along my bottle (tho I've left a few on tables at various Japanese restaurants). If anyone knows where to get drip free, wheat free soy sauce packages, I'd love to know. Re the tone of the enzyme discussion, I hope Ruth continues to post. Sometimes we all hit the send button too soon. Sharon seamaiden399 <seamaiden399@...> wrote: I think it's good to mention it, as enzymes can be helpful in aidingdigestion- and I think how you are trying to use them is probably thebest way, with remaining gluten free but using them in cases withhigher risks of cross contamination.They are not the same thing they are working on at Stanford, which isstill a dream for the future, but that doesn't mean they can't helppeople feel better. As you know though, they just aren't the magiccure to make it safe for us to purposefully eat gluten though... evenif your stomach feels better , that doesn't mean the antibodies whichare so damaging to our long term health will not be activated. I know it would be more convenient to eat soy sauce at the sushirestaurant- but pills or no, it's still not good for your body to eatit on purpose... we get enough gluten accidentally to mess us

up,right? There are a lot of alternatives to intentionally eating wheatsoy sauce though- like Kari Out gluten free soy sauce packets, or,carrying a small flask with gluten free soy sauce. My husband boughtme one at Spencer gifts (i think) with an Amy Brown fairy on it- it'scute AND really handy, with no leakage issues. I don't like sushiplain either, but there really are alternatives... And maybe someday there will be a product that will allow us to cheat-I just don't think it's out there yet.Best wishes,Peace,B-> >> > Glutenzyme and Spectrumzyme are nutritional supplements and therefore > > will not be tested through clinical trials. Like vitamin tablets and > > probiotics and the such that we all take and don't wait on clinical > > trials.........It is for this reason that I specifically noted in my > > report that these were just my responses and that I hadn't seen > > "research".> > > > I just put the two products "out there" as they have helped me > > personally. Now I feel like I shouldn't have even mentioned it!> > > > Ruth> >>

[Guest guest]

I have never seen Kari Out in stores, but you can order them online at:

http://www.minimus.biz/SearchResult.aspx?KeyWords=kari%20out

(or go to www.minimus.biz and search for kari out.)

I heard about them on another message board and think they are great.

I became notorious in Okazaki Japan in all the revolving sushi places

as " that foreigner who leaves a weird little bottle with soy sauce on

the table half the time she comes here, " so i feel your pain. Since

I'm out of kari out right now, my little flask works well, but i

would definitely order them again. Sealed= so very convenient.

And I too want to learn how to make unagi with the special sauce...

sigh... there's just no buying them without the sauce, alas. I've

pretty much given up on Chinese food out, unless it is P.F. Chang's or

Pei Wei, both of which I LOVE. (they have gluten free menus)

-B

> > >

> > > Glutenzyme and Spectrumzyme are nutritional supplements and

therefore

> > > will not be tested through clinical trials. Like vitamin tablets

and

> > > probiotics and the such that we all take and don't wait on clinical

> > > trials.........It is for this reason that I specifically noted

in my

> > > report that these were just my responses and that I hadn't seen

> > > " research " .

> > >

> > > I just put the two products " out there " as they have helped me

> > > personally. Now I feel like I shouldn't have even mentioned it!

> > >

> > > Ruth

> > >

> >

>

[Guest guest]

Yes, usually only white miso is gluten free, and sushi places often

serve red or other barley based miso. But, the bright spot is that you

can fairly easily find gluten free miso to prepare at home at health

food stores or some Asian markets. I buy Cold Mountain Miso, which has

all kinds of varieties that are clearly labeled gluten free, including

a red miso made from brown rice. They are a local company, but ship

nationwide:

http://www.coldmountainmiso.com/

>

> Yes -- no more unagi. And I was dismayed to learn that miso is

usually

> wheat-based.

> H.

>

[Guest guest]

Don’t you mean “wheat-free

tamari”? ;-) or braggs? ;-)

Just a little sick & bitter celiac

joke. So sue me, I have dark humor…

(after all that, I hope at least one person laughs at my joke)

From: [mailto: ] On Behalf Of carlinao

Sent: Friday, February 16, 2007

11:36 AM

Subject: [ ] Re:

Glutenzyme and Spectrumzyme

I'm personally glad you mentioned it and I can't wait

to try out the

pills. It gave me hope! Heck, I can't wait to see if I can handle soy

sauce with my sushi.

--- In ,

ruthebaillie <ruthebaillie@...>

wrote:

>

> Glutenzyme and Spectrumzyme are nutritional supplements and therefore

> will not be tested through clinical trials. Like vitamin tablets and

> probiotics and the such that we all take and don't wait on clinical

> trials.........It is for this reason that I specifically noted in my

> report that these were just my responses and that I hadn't seen

> " research " .

>

> I just put the two products " out there " as they have helped me

> personally. Now I feel like I shouldn't have even mentioned it!

>

> Ruth

>

[Guest guest]

I'm sorry to hear about your illness. I hope you knew your valentine well beforehand.

I got terribly ill after eating at my beloved, now-departed Cafe Marimba; a few hours later, I went to the hospital and stayed for three days. However, the doctors said it was more likely a virus than food poisoning.

Yes, the Chinese restaurant was Dragonwell. The server I first had seemed completely knowledgeable and helpful -- but it turned out that either she didn't know that soy sauce usually contains wheat, or she didn't know that the dishes were prepped with it.

Perhaps they've changed their practices recently.

I'd love to go back to Dragonwell, but it's not worth the trouble if I'm only going to have steamed rice and plain vegetables. And pouring on some tamari at the table just doesn't help it enough.

Every one there has been pleasant and eager to help, but a couple of years ago it wasn't workable for me.

A couple of weeks ago I had lunch at Betelnut. The server had just decided she might have CD and had been reading up on it. She was eager to talk about it that I feared for her job. She checked on every dish. My husband and I decided to split a rice pudding for dessert. She said that was a safe choice. She brought it to the table with beautiful, lacey cookie triangles inserted in the pudding. I said I couldn't eat that -- "oh, I know you can't. The cookies are for your husband!" She had no idea that you can't just pull cookies out of a dessert and call it GF. People generally mean so well. I remind myself that I was pitifully ignorant at first, and I didn't know what I didn't know.

I order out from Gatip a lot. Only a few of their dishes contain soy sauce. I've had good luck so far by having the soy sauce omitted and adding Thai Kitchen seasonings at home. The owner is sort of a California surfer dude, and on the nights he's there I can find out what's in dishes that interest me.

I leafed through a magazine called "Living Gluten-Free" or something like that -- I don't think it was worth $8, so I didn't buy. I was interested to see that the FDA rejected a claim from a manufacturer that spelt was gluten-free. The FDA ruled that spelt is by every definition the same as wheat, so products containing it must specify wheat in the ingredients and can't be called GF. Also, I saw that farro is just the Italian name for spelt. I thought farro was still another form of wheat -- it became trendy about three years ago.

For lunch, I made myself a Thai soup. It's not very difficult once you've done it a couple of times -- it's not particularly authentic, but it tastes good. Even when I'm missing an ingredient or two and have to improvise, it's still good.

I'm up at Sea Ranch, as I am most of the time. Rain is coming down, the radio is playing a wonderful program of Brazilian jazz, and a cup of tea and Pamela's Pecan Shortbread Cookies are near at hand. Too near, actually.

Harper

In a message dated 2/21/07 7:28:16 PM, suki@... writes:

Was it Dragonwell you were referring to? They seem so knowledgeable and helpful there. I didn't have to explain to them what gluten is at all -- everyone there seems totally up on it.

************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Hi Harper,I just read your email:I have just started eating at Dragonwell and ate there a couple times and it seemed to go fine. They make me the stir-fried chicken and vegetables. But... the weekend before valentines we got dinner there on Sunday night. I ate it that night, and leftovers on Monday afternoon and Monday night. I started having really bad pains on Tuesday afternoon and by Wednesday night (Valentines -- so much for romance) I was terribly ill. Probably more ill than I've ever been.

The only thing I could narrow it down to was if the Dragonwell dish may have had contamination and eating it three meals in a row caused a gradual reaction instead of the sudden reaction I got one time when I was given the wrong noodles (at a different restaurant altogether.)

Was it Dragonwell you were referring to? They seem so knowledgeable and helpful there. I didn't have to explain to them what gluten is at all -- everyone there seems totally up on it.Thanks,Suki

On 2/16/07, flatcat9@... <flatcat9@...> wrote:

Ah, if only I could find a Japanese restaurant that made eel in wheat-free soy. My problem isn't so much putting soy sauce onto food when I eat out, but the soy sauce that's incorporated into dishes. When I first was diagnosed, I was very careful. I ate Chinese food only at a place that's noted for its healthful cooking; the owner founded it on that basis. It carefully cleans the woks between dishes, so vegetarians don't have to worry. They are meticulous. I established a relationship with one waiter, a student majoring in childhood nutrition; her younger brother has CD. She went through the menu with me to note the ones people with CD shouldn't eat. Months later, she was off duty, and my waiter was a nurse. I told her my parameters, and she said that was really a problem, as the bases for ALL the dishes, all the vegeta!

bles and meat, were put in a soy-sauce marinade before the place opened for the evening. She arranged for vegetables to be freshly cut with clean knives and sauted in a clean wok, and she put them together with plain rice. It was okay. All those months , I'd been eating there two or three times a week, thinking I was eating completely GF ---. I haven't been back, mostly because it's too much trouble for the bland results, even when I take along my own condiments.

The restaurant, incidentally, is in the Marina in SF. I don't want to disparage it; they are very careful, but their dishes aren't really compatible with eating GF.

H.

I'm giving you this lengthy story because something like it may be happening to some of you.

In a message dated 2/16/07 1:04:42 PM, seamaiden399@... writes:

There are a lot of alternatives to intentionally eating wheat

soy sauce though- like Kari Out gluten free soy sauce packets, or,

carrying a small flask with gluten free soy sauce. My husband bought

me one at Spencer gifts (i think) with an Amy Brown fairy on it- it's

cute AND really handy, with no leakage issues. I don't like sushi

plain either, but there really are alternatives. pl